Biological Warfare Experiment on American Citizens Results in Spreading Pandemic

CitizensAlert_Bob13

The following information is taken from the paper written by Jerry Leonard in the above link and is a valuable source of information regarding the way Lyme/MSIDS has been handled.

Leonard makes a case that Lyme (a spirochetal disease) is part II of another spirochetal disease (syphilis) experiment known as the Tuskegee experiment. 

The degree to which Borrelia infections such as Lyme disease affects the readiness status of American troops is an ongoing area of government study. (American soldiers were even infected with relapsing fever Borrelia through injections and tick bites in international experiments to understand the transmission of Borrelia diseases. 50) But the truth has been actively obscured from the public’s view, much like the extent of the national epidemic and its premeditated nature.

The benefits of Lyme as a bioweapon are delineated by researcher Mark Sanborne:

“Lyme’s ability to evade detection on routine medical tests, its myriad presentations which can baffle doctors by mimicking 100 different diseases, its amazing abilities to evade the immune system and antibiotic treatment, would make it an attractive choice to bioweaponeers looking for an incapacitating agent. Lyme’s abilities as ‘the great imitator’ might mean that an attack could be misinterpreted as simply a rise in the incidence of different, naturally occurring diseases such as autism, MS, lupus and chronic fatigue syndrome (ME). Borrelia’s inherent ability to swap outer surface proteins, which may also vary widely from strain to strain, would make the production of an effective vaccine extremely difficult. … Finally, the delay before the appearance of the most incapacitating symptoms would allow plenty of time for an attacker to move away from the scene, as well as preventing people in a contaminated zone from realising they had been infected and seeking treatment.”(58)

Leonard asks an important question:

Is the ongoing effort behind treatment denial of Lyme disease allowing the government to conduct another long-term experiment on the public with a hidden agenda of biological warfare? 63 One which allows them to monitor the various chronic symptoms caused by such disabling agents in an untreated public, while generating a demand for vaccine research against them? If so, how much bad publicity will be required to shut this multi-decade experiment down?

Telling quote:

“So far, we are keeping the known positive patients from getting treatment.” — Comment On Tuskegee Experiment, by U.S. Public Health Service Official

In other words, this tactic was used before by our very own government.

Leonard asks the crucial question:

Why would the medical establishment actively prevent doctors from effectively treating Lyme disease, and help destroy doctors who treat it?

His answer:

I believe the CDC is conducting Phase II of its Tuskegee Experiment on an expanded scale for the same reason it conducted Phase I—the development, testing and marketing of pharmaceutical products to treat only symptoms of the disease. In fact, the treatment denial of the Phase I Tuskegee Experiment has become an everyday occurrence for thousands of Lyme patients because the experiment has become institutionalized within the mainstream medical system through the creation and enforcement of treatment guidelines to justify treatment denial. For added protection, the CDC is conducting this experiment in long-term treatment denial through the biowarfare infrastructure as a biodefense exercise.

Medical literature explained away the reason for not treating syphilis patients by stating long-term studies had to occur to understand the pathogenesis of the disease before an effective program could control it.

Leonard states that Lyme disease creates a similar yet different multi-staged, chronic infection and that a similar experimental rational could be used to in efforts of creating treatments and vaccines.

Author Dr. Colin Ross obtained FOIA documents on unethical government experimentation and noted that:

“The Tuskeegee Syphilis Study was eventually shut down in 1972 because of the efforts of an investigative journalist. There is no evidence to suggest that the government or the medical profession had any intention of closing the study as of 1972.”

And here we are today, nearly 50 years after a horrific 40 year human experiment, which allowed patients to suffer and die while the government calmly observed the tragedy unfold. And, bizarrely, there is a current inquiry into the Lyme/MSIDS debacle due to the efforts of another investigative journalist: https://madisonarealymesupportgroup.com/2019/07/16/house-orders-pentagon-to-say-if-it-weaponized-ticks-and-released-them/

https://madisonarealymesupportgroup.com/2019/05/01/interview-with-kris-newby-bitten-the-secret-history-of-lyme-disease-biological-weapons/

We find ourselves in another 40 year experiment where the medical establishment and our government calmly observe us – denying us, refusing to even test and treat us, and worse yet – telling us it doesn’t even exist.

Doctors who attempt to treat this appropriately are singled out:  https://madisonarealymesupportgroup.com/2018/12/15/everything-about-lyme-disease-is-steeped-in-controversy-now-some-doctors-are-too-afraid-to-treat-patients/

https://madisonarealymesupportgroup.com/2017/06/24/llmd-daniel-cameron-disciplined-by-ny-medical-authorities/

My own doctor went through this as well:  http://www.dailykos.com/story/2012/01/29/1059800/-Wisconsin-Lyme-doctor-gets-reprieve

In this Tuskegee slideshow, by Kim Augustine, please note slide #8 that the “participants” were told they had “bad blood.” Could this be the equivalent of Lyme patients all being told they have MUS (medically unexplained symptoms) which in the psychiatric world means you are psychosomatic?  https://www.slideshare.net/kaugustine66/tuskegee-experiement-power-point

Please watch Gene Shapiro accuse patients suffering with Lyme symptoms of MUS:  https://madisonarealymesupportgroup.com/2019/06/11/dr-eugene-shapiro-medically-unexplained-symptoms/  He urges the medical community to develop ways to prevent “healthcare-seeking behaviors” by parents who believe their children may have Lyme disease.

Also, please remember that Gary Wormser, the lead author on the IDSA Lyme Guidelines not only has conflicts of interests, but travels around the country giving lectures on biological warfare treatments. Coincidence?

https://madisonarealymesupportgroup.com/2017/12/02/please-sign-petition-get-wormser-out/

https://sites.google.com/site/jerryleonard999/home/gary-wormser-national-security-menace-and-traitor-to-humanity You have to scroll down a ways, but you will discover Wormser authored, “How Germs Become Weapons: Recognizing Agents – Treating Patients.” For the relapsing anthrax bioweapon he recommends long-term combination antibiotic therapy, yet denies this very treatment for relapsing Lyme/MSIDS. He was also at ground zero for HIV, defining treatments for the AIDS epidemic, which occurred at the same time as the Lyme/MSIDS debacle. You can read about Steere and other biowarfare details within this link as well.

For a complete chronology of events: https://galacticconnection.com/lyme-disease-mycoplasma-and-bioweapons-development-timeline/? This link also exposes DOJ Special Investigator John Loftus’ discovery in America’s Nazi Secret,” that files on Erich Traub showed he was engaged in using ticks as a medium to spread disease:

“Even more disturbing are the records of the Nazi germ warfare scientists who came to America. They experimented with poison ticks dropped from planes to spread rare diseases. I received some information suggesting that the U.S. tested some of these poison ticks on the Plum Island artillery range off the coast of Connecticut during the early 1950’s. I explored the old spies’ hypothesis that the poison ticks were the source of the Lyme Disease spirochetes, and that migrating waterfowl were the vectors that carried the ticks from Plum Island all up and down the Eastern Seaboard. Most of the germ warfare records have been shredded, but there is a top-secret U.S. document confirming that “clandestine attacks on crops and animals” took place at this time. The Lyme Disease outbreak in America was monitored secretly under the cover of a New England health study….sooner or later the whole truth will come out, but probably not in my lifetime. Years from now historians will have to put the secret files into context of events, a job akin to passing dead leaves back on the tree in right order…..” John Loftus

Annie Jacobsen in the groundbreaking “Operation Paperclip” discloses that a Nazi outpost on the island of Riems, a Nazi biowarfare warfare lab was managed by Otto Waldmann with assistant Erich Traub. Traub spent several years in America doing research at the Rockefeller Institute and even became a staff member for medical research. He was a virologist, microbiologist, and professor of veterinary medicine, and was an expert in Newcastle disease (contagious bird flu) that was rumored to be weaponized. Traub cited loyalty to the Reich and chose to return to Germany rather than continue his research in America.  He eventually returned under the Operation Paperclip Project, a secret program of the Joint Intelligence Objectives Agency largely carried out by Special Agents of Army CIC, in which more than 1,600 German scientists, engineers, and technicians, were recruited in post-Nazi Germany and taken to the U.S.

Jacobsen states Traub was experienced in the illegal trafficking of deadly pathogens and that the FBI watched him but what they learned remains classified as of 2013.  She also states the Pentagon was able to keep the weapons program a secret from Congress by keeping everything classified.

For more: https://reconsider.news/2018/05/15/deadly-secrets-plum-island-us-animal-disease-center/

The evidence continues to mount.

64357008_10217935576008450_2638357839671721984_n

Please note ALL at one time were CDC employees, working for our government.

“I am Barbara Johnson. I am a biochemist by training and I am speaking today on behalf of the Centers for Disease Control and Prevention concerning serodiagnosis of Lyme disease. Specifically, my statement is in support of (the) IDSA recommendation in the guidelines to use two-tiered serology (an ELISA screening test followed by Western Blots if ELISA positive) to support the diagnosis of Lyme disease in patients who have manifestations other than acute erythema migrans.– IDSA Lyme Disease Review Panel Hearing, July 30, 2009

For more dirty deeds done dirt cheap: ConflictReport

Will our government own up? Time will tell. Meanwhile, the bodies continue to pile up.

 

 

 

 

Mastering Ozone Workshop

The next hands on mastering ozone workshop will be Sept 20-21, 2019 and will be taught by Dr. Rowan.

Details here: Announcement Class 9-19

The weekend is a practical demonstration teaching hyperbaric ozone and 10 pass. For local injections, there will be a demo epidural, superior hip approaches, prostate, female (if available) and all local joints. You will be introduced to kinesiology, a must to locate dental disturbances which might foul results.

For John Trowbridge’s remarks on the workshop:

All trainees get to be listed on Dr. Rowan’s website, a site that gets a lot of traffic of patients looking for ozone therapy. Many attendees state that they get an average of one patient a week from the listing.
__________________

**Comment**

I post this information as I feel ozone to be a great tool in a practitioner’s tool-box. As with all other modalities, I do not believe it to be curative. Despite what practitioners state, a “tune-up” with ozone is continued treatment, therefore, not curative. There are numerous techniques including blood ozone, where ozone is put directly into the blood, as well as by injection and in combination with prolotherapy for pain. Some drink ozonated water, and there are ozone saunas. You can also use ozone rectally and vaginally and in the ear. There is also topical ozone in ozonated olive oil. Go here for a video about how I used it (warning: gross pictures):  https://madisonarealymesupportgroup.com/2018/03/02/dmso-msm-for-lyme-msids/

BTW: I own an ozone machine and have used it rectally/vaginally daily – sometimes numerous times a day. I never herxed and I never noticed a change.

My biologic dentist uses ozone in all her surgeries and my husband has had the prolozone for pain due to Lyme disease with very good results. We have both utilized single-pass blood ozone under UV light weekly for 2.5 months. Again, we never herxed or had noticeable improvement. I do believe ozone is dose dependent and we probably needed it stronger.

Dr. Rowan teaches these techniques in his workshops as well as 10-pass and EBOO (dialysis-type blood ozone which is a continuous circuit). Many patients have felt relief nearly instantly, and it works against viruses as well as bacteria. The EBOO type is particularly strong but costs $900-$1,000 for ONE treatment, and you need to go to the doctor’s office to have it done, so you can see the impracticality of it for many patients as a singular treatment for Lyme/MSIDS. It may be something you save up for and do a stint of with the goal of hitting any potential viruses and cleaning up the blood as well as getting more oxygen into the body which has a lot of health benefits.

For more:  https://madisonarealymesupportgroup.com/2017/12/04/ozone-ten-pass-lyme-msids-treatment-in-ca/

For a different take & experience of a few Lyme patients:  https://thepowerofozone.com/ozone-myths-busted-myth-2-rhp-eboo-is-the-most-powerful-ozone-protocol/

 

 

https://folks.pillpack.com/the-worst-thing-about-lyme-disease-is-what-it-does-to-your-mind/

The Worst Thing About Lyme Disease Is What It Does To Your Mind

Lyme disease doesn’t just affect your body. It can also cause paranoia, anxiety, depression, and sudden flashes of inexplicable rage.

My friend and I are walking to dinner when it hits. My jaw clenches, my hands curl into fists, and it feels like my head will explode. My mind fills with overwhelming rage over absolutely nothing and everything remotely annoying that’s ever happened to me. I try to distract myself by listening to my friend, but I can’t hear her over the cacophony of my racing thoughts. Intrusive violent fantasies take over. I resist the urge to stomp my feet and scream. There’s not much that I can do at this point. I just tell myself it’ll pass… and a few minutes later, it does.

Rage is one of many mental health issues people with Lyme Disease face. A study in Neuropsychiatric Disease and Treatment found that 68 percent of Lyme patients experienced explosive anger, homicidal thoughts, and/or suicidal thoughts. Other studieshave found that 54 percent of Lyme patients suffer from irritability or mood swings, 23 percent have anxiety, 21 percent experience depression, and 13 percent meet the criteria for obsessive compulsive disorder.

I’m one of those people. And I am far from alone.

Christina Giaquinto experienced extensive anxiety after being diagnosed with Lyme disease. Credit: Christina Giaquinto

The Mental Cracks Of Lyme Disease

Kerri Lynn Neugebauer, a 47-year-old marketing and talent director in Pittsburgh, experienced intense paranoia while she was suffering from Lyme. “I thought I was being followed when I was out,” she remembers. “I would wake up in the middle of the night clawing at the walls because I thought I was trapped. And every time we came home from being out, I thought someone was in the house.”

For Kirsten Stein, a 49-year-old Bay Area Lyme Foundation board member in California, the primary mental health symptom was anxiety. “I have been flying in planes since I was 12 years old, yet while experiencing symptoms immediately prior to being diagnosed, I had a panic attack on airplane out of the blue,” she says.

“I would wake up in the middle of the night clawing at the walls because I thought I was trapped. “

“As someone who has experienced anxiety in the past, I can always tell the difference when it is ‘Lyme anxiety,’” says Christina Giaquinto, a 28-year-old life coach in New Jersey. “When someone experiences [non-Lyme] anxiety, it is because they are thinking of something that causes a physical reaction. With Lyme, it is the complete opposite. It attacks without cause. You feel very trapped because there is nothing you can do to fix it since there is no cause.”

Giaquinto also experienced depression and derealization from Lyme.

“I constantly felt like I was in a video game watching everyone else live,” she says. “It took away my sense of self.”

Why Lyme Causes Mental Health Problems

Understanding of the mechanisms by which Lyme causes these problems is still in its infancy, but what do know that the bacteria that cause Lyme can get into the central nervous system, and inflammation in the brain and throughout the body can lead to mental health symptoms, says psychiatric physician Rupali Chadha, MD.

Because Lyme infects the white blood cells of the immune system, it can also throw off your gut and brain microbiome, which can in turn lead to imbalances of neurotransmitters and hormones, says Bill Rawls, MD, an integrative health expert on Lyme and other chronic illnesses. “While we don’t have definitive data on a cause or prevalence, we do see patients with Lyme disease in psychiatrists offices,” says Chadha.

“Feeling like your brain is on fire is bad enough, but not being understood by the medical profession or by the people around you makes everything 10 times worse,” says Rawls.

Mental illness associated with Lyme can come not just from the Lyme itself but also from certain treatments, as well as from knowing you have a chronic and difficult-to-treat illness. Mike Robinson, a 53-year-old cannabis researcher in Santa Barbara, developed depression and anxiety as a result of receiving a Lyme diagnosis and says it worsened after antibiotic treatment. He also chalks his mental health struggles up to “the way it makes your body feel, the neuropathic pain it causes, and the stigma about it.”

People with neurological Lyme disease often test negative for Lyme, says Wendy Adams, Research Grant Director at the Bay Area Lyme Foundation. This means that instead of receiving Lyme treatment, they’re frequently given labels such as OCD or schizophrenia without receiving help for the underlying issue.

Mike Robinson, a 53-year-old cannabis researcher in Santa Barbara, developed depression and anxiety as a result of receiving a Lyme diagnosis.

What To Do When Lyme Affects Your Mental Health

If you’re struggling with mental health symptoms that may be due to Lyme, Chadha recommends seeing a physician rather than just a therapist about it, since treatment will require you to get to the physical root of the issue. “Therapy may be very useful and may be recommended and added,” she says. “But if someone has Lyme disease and develops psychiatric symptoms, they need to see if physician to see if they require biological treatment i.e. medication.”

Rawls usually recommends antimicrobial herbs to patients dealing with mental illness and other neurological symptoms of Lyme, since antibiotics aren’t always able to kill Lyme in the central nervous system and herbs can also help restore immune function. The herbs he uses to heal the nervous system include berberine, andrographis, cat’s claw, Japanese knotweed, garlic, and sarsaparilla. “Healthful diet, clean environment, low stress, and an active lifestyle are all essential for overcoming chronic Lyme disease,” he says.

Even if Lyme sometimes takes over my mind, it doesn’t have to take over my life.

In the meantime, be as patient with yourself as you can. Due to the myth that mental illness is within your control, it can be tempting to blame yourself, especially with symptoms like rage that people have trouble sympathizing with. If Lyme causes you to engage in behavior you wouldn’t otherwise, Rawls suggests forgiving yourself, as you’re dealing with an illness, and focusing on doing better next time. Reducing your stress and gaining as much control over your life as you can will help, he says.

Though my journey with Lyme isn’t over yet, my rage has gotten easier to deal with because I’ve learned a new approach to it. Instead of just getting more mad about the fact that I’m mad, I validate how I’m feeling and try to do something nice for myself, like getting something to eat or drink or lying down and resting. I remind myself that it’ll pass, and if it comes again, it will pass again after that. Even if Lyme sometimes takes over my mind, it doesn’t have to take over my life.

__________________

**Comment**

Please keep in mind that although Dr. Rawls is a doctor, he’s now in the business of selling herbs.

https://globallymealliance.org/regaining-control-day-life-agency-important-lyme-warriors/

Copy-of-MyLymeLife_2-4-1


by Jennifer Crystal

Agency—or, having a voice, having the power to make free choices about issues related to you or your body—has been a big buzzword in the news lately. I’ve been thinking about the word in the context of my own life.

For nine months, I was in a serious relationship with a man who seemingly understood and supported my needs as a chronic Lyme patient. And then, suddenly and without warning, I wasn’t. He decided he was done and simply informed me of his choice; I had no say in the matter.

Had the breakup happened mutually, or at least over time—with the discussion and effort we’d promised each other—it still would have been difficult, but at least I would have had some agency. And for a patient of chronic illness, that’s not a small thing.

Having the bottom drop out on my personal and emotional life was a sad reminder of the ways it had dropped out on me physically, many times. The chronically ill, and people who suddenly become sick or injured, are stripped of agency. It happens when we get sick without warning, when we can’t control how or if we’ll get better, when we’re dismissed by medical professionals. As a result, it’s that much more frustrating when we can have a say about something, but aren’t granted it.

Everyone deserves a voice. I learned this years ago as a summer camp counselor. During counselor meetings we would discuss issues campers were having due to behavioral challenges. A wise colleague taught us that every child needs four things: love, safety, fun, and power. When one of those basic needs is threatened, kids act out. I readily understood why children need love, safety, and fun. But I realized they need power, too, because they are often told what they can and cannot do; they don’t feel like they have a say over their lives. Giving them agency makes them feel more in control. Campers were less likely to break cabin rules if they helped create them.

When a Lyme Literate Medical Doctor (LLMD) finally put the pieces of my medical puzzle together and made an accurate diagnosis of Lyme disease—in addition to the co-infections babesia and ehrlichiaI at last felt I was heard and validated. Treatment was long and arduous and I had little control over how I felt day to day, but as I regained strength, I also regained agency. Over time, I could rely on my body more. I eventually knew when I would have good energy and when I wouldn’t, and learned habits to promote the good energy. I learned to speak up for my needs. Tick-borne illnesses were no longer completely running my life.

Then the bottom dropped out again: I relapsed. I fell into a pit of despair, not only because I was physically back at ground zero, but because I’d had no say in getting there. Sure, I’d taken on a lot and gotten overly stressed, factors that I now know can play a role in relapse. But the relapse itself was not my doing. That was up to the spirochetesthat ran rampant in my body. I hated that I was once again at the whim of my illnesses, not of my own free will. I couldn’t work, live independently, exercise or do anything I wanted to do, and I railed against that loss of freedom.

Cognitive behavioral therapy helped me to take control over little things, even though so much was out of my hands. I had no say as to whether the antibiotics would work, how long it would take for me to get well, or if I even would. But I could control choices that would help my chances of my achieving remission. I could parse out my energy. I could limit screen time that riled up my neurological symptoms. I could eat healthy foods. I could say no to going somewhere or doing something when I didn’t feel well enough to do so.

And I could say no even if I did feel well enough to do something. One night during my recovery, my parents invited me out to dinner. It was a sweet and generous offer. They were surprised when I declined, because I seemed to have good energy that night. Why wouldn’t I go out if I could? But I didn’t want to go out to dinner. I wanted to stay home and have a little time to myself, maybe call a friend. Making decisions about what I wanted to do, instead of feeling like I had to do something just because I could, was an important way of maintaining agency.

We can’t always guard against the bottom dropping out in life. But sick or healthy, it’s important that we allow ourselves agency over those small things we can control. And it’s especially important for us to respect others enough to give them a say over matters that pertain to them or their bodies. We all want to take part in our own lives, not have life just happen to us. Everyone deserves that power!


Opinions expressed by contributors are their own.

Jennifer Crystal is a writer and educator in Boston. She has written a memoir, One Tick Stopped the Clock, for which she is seeking representation. Contact her at: lymewarriorjennifercrystal@gmail.com

 

 

 

https://www.galaxydx.com/biofilms-bartonella-borrelia-chronic-infections/

By Galaxy Labs

Biofilms: What are they? How do they impact chronic infections?

https://www.cnn.com/2019/07/16/us/kentucky-man-tick-in-eyeball-trnd/index.html

A man went to the optometrist with something stuck in his eye. The doctor pulled out a tick.

Prater didn’t originally think anything of the irritation before the diagnosis. It must’ve been the sawdust that got caught in his eyeball, he thought, and he could easily flush it out later.
Flush he did, but the discomfort persisted. Prater begrudgingly saw an optometrist who broke the news — a deer tick had taken up residence in his cornea.
Before Prater could wrap his head around it, the doctor numbed his eye and plucked the pest out with tweezers.
The tick made a “little popping sound” as it was pulled out, he said.
The doctor sent him off with antibiotics and a prescription for steroid eye drops. And Prater left with one less living thing sharing his body.

Forget why ticks are terrible? Let’s review

When it comes to finding new ways to freak people out, the bloodsucking disease-spreading parasite just won’t quit.
Prater’s tick-in-the-eye isn’t even the first reported: an eye doctor recounted yanking a live tick out of a man’s eye in a 2011 report from the American Academy of Ophthalmology.
And they’re not partial to eyeballs, either. A 9-year-old boy in Connecticut returned from a romp at the playground to find a tick embedded in his ear, feeding on the blood from his eardrum tissue. If it hadn’t been removed, doctors said the tick’s tissue-munching might’ve impaired his hearing.
Oh, and researchers recently discovered that a species that has learned to clone itself and is predicted to “soon occupy a large swath of eastern North America.”
In short: thank you, ticks, for absolutely nothing.
___________________
For more:
So, here’s the question to entomologists who claim ticks don’t drop from trees…..how did this man get a tick in his eye while cutting a tree?
https://madisonarealymesupportgroup.com/2017/07/13/tv-anchor-speaks-out-about-lyme-disease/  I met Mike in person and he stands by his story that he was bit by a nymphal tick that dropped from a tree onto him when he was at a garden party on a deck.
Again, I’ve personally had ticks on my basement screens after a local farmer cut grass and blew them toward my house. Some even made it inside onto my basement walls, where they were promptly crucified.

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/24834661?

Seronegative Chronic Relapsing Neuroborreliosis

JUL 17, 2019 — 

The letter below was forwarded to the Tick-Borne Disease Working Group as a follow-up to the first letter sent to Auwaerter which can be viewed here: https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/24825076

Lyme Bumper Stickers (Public Service Announcement)
https://www.ebay.com/itm/123659578861

WAKE UP AMERICA!

 

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: tickbornedisease@hhs.gov, chris.smith@mail.house.gov
Cc: (98 Undisclosed recipients)
Date: July 17, 2019 at 11:49 AM
Subject: Re: Lyme disease often misdiagnosed, resulting in unnecessary antibiotics

To the Tick-Borne Disease Working Group,

Please see my second letter below (and attachment) to Dr. Auwaerter referencing Seronegative Chronic Relapsing Neuroborreliosis. 

-Carl Tuttle

2nd Letter to Auwaerter:

——- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: Paul Auwaerter <pauwaert@jhmi.edu>
Cc: psax@bwh.harvard.edu, jli@bwh.harvard.edu, cbusky@idsociety.org, tkobaya5@jhmi.edu, jmstiglich@healio.com, infectiousdisease@healio.com
Date: July 17, 2019 at 11:41 AM
Subject: Re: Lyme disease often misdiagnosed, resulting in unnecessary antibiotics

Lyme disease often misdiagnosed, resulting in unnecessary antibiotics
Kobayashi T, et. Open Forum Infect Dis. 2019;doi:10.1093/ofid/ofz299.

July 17, 2019

The IDSA Foundation
1300 Wilson Boulevard Suite 300
Arlington, VA 22209
Attn:  Paul Auwaerter, vice chair of the IDSA Foundation

Dear Dr. Auwaerter,

While you contemplate your response to my inquiry requesting grant money for the purpose of proficiency testing of direct detection methods for Borrelia (DNA Sequencing). I would like to point out the following 1995 case study from Stony Brook Lyme Clinic.

I understand the patient received thirteen spinal taps, multiple courses of IV and oral meds, and relapsed after each one, proven by CSF antigens and/or PCR. The only way this patient (said to be a physician) remained in remission was to keep her on open ended clarithromycin- was on it for 22 months by the time of publication.

Seronegative Chronic Relapsing Neuroborreliosis.  
https://www.ncbi.nlm.nih.gov/pubmed/7796837

Lawrence C.a · Lipton R.B.b · Lowy F.D.c · Coyle P.K.d

aDepartment of Medicine, bDepartment of Neurology, and cDivision of Infectious Diseases, Albert Einstein College of Medicine, and dDepartment of Neurology, State University of New York at Stony Brook, New York, NY., USA

Eur Neurol 1995; 35:113–117  (DOI:10.1159/000117104)

Abstract

We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.

________________________

This is not the only case where a negative antibody response was identified. In fact I have attached the following document referencing:

Seronegativity in Lyme borreliosis and Other Spirochetal Infections

https://www.dropbox.com/s/3d6m45jzlhhwalu/Seronegativity.pdf?dl=0

“If false results are to be feared, it is the false negative result which holds the greatest peril for the patient.”

Your publication in Open Forum Infectious Diseases and the Healio article is suggesting that a patient couldn’t possibly have Lyme if they don’t test positive on the outdated two-tier testing algorithm. This is misleading to the reader and the medical community.

Please see the following article regarding the difficulty in diagnosing Lyme disease:

The Staggering Cost of Lyme Disease and Other Tick-Borne Illnesses

PR Newswire July 10, 2019

https://finance.yahoo.com/news/staggering-cost-lyme-disease-other-123600606.html

According to the survey:

-45% of patients needed more than three years to obtain the proper diagnosis

-65% of patients were forced to quit a job or cut back on their hours due to their symptoms

-24% of patients saw more than ten doctors before receiving a proper diagnosis

-86% of patients suffer from long-term side effects from not having been diagnosed sooner

Researchers hope that the survey will help educate the public on the risks associated with delaying testing or relying on old testing techniques. “In our view, many patients are missed because much of the testing recommended by general practitioners is based on technology from 25 years ago,” says Dr. Shah. “Science has progressed, and we can now give patients a much more accurate diagnosis than was available years ago.”

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Dr. Auwaerter, how many Lyme patients were turned away from your clinic and left untreated because they did not test positive through unreliable serology?

It is time to move forward and find a better approach. Please stop this nonsense.

Sincerely,

Carl Tuttle

Lyme Endemic Hudson, NH

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**Comment**

One of the best quotes on abysmal serology testing:  https://madisonarealymesupportgroup.com/2017/07/09/idsa-founder-used-potent-iv-antibiotics-for-chronic-lyme/

“Setting arbitrary level of antibodies to diagnose a disease that has not been amenable to Koch’s postulates seems open to question.  By the same token, ignoring antibody results unless they meet arbitrary levels seems suspect. The vast majority of patients in this series showed some WB antibody exposure, but many did not meet the arbitrary limits set….in our present state of knowledge, the diagnosis of chronic Lyme disease is a clinical one.  Many of the patients in this series have suffered serious ‘hurts’ when they have been told that they could not have LD because their WB did not meet arbitrary limits.”  – Dr. Waisbren (RIP)