Archive for the ‘Prevention’ Category

After Son’s Bout With Lyme Disease, Woman Invents New Tick Repellent

https://www.theweathernetwork.com/ca/news/article/after-sons-bout-with-lyme-disease-woman-invents-new-tick-repellent  News Video Here

After son’s bout with Lyme disease, woman invents new tick repellent

Friday, June 12th 2020

The formula, called ‘Atlantick’, has been found to be 97.5 per cent effective.

It’s been four years now since Darian Wallet suddenly became unable to move his legs without severe pain in Mahone Bay, Nova Scotia. It lasted for months, forced him to use a walker, and worst of all, doctors couldn’t determine why. In his words: “It was terrible.”

His mother, Lisa Ali, thought it could be juvenile arthritis, but she pushed to get a test for Lyme disease and her suspicions were right: it was the result of a tick bite. Darian’s brother had it too.

“When you see your child because he’s in that much pain and you don’t know what’s going on, that really kind of wakes your system up and puts you in ‘oh my God, I have to do something about this’ mode,” she says.

(See link for article)

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For more:  https://madisonarealymesupportgroup.com/2019/04/12/tick-prevention-2019/

https://madisonarealymesupportgroup.com/2019/07/01/what-you-need-to-know-about-bug-sprays/

https://madisonarealymesupportgroup.com/2019/06/16/study-shows-effectiveness-of-factory-treated-permethrin-impregnated-clothing-works/

https://madisonarealymesupportgroup.com/2018/05/27/study-conforms-permethrin-causes-ticks-to-drop-off-clothing/

https://madisonarealymesupportgroup.com/2018/04/03/fire-good-news-for-tick-reduction/

https://madisonarealymesupportgroup.com/2018/09/15/talking-tick-prevention-ask-a-uw-veterinarian/

Be Tick AWARE

Tick Bite Prevention and Lyme disease

For more:  https://madisonarealymesupportgroup.com/2019/04/12/tick-prevention-2019/

https://madisonarealymesupportgroup.com/2020/04/21/help-i-got-bit-by-a-tick-what-do-i-do/

https://madisonarealymesupportgroup.com/2020/06/05/reducing-the-burden-of-lyme-disease/

 

A Runner’s Guide to Tick Prevention & Removal (Much of Which is Wrong)

https://www.runnersworld.com/health-injuries/a32006656/tick-removal-tick-prevention/

A Runner’s Guide to Tick Prevention and Removal

As the weather warms up, more outdoor runs means a greater exposure to ticks. Here’s how to prepare.

© SANTIAGO URQUIJOGETTY IMAGES

As the weather warms up, more of us head outdoors and wander off paved roads onto trails or into wooded areas to run. That, unfortunately, means a greater risk of exposure to ticks. While no one wants to deal with ticks, there are a few preventative steps we can take to help avoid tick bites and prevent tick-borne illnesses.

If you do happen to find a tick, there are a few important things you need to know. We talked to tick and infectious disease experts to find out everything from prerun tick prevention, to tick removal, to the signs, symptoms, and treatments of Lyme disease.  (See link for article)

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**Comment**

Shame on Dr. Mather for stating  an adult blacklegged tick has to be attached for two days or more to give people a high risk of contracting Lyme disease.  Also, shame on him for perpetuating the “one dose of doxy” myth as a proactive measure.  Mather is a leading expert on ticks but strikes out twice here.

For more on these issues: 

 

Aucott’s statement that Lyme is a “benign” organism is also out of touch.  From everything I’ve learned over the years, I can state that borrelia is one of the most complex organisms known to man. Couple that with the issue of coinfection involvement, and you have an extremely complex disease process.  If it’s so benign, why have we struggled to no avail for over 40 years?  Aucott seems to have completely bought the argument that it’s just our immune system that’s the problem.

Interestingly, after Aucott calls Borrelia “benign” he then goes onto talk about what the CDC has coined “Post treatment Lyme disease syndrome” or PTLDS and that there’s no treatment, no test, and calls it a world class dilemma which is a real biological phenomenon. I thought it was benign?  Again, we are comparing apples to oranges as some, apparently Aucott, believe it’s just our immune systems to blame.

The article also states that 30% don’t get the rash.  That number is not accurate. Depending upon who’s counting, it’s highly variable with anywhere from 25-80% getting it. So many don’t get it that using it for diagnosis is fool-hearty.  If you get it, great – you have Lyme, but if you don’t get it – it means nothing.

The continued myth that only 20% go onto to develop persistent symptoms is also completely inaccurate.  According to this, upto 60% can struggle with continuing symptoms:  https://madisonarealymesupportgroup.com/2019/02/25/medical-stalemate-what-causes-continuing-symptoms-after-lyme-treatment/

Dr. Donta comes the the rescue by speaking out for patients. He states:

“The National Institutes of Health has not agreed to have further treatment trials.…so it is left to clinicians like myself who in their clinical experience have sorted out what works and what doesn’t work.”

So there you have it.  What little research exists is owned by The Cabal with clear conflicts of interest who control the study parameters for a pre-determined outcome.  Clinicians are forced to muddle through and figure it out the best they can.  What a predicament – that’s been going on for over 40 years and continues to this day. In light of current events, please remember this debacle and how much of science has been bought out – yielding little more than propaganda. 

For more:  

 

 

 

More on Tick prevention & how to remove a tick:  https://madisonarealymesupportgroup.com/2019/04/12/tick-prevention-2019/

 

 

 

Help! I Got Bit By a Tick! What Do I Do?

The following article is a great resource. Please file this away somewhere handy so you can retrieve it if you need it.

https://www.lymedisease.org/tick-bite/

LYME SCI: Help! I’ve gotten a tick bite. Now what?

By Lonnie Marcum

Nov. 2019

We keep being told that early treatment is imperative yet most doctors take the “wait and see” approach which isn’t working. In order to treat each and every tick bite as seriously as a heart attack to avoid perhaps life-long symptoms, I encourage prophylactic treatment. As you read above, ILADS recommends at least 20 days of doxycycline for an acute tick-bite. It’s important to remember that this mono therapy will not cover many of the confections so it’s important to track symptoms and keep in close contact with your doctor – preferably an ILADS-trained doctor who understand the nuances of treatment.

 

Going Outdoors? Be Aware That Ticks Are Starting to Stir

https://www.thechronicleherald.ca/opinion/local-perspectives/donna-lugar-going-outdoors-be-aware-that-ticks-are-starting-to-stir-430692/#.XoH6VeE1ChI.linkedin

DONNA LUGAR: Going outdoors? Be aware that ticks are starting to stir

Black-legged ticks are shown at different stages of feeding. Black-legged ticks, also known as deer ticks, carry the bacteria that causes Lyme disease. FILE PHOTO
Black-legged ticks are shown at different stages of feeding. Black-legged ticks, also known as deer ticks, carry the bacteria that causes Lyme disease. FILE PHOTO – Contributed

DONNA LUGAR

With all the talk about COVID-19, don’t forget your tick protection if de-stressing outside

Although ticks can be active at any time of the year when temperatures permit, they are now becoming more active. When spending any time outdoors, please remember to undertake preventative measures and ensure that you are doing your daily tick checks. Although I realize many are presently spending more time indoors, there are people taking this time to work in their yards and spending more time outdoors with their family and pets. As well, with the closure of groomed trails, beaches, etc., many may head to areas less travelled. Prevention is key!

I frequently receive calls and emails from Nova Scotians throughout the province wondering if they may have Lyme disease. One of the first things I suggest is for them to review a symptom list, either from the Canadian Lyme Disease Foundation website or from any government website that breaks down the three stages of Lyme. I then suggest that they take the Horowitz Lyme-MSIDS Questionnaire disease, which will give them an idea as to whether they may have Lyme and/or a tick-borne disease. As well, in December of 2019, the following research article was posted in Frontiers in Medicine: The General Symptom Questionnaire-30 (GSQ-30): A Brief Measure of Multi-System Symptom Burden in Lyme Disease. This is a very helpful document for both you and your doctor.

Depending on their score on the Horowitz Questionnaire, I then suggest that they go back to their doctor, if they are lucky enough to have one, and request the ELISA blood test for Lyme. However, I also advise that this test has sensitivity and specificity limitations and a negative test does not necessarily mean they do not have Lyme disease.

Of importance to note, there are treatment guidelines for Lyme disease in this province. Unfortunately, it appears that not all doctors are aware of this. Although these guidelines follow the IDSA Guidelines, which are presently being updated, they do not include what I believe to be a very important caveat included in the actual IDSA guidelines:

“It is important to realize that guidelines cannot always account for individual variation among patients. They are not intended to supplant physician judgment with respect to particular patients or special clinical situations. The Infectious Diseases Society of America considers adherence to these guidelines to be voluntary, with the ultimate determination regarding their application to be made by the physician in the light of each patient’s individual circumstances.”

It is my opinion that this very important caveat should be included within our guidelines and that your doctor knows that it exists.

Another document that exists that many are not aware of is the N.S. Tick Borne Diseases Response Plan. This plan has a lot of important information. It also notes other potential illnesses that can be transmitted. Just be aware that researchers at Dalhousie have found even more and that they have found things in both the black-legged (deer) and dog (wood) ticks.

If you wish to learn more about Lyme and tick-borne diseases there are now YouTube videos available for most of the presentations made at the Bridgewater Lyme Conference on Nov. 16 and 17, 2019. This YouTube channel also has prevention videos and so much more.

As the Nova Scotia representative of the Canadian Lyme Disease Foundation (CanLyme), you can always reach out to me. My contact info is on the CanLyme website.

On a final note, there is presently a petition making the rounds in Nova Scotia that will hopefully be presented to the Nova Scotia legislature in the fall of this year. There are five asks. If you would be interested in having a copy to help obtain signatures, or are interested in signing, please let me know via donna.lugar@ns.sympatico.ca. The petition is a paper one, as that is what Nova Scotiá’s legislature requires. With the present circumstances, it will take some effort to get a sufficient number of signatures to make the petition worthwhile. Any help you can give would be appreciated.

Remember, ticks can be active all year, depending upon temperatures. Bites are usually painless and many are missed; not everyone gets an erythema migrans rash, of which the bull’s eye is just one manifestation.

Prevention is key, but even the most vigilant can miss a tick. Make yourself knowledgeable.

Donna Lugar is the N.S. representative, CanLyme. She lives in Bedford.

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**Comment**

This article does not mention that there are other treatment guidelines in use by ILADS:  https://www.ilads.org/patient-care/ilads-treatment-guidelines/

If doctors follow the IDSA guidelines, treatment will be short term and typically a mono therapy, rather than an overlapping treatment using numerous antimicrobials for Lyme as well as coinfections for a much longer period of time should symptoms warrant it.

Personally, I have found the Horowitz questionnaire to be far more accurate than current 2-tiered CDC testing which depending upon who’s counting, misses over half of all cases: https://madisonarealymesupportgroup.com/2019/06/07/if-youre-testing-for-lyme-disease-heres-what-you-should-know/

https://madisonarealymesupportgroup.com/2018/12/16/laboratory-testing-for-lyme-disease/

https://madisonarealymesupportgroup.com/2018/09/12/lyme-testing-problems-solutions/

https://madisonarealymesupportgroup.com/2018/01/16/2-tier-lyme-testing-missed-85-7-of-patients-milford-hospital/

https://madisonarealymesupportgroup.com/2018/10/13/direct-test-for-ld-carl-tuttle-chews-up-cdc-spits-them-out/

https://madisonarealymesupportgroup.com/2018/10/12/direct-diagnostic-tests-for-lyme-the-closest-thing-to-an-apology-you-are-ever-going-to-get/

KEY QUOTE: “THESE SEROLOGIC TESTS CANNOT DISTINGUISH ACTIVE INFECTION, PAST INFECTION, OR REINFECTION.”

More on prevention:  https://madisonarealymesupportgroup.com/2019/04/12/tick-prevention-2019/

https://madisonarealymesupportgroup.com/2019/07/18/frequent-prescribed-fires-can-reduce-risk-of-tick-borne-diseases/

https://madisonarealymesupportgroup.com/2020/03/19/are-current-tick-prevention-methods-for-dogs-working/