Published on May 22, 2018
Donna Lugar of the of the Nova Scotia lyme disease support group speaks about the rising numbers of the disease across Canada.
Published on May 22, 2018
https://crowdfund.umn.edu/SkinDiseaseResearch (Go here to help)
Please join the Beating Bartonella community in supporting a research study led by Dr. Marna Ericson and her team at the Dermatology Imaging Center here at the University of Minnesota Medical School.
Following numerous reports from clinicians and patients, an association between infection with Bartonella henselae and linear skin lesions, now called Bart-tracks (previously referred to as striae), has recently been documented in our published case report. Frequently neurological symptoms are also reported. A larger study is needed to investigate the potential role that the Bartonellae play in the development of Bart-tracks in infected patients. The goal of this study is to generate preliminary data needed to apply for grant support through traditional research funding channels. In this study, Dr. Ericson and her research team will measure the prevalence of Bartonella spp. infection in patients who present with Bart tracks using advanced imaging techniques coupled with molecular tools in blood and skin samples. Dr. Ericson will further investigate the interactions of the Bartonella with fibrillar collagen in the dermis of the skin.
Research partners include Galaxy Diagnostics where the blood and tissue will be tested for Bartonella DNA. Additionally, they are looking at the role of Bartonellosis in skin cancer and Gulf War Illness.
Please make a donation to support this research!! Bartonella infection is extremely challenging to confirm with laboratory testing. As a result, the findings form this study are of critical importance to physicians and patients in the effort to better diagnose Bartonella infections in people with chronic illness potentially associated with Bartonella infection. Your support will go directly to Dr. Ericson’s lab to support this important research.
Funds raised in excess will be used for Bartonella and other vector-borne disease research
I heard Dr. Ericson at a CME conference and her pictures using advanced imaging techniques (single and multi-photon, correlative, super-resolutioin confocal, electron microscopy, and microPET imaging, and second harmonic generation) regarding Bartonella were astounding. To say that Bartonella is pervasive would be an understatement.
More on Bartonella: https://madisonarealymesupportgroup.com/2016/01/03/bartonella-treatment/
by Emma Goss, Eyewitness News
Bakersfield City Councilman Chris Parlier has been battling Lyme disease for almost 20 years. (KBAK/KBFX)
BAKERSFIELD, Calif. (KBAK/KBFX) – Lyme disease, widely thought to be an east-coast illness, is widespread across California, and growing rapidly.
The disease often gets misdiagnosed and goes under reported, but researchers say Californians and doctors need to be aware.
Chris Parlier is a Bakersfield City Councilman, and father of two. He has been battling Lyme disease for almost 20 years.
A former cop and special agent for the California Department of Justice, Parlier went investigating a suspected meth lab in the mountains of Tick Canyon between Santa Clarita and Palmdale in the late 1990’s.
“I thought that if I was ever going to get injured in the line of duty, maybe I’d get shot, a car wreck, some sort of exposure at a methamphetamine lab,” Parlier said. “But never in my wildest dreams would I think that a tick would get on me and cause such a horrific illness.”
A few weeks later, he came down with what seemed like the flu. When he noticed a rash on his upper thigh, he visited a Bakersfield doctor.
Observing the Erythema Multiforme rash, often called the “bull’s-eye rash”, and Parlier’s other symptoms of muscle and joint pain, Parlier was diagnosed with Lyme disease.
“It started with losing feeling in parts of my limbs, my left side of my body, especially my left leg, my left arm. I started getting involuntary muscle response, my hand would move by itself sometimes, and my leg would do that too. And it got to the point my speech started being impaired and my walking started to be impaired,” Parlier said.
Parlier sought treatment from a specialist at UCLA, and after a year of aggressive antibiotics and protracted therapy, his strength came back. Parlier considers himself lucky to have caught it.
Fewer than half of Lyme disease cases ever show the bull’s-eye rash, and the symptoms of the disease mimic other diseases that lead to frequent misdiagnosis.
There are over 100 strains of the bacteria that cause Lyme disease, but the standard test doctors give won’t detect all of them, and researchers say as many as half of Lyme cases go undetected.
“The testing that we have is fairly antiquated, it’s an old technology,” Dr. Sunjya Schweig, co-founder and co-director of the California Center for Functional Medicine, said. “No better than flipping a coin.”
Lyme disease infects 300,000 Americans a year, and it’s thought to be most prevalent in the Northeastern United States, according to the Center for Disease Control. But it’s a rapidly growing threat in California, where tick season isn’t just in spring and summer, it’s all year round.
“The real number in our state that has 40 million people, is probably in the thousands,’ Dr. Raphael Stricker, a Lyme disease specialist and medical director of Union Square Medical Associates, said.
Lyme disease cases have been found in 56 out of 58 counties in California. Kern county only has 21 reported cases, but its proximity to Los Angeles, San Diego, and Sonoma, all hot spots for Lyme disease, put Kern residents at a higher risk.
Why the sudden uptick? Experts suggest that people living in closer proximity with nature and building homes in more areas that used to be rural are factors leading to more humans exposed to ticks.
To protect yourself, doctors recommend frequent tick checks after spending time outdoors, using tick repellents, and choosing light-colored clothing that doesn’t expose your skin to ticks.
Anyone worried that they already have Lyme disease but haven’t gotten a confirmed diagnosis should ask for more thorough testing for other bacteria, and ask a doctor to test for other tick-borne infections.
The International Lyme and Associated Diseases Society encourages doctors to begin antibiotic treatment for patients they suspect could have Lyme disease based on a clinical assessment of their symptoms, even if they don’t test positive for the disease.
Parlier still gets an immunoglobulin injection every month to support his immune system, but lives a relatively normal, active life, serving the Bakersfield community.
“I realize that the illness may never go away completely,” Parlier said. “But there will still be joy in my life.”
More on Lyme in California: https://madisonarealymesupportgroup.com/2018/05/19/infected-ticks-in-california-its-complicated/
“My right knee will hurt and sometimes my right wrist will lock up,” said Mabry.
All her symptoms could be explained away. Mabry was in the middle of writing a children’s book, “Hi It’s me! I have ADHD” and she was about to have her fourth child.
“I said, ‘I’m exhausted because I’m pregnant. My knee hurts because I did too much today,'” said Mabry.
But the reality was much more serious. After her son was born she found out she had Lyme Disease, a bacteria transmitted through tick bites that could lead to swelling of the brain and heart.
“Internally you feel like something is eating away at you. You feel like you have the flu, you just ran a marathon. You’re fatigued. Like right now I’m experiencing hot and cold,” said Mabry.
Her doctor thinks Mabry got it last summer, likely from the forest preserve by her house. And she’s not alone. Since 2004, Lyme Disease has tripled. Latest numbers show Wisconsin ranks fourth in reported cases. Mabry’s diagnosis means daily antibiotic IV treatments.
“It’s life-altering,” said Mabry.
Though there is a chance her pain and other symptoms might never go away.
“I’m generally a positive person. And I am trying so hard to stay positive but when you feel awful so often it’s hard sometimes,” said Mabry.
Experts recommend that you wear long sleeves and pants if you are going to be out in long grass or in wooded areas where ticks are likely to be. They also suggest you use an insect repellant with at least 20 percent DEET.
For more information about how to prevent tick bites, visit the CDC’s website.
There are numerous things about this article that I’m thankful to see:
However, there are some things that need to be addressed.
We need “experts” to start acknowledging and factoring in coinfections and that patients are rarely infected with just borrelia, the causative agent of Lyme Disease: https://madisonarealymesupportgroup.com/2017/07/01/one-tick-bite-could-put-you-at-risk-for-at-least-6-different-diseases/ (The actual number is 16 and counting…..)
We desperately need transmission studies on virtually everything. I’m so tired of hearing “experts” repeat ancient, 30 year old mantras that Lyme is not spread in any other way than the dastardly black legged tick. There’s just too much evidence to the contrary!
Willy Burgdorfer, the discoverer of Lyme, stated: “… now we had found a spirochete capable of spreading transplacentally to the organs of the fetus, causing congenital heart disease and possible death of the infant  ; REVIEWS OF INFECTIOUS DISEASES • VOL. 8, NO.6· NOVEMBER-DECEMBER 1986
“We report the case of a woman who developed Lyme disease during the first trimester of pregnancy. She did not receive antibiotic therapy. Her infant born at 35 weeks gestational age, died of congenital heart disease during the first week of life. Histologic examination of autopsy material showed the Lyme disease spirochete in the spleen, kidneys, and bone marrow. An autopsy of the infant showed widespread congenital cardiovascular abnormalities. … There was no evidence of inflammation …” Schlesinger PA et al. Ann Intern Med 1985;103:67-8
As to sexual transmission, Dr. Rawls, OBGYN states it’s possible: https://rawlsmd.com/health-articles/can-lyme-be-sexually-transmitted
As to sexual, congenital and transmission via breastmilk, Dr. Howenstein states: http://www.samento.com.ec/sciencelib/4lyme/Townsendhowens.html “There is compelling evidence that Lyme disease (LD) can be spread by sexual and congenital transfer. One physician has cared for 5000 children with LD: 240 of these children were born with the disease. Dr. Charles Ray Jones, the leading pediatric specialist on Lyme Disease, has found 12 breastfed children who have developed LD. Miscarriage, premature births, stillbirths, birth defects, and transplacental infection of the fetus have all been reported. Studies at the University of Vienna have found Bb in urine and breast milk of LD mothers.
Researchers at the University of Wisconsin have reported that dairy cattle can be infected with Bb, hence milk could be contaminated. Bb can also be transmitted to lab animals by oral intake such as food.”
Researchers need to quit clamoring about climate change and start doing legitimate, current, transmission studies!
https://madisonarealymesupportgroup.com/2017/08/14/canadian-tick-expert-climate-change-is-not-behind-lyme-disease/ “The climate change range expansion model is what the authorities have been using to rationalize how they have done nothing for more than thirty years. It’s a huge cover-up scheme that goes back to the 1980’s. The grandiose scheme was a nefarious plot to let doctors off the hook from having to deal with this debilitating disease. I caught onto it very quickly. Most people have been victims of it ever since.” This quote was given by none other than independent tick researcher, John Scott.
Results RNA, LLC of Orem, UT was issued a warning letter from the Food and Drug Administration (FDA) last month over a number of unapproved/misbranded new drugs sold, including one for Lyme disease, where serious violations of the Federal Food, Drug, and Cosmetic Act were found.
The Lyme disease product, Ultimate Lyme Support Extra Strength, a combination product, was among many the FDA discussed in the letter.
According to the Results RNA website and product labels, this product:
Other products mentioned in the letter were marketed for MRSA and other pathogens.
See the full letter HERE
The FDA, based on the claims on the website and product labels, establish that the aforementioned products are drugs because they are used in the “cure, mitigation, treatment, or prevention of disease.”
RNA Results is to notify the FDA within 15 working days as to the specific steps they’ve taken to amend the violations.
We really need to replace Kristen Honey and FAST. Given the information I have verified and documented, every day I am more concerned regarding how she claims to represent Lyme patient priorities. Nevertheless, she continues to play a central role in the Report process of the Tick-Borne Disease Working Group. This Report may have GLOBAL ADVERSE IMPACT on access to diagnosis and care.
Once you’ve had a chance to read the complaint, and if you agree the information contained makes Honey an unsuitable Vice-Chair for the Tick-Borne Disease Working Group, then …
…. please, AS SOON AS POSSIBLE, copy, cut and paste the complaint and mail it in (revisions are fine). The complaint is addressed to the person responsible for FACA, the Designated Federal Officer (DFO) of the Working Group and the alternate DFO.
I also ask that you share this GLOBALLY and ask others to TAKE ACTION.
Remember, we got rid of Wolitski! We can do this!
Thanks – Jenna
To: Tynetta.Dreher@hhs.gov, James.Berger@hhs.gov, Kaye.Hayes@hhs.gov
Dear Ms. Dreher, Mr. Beger and Ms. Hayes,
I have sound reasons to respectfully ask that Vice-Chair of the Tick-Borne Disease Working Group, Kristen Honey be immediately removed from her post:
1. apparently she has not truly represented a federal officer for the Working Group
2. while serving as Vice-Chair she is apparently seeking financing to bring a patent to market ‘to cure’ Lyme patients (and perhaps other patient groups)
3. her documented orientations toward healing has caused great concern among many in the Lyme community
I ask she be replaced with a federal officer familiar with complicated and persistent Lyme and coinfections, including tick-borne diseases and treatment options that have meet internationally accepted standards for clinical practice guidelines.
Not A Federal Officer
The Vice-Chair of the Working Group, Kristen Honey, is a Senior Research Scholar from Stanford University on assignment to the Office of Management and Budget, and apparently not a federal officer .
Her resume is on LinkedIn  and states from “January 2017 to present Senior Policy Analyst via Stanford University Interagency Personnel Agreement (IPA)”. The Intergovernmental Personnel Act (IPA) of 1970 allows the temporary assignment of skilled personnel between Federal and non-Federal entities.
However, since December 2017, Honey has been presented by HHS to the public as holding a White House post. Therefore, many of the those in the Lyme community assumed she was a federal official and met the criteria to be one of the seven federal voting members of the Working Group as required by law as required in the 21st Century Cures Act.
The SIX federal members are: 1. Charles Benjamin (Ben) Beard, 2. Commander Scott Cooper, 3. Dennis M. Dixon, 4. Captain Estella Jones, 5. Allen L. Richards and 6. Vanila M. Singh.
The EIGHT non-federal members are: 1. John N. Aucott, Chair, 2. Kristen Honey, Vice-Chair, 3. Wendy Adams, 4. Richard Horowitz, 5. Lise E. Nigrovic, 6. Robert Sabatino, 7. Patricia V. Smith and 8. Robert Smith
On June 16, 2018, during the Public Meeting of the Working Group I disclosed Honey’s legal status (in public comments) and now many in the Lyme community are disappointed to find that the Working Group leadership perpetuated what appears to be a deception regarding the Vice Chair’s federal status.
We also note that this failure to meet the basic membership requirements of the Working Group as cited in 21st Century Cures Act may invalidate all the Working Group’s efforts to date.
Fund Raising and Conflicts of Interest
Honey has a website that claims  (see under Kristen’s Journey) “… based on limited scientific information and guided by my own personal tolerance for the unknown and risk (and after six months of FDA-approved antibiotics/antifungals failing to work), I ultimately chose the unknown. I went outside the bounds of FDA-approved treatments and self-administer intravenous injections of nanominerals … Fortunately, the treatments worked … Today, after two and a half years (from 2009 to 2012)… I am symptom free and 100% Lyme free.”
(See under Book) “… the novel IV nano-mineral solution — which Dr. Honey pioneered and calls her “lynchpin” for Lyme recovery and thriving wellness — has been patented using open-source intellectual property (IP)…If you or your organization wish to support Dr. Honey’s vision to bring this IV nano-mineral solution to market through open-source IP and open-source medicine, we welcome contributions and collaborations .”
Apparently, while ‘appearing to be a federal officer’ on the Working Group, Honey’s website is also actively seeking funding to bring her non-FDA approved technology for Lyme patients to market and indicates it will cure the disease. This does not appear ethical.
Optics, Orientation and Related Concerns
The follow information has been widely disseminated in the Lyme community and generated much concern regarded Honey’s claims to represent patient interests and priorities.
Rachael Bleau  is a Doctor of Metaphysical Science. (Bleau’s Doctor degree can be earned on-line from the UniversityofMetaphysics.com.) Honey is featured in Bleau’s book titled Clear Your Way to Freedom —the key to unlocking your whole healing . According to this book, Bleau uses a spiritual/religious belief in ‘Ascended Masters’ to heal persons .
Adherents of these Ascended Master Teachings, such as the Great White Brotherhood  believe that the All-Pervading Presence of God does not act nor create except through Its Individualizations. All creation comes forth through These Individual Identities and is sustained by Them. Included in this Cosmic Hierarchical scheme are Solar Logoi, Elohim, Sons and Daughters of God, Ascended Masters, Cosmic Beings, the Twelve Solar Hierarchies, Archangels, Angels, Beings of the Elements, and Twin Flames of the Alpha-Omega Polarity sponsoring Systems of Worlds and entire Galactic Systems.
Page 78 of this book describes Honey’s general background, confirming it is the same Kristen Honey who is the Vice Chair of the TBDWG . According to this book, Bleau used her ‘spirit team’, which includes Ascended Masters, to heal Honey from illness including Lyme disease (page 76). On page 74, Bleau writes about finding an ‘unhappy attachment’ that was hooked on Honey’s left adrenal and ‘hanging on for dear life’. In this passage the author states she removed the unhappy attachment while Honey saw ‘black energy dissipating’. Bleau goes on to state that Honey then fills up with ‘a golden light like honey’ ‘just like her last name’.
On page 76, Bleau refers to the root energy of Honey’s debilitating Lyme disease as being evil. Bleau’s spiritual team was assembled and gave her instructions on where to place her hands on Honey. Bleau found ‘a dark seat of energy’ on Honey’s right thigh. Bleau then ‘profiled the energy’ to locate its home and claims to have heard a hissing sound, like that of a snake, when she pulled the evil energy from Honey’s body.
According to a 2013 blog by the Better Health Guy, Honey gave a presentation at the Integrative Lyme Solutions: The Evidence Basis Conference on June 21-22, 2013 in Dallas, Texas . Honey shared her own personal recovery story. Honey spoke about how she was very sick, ‘likely from tick bites’ and struggled with Lyme infection, Babesia, Bartonella, Ehrlichia, and Mold. In her presentation, Honey noted:
× she did ‘mind, body and spirit work for her successful recovery’
× much of healing ‘is the responsibility of the patient to work on the spiritual or ‘upper levels’ of oneself
× her healing was supported by nanoparticles of gold and silver
Apparently, Honey said she ‘feels strongly that we [Lyme patients] can recover 100% if we choose to’.
Many in the Lyme community are concerned with Honey’s apparent orientation for healing from these complex diseases. Does she believe that persons suffering from Lyme disease, including chronic Lyme with serious debilitation and disability, choose to stay sick? Does this mean that Honey believes that these patients, many who are impoverished by their illness, should pay $350 for a 90 minute session with Bleau? Or someone with Bleau’s special healing powers? Or will patients be encouraged to purchase her ‘novel IV nano-mineral solution’ to be cured of Lyme?
Please remove Kristen Honey immediately from the post of Vice Chair of the Tick-Borne Disease Working Group, thank you.
 source: LinkedIn, CV on https://www.slideshare.net/slideshow/embed_code/key/gPTaDnPp1hyR6N
 Rachael Bleau’s website https://www.rachaelbleau.net/
 Clear Your Way to Freedom by Rachael Bleau MSC.D. Copyright 2014 by Balboa Press. Please note this book has a disclaimer, “the author of this book does not dispense medical advice or prescribe the use of any technique as a form of treatment for physical, emotional, or medical problems without the advice of a physician, either directly or indirectly. The intent of the author is only to offer information of a general nature to help you in your quest for emotional and spiritual well-being”
 See pages 39,40,59, 61, 62, 76, 81 https://books.google.com/books?id=1sAAAwAAQBAJ&printsec=frontcover&dq=editions:vAGjiTCFQpAC&hl=en&sa=X&ved=0ahUKEwiE68Cs-OHaAhXvmuAKHbCCC7oQ6AEIKTAA#v=onepage&q=Kristen&f=false
 Great White Brotherhood – https://www.summitlighthouse.org/great-white-brotherhood/
 Disclaimer from the blog of Better Health Guy: “Nothing in this text is intended to serve as medical advice. All medical decisions should be made only with the guidance of your own personal medical authority. This information was taken as notes during the conference and may not represent the exact statements of the speakers. Errors and/or omissions may be present. If you have any corrections to the content listed below, please Contact Me. [Better Health Guy]”
First, I’ll bet if you interviewed every single person on the Working Group about their beliefs, you’d hear 100 different answers. Personally, I don’t care if someone “believes” the moon is made of cheese as long as they have the ability to weigh those “beliefs” and make productive decisions for really, really, sick people, despite personal preferences, beliefs, and experiences.
The only potential problem with Honey’s “beliefs” and personal experience is she may make the mistake of feeling her experience is the “right” one. If there’s one thing I’ve learned on this journey to hell and back is that it hits everyone so differently and therefore requires different answers. Long-term antibiotics DO work for some, and for some they do not. To rule them out for everyone; however, would be foolish just due to the fact some continue to have symptoms.
What is super concerning is another conflict of interest. Conflicts of interest got us into this mess and they keep rolling out like a barrel full of monkeys. This HAS TO END! Since Honey stands to make money on her patented “nano particle” treatment, she stands to gain by downplaying or eliminating long-term or IV antibiotics for Lyme/MSIDS.
If you have a conflict of interest, GET OFF THE WORKING GROUP. Period. If you stand to make money based on decisions the group makes – GET OFF THE GROUP.