Archive for the ‘Uncategorized’ Category

Lyme & Reason – Fox 5 New York 2019

https://www.fox5ny.com/video/614435?

Lyme & Reason – Lyme Disease and the Power of Innovation

**Comment**
Fox5 does a fantastic job covering Lyme disease once again. For more of their coverage:  https://madisonarealymesupportgroup.com/?s=Fox+5  (Dr. Phillips’ interview is particularly good)
At 15:00 they talk about using Disulfiram/Antabuse for Lyme. Disulfiram is an old drug used for alcoholism but has research showing its ability to kill all forms of Lyme (borrelia):  https://madisonarealymesupportgroup.com/2019/07/14/disulfiram-breakthrough-drug-for-lyme-other-tick-borne-diseases/  Please note the three case reports in the comment section
My husband and I tried Disulfiram and were up to the full dose for a solid month.
Unfortunately, I had what doctors call an allergic reaction to it.

Please read about my experience and make sure you understand all risks before taking this medication:  https://madisonarealymesupportgroup.com/2019/10/14/november-2019-lyme-support-meeting-oct-meeting-canceled-due-to-reaction-to-disulfiram/

I worry particularly about single patients that do not have someone monitoring them while taking this drug. Evidently, a group of Lyme literate doctors are concerned that some patients with a genetic predisposition can have significant side effects when using Disulfiram:  https://madisonarealymesupportgroup.com/2019/10/15/disulfiram-psychosis-update/

Significant side effects hardly expresses what I went through.
 A $40 drug nearly killed me.

I don’t want to stop you from considering it, but please, please, discuss what happened to me with your doctor and read the “Disulfiram psychosis update” link and share with your doctor before taking it.

My initial side effects were:

  • converging eyes/vision
  • stomach bloating/gas/burping
  • inability to orgasm
NBC NewYork4 also did a fantastic series in 2017 called The Lyme Wars:
Here’s an old document I found called “Experimental Infection of the African Relapsing Fever Tick, Ornithodoros Moubata (Murray), With Borrelia Latychevi (Sofiev) by Willy Burgdorfer and Gordon E. Davis:
I have an old Army link showing tick experimentation as well but it’s been removed from the internet…..
For more on the bioweaponization of ticks:  https://madisonarealymesupportgroup.com/2019/07/19/biological-warfare-experiment-on-american-citizens-results-in-spreading-pandemic/  Author, Jerry Leonard, has spent untold hours studying this.

November 2019 Lyme Support Meeting (Oct. Meeting canceled – Due to Reaction to Disulfiram)

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As most of you are probably aware, I spent over a week in the hospital and a few trips to the ER recently.  It was very serious.  And yes, I’m talking deadly serious. According to the doctors at UW Madison, I had an allergic reaction to Disulfiram, an old drug that is currently being used on Lyme disease patients. It was very frightening as I had psychosis. 

Psychosis is an abnormal condition of the mind that results in difficulties determining what is real and what is not – and that is the understatement of the year. 

Symptoms may include:

  • delusions and seeing or hearing things that others do not see or hear
  • incoherent speech and behavior that is inappropriate

If you are a medical practitioner prescribing this, please be aware of this issue. 

Treatment for psychosis is antipsychotics, counseling, and social support. It’s interesting that 3% of people in the United States could get this.  https://en.m.wikipedia.org/wiki/Psychosis

All I can say is, WOW.  I looked outside and it’s fall.  I’ve missed nearly 3 weeks of my life.

My dear husband of 30 years was my bulwark and unfortunately took the brunt of my psychosis. The good news is he’s still with me. We’ve now weathered through both being infected with Lyme/MSIDS and now we can add crazy, unbelievable, psychosis to the list of symptoms and conditions.

I seriously hope a psychiatrist contacts me because in my lucid moments I took prolific notes. My husband also remembers the entire episode in complete detail.

The next Support meeting will be Saturday, November 9th, at 2:30 at the East Madison Police Station. Details about the subject matter will be forthcoming.

I can’t wait to see all of you. Being with other sufferers gives me untold joy and comfort. I pray you can all make it, but if you can’t, I understand.

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Still Crazy After All These Years

Blessings and health, Alicia

 

 

 

 

 

 

 

 

 

October Lyme Support Meeting Canceled

This is Alicia’s husband, Greg… The support meeting on Saturday, October 19, 2019 has been cancelled.  Alicia is recovering from a very serious medical emergency in which she was hospitalized for one week at the UW Hospital.  She has now been home for one week and is  recovering well.  A 100% recovery is expected but it will take a few more weeks for her to be back to normal.  Your thoughts and prayers are appreciated.

Watch for updates.  As she recovers, she will provide a time & date for the next support meeting.

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Writing Your Way To Wellness

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Why Are Vaccine Adverse Event Not Acknowledged Or Reported By Medical Professionals?

https://thevaccinereaction.org/2019/09/why-are-vaccine-adverse-events-not-acknowledged-or-reported-by-medical-professionals/

Why are Vaccine Adverse Events Not Acknowledged or Reported by Medical Professionals?

Legislators have the professional and moral obligation to protect children and support equality, but Senate Bill 2761 by Sen. Richard Pan, which would eliminate almost all vaccine medical exemptions, aims to segregate a minority of children from their right to an education. And even worse, for families who can’t afford homeschooling, SB 276 puts these vulnerable children at higher risk for repeat vaccine adverse events.  As a pediatric intensive care nurse for 13 years, I believe in vaccinations and understand the desire for community immunity, but I have also observed many vaccine adverse events that shouldn’t be ignored any longer.

I administered vaccines without hesitation until a previously healthy teen came into our unit with acute disseminated encephalomyelitis (ADEM)—brain swelling—after receiving the meningococcal vaccine earlier that week. The teen was paralyzed, in a coma, and had to be placed on a ventilator in the ICU for weeks. When I shared with the treating physician that ADEM was listed as a possible reaction to the meningococcal vaccine and asked whether we should report this to the Vaccine Adverse Event Reporting System (VAERS), I was told a firm “NO” without further discussion. Three weeks later, the teen left our unit still unable to walk or talk, and there was no discussion of the possible cause or the recent vaccination.

After that, I began to notice that most doctors never asked if a new patient was recently vaccinated, despite the child’s diagnosis being listed as a possible adverse event on the vaccine insert. And if I informed the doctor that a parent mentioned their child was recently vaccinated, it was most often ignored. I have seen dozens of cases of seizures, SIDS, paralysis, diabetes, or immune system dysfunction following vaccination, yet I have only seen one report made to VAERS. It begs the question: why are these vaccine adverse events not being acknowledged or reported?

SB 2762will herd children who were unlucky enough to suffer a vaccine reaction, but lucky enough to have a doctor acknowledge it, into a database where the state will be able to track them, freely violate their rights, and kick them out of school.

Medical professionals agree that all pharmaceuticals carry potential risks. Just as there is a small percentage of children who are allergic to penicillin, there is a percentage of children who have serious reactions after vaccination. SB 276 proponents claim only “1 in a million” reactions, but that’s referring to anaphylactic reactions, not reactions like seizures and paralysis.

Currently, in California, only less than one percent of children have vaccine medical exemptions because of a previous adverse event or family history which puts the child or sibling at risk. Under SB 276,1as it’s currently written, there would be a narrow scope of “approved” reactions—anaphylaxis and encephalopathy—and even if a child experienced those, there is no clause for family history so siblings would have to be vaccinated as well. I can’t imagine the decision these parents will have to make, being coerced into risking repeat injury or death, just to keep their children in school.

Physicians are bound to their Hippocratic Oath to “First, do no harm,” but government officials do not carry any liability for injury or harm, nor do pharmaceutical companies since the 1986 National Childhood Vaccination Injury Act protects them. SB 2763would be a liability-free, government-mandated system that harms these vulnerable children again.

As a nurse, I understand the desire to maintain community immunity. In 2018, the CDC reported that California has immunization rates above 96 percent for its school children, one of the highest rates in the nation. The California Department of Public Health reported 15 pediatric measles cases this year, not one related to school children with medical exemptions.

Yet SB 2764would systematically discriminate against these children with special needs, their rights to privacy, and their free and equal education would be eliminated.

Is this discrimination of less than one percent of children with medical exemptions really a public health crisis and worth the $40 million it will cost taxpayers? The government should be focused on legitimate public health issues, like the Typhus, Typhoid Fever and TB outbreaks among our growing homeless population, rather than this minority of injured children.


This article was reprinted with the author’s permission. It was originally published by the California Globe. Leah Balecha is a pediatric intensive care nurse in Southern California.

Note: This commentary provides referenced information and perspective on a topic related to vaccine science, policy, law or ethics being discussed in public forums and by U.S. lawmakers.  The websites of the U.S. Department of Health and Human Services (DHHS) provide information and perspective of federal agencies responsible for vaccine research, development, regulation and policymaking.

References:

Sept. 2019 Support Group Meeting Reminder

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Don’t forget our next support group meeting: Saturday, September 14, 2019 at 2:30.  https://madisonarealymesupportgroup.com/2019/08/14/september-2019-support-meeting/

I’m planning to present an hour long slideshow to educate people on what Lyme disease (MSIDS) really is, the ongoing controversy about how to diagnose, and treat it, many of the issues keeping people from becoming well, and a general over view of tick-borne illness. This is a great refresher course as well as a great opportunity to educate family and friends interested in learning more.

There will be plenty of time for Q & A afterward as well as time for support and help.

Hope to see you there!

 

 

 

 

 

 

 

 

 

Multi-platform Approach for Microbial Biomarker Identification Using Borrelia Burgdorferi as a Model

https://www.frontiersin.org/articles/10.3389/fcimb.2019.00179/full

Front. Cell. Infect. Microbiol., 11 June 2019 | https://doi.org/10.3389/fcimb.2019.00179

Multi-platform Approach for Microbial Biomarker Identification Using Borrelia burgdorferi as a Model

Kathryn J. Pflughoeft1,2, Michael Mash1,2, Nicole R. Hasenkampf3, Mary B. Jacobs3, Amanda C. Tardo3, D. Mitchell Magee4, Lusheng Song4, Joshua LaBaer4, Mario T. Philipp3, Monica E. Embers3 and David P. AuCoin1,2*

The identification of microbial biomarkers is critical for the diagnosis of a disease early during infection. However, the identification of reliable biomarkers is often hampered by a low concentration of microbes or biomarkers within host fluids or tissues. We have outlined a multi-platform strategy to assess microbial biomarkers that can be consistently detected in host samples, using Borrelia burgdorferi, the causative agent of Lyme disease, as an example. Key aspects of the strategy include the selection of a macaque model of human disease, in vivo Microbial Antigen Discovery (InMAD), and proteomic methods that include microbial biomarker enrichment within samples to identify secreted proteins circulating during infection. Using the described strategy, we have identified 6 biomarkers from multiple samples. In addition, the temporal antibody response to select bacterial antigens was mapped. By integrating biomarkers identified from early infection with temporal patterns of expression, the described platform allows for the data driven selection of diagnostic targets.

Please see initial link for entire study but I summarize some highlights below:
  • The authors state that testing delays can take days to weeks for diagnosis
  • Samples with a low bioburden may drive false-negative results, but amplification steps require even more time
  • In the case of Lyme disease, current CDC testing requires an immune response which is problematic as it delays treatment by several weeks, as well as the fact many patients remain seronegative, requiring additional testing, and doesn’t distinguish between new and previously treated infections.
  • The authors utilized multiple platforms to unmask B.b biomarkers and they mentioned the study by Turko group which focused on identifying biomarkers found abundant in B. burgdorferi B31 cultured in vitro, in patient samples using MS and that they found peptides from the OspA could be detected in early patient serum samples but not in those samples collected later (Cheung et al., 2015).
  • A conservative approach to biomarker identification was taken and proteins that were identified more than once were classified as potential biomarkers, and those identified three or more times were classified as high-potential biomarkers. The resulting data identified six proteins that were detected as early microbial indicators of infection.
  • Please be aware that this test can only identify Lyme disease – not other pathogens often involved with tick borne illness such as Babesia, Bartonella, Mycoplasma, tick-borne viruses, RMSF, etc.
  • In the discussion section that authors state they are also working on another multi-platform approach to define antigenic biomarkers for Tularemia (can be spread by ticks & deer flies) and Melioidois (also called Whitmore’s disease).