In this follow-up to Part 1: https://madisonarealymesupportgroup.com/2019/08/04/the-lyme-wars-major-organizations-arent-playing-nicely-together/, the author again points out the various sides of the Lyme war.
I disagree with the author on a number of points:
- She states that ILADS trained practitioners use “home brewed” tests, which is propaganda straight out of the CDC website. If you call CLIA-certified labs “home brewed,” then you are clueless that these labs undergo some of the most stringent lab requirements and that these labs specialize in bacteriology and virology. It’s what they do. For more: https://madisonarealymesupportgroup.com/2018/01/20/review-of-lyme-tests-how-to-diagnose-lyme-dr-marty-ross-llmd/
- “Believing” in climate change is irrelevant here. It has nothing to do with tick and disease proliferation: https://madisonarealymesupportgroup.com/2018/08/13/study-shows-lyme-not-propelled-by-climate-change/, https://madisonarealymesupportgroup.com/2018/11/07/ticks-on-the-move-due-to-migrating-birds-and-photoperiod-not-climate-change/, and in fact researchers have been called out on research bias in purposely creating a paradigm to prove a gradual northern tick expansion when in fact ticks already exist in those locations: https://madisonarealymesupportgroup.com/2019/06/17/ontario-public-health-officials-called-out-on-shoddy-biased-research-utilizing-an-erroneous-climate-change-model-to-program-a-futuristic-tick-problem/
- Taking a middle of the road between the CDC guidelines and the ILADS guidelines appears at first blush like a smart thing to do; however, it is short-sighted. It appears the author believes that ILADS allows patients to completely steer the ship and choose their own treatment. This is an inaccurate portrayal of the dynamic doctor, patient partnership. While ILADS trained doctors listen to patients and work with them, it’s hardly the standard for the patient to choose their treatment. I know many ILADS trained doctors due to my role as a patient advocate. These are some of the most caring, intelligent, and savvy doctors I know. Many go all over the world to continue to add to their medical learning.
- While the author may hate the term “Lyme literate,” if the shoe fits then wear it. Mainstream medical doctors are woefully trained in tick-borne illness. Woefully. Instead of feeling threatened, why don’t you change that and get trained? I’ve attended ILADS conferences. The information is extremely scientifically based.
- The author desperately wants to put Lyme/MSIDS into a nice, neat box. It will never fit. Due to the high variability with what a person’s infected with, how the immune system responds, the life style choices a patient makes, environmental factors and so on, what works for one patient won’t work for another.
- I’d be careful about what you call “dubious” value with various treatments. I’ve seen patients improve on the wildest things and again much of this is due to individual response. As our grandmas used to say, “Necessity is the mother of invention.” We are desperate patients working under doctors who are desperately trying to help us. We try many things in our journeys – some helpful, some not. And while we must always remain vigilant to snake-oil salesmen, this isn’t a new problem. There are snake-oil salesmen all over the place – including in mainstream medicine.
- Seemingly, the only way this doctor is going to change her opinion is by experiencing these things herself. But experience can change everything if you let it; however, there are mainstream doctors who are infected and see an ILADS trained practitioner, yet won’t treat patients the same way – showing the extreme disconnect some people choose to live with.