Sept. 23, 2026
Dr. Carnahan interviews a patient on her journey of chronic illness that included Lyme disease and a chronic respiratory tract infection called Chlamydia pneumoniae, but were initially diagnosed as ‘horrible one after the next autoimmune diagnoses.’
by Admin at Global Lyme Alliance on October 1, 2026
“With the Kay Hagan Tick Act now law, we have an important opportunity to build on the progress made in addressing Lyme and other tick-borne diseases,” says Jennifer Katritos, Chief Executive Officer of Global Lyme Alliance.
“Sustained federal investment in surveillance, research, and state and local public health efforts is critical to advancing the science and building the foundation for meaningful breakthroughs. Global Lyme Alliance is grateful to the bipartisan leaders who championed this legislation, and we stand ready to support these efforts while continuing to advance the research that can lead to earlier and more accurate diagnoses, better treatments, and ultimately, fewer people impacted by these diseases.”
Named for the former Senator Kay Hagan of North Carolina, who died following complications from Powassan virus encephalitis, a rare tick-borne disease, the original Kay Hagan Tick Act was signed into law in 2019.
Sources:
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**Comment**
Willy Burgdorfer said it correctly when he stated that the money continues to go to the same people with the same results: which is NOTHING.
Bingo.
Don’t be fooled into thinking this “Tick Act” will do anything for patients. It will only continue to line the pockets of sold out researchers who follow a narrative. The research done in Lymeland has always been extremely biased and protective of the very agencies setting all the ‘guidelines’ which hamstring doctors into following a faulty paradigm, with testing that misses 90% or more of cases and completely dismisses the sickest ones who will never test positive on a test that is a complete joke.
The only progress we have made is when independent researchers do the work. They are not beholden to government grants and agencies who superimpose a faulty agenda upon the populace, mainly that Lyme is is caused by one organism which is cured by one drug in a short period of time. Research and reality show otherwise. Time to call a spade a spade.
For more:
https://www.lymedisease.org/diagnosis-changed-everything/
Oct. 21, 2026
By Darlene DiBara O’Connor
Wait.What?
You mean I might not really have ALS? I am not going to die a slow, painful death in my forties? And will still be here to raise my two young sons?
So, wait. Even after seeing 22+ practitioners, undergoing dozens of diagnostic procedures, and having numerous negative Lyme disease tests, I could still have it?
And it could be what is killing me right now?
These were the frantic questions, fraught with confusion and exhausting emotions that swirled in my brain or out of my mouth in that doctor’s office on October 16, 2013. The day after my mother’s funeral. That day that changed the course of my life–and my family’s lives–forever.
That day was what I now call my D-Day. The day that I was finally, properly diagnosed and then, successfully treated, by a brilliant and caring doctor from Connecticut. That visit saved my life, my sons’ lives, and many others in our family and beyond. This altered the course of my life. Forever.
Earlier that week, in the middle of the night, I bellowed the most guttural sobs while I prayed, on my hands and knees on my cold, kitchen floor. I vowed out loud to God, my dying mother’s mother, and the blessed St. Anne, that if WHATEVER “it” was that I really had, and was killing me, was truly revealed to me, I would beat it. And IF, whatever it was, was shown to me, I promised that I would dedicate the rest of my life to helping others with ‘it,’ also.
Oh, it was absolutely revealed to me. And I did get better. A lot better. And I kept my promise. (See link for article)
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**Comment**
Yet another misdiagnosed Lyme/MSIDS patient who got well after getting the proper diagnosis and treatment.
Here’s some more:
I could go onto infinity with stories of misdiagnosis. Sadly, we are no better off than we were when it was first ‘discovered’ in the 80’s.
Dec. 2025
Approx. 50 Min
🔷 Christian Perronne
Infectious Disease Specialist, former Head of Department at the Garches University Hospital
Author of several books, including most recently “The Awakening, 4 Years Later” (co-written with Stéphane Chatry, Guy Tredaniel Publishers)
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**Comment**
By using the closed caption setting and translating the transcript to English, you can listen to Dr. Perronne’s take on the current state of Lymeland and how mainstream medicine continues to deny chronic Lyme disease.
For more:
For a bird’s eye view of the entire Lyme debacle: https://madisonarealymesupportgroup.com/2020/09/25/why-should-we-care-about-lyme-disease-a-colorful-tale-of-government-conflicts-of-interest-probable-bioweaponization-and-pathogen-complexity/
For an excellent article on why the PTLDS title is fraudulent and does not explain why many remain ill: https://madisonarealymesupportgroup.com/2020/08/13/slyme-an-interview-we-need-to-drop-the-term-ptld-like-a-bad-habit/
What if some of the depression, anxiety, brain fog, cognitive dysfunction, OCD, speech changes, and other neuropsychiatric symptoms experienced by people with Lyme and other vector-borne diseases involve more than the infection itself?
In this episode of the Tick Boot Camp Podcast, Matt Sabatello sits down with Dr. Lindsey Wells, ND, a Connecticut naturopathic physician whose work focuses heavily on children with Lyme Disease, PANS/PANDAS, autism spectrum disorder, neurodevelopmental conditions, and other vector-borne diseases.
The centerpiece of the conversation is Dr. Wells’ newly published research, “Folate Receptor Alpha Autoantibodies in Vector-Borne Disease Populations.”
Her study explored an intriguing question: could some people with Lyme disease, Bartonella, Babesia, or other vector-borne infections also have an immune-mediated problem that prevents enough folate from reaching the brain?
The findings open an important new area of investigation. (See link for article and interview)
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**Comment**
The study found that nearly 62% of patients with tick borne illness tested positive for folate receptor alpha autoantibodies.
The study also found that Bartonella was the most common individual infection identified among FRAA-positive patients.
Important excerpt:
She discusses research suggesting that proteins associated with animal dairy may share similarities with folate receptor structures. Through a molecular mimicry mechanism, antibodies generated against those proteins could potentially cross-react with folate receptors.
Dr. Wells therefore commonly incorporates dairy removal when addressing FRAA-positive patients.
She also discusses clinical observations suggesting that FRAA levels can fluctuate and may rise during periods of infection or physiological stress.
Another important point is a routine folate blood test can not determine FRAA status. The FRAT Folate Receptor Autoantibody Test, a specialty blood test designed to detect autoantibodies to folate receptor alpha is required.
Dr. Wells has seen clinical improvements in these patients in anxiety, OCD, cognition, communication, and other neuropsch symptoms by using folinic acid (Leucovorin) as it utilizes another folate transport mechanism to deliver folate to the CNS.
