Archive for the ‘Treatment’ Category

SOT Treatment For Lyme Disease

SOT was created for those with previously untreatable genetic conditions.  In my opinion, Lyme disease is not a genetic condition, it’s an infection(s) and depending upon your exact case, is only one of many potential infections that can be bacterial, fungal, viral, and/or parasitic.  This is my main problem with SOT besides the fact it is a gene-silencing technique that raises questions about long-term effects as well as the fact Bb changes its outer surface protein, is stealthy, and very probably a bioweaponized pathogen(s) created in a lab to be more persistent and transmissible, and to evade the immune system and treatment.

https://www.treatlyme.net/guide/sot-lyme-treatment

SOT for Lyme Image from Marty Ross MD
 
By Marty Ross MD

Supportive Oligonucleotide Therapy (SOT) Background

Supportive Oligonucelotide Therapy (SOT) is a new treatment for Lyme disease. SOT is also called Antisense Oligonucelotide Therapy (ASOT) which is the term used in medical research papers. SOT uses laboratory derived nucleic acids (genetic code) that blocks production of disease causing proteins or even gene expression. These pieces of genetic code are called oligonucleotides. You can think of oligonucleotides as a genetic message.

For example, in Duchenne Muscular Dystrophy (DMD), SOT provides oligonucleotides that direct the correct production of a protein called dystrophin. People with muscular dystrophy are born with DNA that provides the wrong genetic message for dystrophin. SOT correction to the DNA message leads to production of dystrophin. This prevents the muscle damage seen in DMD.

In Lyme disease, a currently available type of SOT produced by RGCC in Greece uses oligonucleotides intended to stop germ growth and replication. Unlike the SOT therapy for Duchenne muscular dystrophy, the Lyme SOT is not a US Food and Drug Administration (FDA) approved drug. To be approved by the FDA, a therapy must have scientific evidence of safety and effectiveness.  (See link for article)

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**Comment**

Dr. Ross is unsure if SOT for Lyme/MSIDS works, and some of his patients using it before seeing him experienced little to no effects, but some of his colleagues state some patients have experienced improvement.  He also reminds readers that there is a placebo effect of 35% on average in clinical trials for drugs.

Also, please read this article on SOT Therapy side effects.

Common side effects: injection site reactions, flu-like symptoms, headaches and fatigue, changes in liver function.

Serious but supposedly rare side effects: thrombocytopenia, changes in kidney function, allergic reactions, neurological effects, potential impact on fertility and pregnancy.

For more on SOT:

For more on the RGCC test:

 

 

 

 

Category:

Lyme, Treatment

Symptomatic High-Grade AV Block & Phase 4 Right Bundle Branch Block – A Previously Unreported Manifestation in Lyme Carditis

https://www.heartrhythmcasereports.com/article/S2214-0271(20)30263-3/fulltext#secsectitle0020

Phase 4 Block of the Right Bundle Branch Suggesting His-Purkinje System Involvement in Lyme Carditis

Open AccessPublished: December 01, 2020DOI:https://doi.org/10.1016/j.hrcr.2020.11.017
We describe an adolescent with symptomatic high-grade AV block and evidence of phase 4 right bundle branch block, a previously unreported manifestation of infra-nodal conduction system involvement in LC.

A previously healthy 14-year-old boy presented via emergency medical services in mid-summer because of syncope (fainting).

Interesting findings:

  • Patient frequently hunts and fishes in wooded, Lyme-endemic region 
  • Didn’t remember tick bites or EM rash
  • Two weeks prior to ER visit patient had a runny nose, cough, abdominal pain, followed by headache and nausea.
  • In the ER he had bradycardia, altered mental status, headache, and vomiting.
  • Initial ECG showed complete heart block
  • He was given 2,000mg of IV Ceftriaxone every 24 hours
  • Testing supported clinical suspicion of Lyme
  • He was given a temporary pace-maker which was removed after 5 days of IV antibiotics and he was switched to oral doxycycline to complete a total of 21 days of antibiotics
  • After being monitored in hospital for 7 days, he was discharged with an auto-detecting wireless monitor until a follow-up appointment and stress test
  • Follow-up appointment patient was well with normal ECG

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**Comment*

Case study states: 

Significant AV block due to LC occurs in about 1% of LD cases.

I believe this statistic is premature considering many do not test positive and therefore are undiagnosed. I’ve posted numerous articles where patients are sent packing even when they present with positive test results three times in a row! We will never know how many patients with AV block have an underlying tick-borne illness due to abysmal testing and the lack of training and experience of most doctors with tick-borne illness.

And then there’s that nagging concern about long-term effects and if 21 days of antibiotics were enough for his patient. It often isn’t.

Please see:

https://madisonarealymesupportgroup.com/2020/11/25/what-makes-a-doctor-lyme-literate/

Category:

Heart Issues, Lyme, research, Testing, Treatment

Ozone for Newbies Webinar Tonight

Webinar: Ozone for Newbies

Click below to sign up for a free webinar on Thursday (12/18) 
at 8PM Central Time. 

What is something you have always wanted to know about ozone?

My goal for this webinar is to give you a place for asking any ozone therapy question you have and to teach you the basics of ozone therapy.

You will be able to interact and ask questions during this live webinar!

The webinar starts this Thursday (12/18) at 8PM Central.

Click the link to sign up and get reminders as it gets close.

Click here to register 
https://event.webinarjam.com/register/21/k3851al

Looking forward to learning with you, 

Jason DeLeon – Professional Ozonaut
P.S.  If you can’t make it, you can still sign up and get the video afterward!  Click here to register

Category:

Activism, Treatment

Lyme Disease is a Small Vessel Disease: Dr. Klemann

http://

Dr. Wolfgang Klemann – Lyme disease is a small vessel disease

July 2, 2016

In this short video, Dr. Klemann describes how quickly borrelia leaves the blood (within hours) to infect small vessels. This, along with biofilm and round-body forms are reasons why blood (serology) testing will not work.

He describes how borrelia has an enzyme to break down collagen tissue, form colonies and a protective slime layer.  He states that antibiotics target the outer layer of the biofilm, but not the inner layer and that longer treatment is imperative for effectiveness.

As it stands, the CDC/IDSA only acknowledges the acute stage of Lyme disease, with short treatment.  They ignore those with chronic/persistent illness and simply state it doesn’t exist or is a figment of your imagination.  https://madisonarealymesupportgroup.com/2020/12/10/ten-things-you-should-know-about-the-new-idsa-lyme-guidelines/

Do not mess around with these doctors.

Get to an ILADS trained Lyme literate doctor who understands treatment nuances and that treatment often surpasses the accepted narrative of 21 days of doxycycline.  Please see:  https://madisonarealymesupportgroup.com/2020/11/25/what-makes-a-doctor-lyme-literate/

This is not to say you won’t have to perhaps see a regular doctor for specific issues, as Lyme/MSIDS affects so many organs; however, the main doctor in charge of treating tick-borne illness should be Lyme literate.

For more:  https://madisonarealymesupportgroup.com/2016/02/13/lyme-disease-treatment/

 

 

Category:

Lyme, Treatment

The Desperate Need for an Accurate Lyme Disease Test

https://www.linkedin.com/pulse/desperate-need-accurate-lyme-disease-test-rosie-milsom/

The desperate need for an accurate Lyme disease test

1607078449009Stephen Bullough before and after Lyme disease

Rosie Milsom

Fundraising & Comms Manager | Helping charities to diversify and increase their income, engage with their supporters, and make a difference

Yesterday, as part of our Big Give Christmas Challenge, we got a very strong reaction and boost to the campaign when we shared the story of Stephen Bullough. I’d like to share that with you now, and the best way is within an article because it’s too long to fit into a LinkedIn post.

His story helps demonstrate the importance of having an accurate test available on the NHS – and a better understanding of the disease from the medical profession.

An 8th Dan in karate and World, European and British champion, Stephen fell ill 2016 after recalling rash in 2015. He had neurological symptoms including seizures, and later vision problems.

He saw several consultants, but no one joined up the dots between the symptoms, and he was diagnosed with Functional Neurological Disorder (FND).

Feeling failed by the NHS, Stephen’s wife Angela began doing her own research and sent his bloods to a lab in Europe, which showed positive for Lyme. Tests done on the NHS had returned as negative.

The positive test was dismissed by Stephen’s neurologist, who said not wanting to believe he had FND was another symptom of the illness.

In 2018, Stephen suffered a series of seizures that resulted in him losing his sight and use of his legs. Still, he got no treatment.

He was certified as blind by a top local ophthalmologist, but again his neurology consultants didn’t accept this as true.

On Father’s Day this year, Stephen was blue lighted to hospital with a Glasgow Coma Scale 3 after series of back to back seizures. He was referred to ICU, but once in ward a doctor refused to treat him, saying that his medical notes suggested the seizures were fake. Luckily, a nurse’s son had epilepsy. She recognised the seizures and subsequently reported the doctor.

Stephen now has severe issues with his heart and nervous system, and is unlikely to ever walk again. He needs round the clock care.

After a recent stay in hospital, a community response doctor was sent to visit Stephen at his home. He happened to be a member of Global Lyme Alliance and listened to Angela’s story in shock.

He consequently carried out a thorough examination, confirming that Stephen has late stage Lyme with secondary and extensive damage to the central nervous system.

He is now on extensive medication and vitamins to help manage his condition.

Angela says:

“To say we’ve been living through four years of hell is an understatement.  If there was a more accurate test on the NHS, we could have gotten Stephen diagnosed and treated more quickly. Now, our lives have been devastated by this illness, and the stress has impacted my health too.”

At the time of writing this, we’re just £138 away from our Big Give Christmas Challenge target. Funds raised are going towards our Innovation Fund for Lyme disease, which will see us give grants to research projects which aim to find a truly accurate test and effective treatments for Lyme disease.

The campaign is accepting donations until Tuesday 8th December at 12pm, but will only be doubled up to £6,000. If you’re moved to support us, please donate via the link below, or get in touch with me if you’d like to talk about other opportunities for support after this time.

Thank you

https://donate.thebiggive.org.uk/campaign/a051r00001fHSDfAAO

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**Comment**

While COVID testing is purposely designed to show mostly ALL positives, Lyme/MSIDS testing is designed to show nearly ALL negatives:

Category:

Lyme, research, Testing, Treatment