Archive for the ‘Meetings’ Category

December 2018 Support Group Meeting

winter-14

Our next support meeting:

When:  Saturday, December 1, 2018

Where:  East Madison Police Station, 809 S. Thompson Dr., Madison, WI

Go here for parking instructions:  https://madisonarealymesupportgroup.files.wordpress.com/2017/03/east-dist-parking-visitor-parking.pdf

 

November Support Group Reminder – This Saturday

Don’t forget the support group meeting this Saturday (November 10, 2108) at the East Madison Police Station Community Room.  Info here:

https://madisonarealymesupportgroup.com/2018/10/29/november-2018-support-meeting/

Bring what’s working, questions, and updates.

If there’s time I will share snippets of what I learned at the ILADS convention.

See you there!

November 2018 Support Meeting

iu

When:  Saturday, November 10, 2018

Where: East Madison Police Station, 809 S Thompson Dr. Madison, WI

Why:  Support

What:  Bring what’s working, questions, and updates

October 2018 Meeting Reminder

iur

https://madisonarealymesupportgroup.com/2018/09/13/oct-lyme-support-meeting-kathy-nodolf-truthcures/

For details of meeting, please see link above.

When:  Saturday, October, 13, 2018

Time:  2:30-4:30pm

Where:  East Madison Police Station Community Room (see link for parking details)

 

 

 

Oct. Lyme Support Meeting: Kathy Nodolf & TRUTHCURES

October Lyme Support Group Speaker:

Kathy Nodolf of TRUTHCURES

When:  October 13

Time:  2:30-4:30

Where:  East Madison Police Station, 809 S Thompson St. Madison, WI.  Parking info here: https://madisonarealymesupportgroup.files.wordpress.com/2017/03/east-dist-parking-visitor-parking.pdf No parking allowed in red areas. You may park in the dotted yellow areas, in-between the light poles and in the last row under the red, as well as on the road leading up to the station.

 

We are honored to hear and learn from Lyme Advocate Kathy Nodolf of TRUTHCURES, whom candidly admits to trusting the medical establishment for 20 years for her son who had severe neurological Lyme disease.  He unfortunately succumbed to the disease and passed.

With the heartbreaking loss of her son, she has vowed to make everyone aware of this disease tsunami by becoming politically active and speaking up for patients whom are too sick to speak for themselves.

She feels we are on the right track by exposing the correct definition of the disease with scientific discoveries continually validating what TRUTHCURES has maintained for 20 years.

Having been active with HHS prior to the selection of the Tick Borne Disease Working Group (TBDWG), she has given statements and has closely followed their actions.  She will discuss her concerns about the TBDWG and what we can do to be Pro-active.  More on the TBDWG:  https://madisonarealymesupportgroup.com/2018/02/11/anti-patient-bias-embedded-in-tickborne-disease-working-group-and-its-subcommittees/

https://madisonarealymesupportgroup.com/2018/05/18/conflicts-of-interest-in-tick-borne-disease-working-group/

https://madisonarealymesupportgroup.com/2018/08/31/the-runaway-plague/

Kathy with WI Senator Tammy Baldwin, whom she feels is on our side.

IMG_0335-2

I was also able to successfully able to convince WI Representative Mark Pocan to join the Lyme Caucus:  https://madisonarealymesupportgroup.com/2017/05/23/wi-representative-mark-pocan-joins-lyme-caucus/

Please, contact your reps and senators today, letting them know we need them to speak up for the Wisconsin residents who are debilitated due to tick borne disease.  It’s going to take all of us working together to move this mountain.  Never underestimate the power of one.  Just try sleeping with a mosquito!

For information to send them and/or adapt your own letter (personalization is always best), go here: Letter to WI Reps and Senators

Also, spread the word to willing medical practitioners to become properly trained:  

https://madisonarealymesupportgroup.com/2018/06/06/lyme-education-for-healthcare-professionals/

https://madisonarealymesupportgroup.com/2018/02/19/calling-all-doctors-please-become-educated-regarding-tick-borne-illness-heres-how/

More information on TRUTHCURES:  https://www.truthcures.org

 

 

 

Sept. 2018 Meeting Reminder

Our next support meeting will be:

  • Saturday, September 8, 2018
  • 2:30-4:30
  • East Madison Police Station Community Room

This will be a regular support group meeting.  Can’t wait to hear how you are all doing and what you are using.

Since the last time we met, I’ve become a grand mum.  Yep.  And, he’s a ray of sunshine.  My daughter has quite a sense of humor.  To enjoy the full effect, crank the volume:

September 2018 Lyme Support Meeting

Our next meeting will be Saturday, September 8, 2018 from 2:30-4:30 at the East Madison Police Station at 809 S Thompson Drive, Madison, WI.

For parking details:  https://madisonarealymesupportgroup.files.wordpress.com/2017/03/east-dist-parking-visitor-parking.pdf   No parking allowed in red areas. You may park in the dotted yellow areas, in-between the light poles and in the last row under the red, as well as on the road leading up to the station.

This will be a regular support meeting.  Feel free to bring family and friends.  We will briefly share:

  • what’s new
  • what to do if bitten by a tick
  • what an effective treatment looks like
  • what topics you would like for future meetings

For those of you who like to plan ahead, Dr. Waters will be speaking on October 13.