by Jennifer Crystal

Every day, I receive emails from people who have recently been diagnosed with Lyme disease. As most of us do when we hear a new medical term or leave a doctor’s office, these people frantically search the web looking for information. Sometimes they come across one of my blog posts. Then they write with questions about treatment, with requests for finding a good doctor and with prayers that I will be able to offer them some hope. Most of all, they want to know: “What do I do to get better?”

Because I find myself offering the same responses to many such patients, I thought I would create a “School of Lyme For the Newly Diagnosed.” Consider this a brief survey course on tick-borne illness, open to anyone who wants to learn the basics of what to do when you get (or suspect) a Lyme diagnosis.

Lesson 1: It’s Lyme, not Lyme’s!

It’s important to know the correct name of your disease! Many people mistakenly call it Lyme’s disease, assuming it was discovered by a Dr. Lyme. In fact, Lyme is named for the town in which it was first detected: Lyme, Connecticut. As for the names of co-infections, those are not as simple, but should still be part of your working vocabulary; we’ll get to those in Lesson 5.

Lesson 2: All cases are different

Everyone’s looking for a one-size-fits-all treatment protocol. Unfortunately, that doesn’t exist, and here’s why: Lyme bacteria, called spirochetes, impact every victim differently. It depends how quickly the infection was caught and diagnosed; how far it’s spread, and to where. The bacteria can affect different organs, muscles, bones and cells in different patients. It can cross the blood-brain barrier and enter the central nervous system. Moreover, there may be co-infections present—the list goes on and on. A Lyme doctor can see a thousand patients and use a thousand different protocols. Telling you what antibiotics I took won’t help you; you need to work with your doctor to figure out the best combination for you.

Lesson 3: Find an LLMD

An LLMD is a Lyme Literate Medical Doctor. This is a physician who has trained with ILADS (The International Lyme and Associated Diseases Society). Some practitioners claiming to be Lyme literate may not be versed in all tick-borne disease. The best way to know you are getting good treatment is to make sure your doctor is ILADS-trained. You can find an ILADS-trained physician in your area through Global Lyme Alliance, by clicking on

Lesson 4: Get tested for co-infections

Unfortunately, ticks don’t only carry Lyme disease. Many of them harbor what are known as co-infections: other tick-borne diseases besides Lyme. The most common are babesiosis, ehrlichiosis, anaplasmosis, and bartonella, but there are many others. It’s critical that you get tested for co-infections along with Lyme disease. If you are receiving treatment for Lyme and haven’t been tested for other tick-borne infections, you may be fighting only half the battle.

Lesson 5: Take probiotics

Antibiotics kill spirochetes, but they also kill the good bacteria in your gut, which can cause a yeast infection. To combat this, take probiotics (available at any pharmacy or health food store). Important: make sure you take the probiotics at least two hours before or after you take the antibiotics; if you take them too close together, the antibiotics will kill the probiotics.

Lesson 6: Don’t panic

The information available at our fingertips in this internet age is a double-edged sword. You may read stories that terrify you. Remember, every case of Lyme disease is different. If you catch tick-borne illnesses and treat them immediately, chances are you will not suffer as long those who have been sick for many years. Don’t let my story or those of other chronically ill patients frighten you. Do let these stories offer you hope, however, especially if you have been sick for a long time. I am living proof that even the worst cases of tick-borne illness can eventually be wrestled into remission. I am living proof that long-term treatment works. I am living proof that it’s a long road between being bedridden and skiing, but it can be traveled.

Most importantly, know that you are not alone in this fight. There are many of us battling tick-borne diseases right alongside you. We feel your pain. We validate your suffering. And we know that it can get better. There is hope!

jennifer crystal

Opinions expressed by contributors are their own.

Jennifer Crystal is a writer and educator in Boston. She has written a memoir, One Tick Stopped the Clock for which she is seeking representation. Contact her at:



  1. Lyme’s been around since the beginning of time:, and  Wisconsin has the first published case from Taylor County in 1969:—lyme-connecticut-that-is.html  This article discusses how dermatologist Dr. Rudolf J. Scrimenti diagnosed the Borrelia infection and described both neurologic and arthritic symptoms exhibited by the patient. He took his knowledge & experience, and attempted to educate Dr. Steere, the person called to the scene of the Lyme, Connecticut “outbreak.”  Excerpt:  Scrimenti even corresponded with Steere and visited Yale to inform him of the long European history and strong possibility that the Lyme clusters were likely a form of Borreliosis. However, Steere, the rheumatologist-to-be had been summoned to investigate outbreaks of juvenile rheumatoid arthritis. After extensive study and consideration, guess what he concluded? He believed that he was observing a previously unrecognized form of JRA.  And, we’ve been paying for it ever since.
  2. Doctor lists constantly change.  The best way for you to find credible doctors is through your local support group. While organizations like Global Lyme Alliance are a place to start, they aren’t aware of changes that can occur quite rapidly.  You can also ask people their experiences with various doctors, keeping in mind that people are going to have differing opinions.
  3. Testing for coinfections is abysmal.  Most LLMD’s will diagnose and treat people clinically, which means, individually based on symptoms.  Seronegativity is common with Lyme/MSIDS which just means you can test negative over and over and over yet be infected.  I’ve found that getting a negative on a test can lead to a false sense of security.  Also, treating this for many people is like peeling an onion.  You start out with certain symptoms and then as you treat, other symptoms can rear their ugly little heads.  For instance, we started treating for Lyme only to discover further down the road Babesia symptoms which needed addressing.
  4. Taking probiotics is a great place to start; however, as Dr. Burrascano states, “Now is the time for pristine health habits.”  Eat a whole-food based diet and avoid junk food, soda, alcohol, and anything that could lower your immune system & cause inflammation: and  Many patients also find they are sensitive to many things and omitting dairy or gluten, for instance, can really help some patients.  Being willing to try things is important as sometimes the only way we learn is by trying.  Support groups are also good for this type of information.  You will find people who are making their own bone broth, kefir/yogurt, kombucha, and have ideas for recipes that are healthy yet don’t taste like cardboard.
  5. Treating this is unlike anything else you’ve ever treated.  Treatment is hard and costly.  You feel far worse for a long time before you start feeling better.  This is one of the hardest things to accept as a patient, but accept it you must.  People are so relieved to finally be diagnosed that starting treatment is like a slap in the face.  They expect to feel better but in fact, they feel worse.  This is due to the herxheimer reaction:  Also, once patients hit a plateau, LLMD’s switch the meds around typically bringing back the dreaded herx.  You go up and down like the waves of the sea.  You have many bad days and a few good.  You have to learn to adjust your life around Lyme/MSIDS.  It will sift you like wheat and you will find in the end you are made of much sterner stuff than you ever realized.  For more:
  6. The silver lining.  After this you never take life for granted (or a day without pain!) and you become much more aware of and sympathetic of others.  All in all, it makes you a better human and God knows, we need more of them!


This website claims the following four Wisconsin offices use mercury-free dentistry:

  1.  Madison No Fear Dentistry 344 S. Yellowstone Drive, Madison WI 53705, (608) 338-0629.
  2.  Integrative Dental SolutionsN35W23770 Capitol Drive, Pewaukee, WI (262) 226-2117 and 6789 North Green Bay Ave, Glendale, WI (414) 234-5712.
  3.  WisconsinSmiles 1469 S. 70th St, West Allis  WI  53214 (414) 383-5833  Couldn’t find anything on website about mercury-free fillings.
  4.  Menomonie Street Dental 1020 Menomonie Street, Eau Claire, WI 54703 (715) 834-8161. Couldn’t find anything on website about mercury-free fillings.
For numbers 3 & 4, above, make sure you call and determine if they are truly mercury-free.

COUNTERPOINT: Hitting the wall of denial with chronic Lyme

Dr. Robert Strang, Nova Scotia’s chief medical officer of health, retweeted a tweet that called into question the existence of chronic Lyme disease. - The Canadian Press
Dr. Robert Strang, Nova Scotia’s chief medical officer of health, retweeted a tweet that called into question the existence of chronic Lyme disease. – The Canadian Press

First, do no harm. This is a maxim of medicine.

Over the past few weeks, I have watched, listened to and read some of the most unprofessional, non-evidence-based, vitriolic, untrue and demeaning garbage about Lyme disease and patients who suffer from it. My friend, fellow patient advocate and author of The Cancer Olympics, Robin McGee, remarked to me on this sorry affair:

“How discouraging for all patient advocates, when those in power cheer on the silencers.”

First there was a retweet by our chief medical officer, Dr. Robert Strang, of a post from the questionable website. Then there were musings by law student Andrea MacGregor, in a Feb. 2 Counterpoint, “ ‘Chronic Lyme’ movement hazardous to health.

In my opinion, these had one purpose, and one purpose only — and that was to stir up anti-Lyme-patient sentiment among the public and health-care professionals. It’s a defence mechanism — because they are wrong, and they have realized that the scientific evidence against their arguments is irrefutable.

Dr. Strang has since released a prepared statement that indicated he cared about misinformation, that he did not realize that his retweet would cause such an outcry, and that he’d be more careful with his future social media posts. But he didn’t care enough to tweet any apology, nor state that if he could, he’d remove his retweet.

As for Ms. MacGregor, she did make a few common-sense points about some marketers and businesses taking advantage of vulnerable and desperately ill patients. Other than that, she presented no evidence whatsoever with regard to the scientifically accepted fact of chronic Lyme disease.

Denial has serious consequences.

In late summer 2018, a coroner’s office in Quebec and a separate Canadian laboratory both confirmed that the body of a young man, who had died by suicide — because, his mother told a Quebec media outlet, he could no longer endure the pain and suffering of his illness — was infected with the Lyme bacterium. He had sought help for Lyme disease for years from many Canadian doctors, only to be told there was nothing wrong, and that it was all in his head. He received no help. Dead. Aged 27!

Chronic Lyme disease, properly called late disseminated Lyme disease, is a well-documented and established medical and scientific fact. This stage of the disease is nothing like early acute localized Lyme disease. Late-stage Lyme disease is a highly dangerous, debilitating and life-changing illness caused by the spirochete bacterium called Borrelia burgdorferi. There is no debate about chronic Lyme disease, at least not in the scientific field. Just denial by a few doctors — the chronic Lyme deniers.

What Dr. Strang and Dr. Todd Hatchette, chief microbiologist for the Nova Scotia Health Authority, fail to tell you is that there are over 700 peer-reviewed and published scientific and medical articles that clearly demonstrate the persistence of infection of Lyme disease, sometimes even after treatment with short courses of antibiotics.

All health-care professionals and the general public should be made aware of the latest non-human primate studies recently published in two esteemed and peer-reviewed science and medical journals, PLOSONE and American Journal of Pathology, written by Embers and colleagues (January 2012 and March 2018, respectively), from Tulane National Primate Research Center, Tulane University Health Sciences. These studies unequivocally demonstrate persistence of the Lyme disease bacterium in body tissues and organs, even after the standard courses of antibiotics.

Rhesus macaque monkeys (which are very close to us genetically) were infected with the Lyme disease bacteria and the disease was allowed to progress to the late disseminated stage (the chronic stage). The monkeys were then treated with the standard 28-day course of doxycycline — the primary antibiotic of choice for Lyme disease treatment. Several months after treatment had ended, the monkeys were euthanized and necropsies carried out.

Lyme disease spirochetes were found in the brains and hearts of these treated monkeys, and in the peripheral nerves of an untreated macaque. Despite negative blood tests, these monkeys were positive by DNA tests, and the spirochete bacteria could be seen with specialized microscopes.

The Embers studies also validate the recent published findings of “persister cells,” after treatment with antibiotics, by Lewis et al, from Northeastern University, and of Zhang and colleagues at Johns Hopkins, Bloomberg School of Public Health.

Lewis demonstrated that some Lyme disease bacteria are “persisters”— they are alive but lie dormant. Since antibiotics only attack actively functioning bacteria, these persisters escape the killing activity of the drugs. Once the antibiotics have been flushed from the system, the bacteria “wake up,” can begin dividing again, and infection is, again, imminent.

The work of Caballo and his team at New York Medical College, the very place from where the IDSA Lyme guidelines originate, also supports the above researchers. In his article, published in Environmental Microbiology in 2017, Caballo described “sleeper cells” of Lyme bacteria capable of changing shape and hiding in the body (a great defence mechanism, by the way) while the patient is taking antibiotics. These bacteria then reappear in their original form when the coast is clear — i.e., when there are no longer antibiotics in the bloodstream — thereby “persisting” after treatment with antibiotics.

All of these recent studies confirm what many other researchers already knew. For example, Dr. Russell Johnson from the University of Minnesota, in collaboration with the U.S. government, stated, back in 1986, when he filed research evidence to the U.S. Patent Office for the Lyme vaccine (U.S. Patent 4,721,617), the following:

“The chronic forms of the disease such as arthritis (joint involvement), acrodermatitis chronica atrophicans (skin involvement), and Bannwart’s (sic) syndrome (neurological involvement) may last for months to years and are associated with the persistence of the spirochete. A case of maternal-fetal transmission of B. burgdorferi resulting in neonatal death has been reported... The infection may be treated at any time with antibiotics such as penicillin, erythromycin, tetracycline, and ceftriaxone. Once infection has occurred, however, the drugs may not purge the host of the spirochete but may only act to control the chronic forms of the disease. Complications such as arthritis and fatigue may continue for several years after diagnosis and treatment.”

What part of all of this conclusive evidence do Drs. Strang, Hatchette and Co. not understand or “believe”? There’s nothing to not believe — it’s not a religion; it’s science! And you either accept it or you don’t. Denial doesn’t make it not exist. And resorting to anti-scientific statements and unprofessional tactics of retweets won’t make the truth or the facts go away. Drs. Strang and Hatchette are wrong. Again.

All of this is reminiscent of what happened with the tainted blood scandal in the 1980s, and many parallels can be drawn with the current CBC mini-series, Unspeakable. Back then, continued denial of the problem of HIV in the blood system by some leaders in the medical establishment and government officials resulted in ruined lives and many deaths.

Make no mistake: harm is being done.

One can see, if one reads the literature, that the truth of — and the evidence for — chronic Lyme disease is scientifically credible, conclusive, undeniable, irrefutable fact. Period.

Jane Bailey lives in Wolfville. She has science and education diplomas and is a member of The Royal Society for Public Health.


For the original story:

For more:

Lyme is ‘All in Your Head’ – A Wake-up Call to Mental Health Professionals

Every day, in doctors’ offices across the US—as well as in Canada, the UK, Ireland, Amsterdam, Australia, Sweden, in 80 countries and on every continent—chronic Lyme disease sufferers are being told that their debilitating, destructive, multi-systemic illness is nothing more than a small nuisance condition that is really just ‘all in their head’.

For more than forty years, mainstream medicine has kept chronic Lyme disease in the shadows. The disease itself, as well as the political machinations of this disease, plunges sufferers down a complicated, confusing, and terrifying abyss—a black hole of personal anguish, conflicting medical views, widespread corruption, and unrelenting health care navigation.

Today, chronic Lyme disease has reached pandemic proportions, with a grossly underreported 300,000 cases in the US alone, and millions suffering worldwide. This is a critical time for mental health professionals to step up for the sake of millions who are chronically ill, infirm and medically abandoned.

As mainstream medicine continues to turn its back, invalidating, denying, ignoring and even mocking the sufferers of this very real chronic illness, the mental health profession has a moral and ethical obligation to create a system of care for those who are sick and dying, who are without medical support and are left to struggle entirely on their own. What we desperately need is a wake-up call to psychiatrists and all mental health care providers, asking you to become educated about this infectious disease and be aware that it must be used as a differential diagnosis.

How have I come to know this Lyme world so intimately?

For more than four years now I have been immersed in the land of chronic Lyme, driven by my adult son’s illness. I am a Registered Psychotherapist in private practice in Toronto, Canada where I support chronic Lyme sufferers firsthand. And I am the author of the newly released book Lyme Madness: Rescuing My Son Down the Rabbit Hole of Chronic Lyme Disease.

We entered ‘Lymeland’ in October of 2012, when we were forced to go on a long, terrifying and overwhelming medical odyssey starting with a grueling 18-month journey into the offices of 20 medical specialists in NYC, each of whom missed my son’s diagnosis altogether. This hero’s journey required us to navigate my son’s declining health issues entirely on our own. We were forced to do our own research and use our intuition, determine the diagnosis for ourselves, and then traverse the slippery slope of this foreign land—an upside down, inside out, mad world where most doctors are not there to support you save for a handful of ‘believers’. On this expedition, just like all Lyme sufferers and caregivers, we were forced to become our own microbiologist, neurologist, immunologist, gastroenterologist, infectious disease specialist and so on, in order to map out a treatment plan, all without a GPS.

Our story is by no means unique. Most chronic Lyme sufferers are ill for months, years or even decades before they come to understand the root cause of their dis-ease. Most sufferers consult with a multitude of doctors only to have to figure it out for themselves.

So this has now become part two of my mission: to educate my colleagues about the devastating neuropsychiatric, bio/psycho/social, and physical effects of this illness.

When patients present with intractable depression, intractable anxiety, and a myriad of other symptoms, mental health professionals must consider that infectious disease can potentially be a root cause. It’s not enough to only consider childhood trauma when assessing mental health. And it’s no longer acceptable or appropriate to make a bee line to the prescription pad as the first line of defense. First, the potential underlying mechanisms of neurological inflammation, immunosuppression, and infectious disease need to be more widely considered.

Chronic Lyme disease is a neurological, bacteria driven, multisystem, immunosuppressive, post sepsis illness. And it’s a disease that for more than forty years has been kept in the shadows by mainstream medicine, forcing sufferers to go it alone and navigate this life-altering illness without adequate support. Many are losing their health, their livelihoods, their relationships, their homes, and their dignity.

Yes, it’s true. Chronic Lyme disease is, in fact, in your head. But not in the way that doctors intend that to mean. Contrary to medical consensus, chronic Lyme disease is not a made-up illness. It is NOT a case of malingering, Munchausen, hypochondria, laziness, or “craziness.”

Chronic Lyme disease is all in your head because it is primarily a neurological disease, wreaking havoc on your brain and your nervous system—as well as your heart, your liver, your kidneys, and so many other organs. Lyme disease patients can, and most often do, experience anxiety, depression, panic attacks, rage, attention problems, short-term memory loss, personality changes, mood swings, and learning disabilities.

Chronic Lyme sufferers can also experience detachment, dissociation, depersonalization, psychotic episodes, and obsessive-compulsive disorder. As with any cognitive impairment, chronic Lyme sufferers may have trouble keeping track of their daily tasks, they may lose things easily, including words and objects, they may have trouble retrieving information, forget appointments, and struggle with holding a conversation.

Sufferers are desperate for mental health professionals (along with all other medical specialists) to understand Lyme so that they will know to consider it as a potential differential diagnosis before plying a patient with psychotropic meds that may make matters worse. There have been so many Lyme sufferers misdiagnosed as bipolar or schizophrenic and then institutionalized when, in actual fact, the patient who has been committed to a psych ward is suffering from Lyme encephalitis.

Suicidal ideation and completed suicides are not uncommon among Lyme sufferers. I understand why this is the case, having personally witnessed the intolerable suffering of those who have wanted to end their lives. I have also read plenty of stories about those who have taken their own lives as a result of Lyme—stories that are heartbreaking and tragic, and perhaps could have been prevented.

There are a number of reasons why people commit suicide. And chronic Lyme is the perfect storm. It’s a disease that matches up with so many reasons for not being able to see a way out of the darkness. It is clear to me how and why chronic Lyme sufferers, in particular, so often succumb to this disease by their own hand.

Anxiety and depression are commonly experienced neurological symptoms of Lyme. After all, with Lyme, the brain is inflamed and therefore subject to all sorts of neurological imbalances. This, compounded by the lack of (and often outright negation of) medical attention, can lead to discouragement, fear, helplessness, frustration, loss, grief, loneliness, and, at times, little hope for recovery. When an illness is chronic and there is unrelenting suffering and inadequate relief from the myriad of debilitating symptoms, anxiety and depression can become even more pronounced.

Lyme depression is often intractable—that is, resistant to treatment. Lyme can also affect the endocrine system, potentially creating mood disorders. The collection of symptoms—including brain fog, headaches, fevers, joint pain, nerve pain, shakiness, instability, dizziness, vision and auditory disturbances, hallucinations, seizures, paralysis, and more—experienced day in and day out, can wear you down, making even the most resilient warriors eventually want out.

Lyme sufferers are socially isolated, medically denied, crying out for help, and no one is listening. Family and friends don’t know how to help. Some loved ones all but abandon the Lyme sufferer because they get fed up with the constant complaining and limitations. As doctors are showing Lyme sufferers the door, it becomes more and more difficult for loved ones to understand and support those with Lyme. Lyme sufferers feel like a burden. They can lose their independence, their livelihoods, and their ability to function. They feel like they’re losing their minds at times. They live with constant brain fog and cognitive limitations, making every task far more difficult. They get worn down by the chronic pain and illness, by the fear, the inactivity, and the inability to plan or have anything to look forward to.

Lyme sufferers have to face loss every day. Loss of health, loss of the person they once were, loss of independence, loss of dreams and goals, loss of missed opportunities, loss of the life they once had, loss of an identity, loss of self-esteem, loss of loved ones who abandon them, loss of hope, loss of finances, loss of employment, and loss of a future. Lyme sufferers are victimized many times over—by the disease itself, by doctors who turn their backs, by family and friends who roll their eyes and walk away, by insurers who refuse coverage, and by a medical system that negates the very existence of this disease.

I would give anything to un-learn, un-know and un-see the ugly and devious underbelly of mainstream medicine and all of its political machinations. And I would of course give anything to see my son fully recover from this life-altering illness. We continue to work at it every single day.

Please know that chronic Lyme disease is about so much more than ticks and bulls-eye rashes—which only 20% of sufferers ever get to see as proof positive of their disease. Chronic Lyme is the new B-cell AIDS. And if that’s not madness enough, it is also known as “the New Great Imitator,” mimicking more than 350 medical conditions including chronic fatigue syndrome, fibromyalgia, Alzheimer’s, Parkinson’s, Rheumatoid Arthritis, Multiple Sclerosis and more. If only chronic Lyme disease were just about ticks and rashes. Those were simpler times when we thought this was the case.

If all that I’ve shared about this disease is overwhelming, confusing or frightening, you will understand why I’ve called my book LYME MADNESS. There is no other way to describe this journey that we’ve been forced to take. And as a therapist, an empath, and now a Lyme advocate, I know that it’s my calling to tell this cautionary tale—to be one of many voices out there working to wake up the world to what is happening.

Make no mistake: healing from chronic Lyme is a complex, multilayered, do-it-yourself guessing game, with a daily and sometimes hourly hyperfocus on what is causing the symptoms and how best to address them. And while my son has some very good non-mainstream doctors on board to help him heal, the constant shifts in his health require us to continue to be our own sleuths, researchers, doctors, and diagnosticians at all times.

Several years later, we are still searching and filing away new ideas as my son’s various symptoms wax and wane. Without question, this process is expensive and draining, as it requires throwing all kinds of stuff against the wall to see what may or may not stick. If the medical system would just do its job, the job that it’s supposed to do by training and by the very meaning of the Hippocratic oath, then perhaps this journey could be a little less do-it-yourself with a lot more certainty.

My hope is that the blaming and the discrediting of millions of patients worldwide ends now and that mainstream medicine starts to do its job and stops sick-shaming the sufferer with the statement that “it’s all in your head.”

As Dr. Kenneth B. Liegner, a US Lyme-Literate MD, one shining light in a small community of doctors who support and treat Lyme sufferers, says:

“In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government, and virtually the entire insurance industry have colluded to deny a disease. This has resulted in needless suffering of many individuals who deteriorate and sometimes die for lack of timely application of treatment or denial of treatment beyond some arbitrary duration.”

He has also generously reminded me,

“If it were not for mothers, we would be nowhere with Lyme disease. It is MOTHERS, concerned about their families, their children, that have sparked ALL progress in this field!”

That’s because mothers know that when our kids are suffering—even our adult kids—we must trust that it is not necessarily all in their head. Mental health professionals must trust this too.
Lori Dennis, MA, RP is a Registered Psychotherapist in Private Practice in Toronto, Canada and author of the newly released book LYME MADNESS: Rescuing My Son Down the Rabbit Hole of Chronic Lyme Disease.


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Learn about Lyme Workshop

Lyme and other tick-borne diseases continue to rise in our area. Hear from experts in this field, who will share evidenced-based information and education on this rapidly growing health concern. Whether you are looking for prevention tips or are suffering the effects of a tick-borne disease, this day is for you. Please join us as we discuss the number one vector-borne disease in the United States.

Date: Saturday, March 23, 2019 Time: 9am to 4pm

Location: Black River Beach Neighborhood Center 1433 Rose Street, La Crosse, WI

Cost per Participant: $10
*Gluten Free/Dairy Free lunch is included.

To register for this workshop, please visit our City of La Crosse Parks & Recreation website at or, call 608-789-8640.
**Registration Deadline: Monday, March 18, 2019

Guest Experts Include:

Dr. Elizabeth L. Maloney
Rebecca Keith, Family Nurse Practitioner
Phillip Pratt, Coppe Laboratories
Erika Schlick, IIN Certified Health Coach Cookbook Author & Blogger

This event is supported by the Wisconsin Lyme Network and the Minnesota Lyme Association. Workshop Presenters:

Dr. Elizabeth L. Maloney is the President of Partnership for Tick-Borne Diseases Education, a non-profit organization providing online and live evidence-based continuing medical education programming and materials on tick-borne diseases for physicians and other healthcare professionals. She is a graduate of the University of Minnesota Medical School and its affiliated Family Medicine residency.

Dr. Maloney also acts as a consultant to government agencies and private organizations. She recently served on the Pathogenesis, Transmission and Treatment subcommittee of the federally mandated Tick-borne Diseases Working group. She frequently speaks to the general public on tick-borne diseases, emphasizing the need for primary and secondary prevention.

Rebecca Keith, Family Nurse Practitioner

Keith obtained both her undergrad and graduate degrees from the College of St Scholastica in Duluth, MN. Having spent most of her life in Wisconsin and actively enjoying the outdoors, ticks and insects are no strangers to her. Rebecca began paying more attention to Lyme and co- infections by 2008. After experiencing success in treating patients she opened her practice in 2010. Rebecca primarily sees patients in Minong, WI. Rebecca is a member of ILADS,, and the American Academy of Nurse Practitioners. She utilizes integrative medical approaches in treating Lyme and the multi system dysfunction which accompanies it.

Erika Schlick, IIN Certified Health Coach | Cookbook Author and Blogger

Erika Schlick is a Certified Health Coach and Author of the Wandering Palate which features 28 days of travel inspired paleo meals to make it easy to stay on track and eat healthy. She herself was affected by Lyme in 2012 and was diagnosed in 2014. After 3 years of treatment, she has been in remission for over 2 years and has made it her life mission to help others affected by Lyme.

She is also the voice behind The Trail To Health ( ) which is a health and wellness blog documenting her journey with Lyme disease and everything she learned about health along the way.

Phillip Pratt, Coppe Laboratories

Coppe Laboratories is dedicated to discovering and providing diagnostic and treatment solutions for illnesses caused by infectious agents. We offer quality diagnostic testing that exceeds regulatory expectations and provides clear answers with actionable results. We strive to eliminate barriers experienced by physicians and patients in the diagnosis and management of disease through scientific research and innovative diagnostic assays. Coppe Laboratories uses their scientific expertise to transform novel procedures routinely used in the research setting into high-complexity, CLIA-certified diagnostic tests. This work, in conjunction with groundbreaking research and development, makes Coppe Laboratories a leading provider of diagnostic tests for arthropod-borne disease, women’s health and transplant.

The CDC is a “Captured Agency”

FEB 14, 2019 — 

The letter below is a follow-up to earlier correspondence regarding wasteful government spending by the CDC. Previously posted here:

———- Original Message ———-
Cc: (79 undisclosed recipients)
Date: February 14, 2019 at 1:49 PM
Subject: The CDC is a “Captured Agency”

On Feb 9, 2019 Carl Tuttle Wrote: “Wormser’s study was funded directly from the US Centers for Disease Control……Funding: RO1 CK 000152 which appears to be an open checkbook…..”

Efficacy of a 14-day course of amoxicillin for patients with erythema migrans.
Feb 14, 2019

U.S. Department of Health & Human Services
200 Independence Avenue, S.W.
Washington, D.C. 20201
Attn: ADM Brett P. Giroir, M.D., Assistant Secretary for Health

Dr. Giroir,

The US Centers for Disease Control continues to waste taxpayer dollars on Dr. Gary Wormser’s frivolous junk science which over the years has negatively influenced the response to this runaway plague.

You have received numerous emails with scientific reference after reference, testimony after testimony of how Lyme disease is destroying lives nationwide yet you remain silent to every one of my inquiries.  

There is absolutely no question whatsoever that the CDC is a captured agency controlled by the con artists exploiting the system under government protection.

Regulatory Capture

According to Wikipedia:

Regulatory capture is a form of government failure which occurs when a regulatory agency, created to act in the public interest, instead advances the commercial or political concerns of special interest groups that dominate the industry or sector it is charged with regulating.[1] When regulatory capture occurs, the interests of firms or political groups are prioritized over the interests of the public, leading to a net loss for society. Government agencies suffering regulatory capture are called “captured agencies”.

Your silence Dr. Giroir is a vote of no confidence.

Carl Tuttle
Lyme Endemic Hudson, NH


For more: The racketeering scheme to downplay the severity of Lyme disease as identified in the RICO lawsuit should be addressed and documented by the TBD Working Group and not ignored as if this crime does not exist otherwise it will be business as usual at the Centers for Disease Control and we’ll have another thirty years of failure to properly diagnose, treat and control this life-altering infection.  (complete convoluted history about Lymerix found in this link)  In 2012, when the CDC revised the official case number of new Lyme disease infections per year from 30,000 to over 300,000 new Lyme––overnight, those of us in the know understood that they were getting the public ready to accept this upcoming vaccine with open arms and a sense of relief. In other words, scare the public just enough to make them open to wanting this product without causing mass panic nationwide or worldwide. And without having to explain their denial to date.  Did you know that the LYMERIX vaccine caused 640 emergency room visits, 34 life threatening reactions, 77 hospitalizations, 198 disabilities, and 6 deaths? In a vile cesspool of conflicts of interest are university patent holders, drug companies, and the FDA itself as another patent holder. It generated 40 million dollars before it was yanked. (2008, Drymon)



(Wisconsin residents, please see my comment at end of article)


FEBRUARY 14, 2019


As of Thursday, February 14, 2019, NVIC is tracking on the NVIC Advocacy Portal 113 vaccine related bills across 27 States.  Currently, the following states have bills you need to know about: Arizona, Connecticut, Florida, Hawaii, Iowa, Idaho, Illinois, Indiana, Kentucky, Massachusetts, Maryland, Maine, Mississippi, Montana, New Jersey, New York, Oklahoma, Oregon, Pennsylvania, Rhode Island, Texas, Utah, Vermont, Nevada, Washington, West Virginia and Wyoming.

Breaking these 113 bills down by our NVIC position registered on the NVIC Advocacy Portal, we support on 48, oppose 60, and we are watching to see what happens with 5.

We are just a little over a month into most legislative sessions, so we are expecting more bills affecting even more states to still be filed.

This snapshot does not include all bills we track on the NVIC Advocacy Portal. 

Login to the NVIC Advocacy Portal OFTEN to check for more detailed information and updates.  We review bills and make updates daily. Bills can change many times over the legislative process and your timely visits, calls, and emails directed at the correct legislators are critical to this process.

Please check your state page on the NVIC Advocacy portal for bill descriptions including our position on the bill, links to the bill information in your state legislature, where the bill is in the legislative process, and most importantly, what the recommended action you can take to help pass the good bills and defeat the bad ones.


There are currently 11 bills filed in 8 states which are adding or expanding vaccine exemptions that deserve your support.

Arizona HB 2470 and SB 1114 add a religious exemption for kindergarten through 12th grade students.

Hawaii HB 1182 adds a conscientious belief exemption for children.

Iowa SF 239 adds a conscientious belief exemption.

Mississippi SB 2255 adds philosophical and religious belief exemptions for school, and SB 2398 adds religious belief exemption.  HB 479 allows adults to deny vaccines including for employment and adds a philosophical exemption for first responders.

Montana SB 99 expands the existing exemptions by allowing for a personally written exemption where someone wouldn’t need to use the state form.

New York S 477 strengthens and expands the medical exemption.

Rhode Island H 5165 adds personal and philosophical exemptions for all school and college students.

West Virginia SB 454 adds religious and conscientious exemptions for students and employees.

There are currently 18 bills filed in 10 states which are removing or restricting vaccine exemptions that need your opposition. There are 3 states under a verified threat of a bill to remove exemptions.

Arizona HB 2162 eliminates the personal and philosophical exemption for children and HB 2505 also removes the personal and philosophical exemption but replaces them with a religious exemption.

Colorado has not yet filed a bill to remove exemptions, but there has been verified discussion of one being considered.  For details, see the Colorado State Page Announcements on

Connecticut HB 7005 removes school nurses from list of people who can acknowledge religious exemption making it harder for a parent to submit their exemption, and HB 5277makes changes to the qualifications for a temporary waiver and is vulnerable to more restrictive or eliminating amendments. Both bills filed restrict exemptions and could lead to amendments of further restrictions or removal of the religious exemption.

Iowa HF 206 eliminates the religious belief exemption.

Maine LD 798 removes both religious and philosophical exemptions for students and staff working in nursery schools, and consequently for health care workers since the bill also calls for the elimination of exemptions for anyone granted them by rule.

New Jersey A 3818 was amended on the floor of the Assembly to remove the religious exemption, and S 2173 severely restricts the religious exemption.

New York A 2371 and S 2994 eliminate the religious exemption, and A 1135 and S 2289restrict the religious exemption by requiring a health care provider signature. S 3424A creates a uniform religious exemption form but subjects it to an arbitrary superintendent approval process.

Oregon HB 2783 requires health care provider signatures on all exemptions, and there has been verified discussion of a bill to remove the philosophical exemption being ordered.   For details, see the Oregon State Page Announcements on

Nevada AB 123 forces parents to consent to sharing of medical and religious exemptions to public health.

Vermont H 238 eliminates religious exemption for required vaccines.

Washington SB 5841 eliminates the personal and philosophical exemption and HB 1638eliminates personal and philosophical exemptions for the MMR vaccine.

Wisconsin has not yet filed a bill to remove exemptions, but there has been verified discussion of one being considered.  For details, see the Wisconsin State Page Announcements on


Arizona SB 1114, SUPPORT, Adds a religious belief exemption to vaccination for pupils through 12th grade. Scheduled for a hearing in the Senate Education Committee on 2/19/19.

Connecticut HB 7101, OPPOSE, Requires hospitals to offer flu vaccines to patients 65 and older before discharge. Scheduled for a hearing on 2/19/19 in the Joint Committee on Aging.

Florida SB 354, OPPOSE, Mandatory reporting and tracking of vaccines by health care practitioners in registry. SB 354 is scheduled for a hearing in Senate Health Policy Committee on 2/19/19.

Maryland SB 783, SUPPORT, Requires informed consent be given before administration of HPV Vaccine.  Scheduled for a hearing on 2/26/2019.

Oregon SB 649, SUPPORT, Requires information packets be given by health care providers before vaccination. Scheduled for a public hearing on 2/18/2019.

Washington SB 5841, OPPOSE, Eliminates personal and philosophical exemptions to all mandated vaccines. Scheduled for a hearing in the Senate Health and Long Term Care Committee on 2/20/2019.


Improving Vaccine Informed Consent: Arizona, Connecticut, Idaho, Iowa, Illinois, Mississippi, Montana, Oregon, Pennsylvania, and Rhode Island.

Removing The Ability to Mandate by Health Department Rule: Hawaii, Oklahoma

Prohibit Vaccine Mandates for Certain Employees: Minnesota, Oregon

Add Positive Serological Testing in Lieu of Vaccination Requirements: Arizona, Oklahoma, and Washington


Expanding Vaccine Tracking Registries: Florida, Indiana, Massachusetts, Maryland and Texas.

Vaccine Mandates:

HPV: Florida, Massachusetts, New Jersey and New York
Meningitis: New Jersey
Flu: New York for school and day care
ACIP Recommendations to Mandates: Kentucky for college
Occupational Mandates: New Jersey
Workers in Children’s Camps: New York

School Disclosure of Exemption Rates (leads to shaming and discrimination): Arizona, Oklahoma and Texas.

Minor Children Consenting to Vaccines: New York for Hepatitis B and HPV.

Pharmacists and/or Optometrists Giving Vaccines: Montana, Oregon, and Wyoming.


It is important that you make your position to bills that affect your rights known to your legislators.

Everyone should be visiting or calling their own State Representative and State Senator and asking them to OPPOSE any restriction or removal of personal, religious or medical exemptions to vaccine mandates. 

Personal visits and phone calls are the most effective. You should follow up with an email note for legislators looking to read your information, but in no way should the only communication with your legislators be an email as these can be easily ignored or deleted.

If you do not know who your State Representative or State Senator are, or their contact information, you can login to the NVIC Advocacy Portal, click on the “State Teams” tab and then “My State,” and your elected officials are automatically posted on the right hand side of the page  This is why we ask for your address when you register so we can connect you to your legislators.

When communicating with your legislators, be polite but be direct. It is important to voice your position on a bill and BRIEFLY share your vaccine reaction, harassment, or vaccine failure story in addition to the pros or cons on all bills you are highlighting.

Those seeking to restrict or remove exemptions have tried to create an environment dismissive of the experiences people have with real vaccine reactions. The VAXXED Website, http://vaxxed.comhas thousands of video clips of people sharing their vaccine reactions.  They also have a state map where you can click on your state and view testimonials in your state! These testimonials can be shared on social media and to legislators and staff directly.

Please refer to NVIC’s “Reforming Vaccine Policy and Law” guide for answers to questions your legislators may have.  The fully referenced version can be found at:—Law-Guide.aspx.


NVIC Advocacy Team
National Vaccine Information Center and

The National Vaccine Information Center (NVIC) works diligently to prepare and disseminate our legislative advocacy action alerts and supporting materials.  We request that organizations and members of the public forward our alerts in their original form to assure consistent and accurate messaging and effective action. Please acknowledge NVIC as originators of this work when forwarding to members of the public and like-minded organizations. To receive alerts immediately, register  at, a website dedicated to this sole purpose and provided as a free public service by NVIC. 



In brief, Wisconsin still allows all 3 exemptions from vaccines:  Religious, Conscientious Objection, and Medical; however, the above communication states that there is verified discussion of a bill to remove exemptions.  

For details, see the Wisconsin State Page Announcements on  Details:

Description: Dear Wisconsin NVIC Advocacy Members,

We want to make you aware that some legislators have been quoted in the media as saying they support eliminating personal belief exemptions or intend on introducing legislation to do so.

If and when a bill is filed in WI, NVIC Advocacy will post and track it on the NVIC Advocacy portal.

There are a few things you can do now.  Contact Representatives Kolste and Hintz.  Tell them not to introduce or support legislation to eliminate exemptions to vaccines.  Explain why this is an important issue for your family.  If someone in your family has suffered a vaccine injury, share your story with them.  Also contact your own personal Wisconsin State Senator and Assembly Rep.

Rep. Hintz

Madison Office:
Room 201 West
State Capitol
PO Box 8952
Madison, WI 53708

Telephone: (608) 266-2254 (888) 534-0054

Fax: (608) 282-3654

District Phone: (920) 232-0805


Voting Address:
502 East Irving Avenue
Oshkosh, WI 54901

Rep. Kolste –

Madison Office:
Room 107 North
State Capitol
PO Box 8952
Madison, WI 53708 Telephone: (608) 266-7503 (888) 947-0044

Fax: (608) 282-3644


Voting Address:
4105 Parkview Dr.
Janesville, WI 53546

See the end of this article –

Rep. Debra Kolste, D-Janesville, said she supports removing the personal conviction waiver. Kolste is on the Assembly Committee for Health and is a former medical technologist.

Hintz acknowledged that the goal is to keep herd immunity strong across the state, in whatever way necessary. He said conversations about the importance of vaccination, compelling personal stories, or restrictions on personal conviction waivers could be the first steps toward change.

But he’s pushing for the personal conviction waiver removal because, he said, it’s “the best way” to reach that goal.

“I think as leaders, we don’t do enough on public health in a number of areas that deserve more attention,” Hintz said.

“This is one where, for decades, we did and we were successful at reducing human suffering. So, in addition to being more proactive, I think we really need to worry about reversing the trend that we’re seeing is heading in the wrong direction.”

He plans to re-introduce the bill this legislative session.


FB Post by Rep. Hintz –

Gordon Hintz

February 6 at 6:35 PM ·

The issue goes beyond ideology, Hintz said. Vaccination is a question of the social compact.

“What people need to understand is, we’re not telling anybody that they have to get vaccinated,” Hintz said. “We’re saying if you want to enter public schools and interact with other children, you’re not going to risk their livelihood and health.”

When contacting these folks, please mention that Wisconsin is 4th in the nation for Lyme.  Vaccines have reactivated latent Lyme/MSIDS infections:

Vaccine activated a Bartonella infection which was proved with testing:

Retroviruses were spread by vaccines:

Retroviruses are STILL plaguing us years later & play a role in Lyme/MSIDS.

As for this supposed herd immunity, entire vaccinated populations are not immune from contracting disease:  This article also gives studies showing the fact that many vaccines are ineffective. Merck has recently been slapped with two separate class action lawsuits contending they lied about the effectiveness of the mumps vaccine in their combination MMR shot, and fabricated efficacy studies to maintain the illusion for the past two decades that the vaccine is highly protective.

This informative website shows studies comparing the health of vaccinated children vs unvaccinated.  The results speak for themselves:   The study suggests that fully vaccinated children may be trading the prevention of certain acute illnesses (chicken pox, pertussis) for more chronic illnesses and neurodevelopmental disorders like ADHD and Autism. The scientists also found that children born prematurely, who were vaccinated, were 6.6 times more likely to have a neurodevelopmental disorder.

More and more is coming out on the fraud, collusion, and conflicts of interest surrounding the vaccine debate:

The ACIP votes “yes” for a new vaccine despite the lack of safety studies on the cumulative effects:


I’ll stop here.  But, you get the point.  Vaccines are not only unsafe, they can reactivate latent infections and suppress the immune system, worsening chronically ill patients.