Archive for the ‘Lyme’ Category

Lyme Has Taken My Income My Hobbies, Even My Personality at Times

https://www.lymedisease.org/alexandra-logg-tbdwg-comments/

Lyme has taken my income, my hobbies, even my personality at times

Public comment to tick-borne disease working group

Alexandra Logg delivered the following public comments at the July 19 meeting of the federal Tick-Borne Disease Working Group.

By Alexandra Logg

Aug. 24, 2022

Good morning and thank you for the opportunity to speak. Recent reports state that a startling 15% of the world’s population has Lyme disease.

My name is Alexandra Logg, and I am one of those people. I have had Lyme for most of my life.

Because I love data, I’ll let you know I’ve had Lyme living in my body for 78% of my life. 

I was bit by a tick in my own backyard in Bernardsville, New Jersey as a child in 1997. A neighbor with an IV hanging from her arm had visited us upon our moving in, to warn us about living in a Lyme endemic area.

Hyper-awareness surrounding Lyme did not suffice. I developed a bull’s-eye on my shoulder and was treated with antibiotics same day and continued to take them for weeks. I was back in the same pediatric office every two-three months for symptoms deemed viral.

Traumatic brain injury

Looking back at my records, it’s clear my lingering symptoms were tied to Lyme. For two decades, I worked around my symptoms. It wasn’t until 2015–when my car was rear ended on my way to work and I incurred a concussion that allowed Lyme into my brain–that I could not work around the symptoms anymore. Research shows traumatic brain injuries can awaken Lyme disease.

By 2017, I was struggling to walk to the bathroom. It took my own research to connect the dots, as I was under the impression I had been cured of Lyme. 

I have been treating Lyme and co-infections ever since. I was bedridden for two and a half years, often sleeping 22 hours a day. I was in so much pain my spine felt like it was splitting when I rolled over in bed. I could not sit upright or stand without severe pain and blacking out.

During this time, I was so sick I could not communicate. Thanks to an experimental treatment and an incredible doctor, I’m able to walk again and appear “normal.” Looks can be deceiving. I still suffer tremendously from neurological effects and encephalitis.

These symptoms include but are not limited to: intense brain fog, memory loss, anxiety, severe cognitive impairments, and lack of executive functioning. I still have days where I struggle to maintain a standard of living that allows me to care for myself. 

Lack of Lyme funding

The current standards of care for tick-borne illness are not sufficient. In 2019, federal funding for Lyme disease was $63 per patient. As of 2020, that number has grown to $170 but that is still not enough.

The less common West Nile virus has 200 times the amount of per-patient funding.

We are in dire need for more funding to aid in early intervention, education for health care providers, and research for stronger diagnostics and a cure.

Otherwise, the strain and financial burden, both personally and federally, will grow as more become sick every year. Early intervention and more sufficient research would prevent a tremendous financial burden across the board.  

Before I became chronically ill, I worked in Patient Access in Infectious Disease. The irony of constantly struggling to access care for my own infectious disease does not escape me.

There are many gaps in care that have lengthened my illness’s timeline. Simply finding a doctor that understands chronic Lyme often requires word of mouth recommendations between patients.

Getting diagnosed, or re-diagnosed in my case, does not mean a clear path to health. Treatment is based on trial and error. 

I am thankful to have company benefits, but even those I have to fight for, since chronic Lyme is not widely recognized. 60% of my income from 2018 while fighting an illness that requires out-of-pocket doctor visits and treatments is not sufficient.

Lyme has taken my career and steady income, my hobbies, and even my personality at times. Living in a constant state of sickness and stress is one I would not wish on my worst enemy.

Alexandra Logg lives in New Jersey.

__________________

**Comment**

Similar story, different person.

Again, the clarion call for more federal money to be given to organizations that have done nothing but hurt patients is shouting at a monolithic mountain that will never be moved.  Money doesn’t fix corruption – it only increases it.  The CDC/NIH/FDA all have long track records of corruption.  Do not fund these organizations any longer.  They need to be disbanded.

We need to detach ourselves from the behemoth and fund our own independent research to resolve this juggernaut.

Insanity is doing the same thing over and over and expecting different results.

We can not trust a corrupt government that is behind the very disease we are seeking answers for.

Category:

Activism, Lyme

Astrophysicist Weather Expert: Climate Always Changes But Has Nothing to Do With Man. Climate “Scientists” Are On A “Gravy Train” to Secure Funds

**UPDATE**

More and more climate experts are speaking out about the climate propaganda and science shows there’s no climate emergency.  Man’s interventions; however, are toxic to the environment and humans, are ineffective, and are costly.

“It’s not carbon dioxide that drives temperature.  It’s exact inverse.  Another fraud.” ~ Professor Ian Plimer

 

There has been much speculation that the recent warming trend will generate extreme weather events dangerous to humankind. The evidence is not compelling. The greatest warming has been over high northern latitudes, when temperatures are well below freezing. It will therefore be unlikely to have any appreciable impact on flora or fauna. 

The pattern of recent global warming underscores the validity of what meteorologists widely recognize: the oceans are the vital inertial and thermal flywheels of the climate system. The corollary is, if one wants to control climate, it will be necessary to control the oceans. Efforts to decarbonise in the hope of affecting global temperatures will be in vain.  Source

Perhaps this is why Biden is determined to put ineffective, toxic, and dangerous windmills in the ocean.

Then there’s the impact of non-ionizing radiation coming from cell phones, radio waves, and microwaves:  Australian report

Whilst industry, the WHO and government submissions argued that the science was inconclusive, others said that the majority of peer-reviewed, published scientific research showed effects from non-ionising radiation including DNA damage, heat shock protein response, changes in the movement of substances across cell membranes, changes in the blood brain barrier, oncogene change, melatonin reduction and altering of calcium ion signalling.

In animals, studies have shown chromosome aberrations, increases in double and single strand DNA breakages, increases in the promotion of certain cancers in genetically predisposed mice, severe depression of the immunological and endocrinological responses of young chickens, changes in temperature regulation, changes to calcium ion mobility in the brains of cats and rabbits, changes to the proliferation rate of cells, alterations to enzyme and nervous system activity and behavioural change, at low level exposure to radiofrequency radiation.

Lymeland is also greatly affected by these interventions, and patients are more susceptible to environmental toxins.

**UPDATE Nov, 2022

Besides being a “gravy train” for climate scientists, it’s recently come out that the US has pledged “Climate Reparations” to other countries while Americans freeze and become homeless.  Under Biden’s watch, the government is giving your tax dollars away to other countries because evidently we are naughty carbon polluters, but China which creates 30% of the world’s carbon emissions gets off scot-free. Some reports suggest that the US will be on the hook for up to a billion dollars. In October, it was reported that the total amount due would be $4.3 trillion.

https://healthimpactnews.com/2022/astrophysicist-weather-expert-climate-is-always-changing-and-has-nothing-to-do-with-man-climate-scientists-are-on-gravy-train-to-secure-funds/  Video Here

Astrophysicist Weather Expert: Climate is Always Changing and Has Nothing to do with Man – Climate “Scientists” are on “Gravy Train” to Secure Funds

by Brian Shilhavy
Editor, Health Impact News

Sept. 10, 2022

Astrophysicist and meteorologist weather expert Piers Corbyn was recently interviewed by a reporter in RT.com’s Moscow studio about the unusually hot weather seen in many parts of the world this year, with the reporter stating the standard corporate media line that this is a clear example of “climate change.”

But Piers Corbyn replied:

Well climate has always been changing, but this has nothing to do with man.

Corbyn is the founder of “Weather Action” and he began to explain that they predicted that there would be extreme heat in Eastern Europe in Russia this summer before it even happened, and that these weather patterns are caused by “a certain circulation pattern”, and not CO2, but a combination of solar activity and the phases of the moon.

The reporter in Moscow then interrupts him with elevated voice and says:

Excuse me, just a minute! You say this isn’t caused by man, how come they are reporting this heat wave is recognized as the worst in a thousand years in recorded history in Russia?!

And for sure, man has something to do with it, hasn’t he?

Corbyn replies calmly, “No.”

“Man has nothing to do with it. The only connection is that man is here at the same time as the sun and the moon are doing things.” ~ Piers Corbyn

He then goes on to explain that a very similar situation happened about 132 years ago. He states that those who claim otherwise are simply trying to make money off of the Climate Change narrative.

It is an interesting and entertaining four and a half minutes to watch. A shorter clip that is just over 2 minutes was posted on Twitter and is making the rounds in the Alternative Media today, where comments are being made such as “We suspect this is the last time Mr. Corbyn will be allowed on TV,” suggesting that the reporter was caught off guard, but I found the entire interview, and at the end of the interview the reporter states while smiling:

Piers Corbyn, as always, it is very interesting to hear what you have to say. Thanks very much for joining us here on RT TV.

So this was probably scripted and rehearsed ahead of time, but it is a good watch none-the-less.

We uploaded the entire interview on our Bitchute, Odysee, and Telegram channels.

Piers Corbyn apparently often goes against the “science” dictators, as his Wikipedia page states:

Piers Richard Corbyn (born 10 March 1947) is an English weather forecaster, businessman, anti-vaxxer and conspiracy theorist.

He didn’t accept (gasp!) the official narrative on COVID.
_________________

**Comment**

Please note the “psycholinguistic tool” being used against Corbyn.  Wikipedia simply bullies by using the age-old name-calling tactic by stating he is an “anti-vaxxer” and “conspiracy theorist.”  This is what “authorities” do when they don’t have a shred of evidence but want to shut the opposition up.  Just bully, censor, ban and belittle any dissenters.  The public will be none the wiser.

But we need to be wiser.

Corbyn states that average global temps are actually declining, but this inconvenient truth is not being reported by mainstream media, which is completely bought out.

“Temperatures change, but they are not caused by CO2.” ~ Piers Corbyn

Corbyn states that ice is starting to increase again in the Arctic and has been increasing for a long time in the Antarctic.

He also states that those who say CO2 is behind “climate change” have absolutely zero evidence. The evidence only shows the contrary.

This topic is important to everyone, but particularly to Lyme/MSIDS patients who are continually being fed the lie that tick and disease proliferation are due to “climate change,” as well as the narrative that the world is heating up and we should all be fearful, cower in the corner, and agree to massive money/power grabs which includes but is not limited to the need for: government subsidized windmills (a colossal, proven mistake), electric cars (another blunder), the the infeasible, expensive economic climate agenda policy of “net zero”. It also affects government research grants, which directly affects Lyme/MSIDS patients.

Nearly every single tick study to cross this writer’s desk has the moniker “climate change” in the title, despite independent research and climate experts showing otherwise, who have actually corrected biased, shoddy research designed for the pre-determined accepted narrative. Researchers know that if they want highly sought after funds, they need to prostitute themselves to state what the establishment tells them to state, despite the evidence. They then creatively design their study for a pre-determined outcome. It’s the oldest trick in the book and was done repeatedly during the COVID debacle and has been the bedrock of Lyme research.

It’s been done in Lymeland for over 40 years, by requiring the following to enter research studies:

  • a positive 2-tiered CDC test, which has been proven to miss nearly all cases
    • “authorities” purposely eliminated a very specific band for Lyme due to vaccine development, which means the sickest patients will never test positive
  • an EM rash, which has been proven to be highly variable and not seen at all by many
  • the myopic, flawed continued fixation upon acute cases and the continued denial of chronic/persistent cases

COVID has blatantly exposed these types of crimes and the fact science has been hijacked.
Patients need to continually ask themselves, “If they lied to us about one thing, would they lie to us about another thing?”

Hopefully enough lies have been exposed to make us skeptical of everything these “authorities’ say and do; however, it behooves me that Lyme advocates continue to try and work with corrupt organizations that have only hurt patients by taking their money, but giving them nothing in return but a flawed paradigm that will deny people diagnosis and treatment, and that one doctor calls “medical myopia.”

Go here to tell your Congressman, “Don’t give the CDC one more dime, and no more data collection.”

Go here to read WI Senator Ron Johnson’s letter to CDC’s Director Rachelle Walensky on the fact the CDC admits it gave false information about COVID shot surveillance.

For more:

Category:

Activism, Lyme, research, Ticks

96% of People in This Study Did Not Have Classic Lyme Borrelia

https://biologixcenter.com/lyme-disease/96-of-people-in-this-study-did-not-have-classic-lyme-borrelia/#

96% of People in this Study Did Not Have Classic Lyme Borrelia

By

New, more sensitive, and precise testing reveals a troubling finding in the treatment of Lyme disease. As this study reveals, many doctors may often be prescribing the incorrect antibiotics, due to the narrow focus on B. burgdorferi. In twenty-seven people from sixteen states, 96% were found to have other Borrelia strains than B. burgdorferi, many of which cannot be treated with the same antibiotics.

Limitations of Conventional Lyme Testing

Treatment-resistant, chronic and apparent relapsing Lyme disease (borreliosis), with its oft associated co-infections which worsen the illness, though once debated, is now well-documented in the scientific literature. Chronic Lyme disease has reached the true status of a global pandemic, though largely unappreciated by the media and mainstream medicine.

Conventional diagnostic lab testing, such as Western Blot, ELISA, and Conventional Bacteria PCR testing for the dectectin of Borrelia spirochete of Lyme disease has had limited success. Most types of conventional tests having high false-negative results, with as little as 30% sensitivity, meaning as much as 70% of people tested, actually have the infection, but never get treatment due to their lab test coming back negative. These people fall between the cracks of medicine as their body and lives fall apart as doctors do not know what is wrong with them, assuming the tests were correct. (See Fig. 1)

phage_testing_table_v2cg-800x556Figure 1

The painful reality is that conventional labs which are not focused solely on testing for Lyme disease, often are not as diligent in their testing, not getting paid more to find the bacteria or not, and seeming to forget that there is a real and desperate person at the other end of the blood test. Unfortunately beyond this, the medico-political environment regarding the existence of chronic Lyme disease also gets in the way of getting many, if not most conventional physicians to order the test, even at the pleading of their patients.

New Testing Pinpoints Acute and Chronic Infections

In 2019 a new, highly sensitive test (See Fig. 1 Phage Test) was developed by the University of Leicester, in England, and performed by the R.E.D Laboratory, for the diagnosis of Borrelia infections. This test is so sensitive and the testing process so rigorous, that the test is nearing 100% accurate, at >80% sensitivity to detecting not just the presence of Borrelia burgdorferi, but all of the 20 types of Borrelia that can cause tick-borne and vector-borne illness. This test is call the Phelix Borrelia-Phage Test, and is such a breath of fresh air in that the test results come back not with encrypted, hard to determine bands, as in Lyme Western Blot tests, but instead clearly state, Positive or Negative and the exact type of Borrelia infection or multiple types of Borrelia strains that you have, without needing your doctor to interpret the results.

Doctors in the United States or any other country can order this test.

_________________

SUMMARY:

  • Only ONE person out of 27 from 16 states in the study had B. burgdorferi.
  •   Please note most had B. Miyamotoi followed by strains that cause relapsing fever, and most had more than one strain of Borrelia.
  • The study shows that Bb is likely not the real culprit behind many cases of chronic Lyme – which in turn means many are not getting the proper treatment.
  • The paradigm of “classic” Lyme based upon the Bb model needs to be expanded to include symptoms unique to the other strains as well as the various coinfections often present.
  • Dr. Jernigan offers a new Borrelia-phage-based targeted treatment that has been developed and documented by repeated Phelix Borrelia-Phage testing to rapidly eliminate only the types of Borrelia a person has been found positive, with no harm to the body, with minimal Herx reactions, and no harm to good bacteria.
  • To learn more about Bacteriophages and INPT treatment please click on the hyperlink.

Category:

Borrelia Miyamotoi (Relapsing Fever Group), Lyme, research, Testing, Treatment

Conservatorships Can Trap Families in a Web of Conflicting Interests

https://www.lymedisease.org/conservatorships-can-trap-families/

Conservatorships can trap families in a web of conflicting interests

Aug. 31, 2022

By Dorothy Kupcha Leland

Deborah Findley’s son, Andrew, grew up with serious health problems, including autism, Lyme disease, and other conditions. Now 21, he is severely disabled and requires 24-hour care.

When he turned 18, his mother was advised to seek a conservatorship for him. That’s a way for someone to assume legal guardianship over an adult incapable of caring for themselves. Being his conservator would allow her to make medical decisions on his behalf, along with other choices regarding his care.

But when she and her husband petitioned the court to become Andrew’s conservators, they got a nasty surprise.

California’s Department of Developmental Services filed a competing petition. The department said that DDS should be Andrew’s conservator because of alleged abuse by his parents. The judge followed the agency’s recommendation and Andrew’s parents were shut out of his care.

As a result, they have been unable to visit Andrew in person for over three years, sometimes not even knowing where he was located.

There appears to be no legal avenue to challenge the court’s decision. Deborah says she has spent over $300,000 in legal fees fighting the state’s court-ordered conservatorship, trying to get access to her son. So far, she’s had no luck.

The issue of conservatorship is a complex one. You may remember news reports about pop star Brittany Spears and her years-long fight to regain control of her finances and personal life. A judge finally ended her 13-year conservatorship in 2021.

Investigative reporter Andie Judson, of ABC10 TV in Sacramento, examines Andrew’s case in a multi-part news series on conservatorship called “The Price of Care.” It is a complicated story with chilling implications.

Click below to watch the episode featuring Deborah and Andrew’s story.

This segment is part of Season 2 of Judson’s “Price of Care” series. Season 1 included five episodes that ran in 2021. Click here for more information about the whole series.TOUCHED BY LYME is written by Dorothy Kupcha Leland, Board President of LymeDisease.org. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

________________

**Comment**

This is not the first time parents have been accused of child abuse of a child infected with Lyme/MSIDS, or the first time Child Protective Services (CPS) has medically kidnapped children.  Also, the COVID debacle has allowed hospitals to medically kidnap people.

  • Hospitalized patients are forced on to the “Fauci death protocol” against their will, often resulting in death, and due to the infamous Cares Act, hospitals are given bonus incentive payments for all things related to COVID-19 (testing, diagnosing, admitting to hospital, use of remdesivir and ventilators, reporting COVID-19 deaths, and vaccinations) and waivers of customary and long-standing patient rights by the Centers for Medicare and Medicaid Services (CMS) and are the reasons patients are virtual prisoners in the hospital with ZERO rights.  They have no choice, no say, and are barbarically isolated from family members. They are only allowed “FDA approved” COVID treatments which are dangerous, ineffective, and expensive – all because our corrupt government is in bed with Big Pharma.
Due to the politicization of tick-borne illness, parents fight an uphill battle.

Category:

Activism, Lyme, Uncategorized

Faulty CDC Lyme Webpages. Do NOT Fund This Organization Any Longer

**UPDATE**

Go here to tell your Congressman, “Don’t give the CDC one more dime, and no more data collection.”

Go here to read WI Senator Ron Johnson’s letter to CDC’s Director Rachelle Walensky on the fact the CDC admits it gave false information about COVID shot surveillance.

  • It inaccurately responded to a FOIA request and stated it conducted a certain type of analysis more than a year before it actually did.
  • The CDC not only said that the team didn’t conduct any abstractions or reports through October 2021, but that “an association between myocarditis and mRNA COVID-19 vaccination was not known at that time.”
    That statement is false.
  • By April 2021, the U.S. military was raising the alarm about post-vaccination heart inflammation, and by June 2021, the CDC was publicly acknowledging a link
  • The CDC promised in January 2021 that it would perform a specific type of data mining analysis on the VAERS reports called proportional reporting ratio (PRR). But when asked by CHD for the results, the CDC said that “no PRRs were conducted by the CDC” and that data mining “is outside of [the] agency’s purview.”
  • Dr. John Su, who heads the CDC’s VAERS team, told The Epoch Times in an email that the CDC started performing PRRs in February 2021 “and continues to do so to date.”
  • The CDC is now saying that both the original response and Su’s statement are false.
  • The CDC states it “misinterpreted” the request despite the fact the FOIA request specifically mentioned PRRs and their response mentioned they did not do PRRs.  Nice try.

What does this mean?  The CDC was not analyzing VAERS for early warning safety signals for WELL OVER A YEAR after the “vaccination” campaign began.  Also, the CDC hasn’t released the PRR results. 

https://www.lymedisease.org/cdc-lyme-pages-need-modifications/

The CDC’s Lyme webpages need some serious modifications

Aug. 23, 2022

By Dorothy Kupcha Leland

Subcommittee reports from the federal Tick-Borne Disease Working Group are now available for you to read on the Health and Human Services website.

Should you care? Yes. And here’s why:

These reports will help the Working Group decide what to ask Congress to do about Lyme disease and other tick-related conditions.

One of the most important subcommittees to Lyme patients is “Access to Care.” It’s chaired by Dr. Elizabeth Maloney and Captain Rebecca Bunnell, of the US Public Health Service.

It deals with the many barriers that prevent people from getting properly diagnosed and treated for Lyme disease.

The group’s report focuses on three key factors that account for many of the health disparities that patients with tick-borne illnesses experience:

  • Patient-encountered barriers,
  • Clinician-encountered barriers, and
  • Medical educational barriers.

What does CDC website say about Lyme disease?

While there are a lot of nuggets in this report, I’d like to highlight the section that focuses on what the CDC website says about Lyme disease.

This is often one of the first places that patients (and their doctors) turn to for information. As a result, it’s one of the first barriers placed in the path of Lyme patients in need of treatment.

The report states:

  • The content [of the CDC’s Lyme webpages] does not provide an accurate review of the current body of knowledge and fails to acknowledge what remains unknown, what is uncertain, and what continues to be debated [about Lyme disease].
  • The webpages miss the opportunity to fully describe this multifaceted disease, its many and varied presentations, and the consequences of missed and delayed diagnosis and treatment. Although much of the content is factual, it lacks sufficient depth and, at times, perpetuates common misconceptions.
  • The webpages on signs and symptoms do not provide detailed information regarding potential disease symptoms and signs or elements of the medical history that make Lyme disease more or less likely. Therefore, clinicians are ill-equipped to estimate patient-specific, pre-test probabilities. The section on diagnostic testing does not adequately discuss the well-known limitations of serologic testing.
  • Treatment recommendations do not acknowledge the low quality of the available evidence on which they were based and leave no apparent room for clinicians to exercise clinical judgment or engage in shared decision-making.
  • Although a limited list of references follows the treatment recommendations for erythema migrans, Lyme carditis, neurologic Lyme disease, and Lyme arthritis , these references do not appear to represent a systematic and comprehensive review of the pertinent evidence. Hand-cultivated lists are problematic because they often reflect the anchoring and confirmation biases of those selecting the evidence to be reviewed, which may perpetuate particular points of view, or even errors.
  • The content regarding PLD/CLD  [persistent Lyme disease/chronic Lyme disease] appears skewed in that it does not provide clinically helpful information or references regarding the condition, potential etiologies, knowns and unknowns, or the diverse and often conflicting scientific viewpoints that mark this challenging health problem. The list of references is overly weighted toward the risks associated with treatment and provides an inaccurate assessment of the potential benefits.
  • Although information about the scientific evidence may be too detailed for the general public, it could and should be included on the “health care providers” webpage. At present, this webpage offers an inaccurate portrayal of the available scientific evidence and current state of clinical uncertainties. This is best exemplified by including a video of a patient discussing his misdiagnosis of Lyme disease while omitting any discussion or videos of patients with Lyme disease whose lives were irretrievably altered by diagnostic and therapeutic delays when Lyme disease was erroneously diagnosed as something else, or the complex problem of PLD/CLD.

So what to do about it?

Later in the report, the subcommittee recommends:

Fund and support a directive for CDC to conduct a review of CDC webpages and the current CDC TRAIN CME [continuing education modules] pertaining to the prevention, diagnosis, and treatment of Lyme disease to determine whether they best reflect the current state of the science and appropriately delineate areas of scientific uncertainty.

Sounds like a pretty good idea, don’t you think?

CDC Director Dr. Rochelle Walensky recently called for an organizational overhaul of the CDC, due to the agency’s missteps during the COVID pandemic.

A similar overhaul is needed for all the CDC’s missteps related to Lyme disease–including correcting the website problems listed above.

I hope the Working Group takes the subcommittee’s advice, and asks Congress to fix this–pronto.

Here are links to all the subcommittee reports:

2022 Subcommittee Reports

2022 Access to Care Subcommittee Report to the Tick-Borne Disease Working Group

2022 Clinical Presentation and Pathogenesis Subcommittee Report to the Tick-Borne Disease Working Group

2022 Diagnostics Subcommittee Report to the Tick-Borne Disease Working Group

2022 Disease Prevention and Treatment Subcommittee Report to the Tick-Borne Disease Working Group

2022 Tick Ecology Subcommittee Report to the Tick-Borne Disease Working Group

Next meeting of the Working Group is October 4-5. As usual, the public can tune in to watch it live. We’ll post details of that meeting when they become available.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, Board President of LymeDisease.org. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

__________________

**Comment**

I couldn’t disagree more with the recommendation to “fund the CDC to conduct a review of CDC webpages and the current CDC TRAIN CME [continuing education modules].

Are you for real?

The corruption, fraud, and collusion in this organization is long, prolific, and shows no signs of slowing.

This organization needs to go now!

An independent inquiry made by folks without conflicts of interests (receiving funding from Big Pharma, government, etc) into the mishandling of Lyme/MSIDS.  When will Lyme advocates learn, acknowledge, and act upon the fact that working with an enemy of 40 years has been a waste of time, effort, and tax dollars – not to mention stressful and fruitless?

DEFUND the CDC & break the public health monopoly!

Category:

Activism, Lyme