https://globallymealliance.org/news/interview-talia-jackson-and-gla-ceo-scott-santarella-on-fox-5/  NEWS VIDEO HERE

Interview:  Talia Jackson & GLA CEO Scott Santarella On Fox 5

fox-5-talia-jackson

Actress Talia Jackson shares her personal story of being diagnosed with and living with Lyme disease on Good Day NY, FOX 5. She is joined by GLA CEO Scott Santarella. Talia currently stars in the Netflix show “Family Reunion” and was in New York to attend GLA’s 5th Annual New York Gala on October 10, 2019.

For more of Talia’s story, read her interview with Parade Magazine.

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**Comment**

Great interview, but please know some people’s only symptoms are psychological:  https://madisonarealymesupportgroup.com/2015/10/18/psychiatric-lymemsids/

Also, Lyme is the famous actor we all know by name. There are many wanna-be’s standing off stage such as: Bartonella, Babesia, Mycoplasma, Rocky Mountain Spotted Fever, etc. To date there are approximately 20 bacteria and viruses transmitted by ticks: https://madisonarealymesupportgroup.com/2017/05/01/co-infection-of-ticks-the-rule-rather-than-the-exception/

https://madisonarealymesupportgroup.com/2019/09/18/more-than-lyme-tick-study-finds-multiple-agents-of-tick-borne-diseases/

And while some want to blame “climate change,” current research has proven that to be a red herring:  https://madisonarealymesupportgroup.com/2018/11/07/ticks-on-the-move-due-to-migrating-birds-and-photoperiod-not-climate-change/

Independent Canadian Tick researcher, John Scott, states:

“The climate change range expansion model is what the authorities have been using to rationalize how they have done nothing for more than thirty years. It’s a huge cover-up scheme that goes back to the 1980’s. The grandiose scheme was a nefarious plot to let doctors off the hook from having to deal with this debilitating disease. I caught onto it very quickly. Most people have been victims of it ever since.  This climate change ‘theory’ is all part of a well-planned scheme. Even the ticks are smarter than the people who’ve concocted this thing.  Climate change has nothing to do with tick movement. Blacklegged ticks are ecoadaptive, and tolerate wide temperature fluctuations…..It’s all a red herring to divert your attention.”

Recently, Scott wrote a scathing correction on erroneous research done by Ontario public officials on the fake climate change tick connection: https://madisonarealymesupportgroup.com/2019/06/17/ontario-public-health-officials-called-out-on-shoddy-biased-research-utilizing-an-erroneous-climate-change-model-to-program-a-futuristic-tick-problem/

Please understand the DOD, DARPA, & EPA are funding this very “climate change” research.

https://madisonarealymesupportgroup.com/2019/06/25/lyme-disease-cases-are-exploding-and-its-only-going-to-get-worse/  This is an interesting finding considering the following excerpt from an article written by By Alex Bhattacharji:

Although conspiracy theorists have suggested — falsely — that Lyme disease was created in a U.S. military lab, it is true that in the years following World War II, the U.S. employed top German scientists who explored the tick’s potential in biological warfare for Nazi Germany. The researchers were investigating the tick’s ability to spread pathogens across wide areas with the potential to incapacitate entire populations.

Seventy-five years later, the tick timebomb is detonating on its own. Thanks to climate change, globalization, and other factors, ticks are not only proliferating but also becoming more malignant, more aggressive, and more likely to carry infection. A public health crisis is hiding in plain sight.

Bhattacharji got the “tick timebomb” portion correct but not the climate change non-issue regarding ticks.

I will state once again, ticks will be the last species on earth besides the IRS.

 

 

 

NIH STRATEGIC PLAN FOR TICKBORNE DISEASE RESEARCH

October 9, 2019

https://www.niaid.nih.gov/sites/default/files/NIH-Strategic-Plan-Tickborne-Disease-Research-2019.pdf

Please see link for:

  • Executive Summary   
  • Introduction
  • NIH Strategic Plan for Tickborne Disease 
  • Strategic Priority 1: Improve Fundamental Knowledge of TBDs
  • Strategic Priority 2: Advance Research to Improve Detection & Diagnosis of TBDs
  • Strategic Priority 3: Accelerate Research to Improve Prevention of TBDs
  • Strategic Priority 4: Support Research to Advance Treatment of TBDs
  • Strategic Priority 5: Develop tools & resources to Advance TBD research
  • Conclusion
  • Appendices 

Some respondents expressed a desire for greater transparency in the research planning and implementation processes, whereas others suggested changes to the peer review process to include wider representation from the TBD community, such as advocacy group representatives, community physicians, or members of the general public.

To which we all said, AMEN!

Print

Lyme disease is the fastest growing disease in the United States.  There were 306 confirmed cases of Lyme disease reported in Michigan for 2018, and 427 cases so far reported in 2019.  These statistics according to the Center for Disease Control are grossly under reported, and are about 10 times higher than the actual number of cases reported.

When:  Saturday, Nov 16, 2019 8 am-4pm (7 am Continental Breakfast/Check-in), Friday, Nov 15, 2019 6 pm-10pm Informal Reception with Hors d’oeuvres & Beverages.

What:  Learn more about Lyme disease in Michigan, current testing, coinfections, treatment options and more.

Where:  Auburn Hills Marriott Pontiac at Centerpoint 3600 Centerpoint Dr., Pontiac Michigan

Speakers:

  • Joseph Burrascano, MD
  • Daniel Cameron, MD
  • Megan Porter, DVM
  • Michael Ledtke, MD
  • Jean Tsae, Phd
  • John, Bianchi, VP Product Dev. at Revivicor

Registration is $100 per person – This includes, Friday Night Reception, continental breakfast, breaks, lunch and handouts.

Please register by October 28th to be guaranteed a seat.   Walk-ins are welcome if space is available.

For more information about this event or how to register please call the Michigan Lyme Disease Association at 1-888-784-5963, visit our website at www.mlda.org or email LPurdy1040@aol.com

 

 

 

 

 

 

 

 

 

Disulfiram Psychosis Update

Disulfiram_3D_ballDisulfiram: Wikipedia

A Wisconsin Lyme literate doctor who is part of an ILADS provider group with Disulfiram experience, has found that some patients with a genetic predisposition can have significant side effects when using Disulfiram.

Please have your health practitioner look at the dopamine SNP’s before beginning Disulfiram treatment.  This LLMD also recommends:

  • Cysteine
  • B6
  • Tyrosine
  • Disulfiram low and slow at 62.5 mg twice a week, increasing only as tolerated
Please share this far and wide as I do not want another patient to go through the hell I’ve been through.

If you have not read about my experience with Disulfiram psychosis, please see:  https://madisonarealymesupportgroup.com/2019/10/14/november-2019-lyme-support-meeting-oct-meeting-canceled-due-to-reaction-to-disulfiram/

For more on Disulfiram:  https://madisonarealymesupportgroup.com/2019/06/03/disulfiram-in-the-treatment-of-lyme-babesiosis-3-case-reports/

https://madisonarealymesupportgroup.com/2019/07/14/disulfiram-breakthrough-drug-for-lyme-other-tick-borne-diseases/

https://madisonarealymesupportgroup.com/2019/07/26/is-disulfiram-the-magic-bullet-for-chronic-lyme-disease/

https://madisonarealymesupportgroup.com/2019/09/18/dr-liegner-interview-on-disulfiram/

 

 

 

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As most of you are probably aware, I spent over a week in the hospital and a few trips to the ER recently.  It was very serious.  And yes, I’m talking deadly serious. According to the doctors at UW Madison, I had an allergic reaction to Disulfiram, an old drug that is currently being used on Lyme disease patients. It was very frightening as I had psychosis. 

Psychosis is an abnormal condition of the mind that results in difficulties determining what is real and what is not – and that is the understatement of the year. 

Symptoms may include:

  • delusions and seeing or hearing things that others do not see or hear
  • incoherent speech and behavior that is inappropriate

If you are a medical practitioner prescribing this, please be aware of this issue. 

Treatment for psychosis is antipsychotics, counseling, and social support. It’s interesting that 3% of people in the United States could get this.  https://en.m.wikipedia.org/wiki/Psychosis

All I can say is, WOW.  I looked outside and it’s fall.  I’ve missed nearly 3 weeks of my life.

My dear husband of 30 years was my bulwark and unfortunately took the brunt of my psychosis. The good news is he’s still with me. We’ve now weathered through both being infected with Lyme/MSIDS and now we can add crazy, unbelievable, psychosis to the list of symptoms and conditions.

I seriously hope a psychiatrist contacts me because in my lucid moments I took prolific notes. My husband also remembers the entire episode in complete detail.

The next Support meeting will be Saturday, November 9th, at 2:30 at the East Madison Police Station. Details about the subject matter will be forthcoming.

I can’t wait to see all of you. Being with other sufferers gives me untold joy and comfort. I pray you can all make it, but if you can’t, I understand.

IMG_1177

Still Crazy After All These Years

Blessings and health, Alicia

 

 

 

 

 

 

 

 

 

This is Alicia’s husband, Greg… The support meeting on Saturday, October 19, 2019 has been cancelled.  Alicia is recovering from a very serious medical emergency in which she was hospitalized for one week at the UW Hospital.  She has now been home for one week and is  recovering well.  A 100% recovery is expected but it will take a few more weeks for her to be back to normal.  Your thoughts and prayers are appreciated.

Watch for updates.  As she recovers, she will provide a time & date for the next support meeting.

https://articles.mercola.com/sites/articles/archive/2019/09/19/tips-for-coping-with-social-anxiety.aspx

Top Nine Tips for Coping With Social Anxiety

Analysis by Dr. Joseph MercolaFact Checked
tips for coping with social anxiety

STORY AT-A-GLANCE

  • Social anxiety disorder, formerly known as social phobia, affects 7.1% of U.S. adults in any given year, while an estimated 12.1% of U.S. adults will experience the disorder at some point during their lives
  • Social mishap exposure practice is a technique that may help; it puts you in the very situations you fear most — such as singing in a public place — in order to help reinforce the notion that nothing catastrophic will happen as a result
  • Engaging in acts of kindness, such as doing a roommate’s dishes, was found to reduce the desire to avoid social situations in students with high levels of social anxiety
  • Emotional Freedom Techniques, eating fermented foods, aromatherapy, ashwagandha, healthy breathing techniques and avoiding EMFs may also help to lessen anxiety naturally

Social anxiety disorder, formerly known as social phobia, affects 7.1% of U.S. adults in any given year, while an estimated 12.1% of U.S. adults will experience the disorder at some point during their lives.1 People with social anxiety disorder feel intense fear and anxiety in social situations, such that they may try to avoid such situations altogether.

With social anxiety disorder, there is an overriding fear of being negatively judged or rejected by others when in public. People with the condition may worry that others will notice their anxiety, leading to embarrassment and sometimes debilitating panic attacks.

In addition to blushing, shaking hands or stumbling over words, people with social anxiety disorder may experience rapid heart rate, nausea and sweating when in social or performance situations.2

The fear of being judged by others can be so powerful that it can cost those affected job opportunities, friendships and romantic relationships. The condition can range from mild to severe, with an estimated 29.9% of adults with social anxiety disorder having serious impairment while 38.8% have moderate impairment and 31.3% mild impairment.3

There are, however, strategies that can help people with social anxiety to cope and regain control of their lives without having to struggle through debilitating fear.

Social Anxiety Disorder Is Different From Shyness

It’s commonly assumed that social anxiety is a form of extreme shyness, but there are distinct differences. While people who are shy may be more likely to suffer from social anxiety,4 shyness is considered to be a “normal” personality trait, which isn’t associated with the significant fear felt by those with social anxiety.

Those with social anxiety experience more distress and disruptions to their daily life than people who are simply shy.5 While those with the disorder typically know their fears are irrational, they may feel powerless against the anxiety. The Social Anxiety Association explained:6

“People with social anxiety are many times seen by others as being shy, quiet, backward, withdrawn, inhibited, unfriendly, nervous, aloof, and disinterested. Paradoxically, people with social anxiety want to make friends, be included in groups, and be involved and engaged in social interactions.

But having social anxiety prevents people from being able to do the things they want to do. Although people with social anxiety want to be friendly, open, and sociable, it is fear (anxiety) that holds them back.

Different triggers may cause symptoms of social anxiety to flare up in different people. The most common symptom is a feeling of intense anxiety or fear, which may be accompanied by trembling, dry mouth, racing heart, muscle twitches and nervousness. Triggering symptoms may include:7

Meeting new people Being teased or criticized
Being the center of attention Making phone calls, writing or even swallowing in public
Being watched or observed Having to speak in public
Meeting someone in an authority position Making eye contact with others

Nine Top Tips for Coping With Social Anxiety

If you’re struggling with social anxiety, taking steps to cope can be life-changing, but many people avoid seeking help. According to the Anxiety and Depression Association of America, “Despite the availability of effective treatments, fewer than 5% of people with social anxiety disorder seek treatment in the year following initial onset and more than a third of people report symptoms for 10 or more years before seeking help.”8

If your symptoms are debilitating, professional help is recommended. For mild or moderate cases, however, as well as to support treatment in severe cases, the following strategies can help.

1. Take Opportunities for Social Mishaps — Social mishap exposure practice is a technique that puts you in the very situations you fear most — such as singing in a public place — in order to help reinforce the notion that nothing catastrophic will happen as a result.

You may need to seek the support of a professional to work through this, but the idea is that “patients are forced to re-evaluate the perceived threat of a social situation after experiencing that social mishaps do not lead to the feared long-lasting, irreversible and negative consequences.”9

There is evidence that avoiding social interactions may make social anxiety worse. Similarly, this can lead to other problems, like smartphone addiction, which is associated with social anxiety.10 “Hiding” behind a cellphone is likely to make mental health worse, whereas social mishap exposure is intended to help desensitize those affected, making social experiences easier to handle. As explained in Cognitive and Behavioral Practice:11

“An important reason why SAD [social anxiety disorder] is maintained in the presence of repeated exposure to social cues is because individuals with SAD engage in a variety of avoidance and safety behaviors to reduce the risk of rejection.

These avoidance tendencies, in turn, prevent patients from critically evaluating their feared outcomes and other catastrophic beliefs, leading to the maintenance and further exacerbation of the problem.

Social mishap exposures directly target the patients’ exaggerated social cost by helping patients confront and experience the actual consequences of such mishaps without using any avoidance strategies.”

2. Turn Negative Thoughts Into Positive Ones 

Mercola.com’s EFT practitioner Julie Schiffman talks about emotional freedom technique (EFT) or tapping to help you get rid of panic attacks.  Approx. 10 min.

A simple example of a positive coping strategy is the “yes, but” technique. You may think, “Yes, I’m going to be speaking at a meeting tomorrow, but I am well prepared and will be successful.”12 The positive affirmation helps to balance the negative thoughts and may help calm your mind.

Energy psychology tools such as the Emotional Freedom Techniques (EFT), demonstrated in the video above, can help you reduce your stress by correcting the bioelectrical short-circuiting that can happen when anxiety becomes chronic.

Research confirms EFT can be a powerful intervention for stress and anxiety,13 in part because it specifically targets your amygdala and hippocampus, which are the parts of your brain that help you decide whether or not something is a threat.14

EFT has also been shown to lower cortisol levels, which are elevated when you’re stressed or anxious, while improving symptoms of psychological distress, including anxiety and depression.15

3. Avoid Alcohol — It may be tempting to ease anxiousness with alcohol, but drinking heavily will have the opposite effect, lowering mood and increasing anxiety throughout the next morning.16Further, excessive alcohol use is common among people with social anxiety,17 so it’s best to avoid this negative coping strategy in favor of the other positive options listed here.

4. Engage in Acts of Kindness — Engaging in acts of kindness, such as doing a roommate’s dishes, was found to reduce the desire to avoid social situations in students with high levels of social anxiety.18,19

In a news release, study author Jennifer Trew explained, “Acts of kindness may help to counter negative social expectations by promoting more positive perceptions and expectations of a person’s social environment. It helps to reduce their levels of social anxiety and, in turn, makes them less likely to want to avoid social situations.”20

5. Protect Yourself From EMFs — Due to the pioneering work of Martin Pall, Professor Emeritus of biochemistry and basic medical sciences at Washington State University,21 we know that voltage gated calcium channels are over 7 million times more sensitive to microwave radiation than the charged particles inside and outside our cells. This means that the safety standards for this exposure are off by a factor of 7 million.

When EMFs hit your voltage gated calcium channels, nearly 1 million calcium ions per second are released into the cell, which then causes the cell to release excessive nitric oxide that then combines with superoxide to form peroxynitrate, which then forms the dangerous hydroxyl free radical that causes massive mitochondrial dysfunction.

The tissues that have the greatest density of voltage gated calcium channels are your nerves and tissues, like the pacemaker in your heart and your brain. When the channels in the brain are activated, it causes a major disruption in neurotransmitter and hormonal balance that can increase the risk for anxiety. You can learn how to reduce your EMF exposure here.

6. Use Healthy Breathing Techniques

According to Konstantin Buteyko, founder of the Buteyko Breathing Method, anxiety is triggered by an imbalance between gases in your body, specifically the ratio between carbon dioxide and oxygen. In the video above, Buteyko breathing coach Robert Litman explains how your breathing affects the ratio of these gases and demonstrates how you can literally breathe your way into a calmer state of mind.

A Buteyko breathing exercise that can help quell anxiety is also summarized below. This sequence helps retain and gently accumulate CO2, leading to calmer breathing and reduced anxiety. In other words, the urge to breathe will decline as you go into a more relaxed state.

  • Take a small breath into your nose, a small breath out; hold your nose for five seconds in order to hold your breath, and then release to resume breathing.
  • Breathe normally for 10 seconds.
  • Repeat the sequence several more times: small breath in through your nose, small breath out; hold your breath for five seconds, then let go and breathe normally for 10 seconds.

7. Eat Fermented Foods — Fermented foods have been shown to curb social anxiety disorder in young adults, likely by helping to optimize the gut microbiome.22 Good bacteria, or probiotics, have also been shown to help normalize anxiety-like behavior in mice with infectious colitis.23Along these lines, clean up your diet to help stabilize your mood by eating more of these anxiety-busting foods.

8. Try Lavender Aromatherapy — Aromatherapy is a simple, DIY tool you can use to help calm your nerves. In one study, 100 patients admitted to a medical center for ambulatory surgery were given either lavender aromatherapy (inhaled) or standard nursing care (the control group) while in the preoperative waiting room.

Their levels of anxiety were recorded upon arrival to the waiting area and again upon departure. Those who received the aromatherapy had a greater reduction in anxiety compared to the control group.24

Research published in Phytomedicine also found that an orally administered lavender oil preparation was as effective as the drug Lorazepam for the treatment of generalized anxiety disorder.25

9. Consider Ashwagandha — Ashwagandha is a powerful adaptogenic herb that helps your body manage and adapt to stress. In a 2009 study, patients diagnosed with moderate to severe anxiety lasting longer than six weeks who were treated with 300 milligrams of ashwagandha root for three months reported “significantly decreased” symptoms compared to those undergoing standard psychotherapy.26

Be Wary of Drugs for Treating Anxiety

Antidepressant therapy with selective serotonin reuptake inhibitors (SSRIs) is sometimes recommended for anxiety disorders based on the “chemical imbalance” theory that anxiety disorders (and depression) may be due to low serotonin levels. Yet, research suggests people with social anxiety disorder may actually have increased serotonin synthesis,27 making treatment with SSRIs highly questionable.

Other commonly prescribed drugs for anxiety include benzodiazepine drugs like Ativan, Xanax and Valium. They exert a calming effect by boosting the action of a neurotransmitter called gamma-aminobutyric acid (GABA) in the same way as opioids (heroin) and cannabinoids (cannabis) do.

This in turn activates the gratification hormone, dopamine, in your brain. Since the identical brain “reward pathways” are used by both types of drugs, they can be addictive.

If you’re struggling with social anxiety, you have nothing to lose, and everything to gain, by applying lifestyle modifications before trying medication, and you may find that these strategies help lessen your anxiety naturally, helping you to embrace life once again.

As mentioned, if your anxiety is so severe that it’s interfering with your daily life, speak with a holistic health care provider who can help you develop a comprehensive treatment plan.

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**Comment**

I think there is much to be discovered and utilized in helping Lyme/MSIDS patients with the psychological aspects of this complex and debilitating illness. Anxiety is common. While Mercola’s article deals specifically with “social anxiety,” many Lyme/MSIDS patients suffer with anxiety due to having an infection(s) in their brains. My husband and I both had serious symptoms that were frankly, unbelievable, had we not lived to tell about them! (hearing voices, hallucinations, anxiety, depression, OCD-like behavior, inability to handle any amount of stress, irritability and rage, and a veritable laundry-list from hell.  For more on psychological Lyme:  https://madisonarealymesupportgroup.com/2015/10/18/psychiatric-lymemsids/

While space constraints prohibit me from going into detail, I am going to mention a few things we tried with success in our journey with the supervision of experienced health professionals. This is solely for your education and enjoyment. 

  1. Identify and treat all infections:  https://madisonarealymesupportgroup.com/2016/02/13/lyme-disease-treatment/  Since many symptoms overlap, but can be caused by different pathogens, it often takes a “trial and error” approach to determine which drugs work. This takes time, savvy, training, and patience.
  2. Work with an ILADS-trained practitioner (often called a Lyme literate doctor) who is trained in identifying symptoms that many of these infections can cause. In my experience, mainstream medicine is woefully uneducated and remains in the dark ages regarding the complexity and interplay of tick-born illnesses. They still treat this as a singular illness for the most part with a singular drug, mainly doxycycline, for a extremely limited time (21 days). This is medical ignorance at best, and outright abuse at the worst ,that has continued unabated for over 40 years.
  3. Discuss neurotransmitters with your LLMD as they can and often are affected with brain infections.  Supplementing with them may very well help your symptoms. My husband to this day uses gabapentin at night to help with sleep. Interestingly, gabapentin, also called neurontin, is used by some practitioners for anxiety and other mood disorders. Here’s a great read on it: https://pro.psychcentral.com/neurontin-does-it-work-for-anxiety/
  4. Regarding anxiety, to be frank, nothing helped my husband except lengthy LymeBartonella treatment, which you can read about here: https://madisonarealymesupportgroup.com/2016/01/03/bartonella-treatment/ and https://madisonarealymesupportgroup.com/2016/02/13/lyme-disease-treatment/. He tried discontinuing gabapentin for a short time but had to resume it when he discovered he had trouble staying asleep. I honestly don’t know if he was off it long enough to determine it had anything to do with anxiety, of which he hasn’t struggled with for years.
  5. Also, the challenging thing, is that anxiety for him didn’t rear its head until further along in treatment. I was once told treatment for Lyme/MSIDS is like peeling back an onion layer by layer. This has definitely been our experience. Some symptoms are seemingly more prominent at first but as you treat, some symptoms go away altogether while others all of a sudden appear out of nowhere.  This is probably the most complex illness on the planet. An experienced hand is required to navigate these muddied waters. While some mainstream practitioners take offense at the words Lyme literate, those of us struggling with this as well as medical practitioners who have dedicated countless hours studying and treating for it believe it takes an experienced and practiced, open mind.

For more:  https://madisonarealymesupportgroup.com/2019/07/09/are-lyme-disease-anxiety-connected-dr-rawls/