Archive for the ‘Pregnancy’ Category

Got Deer Flies?

https://dianeatwood.com/deer-flies-trap/

Get rid of pesky deer flies with this easy-to-make hat trap

Thanks to a yard thick with deer flies, mowing the lawn used to be a nightmare for Barry. Now, it’s a dream. Well, that might be an exaggeration, but it’s a whole lot better. He shares his secret to getting rid of deer flies in this guest post.

By Barry Atwood (2016)

A few years ago after being driven half crazy by deer flies, I did some research. I discovered a strategy to deal with them that actually works! For some reason, deer flies are attracted to the color blue. They also prefer heads as a place to take their bite.

So first, I acquired a royal blue baseball cap.

Barry with blue hat

Then off to a garden center to buy a product called Tree Tanglefoot. It is an extremely sticky substance that you squeeze from a tube. It is primarily used to create a barrier at the base of a tree to prevent pest insects from climbing the tree.

Tanglefoot for deer flies

You need to smear Tanglefoot all over the outside surface of the cap. It helps to wear disposable rubber gloves when you do this.

Smearing Tanglefoot on hat

Then don the hat and go wherever you want. You will NOT be bitten by one single deer fly. I promise!

When you are done outside remove the hat and behold the (many) flies trapped in the goo. I have snared as many as 15 or 20 in a single outing. And even though I am not big on killing things, I do make an exception for deer flies and have dubbed my sticky fly trap the Blue Hat of Death. Trust me, it REALLY works!

Barry wearing hat to trap deer flies

Update from Barry August 2019

My Blue Hat of Death continues to do its job. The first time this spring that I got dive bombed in the back yard I retrieved it from the (high) hook in the barn where it lives in winter. Although the Tanglefoot probably remains sticky forever, I reapply a fresh coat each year.

I have incorporated the technique of putting strips of packing tape on my hat prior to slathering on the goo. This way the embedded deer fly carcasses can easily be discarded. I continue to marvel at the effectiveness of this unsightly invention.

Speaking of inventions, I have discovered something that is equally effective in repelling mosquitoes. I cannot dislike these relentless vampires enough when their twilight swarms make our deck all but unusable. The device(s) that work perfectly are marketed under the brand name of Thermacell. You can do a search to find various vendors (I am NOT being compensated to promote these products), we got ours from L.L. Bean.

If you go to the Thermacell website you will also see something they market as “tick tubes”. You can read about how they work but they sound like a promising new tool to fight the spread of tick borne illnesses. I have just ordered some to try as we have also been finding lots of deer ticks.

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For more:  https://madisonarealymesupportgroup.com/2019/04/12/tick-prevention-2019/

https://madisonarealymesupportgroup.com/2019/07/01/what-you-need-to-know-about-bug-sprays/

https://madisonarealymesupportgroup.com/2018/05/27/study-conforms-permethrin-causes-ticks-to-drop-off-clothing/

https://madisonarealymesupportgroup.com/2018/04/03/fire-good-news-for-tick-reduction/

https://madisonarealymesupportgroup.com/2018/09/15/talking-tick-prevention-ask-a-uw-veterinarian/

Is Lyme Disease Sexually Transmitted?

https://www.bca-clinic.de/en/is-lyme-disease-sexually-transmitted/

Is Lyme Disease Sexually Transmitted?

Lyme disease is primarily transmitted by ticks; that much most people know. The link between the words ‘Lyme’ and ‘ticks’ is cemented in the public consciousness, so much so that in 2018, many will instinctively conjure images of ticks when they hear or read something concerning Lyme disease. This is certainly progress. The enigmatic disease was only discovered a mere 43 years ago, although it has been around for centuries. Since its discovery in the town of Old Lyme, Connecticut, the disease has had a hard time being taken seriously, or at least being considered as the debilitating threat it undoubtedly is. Now that Lyme is finally becoming more visible in the mainstream medical community, patients and doctors alike are looking at ways it can be transmitted. One of the areas up for discussion is the possibility of sexual transmission.

Many severe and extreme conditions can be transmitted sexually, and everyone is aware of the dangers of prominent STDs like AIDS, HIV, syphilis, gonorrhoea and herpes. But could Lyme disease also join the line-up of threats? It was previously thought that any type of human-to-human Lyme transmission was impossible, and only specific types of tick could spread the disease. Borrelia burgdorferi is the bacteria responsible for causing Lyme; it’s carried by deer ticks in North America, and sheep ticks in Europe. It is estimated that as many as one in three ticks are contaminated with Borrelia, making the likelihood of catching Lyme in tick-populated areas quite high. Many people dismiss Lyme disease as they believe it’s easy to tell if you’ve been bitten by a tick or not. However, it is not altogether straightforward. Ticks will often seek out sheltered or hard-to-reach places on the human body before biting, and their saliva is laced with a paralytic agent that further minimises the risk of detection.

BCA-clinic - couple
While the medical community put a lot of effort into researching, treating and attempting to cure common STDs, the research into whether Lyme disease can be sexually transmitted is very limited.

The appearance of a distinctive bullseye rash is one of the most concrete indicators of Lyme disease, although it can be quite hard to spot, and never appears in the first place in a minority of cases. This rash is accompanied by flu-like symptoms as the disease spreads in its acute stage. When these symptoms subside, the bacteria settle into the body, and the condition mutates into its chronic stage, which is notoriously hard to both diagnose and treat, and remains a point of contention between Lyme experts and other medical professionals. If the offending bacteria remains in a person’s system for many years, then it’s logical to assume that they can potentially transmit Lyme disease to their sexual partner(s) at any point during the prolonged infection. Therefore, it’s crucial to know if and how this type of transmission is possible.

According to the CDC (the Centres of Disease Control and Prevention), the case is crystal clear: their website officially states that ‘there is no credible scientific evidence that Lyme disease is spread through sexual contact’, going so far as to say that ‘the biology of the Lyme disease spirochete is not compatible with this route of exposure’. However, the CDC hasn’t got a great track history of Lyme expertise. Their position on the chronic form of Lyme is still a grey area at best, and their website also states that, in relation to the transmission of Lyme disease from mother to child during pregnancy, ‘no negative effects on the foetus have been found’. In fact, the transmission of Lyme during pregnancy is well-documented by Lyme experts and researchers, and although it’s a rare scenario, it is still possible.

BCA-clinic
The CDC say that there is no discernible evidence that Lyme disease can be sexually transmitted, experts have theorised that it is a possibility.

So how do the experts see it? Dr. Carsten Nicolaus, head of Lyme specialists BCA-clinic in Augsburg, thinks that the question is not easily answered, and although it’s a probability, the risk seems very low. He cites a study conducted by Marianne Middelveen and Dr. Ray Stricker in 2014, which confirmed the presence of Borrelia burgdorferi in the genital secretions of Lyme-positive heterosexual couples. In one case, a couple was found to secrete an identical strain of Lyme spirochete in their separate samples, strongly indicating that the bacteria can be transmitted through unprotected sex. However, the study conducted is far too small to be of any diagnostic use; although the findings are interesting and alarming, more research and studies need be conducted to produce a concrete answer.

In theory, certainly, sexual transmission of Lyme disease is possible. The corkscrew-shaped Lyme spirochete shares many traits with Treponema pallidum, the microbe that causes syphilis. The latter is well-versed in the sexual transmission pathway, and has honed the method to near perfection. Borrelia has repeatedly been shown to be both opportunistic and insidious in the way it infects and survives in its host; it follows that if the opportunity for a new method of infection arose, it would almost certainly take it. As Lyme disease becomes more visible all over the world, it is important to remember that we know startlingly little about it, in comparison to other disorders. As such, it is crucial that meticulous study and tests continue, so we can rule out certain methods of transmission, or devise new ways to fight them.

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**Comment**

Although this was written 4 months ago, it still demands an answer.

Isn’t it interesting that the small 2014 study barely raised eye-brows except for in the Lyme world?  That should tell you something right away.

Authorities don’t want to know the answer to this question because first they’d have to admit stupidity & that they were wrong, and second, they’d have to do something about it….and heaven forbid either of those two things happen.

I’m quite open about the fact I believe I got this STD from my infected husband. All my initial symptoms were gynecological, it’s just I didn’t know anything about Lyme/MSIDS at the time. I went down the rabbit-hole of transmission fairly quickly in my journey due to my own case and I write about it, with tons of links to studies and experts disagreeing with the accepted narrative here: https://madisonarealymesupportgroup.com/2017/02/24/pcos-lyme-my-story/

Nothing is going to happen unless we demand it to happen. I find it highly interesting that at the first whiff of Zika being sexually transmitted, authorities followed through and it was the shot heard around the world – even though mosquitoes can’t even carry it in Wisconsin and many, many other states.

Here’s the map of places in the U.S. where the mosquitoes capable of transmitting Zika live:

skeetermap_3d30eb2906fee062c217d550899919fa.fit-560w

Here’s where the black legged tick able to transmit Borrelia burgdorferi and B. mayonii (which cause Lyme disease), Anaplasma phagocytophilum (anaplasmosis), B. miyamotoidisease (a form of relapsing fever), Ehrlichia muris eauclairensis (ehrlichiosis), Babesia microti (babesiosis), and Powassan virus (Powassan virus disease) lives:

lgmap-blacklegged_tick

Here’s where the American dog tick capable of transmittingTularemia and Rocky Mountain spotted fever lives:

CS4_Tick Basemap_v8.ai

Here’s where the brown dog tick capable of transmitting Rocky Mountain spotted fever lives:

CS4_Tick Basemap_v8.ai

Here’s where the lone star tick capable of transmitting Ehrlichia chaffeensis and Ehrlichia ewingii(which cause human ehrlichiosis), Heartland virus, tularemia, and STARI live:

lgmap-lone_star_tick-2

Here’s where the Rocky Mountain wood tick capable of transmitting Rocky Mountain spotted fever, Colorado tick fever, and tularemia lives:

CS4_Tick Basemap_v8.ai

Here’s where the Gulf Coast tick capable of transmitting Rickettsia parkeri rickettsiosis, a form of spotted fever lives:

CS4_Tick Basemap_v8.ai

And lastly, where the Western black-legged tick capable of transmittingAnaplasmosis and Lyme disease lives:

CS4_Tick Basemap_v8.aiTick distribution maps found:  https://www.cdc.gov/ticks/geographic_distribution.html

In total – 7 types of ticks spreading deadly diseases in every single state in the U.S. but we know more about a tropical disease that in 80% of those who contract it have ZERO symptoms, and 1 out of 5 will have mild symptoms that last a week.  https://madisonarealymesupportgroup.com/2016/12/21/how-zika-got-the-blame/. Call me crazy, but the disparity of risk between the two diseases couldn’t be greater.

Not to mention that migrating birds are transporting ticks worldwide:

https://madisonarealymesupportgroup.com/2019/03/09/danish-study-shows-migrating-birds-are-spreading-ticks-their-pathogens-including-places-without-sustainable-tick-populations/

https://madisonarealymesupportgroup.com/2019/04/11/african-tick-found-on-untraveled-u-k-horse/

https://madisonarealymesupportgroup.com/2018/06/08/hemorrhagic-fever-virus-found-on-ticks-on-migratory-birds/

https://madisonarealymesupportgroup.com/2017/08/17/of-birds-and-ticks/

https://madisonarealymesupportgroup.com/2016/10/02/the-role-of-birds-in-tickborne-illness/

https://madisonarealymesupportgroup.com/2018/11/05/hawk-found-carrying-asian-long-horned-tick-the-one-that-drains-cattle-of-all-their-blood/

I literally could go on and on with this….

Time to focus on things that are side-lining Americans.

Lyme Disease Study Raises Possibility of Mother-to-Baby Transmission

https://www.thechronicleherald.ca/news/local/lyme-disease-can-cause-pregnancy-complications-study-292577/

Lyme disease study raises possibility of mother-to-baby transmission

 A female blacklegged tick is embedded in a human arm. A new study says that a developing fetus can be harmed if the mother has Lyme disease. - Public Health Agency of Canada
A female blacklegged tick is embedded in a human arm. A new study says that a developing fetus can be harmed if the mother has Lyme disease. – Public Health Agency of Canada

A scientist who co-authored a recent Public Health Agency of Canada study on the impact of Lyme disease during pregnancy says the illness can have fatal consequences for a developing fetus if the mother goes untreated.

“Miscarriage, newborn death, and newborns with respiratory problems or jaundice have been found to occur,” said American epidemiologist Alison Hinckley.

But the Centers for Disease Control and Prevention scientist says more research is needed to show a definitive link between Lyme disease and pregnancy complications, including whether the tick-borne illness can be passed from mother to baby in the womb.

Hinckley and four Public Health Agency of Canada scientists authored a recent report that reviewed 59 cases of pregnant mothers carrying Lyme disease and their pregnancy outcomes. The results were published in the November 2018 peer-reviewed science journal PLOS One, showing that 36 of the 59 fetuses had been harmed. Complications ranged from miscarriage and stillbirth to congenital abnormalities, respiratory distress and heart abnormalities.

“It is clear, however, that pregnant women who suspect that they might have contracted Lyme disease should see their health-care provider as quickly as possible to receive appropriate treatment and reduce the chance of poor fetal outcomes,” said Hinckley.

PHAC denied requests from the Herald to speak with any of the agency’s four scientists that coauthored the study. The Herald contacted the study’s lead author Lisa A. Waddell by email and phone but did not get a response.

The question remains, why do pregnant mothers with untreated Lyme disease risk harming their unborn baby?

Determining cause

The authors of the systematic review failed to provide a specific cause for any of the 36 pregnancies resulting in harm to the fetus, nor could they definitively say whether Lyme disease factored in any of the congenital malformations. The study couldn’t rule out transplacental transmission, that the bacteria causing Lyme disease, B. burgdorferi, could be passed from mother to baby in utero.

“It is biologically plausible that transplacental transmission of B. burgdorferi occurs given our understanding of transplacental spirochete transmission for other species of spirochetes (T. pallidum) in humans,” said the study. “However, the evidence in this systematic review on congenital malformations does not provide sufficient evidence to exclude or confirm a role for B. burgdorferi in congenital malformations.”

The study calls for more research to settle the debate.

But the topic of in utero transmission of Lyme disease is not new and cases of it have been documented over the decades. As far back as 30 years ago the federal Department of Health acknowledged it as a legitimate form of transmission, stating in a June 1988 Canada Diseases Weekly Report that,

“Transplacental transmission of B. burgdoferi has been documented and may be associated with an increased risk of adverse pregnancy outcome.”

That it occurs is not up for debate, argues biologist Vett Lloyd of the Mount Allison University Lyme Research Network.

“There is evidence from epidemiological studies that the Lyme disease bacteria can be transmitted from mother to child,” said Lloyd, who’s also a leading Canadian tick expert. “There is also evidence from case studies of this.

“But what we don’t know are the answers to questions important to pregnant mothers: How often does this occur? Is it with every pregnancy when the mother is infected or one in 10? One in 100? One in a million?”

We know what we don’t know

Ultimately, the study illustrates how much researchers don’t know about the impact of Lyme disease in pregnancy, she says. If in utero transmission occurs and the B. burgdorferi bacterium passes the placenta to the baby what happens then? In children and adults Lyme disease has the potential to target every vital organ.

If it is transmitted in utero to a child, that increases the number of people who can potentially be infected,” said Lloyd. “There is no reason to think that a newborn would be any less affected by Lyme disease than an adult — the opposite would be a reasonable assumption.

This problem is compounded if a mother doesn’t know that she is infected with the Lyme disease bacteria, becomes pregnant while being treated or becomes infected while pregnant.”

The Herald made several attempts to speak to Dr. Robert Strang, the province’s chief medical officer of health, about the findings of the study but he declined to be interviewed. In an email statement Strang reaffirmed one of the main conclusions of the study: “There is not enough evidence to confirm that Lyme disease during pregnancy has any adverse effect on the fetus, Lyme disease can be effectively treated in pregnancy and that further research is needed,” stated Strang.

Strang’s statement also defends the way the province treats Lyme disease, including in pregnant mothers. “Nova Scotia’s approach to the diagnosis and treatment of Lyme disease, including Lyme disease in pregnancy, is based on current scientific evidence and is consistent with national and international evidence-based guidelines.”

Sue Faber, co-founder of LymeHope and a registered nurse, says PHAC is ignoring decades of documented proof of transplacental transmission and insists it’s only a matter of time before the medical community is forced to acknowledge it as a legitimate form of transmission that results in congenital Lyme disease — babies being born with the disease.

Over the year, her Lyme advocacy group has gotten thousands of letters from people across the country convinced family members have fallen victim to congenital Lyme disease. She also says a follow up study is needed to look at some of these families.

When the time comes that the medical community accepts that babies can contract the disease in utero it will be “a game changer,” she says.

“For Lyme disease to be passed from mother to child in pregnancy challenges and deconstructs the status quo from Lyme being only a tick-borne disease to one that can be transmitted from human-to-human, mother-to-baby,” said Faber. “Once we acknowledge that this disease changes and we have a big problem on our hands.”

Anna Maddison, spokeswoman for PHAC, admits more research is required to better understand if there may be adverse effects of Lyme disease during pregnancy. She did not say what current or future research is planned to target questions around transplacental Lyme disease.

But Maddison did point to a new Pan-Canadian Lyme Disease Research Network and that part of its research mandate will include working with patients and families to help address gaps in knowledge. The Society of Obstetricians and Gynecologists of Canada is also reviewing current evidence on the effects of Lyme disease and other tick-borne diseases on pregnancy, she says.

“The aim is to equip health-care providers and women with evidence-based information and tools on Lyme disease and other tick-borne diseases during pregnancy,” said Maddison.

But Faber says she sees little evidence that PHAC is responding to the findings of the study with the urgency it deserves.

Medical and scientific research needs to follow the precautionary principal,” said Faber. “If there’s a risk, it needs to be addressed. We have identified that human-to-human transmission is possible, and even if it’s plausible there’s a social responsibility to protect the public from exposure to harm.”

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**Comment**

The truly despicable thing is the potential for congenital transmission has been known about for decades yet nothing has been done.  Authorities continue to deny, deny, deny despite the lack of research.  You’d think that research in this area would be a high priority knowing Lyme is the #1 vector-borne disease in the U.S.  But no.  They want more climate data….

How many have been infected congenitally?  God only knows.

I find it highly interesting that the minute the Zika scare came out, they KNEW it was sexually transmitted and announced it with abandon.

With Lyme/MSIDS……crickets.

We desperately NEED transmission studies.  We need to know ALL the bugs that can transmit it, if it’s spread congenitally, via breast milk, tears and other bodily fluids, via blood transfusion, organ transplants, etc.

We also desperately need to know the cumulative effects of Lyme with the various coinfections (polymicrobial nature).

For more:  https://madisonarealymesupportgroup.com/2018/06/19/33-years-of-documentation-of-maternal-child-transmission-of-lyme-disease-and-congenital-lyme-borreliosis-a-review/

https://madisonarealymesupportgroup.com/2019/01/27/mothers-on-a-mission-to-prove-lyme-disease-can-be-passed-to-unborn-child/

https://madisonarealymesupportgroup.com/2018/11/17/young-boy-infected-congenitally-with-lyme-speaks-in-ottawa-house-of-commons/

https://madisonarealymesupportgroup.com/2018/07/24/congenital-transmission-of-lyme-myth-or-reality/

https://madisonarealymesupportgroup.com/2019/01/10/transmitted-in-the-womb-children-battle-lyme-disease-from-birth/

https://madisonarealymesupportgroup.com/2018/12/22/doctors-public-left-in-the-dark-on-danger-to-babies-from-lyme/

https://madisonarealymesupportgroup.com/2018/02/26/transplacental-transmission-fetal-damage-with-lyme-disease/

https://madisonarealymesupportgroup.com/2018/05/24/new-berlin-mom-given-life-altering-lyme-disease-diagnoses-after-pregnancy/

https://madisonarealymesupportgroup.com/2017/10/15/pregnancy-in-lyme-dr-ann-corson/

https://madisonarealymesupportgroup.com/2019/01/28/who-removes-congenital-lyme-from-diagnostic-reference/

https://madisonarealymesupportgroup.com/2018/11/11/gestational-lyme-other-tick-borne-diseases-dr-jones/

https://madisonarealymesupportgroup.com/2018/08/16/why-do-officials-continue-to-deny-gestational-lyme/

https://madisonarealymesupportgroup.com/2018/10/05/canada-acknowledges-maternal-fetal-transmission-of-lyme-disease/

UN Secretary General Confesses Ignorance on Known 5G Dangers

Approx. 6 Min.

UN Secretary General Confesses Ignorance on Known 5G Dangers

Published on Jan 4, 2019

The first eight months of WWII with no fighting was called The Phoney War. Using millimetre waves as a fifth-generation or 5G wireless communications technology is a phoney war of another kind. 237 scientists from 43 countries consider 5G a threat to health, yet the UN’s Secretary General jokes about his ignorance on 5G, despite WHO reports going back almost two decades stating their harms. Read the article: http://www.greenmedinfo.com/slide/un-…

Transmitted in the Womb – Children Battle Lyme Disease From Birth

https://www.newscentermaine.com/article/news/health/transmitted-in-the-womb-kids-battle-lyme-disease-from-birth/97-612998682  (News Video within link – Approx. 5.5 Min)

Transmitted in the womb -Kids battle Lyme disease from birth

Author: Vivien Leigh
Published:  November 9, 2018
Shortly after birth, these kids started suffering from debilitating symptoms doctors could not diagnose or explain. Out of desperation, their families were forced to seek treatment out of state.

BRUNSWICK (NEWS CENTER Maine) – The CDC says every year about 300-thousand people in the U.S. are diagnosed with Lyme Disease, which is transmitted by deer ticks. Experts say a quarter of those cases are children — the highest infection rates are happening in kids ages 5 to 14.

But a small number of kids in Maine didn’t contract Lyme through a tick bite. Instead, doctors believe the disease was passed to them in the womb through their moms living with undiagnosed Lyme for years.

Celeste Zelasko was five months pregnant when she discovered a rash on her body. ‘I definitely had a bulls eye rash we thought it was a spider or another bug.,’

9 months after her son was born he started losing weight, broke out in rashes and his hair fell out. But it didn’t stop there.

‘Miles was constantly getting ear infections, respiratory problems, asthma trips to the ER.’

Doctors blamed germs from day care — but couldn’t figure out what was wrong with Miles. Celeste was also experiencing joint pain, extreme fatigue, memory loss an, brain fog.

Celeste and Miles underwent testing for Lyme disease, but they were negative. The two step blood test recommended by the CDC checks for antibodies against Lyme bacteria. But some experts say the test is unreliable — failing up to 40 percent of the time even within 30 days of a tick bite. She and her son — now 6-years old were diagnosed with Lyme disease based on their symptoms. A provider recommended treatment out of state. Celeste found a doctor for herself in New York and a pediatrician for Miles in New Haven, Connecticut.

The only pediatric Lyme specialist in the country and he was in his 80’s and it would be a four hour drive.

Pediatrician Dr. Charles Jones practices outside the CDC guidelines. He has treated more than 15-thousand children across the Us and from around the world. He says is cure rate is at 98 percent.

Those guidelines recommend treatment as one dose of antibiotics for children over 8 years old would include twice daily for 2-4 weeks.

“What’s important,” he says, “is to treat continuously, not stopping until all symptoms are gone.” said Dr. Jones.

Angela and Aaron Gilbert say after their son Noah was born, he experienced medical problems no doctors could explain. Besides rashes and stomach problems their son was rarely awake.

‘The fatigue was unbelievable, he would sometimes sleep 22 to 23 hours a day,’ said Angela.

After multiple trips to the emergency room to treat her son’s many fevers doctors still couldn’t figure out what was wrong with Noah. A friend suggested Lyme disease, but the family couldn’t get a medical provider even to consider the possibility. But Angela then heard about Dr. Jones.  At this point, her son Noah was a little more than a year old.

‘There were no options for us to get medical treatment and he was getting sick and sicker and sicker,’ said Angela.

Dr. Jones treated Noah multiple doses of antibiotics at the same time over more extended periods of time. After Noah’s younger brother Elijah because experiencing similar symptoms, the family knew they had to make a drastic decision. They sold their house in Maine and moved to Connecticut so both boys could be treated for Lyme disease and other co-infections by Dr. Jones.

“What’s important,” he says, “is to treat continuously, not stopping until all symptoms are gone.”

Dr. Jones believes both Celeste and Angela were living with undiagnosed Lyme Disease when they had their children and passed the disease to them in the womb.

Angela ended up getting diagnosed with late stage Lyme and a number of co-infections. After several months of treatment, Gilbert says she and her sons started getting better. The joint pain subsided and the severe fatigue improved. The family returned to Maine 9 months later and found a Lyme literate provider familiar with the vast range of symptoms that may indicate infection at various stages of the disease, as well as potential co-infections and other complexities. But Angela says families should not have to make extreme sacrifices to get their kids treated for Lyme. She says if CDC revised its guidelines for pediatricians on antibiotic treatment for Lyme disease, more doctors in Maine would be willing to treat children who may have undiagnosed Lyme.

‘They are in fear of losing their license that is the bottom line.’

— For information about Lyme Disease, Diagnosis and Treatment https://www.cdc.gov

— Maine Medical Center Research Institute www.ticksinmaine.com

— Information on finding a provider to treat late-stage Lyme disease. Midcoast Lyme Disease Support & Education, www.mldse.org

— International Lyme & Associated Diseases Society, www.ilads.org

— Information about Dr. Charles Jones https://health.usnews.com/doctors/charles-jones-115055

— Information on prevention, testing, treatment guidelines, support groups and other resources

Lyme Resource Card/Nelson Family Project

For real-time data on Lyme Disease rates compiled by the Maine CDC go to https://data.mainepublichealth.gov/tracking/home or www.maine.gov/lyme

NEWS CENTER Maine’s Vivien Leigh is joined by Dr. Sean McCloy, Integrative Health Center of Maine and Dr. Jacob Aguiar, Scarborough Integrative Health discussing the topic on Facebook.

________________

**Comment**

Mainstream medicine is still in denial, but congenital Lyme/MSIDS is real and more prevalent than realized.  While I’m thankful for this story, please note that they couldn’t conjure up ONE pediatrician to speak on congenital Lyme.  If it wasn’t for Dr. Jones, kids would be dead.  Everyone STILL is cowering behind the antiquated and unscientific CDC guidelines.

This has to stop.

The research on Lyme is ancient and poorly done.  We need new research and new laboratory techniques as borrelia is extremely fastidious and hard to culture and study.  Many coinfections are just as difficult to study and aren’t even on the radar for most doctors.  The combined effect of these pathogens is what is making us so ill:  https://madisonarealymesupportgroup.com/2018/10/30/study-shows-lyme-msids-patients-infected-with-many-pathogens-and-explains-why-we-are-so-sick/

For the first time, Garg et al. show a 85% probability for multiple infections including not only tick-borne pathogens but also opportunistic microbes such as EBV and other viruses.  Also, 83% of all commercial tests focus only on Lyme (borrelia), despite the fact we are infected with more than one microbe.

Key Quote: “Our findings recognize that microbial infections in patients suffering from TBDs do not follow the one microbe, one disease Germ Theory as 65% of the TBD patients produce immune responses to various microbes.”

More on Congenital Lyme:  https://madisonarealymesupportgroup.com/2018/06/19/33-years-of-documentation-of-maternal-child-transmission-of-lyme-disease-and-congenital-lyme-borreliosis-a-review/

https://madisonarealymesupportgroup.com/2018/12/14/scientists-weigh-in-on-the-seriousness-of-tick-borne-illness-video/

https://madisonarealymesupportgroup.com/2018/12/22/doctors-public-left-in-the-dark-on-danger-to-babies-from-lyme/

https://madisonarealymesupportgroup.com/2018/11/11/gestational-lyme-other-tick-borne-diseases-dr-jones/

Young Boy Infected Congenitally With Lyme Speaks in Ottawa House of Commons

 Approx. 4 min.

Eleven year old Daniel Stimmer, infected with Lyme disease congenitally, addresses over 40 Federal MPs and the Speaker of the House at the House of Commons building in Ottawa.

Daniel is one busy guy.  Besides starting his own advocacy group (L.E.T. Ontario) he has made an informative video about Lyme disease here:  https://madisonarealymesupportgroup.com/2018/03/09/the-eleven-year-old-boy-who-knows-more-about-lyme-msids-than-most-doctors/

Daniel is speaking out in his sphere of influence – and then some!  If we all educate those around us we can make a huge difference in the plight of patients everywhere.

For more on congenital Lyme/MSIDS:  https://madisonarealymesupportgroup.com/2018/11/11/gestational-lyme-other-tick-borne-diseases-dr-jones/

https://madisonarealymesupportgroup.com/2018/06/19/33-years-of-documentation-of-maternal-child-transmission-of-lyme-disease-and-congenital-lyme-borreliosis-a-review/

https://madisonarealymesupportgroup.com/2018/08/16/why-do-officials-continue-to-deny-gestational-lyme/

https://madisonarealymesupportgroup.com/2018/02/26/transplacental-transmission-fetal-damage-with-lyme-disease/

https://madisonarealymesupportgroup.com/2018/10/05/canada-acknowledges-maternal-fetal-transmission-of-lyme-disease/

 

 

 

 

Gestational Lyme & Other Tick-borne Diseases – Dr. Jones

Dr. Charles Ray Jones – Rock Star

FB_IMG_1541741969447From left, Sherry Sievewright, Wisconsin Lyme Network, Dr. Charles Ray Jones, Alicia Cashman, Madison Lyme Support Group

Dr. Charles Ray Jones specializes in treating Lyme/MSIDS patients.  He has treated over 12,000 children with Lyme/MSIDS, and spoke recently at the Chicago ILADS convention.

Here is the executive summary of his presentation:

  • Borrelia burgdorferi (Bb) can be transmitted via ticks, gestationally, breast milk, and semen (yes, that means sexually).  While there isn’t a large NIH double-blind study, clinically LLMD’s are finding infected couples.  For more data on animals:  https://madisonarealymesupportgroup.com/2017/02/24/pcos-lyme-my-story/  (Scroll down to info on sexual transmission)

 

  • Gustafason & Burgess demonstrated gestational Bb infection in dogs.  Of the inoculated bitches, 80% became infected who then birthed mostly infected pups.1

 

  • A retrospective study showed 480 children with gestational Lyme/MSIDS. Diagnosis was based on clinical physical and history. 3

 

  • About 10% of Dr. Jones’ patients are infected gestationally.

 

  • Two cases of in vitro fertilization caused embryonic infection.

 

  • Mothers not treated resulted in 50% gestational transmission compared to mothers treated with 1 antibiotic resulting in a 25% transmission.  70% of infected mothers reported a difficult pregnancy.  ALL children improved with appropriate antibiotic treatment.  

 

  • Antibiotic treatment for Pregnant mothers:
  1. Amoxil 1000mg every 8 hours
  2. Ceftin 500 mg every 12 hours
  3. Omnicef 300 mg-600mg twice daily
  4. Mepron 750mg twice daily
  5. Zithromax 500mg twice daily
  • Other options for those who can not tolerate oral antibiotics:
  1. Bicillin 1.2 million units IM 1-3 times weekly
  2. Ceftiaxone 2 gms IV daily
  3. Cefotaxime 6 gms daily either continuous infusions or 2gms IV every 8 hours
  • Top 6 gestational Lyme symptoms:
  1. 90% low muscle tone (delays in motor skills, excess flexibility, drooling)
  2. 80% irritability (impulsive, risky behavior, interrupts, anger/mood swings)
  3. 72% fatigue
  4. 69% pain
  5. 60% low grade fevers with pale skin & dark circles under eyes
  6. 50% painful joints with stiffness & decreased range of motion
  • Coinfection rate found in study.3
  1. 30% Bartonella
  2. 20% Babesia
  3. 7% Strep
  4. 6% Ehrlichiosis
  5. 5% Leptospirosis
  • Male Child Case Study Findings.  Daily fevers between 101-102 degrees with severe joint pain, could not process stimuli, and poor muscle control.  Mother was infected with Bb during pregnancy and child had numerous tick bites.  Was initially diagnosed with a virus and was told he’d “grow out of it.”  Grandparents in desperation hired a priest to exorcise him.  Within 3 months of a clinical diagnosis of Bb (Western Blot positive) and multiple TBI’s (Babesia, Bartonella, Mycoplasma) and appropriate antibiotic treatment, he was doing well in school & athletics, and improved on all perimeters.  Treatment is ongoing.

 

  • Gestational treatment options:
  1. Combination of penicillin, cephalosporins, macrocodes, atovaquone (tetracycline, doxycyline & minocycline not usually used in those under 8) 

 

  • A 1995 study by Gardner showed 15% abnormal babies in treated mothers vs 67% of abnormal babies in mothers not treated.4

 

  • A 1989 study by MacDonald showed the following Lyme infection outcomes during pregnancy.5
  1. prematurity
  2. fluid in the brain
  3. blindness
  4. Sudden infant death syndrome
  5. blood infection
  6. Fetal death
  7. cardiovascular system anomalies
  8. growth retardation
  9. respiratory distress
  10. excess of bilirubin in the blood

References:

  1. Gustafson, J.M., E.C Burgess, et al.(1993). “Intrauterine transmission of Borrelia burgdorferi in dogs. “Am J Vet Res 54(6): 882-890
  2.  Xiao, J., et al. 2011. “How Different Strains of Parasite Infection Affect Behavior Differently”. Infection and Immunity. March 2011 . Quoted in science daily, March 22, 2011.
  3.  Jones, Charles Ray, Smith, Harold, Gibb, Edina and Johnson, Lorraine JD, MBA, “Gestational Lyme Disease Case Studies of 102 Live Births, Lyme Times, 2005”. 
  4. Gardner, T. (1995). Lyme disease. Infectious disease of the fetus and newborn infant. J. S Remington and J.O Klein. Philadelphia, Saunders. Chapter 11:447- 528. 
  5. MacDonald, A.B. (1989) “Gestational Lyme Borreliosis. Implications for the fetus. “Rheum Dis Clin North Amer 15(4): 657-677. 
  6. Goldenberg, R.L and C. Thompson (2003) “The infectious origin of stillbirth”. Am J Obstet Gynecol 189(#): 861-873.

____________________

More on Pregnancy with Lyme/MSIDS:

https://madisonarealymesupportgroup.com/2018/06/19/33-years-of-documentation-of-maternal-child-transmission-of-lyme-disease-and-congenital-lyme-borreliosis-a-review/

https://madisonarealymesupportgroup.com/2018/05/24/new-berlin-mom-given-life-altering-lyme-disease-diagnoses-after-pregnancy/

https://madisonarealymesupportgroup.com/2017/10/15/pregnancy-in-lyme-dr-ann-corson/

https://madisonarealymesupportgroup.com/2018/07/24/congenital-transmission-of-lyme-myth-or-reality/

https://madisonarealymesupportgroup.com/2018/02/26/transplacental-transmission-fetal-damage-with-lyme-disease/  (Great videos here)

https://www.lymedisease.org/lyme-basics/lyme-disease/children/  Great read on Lyme/MSIDS in children.

https://www.lymedisease.org/wp-content/uploads/2014/08/Image15-Jones-ABT.pdf  “Rationale for Prolonged Antibiotic Therapy in Treating Lyme Disease.”  By Charles Ray Jones, M.D.