Author Archive

Lyme Memoir

https://www.lymedisease.org/my-promise-to-alex-lyme-memoir/

TOUCHED BY LYME: “My Promise to Alex” –a memoir and a call to arms

Alex Hudson grew up in Fresno, California. When she was 11 years old, she started complaining that her legs hurt.

That was the beginning of Alex’s “mystery illness,” with waxing and waning symptoms that a parade of doctors couldn’t figure out. Sometimes her knees swelled up to the size of grapefruit. Arthroscopic knee surgery didn’t help.

Throughout junior high, high school and the beginning of college, the health hits kept coming. Legs that collapsed beneath her without warning. Severe tooth pain. Intolerance to many foods, accompanied by stomach pains, nausea, diarrhea. Depression and anxiety. Difficulty breathing.

Doctors and hospital visits brought no answers.

“Visits to the ER were becoming our new norm,” her mother Jody later wrote. “I hoped each time we went that maybe this would be the time that doctors would figure out what caused these episodes. But the results were forever the same. Embarrassed, we left feeling that we were the problem, and this wasn’t real. Way too often, I apologized to the medical professionals for taking up their valuable time.”

Pummeled by cascading health problems, Alex’s 5-foot-7-inch body withered away. When her weight dwindled to 86 pounds, doctors advised putting her in a psychiatric facility for eating disorder treatment. Alex and Jody didn’t agree and kept looking for answers.

Finally, a diagnosis

After a decade of suffering, Alex finally connected with a doctor who diagnosed her with Lyme disease and mast cell activation syndrome (MCAS).

(Mast cells are a complicated part of the immune system. When they go haywire, they can give rise to rampant inflammation throughout the body, triggering food allergies and other reactions Alex experienced.)

But even though the “mystery illness” now had a name, the path forward remained murky. Alex’s fragile body couldn’t tolerate any of the suggested treatments. Mother and daughter tried their best to find something–anything–that could turn things around.

But, 10 years of extensive damage was too much for Alex’s body to withstand. In 2018, she passed away at the age of 22, weighing 57 pounds.

Not the end of her story

Her brokenhearted mother could not let that be the end of Alex’s story. Vowing that “through pain comes purpose,” Jody formed the Alex Hudson Lyme Foundation.

The non-profit organization aims to educate the public about Lyme disease and MCAS and to support research into both conditions. As part of that effort, Jody has released a book called “My Promise to Alex.”

It’s both a memoir and a call to arms.

In it, she recounts the last decade of Alex’s life in poignant detail, painting a tender portrait of a young woman who had much to offer the world—and who tried her best to keep living in it.

The book underscores the appalling fact that mainstream medicine simply doesn’t know much about Lyme disease and related conditions. Doctors aren’t looking for it in the first place, and they can’t recognize it when it stares them in the face. And unfortunately, Alex paid for that ignorance with her life.

In memory of Alex, Jody has firmly set the intention to help change that situation. Forming the foundation and publishing “My Promise to Alex” are both ways to help carry out that mission. I applaud Jody for her bravery and her dedication.

This travesty should never have happened to Alex. May we honor her memory by working for a world where such a thing will never occur again.

Click to learn more about the Alex Hudson Lyme Foundation.

Click to order this book.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s Vice-president and Director of Communications. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

________________

**Comment**

I can hardly read these stories they are so painful.  When I think of how this story could have ended so differently, it propels me forward to continue to get the word out on how devastating this illness truly can be and the importance of early diagnosis and treatment.

Everyone now admits that catching Lyme/MSIDS early and getting on treatment promptly is key, yet no movement is being made toward these facts.  Too many vested interests and ego are involved for true lasting help and answers, so nothing changes and people continue to needlessly suffer and even die.

Category:

Activism, Lyme

The Chronic Lyme Debate Part 2

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u

The Chronic Lyme Debate Part 2

Carl Tuttle

Hudson, NH, United States

Mar 2, 2022 — 

The following email was sent to all members of the Tick-Borne Disease Working Group as a follow-up to yesterday’s Petition Update:

The Chronic Lyme Debate and tag team of Sood and Dixon
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/30273194

Since the start of these TBDWG meetings, the Federal Representatives have all been fixated on the Klempner antibiotic trials (which were stopped after three months) and have completely ignored the mountain of evidence from other studies and autopsy reports identifying persistent infection (chronic Lyme) following extensive antibiotic treatment.

The 2001 antibiotic treatment study found; “no evidence of B. burgdorferi in a total of more than 700 different blood and cerebrospinal fluid samples from the 129 patients in these studies.”

Two Controlled Trials of Antibiotic Treatment in Patients with Persistent Symptoms and a History of Lyme Disease
http://www.nejm.org/doi/full/10.1056/NEJM200107123450202#article_references#t=references

Not a single positive Dr. Klempner? Doesn’t this statistically prove that your methodology was fatally flawed???

Today’s Letter to the Tick-Borne Disease Working Group:

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “Dennis.Dixon1@nih.hhs.gov”  <tickbornedisease@hhs.gov>
(All members of the TBDWG)
Date: 03/01/2022 10:00 AM
Subject: The Chronic Lyme Debate

On 02/28/2022 5:40 PM CARL TUTTLE <runagain@comcast.net> wrote: “Ms. Logan was treated with many months of oral and IV antibiotics so how does this one single patient culture immediately positive for the infection when hundreds of test subjects from the Klempner trials did not?”

To: The Tick-Borne Disease Working Group,

In reference to the Klempner antibiotic trials please see the 2018 letter below addressed to Dr. Klempner; there was no response.

Carl Tuttle

———- Original Message ———-
From: Carl Tuttle <runagain@comcast.net>
To: mark.klempner@umassmed.edu
Cc: michael.collins@umassmed.edu, ddutko@hanszenlaporte.com, ryan.kantor@usdoj.gov, michelle.seltzer@usdoj.gov, william.rinner@usdoj.gov, makan.delrahim@usdoj.gov, tickbornedisease@hhs.gov, Elias, John, officeofthechancellor@umassmed.edu
Date: April 27, 2018 at 7:53 AM
Subject: Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease

April 27, 2018

University of Massachusetts Medical School
55 Lake Avenue North
Worcester, Massachusetts 01655
Attn: Mark S. Klempner, MD, Executive Vice Chancellor, MassBiologics

Dr. Klempner,

I would like to call attention to the attached study recently identifying chronic Lyme disease in twelve patients from Canada.

Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease
http://www.mdpi.com/2227-9032/6/2/33

All of these patients were culture positive for infection (genital secretions, skin “Morgellons” and blood) even after multiple years on antibiotics so there was no relief from current antimicrobials. Some of these patients had taken as many as eleven different types of antibiotics.

In contrast, your 2001 antibiotic treatment study found; “no evidence of B. burgdorferi in a total of more than 700 different blood and cerebrospinal fluid samples from the 129 patients in these studies.”

Two Controlled Trials of Antibiotic Treatment in Patients with Persistent Symptoms and a History of Lyme Disease
http://www.nejm.org/doi/full/10.1056/NEJM200107123450202#article_references#t=references

Not a single positive Dr. Klempner? Doesn’t this statistically prove that your methodology was fatally flawed?

Did you culture skin and genital secretions as the Middelveen paper reports? It would appear that you conveniently stopped looking after your results supported the existing thirty year dogma; chronic Lyme does not exist.

Persistent Lyme disease is not new and has been intentionally/deceitfully suppressed for decades as described in the Vicki Logan case identified in the following letter to past CDC Director Barbara Fitzgerald:

https://www.dropbox.com/s/xaul84dqmqgbre0/Brenda%20Fitzgerald%20MD%20Director%20CDC.docx?dl=0

In 1991 B. burgdorferi had been isolated in culture from Vicki Logan’s CSF (CDC’s laboratory in Fort Collins CO.) despite prior treatment with 21 days of IV cefotaxime and 4 months of oral minocycline.

The dishonest science here in the U.S. has denied chronic Lyme which stifled research to find a curative approach. Now the rest of the world is suffering.

We have lost nearly four decades to this 21st century plague due to the racketeering scheme identified in the RICO lawsuit filed by SHRADER & ASSOCIATES, LLP against the Infectious Disease Society of America, seven IDSA Panelists and eight insurance companies. The U.S. Centers for Disease Control has aligned itself with the seven IDSA Panelists identified in this lawsuit.

Court Document:
https://www.courthousenews.com/wp-content/uploads/2017/11/LymeDisease.pdf

Lyme is an incurable disease when not treated immediately which is spreading across North America and deceitfully misclassified as a low-risk and non-urgent health issue. Patient experience is describing a disease that is destroying lives, ending careers, causing death and disability while leaving victims in financial ruin. Current antimicrobials are ineffective for eradicating all forms of the Borrelia spirochete.

Public outcry has been ignored for decades while the Centers for Disease Control sat on evidence that this infection was not easily treated with a one size fits all treatment approach as dictated by the Infectious Diseases Society of America.

Once again your studies were fatally flawed while supporting the controlling dogma leaving hundreds of thousands if not millions worldwide with a persistent infection and absolutely no relief. We have another AIDS on our hands.

Carl Tuttle

Independent Researcher

Lyme Endemic Hudson, NH

Cc: -Michael F. Collins, Chancellor

-The Tick Borne Disease Working Group

-US Department of Justice

-Daniel R. Dutko, HANSZEN LAPORTE

Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease
Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease
Introduction: Lyme disease is a tickborne illness that generates controversy among medical providers and researchers. One of the…
https://www.mdpi.com

Thanks to your support this petition has a chance at winning! We only need 52,056 more signatures to reach the next goal – can you help?

_______________________

Category:

Activism, Lyme, research

New FDA Chief Prioritizes Fighting ‘Misinformation’

https://news.yahoo.com/u-fda-chief-says-prioritize-215603641.html

New U.S. FDA chief says he will prioritize fighting misinformation

FILE PHOTO: FDA Commissioner nominee Califf testifies at nomination hearing in Washington
Ahmed Aboulenein
·2 min read

WASHINGTON (Reuters) – Misinformation about science is increasingly prevalent and a significant public health threat that the U.S. Food and Drug Administration will focus on fighting, incoming Commissioner Robert Califf said on Thursday.

Califf, who was sworn in on Thursday, did not specify any particular misinformation the FDA should fight, but millions of Americans still refuse COVID-19 vaccines, with many conservative media outlets and Republicans in the U.S. Congress spreading doubt about their effectiveness.  (See link for article)

_________________

**Comment**

Unfortunately the ‘powers that be’ continue to use slight of hand tricks utilizing division to accomplish their goal of putting a needle in each and every arm come hell or high water.

Hopefully by now it is clear as day that these corrupt, powerful public health ‘authorities’ have severe conflicts of interest, direct ties to Big Pharma, and are now guilty of trying to stop free speech – which is a bedrock of freedom, and crucial for true science.  People should also be free to disagree and make their own choices. Medical freedom is particularly precious as across the board, “one size fits all” medicine is fundamentally flawed due to not taking individual differences, medical history, and personally held beliefs into account.

The gigantic elephant in the room is these experimental, mandated injections (which aren’t vaccines), haven’t stopped transmission or infection. They have caused more adverse reactions and death than any other vaccine in the history of VAERS, and have not had any measurable impact on COVID mortality.  In short, they don’t work.

Califf, age 70, was FDA commissioner under Obama and has been severely criticized for his response to the opioid crisis.  He previously worked as a Big Pharma consultant and has millions in pharmaceutical investments.  Nine out of the last 10 FDA commissioners went on to work for Big Pharma or serve on a prescription drug company’s board of directors.  The FDA is broken, has mislead the public, is a captured agency, and has has lost ALL credibility.

This emphasis on fighting ‘misinformation’ is all a ruse for censorship upon anything the ‘powers that be’ deem a threat to their vested interests and has nothing whatsoever to do with health or science.  True science evolves, where debate and disagreement is encouraged as new information is continually being added to the picture.

Category:

Activism, vaccines, Viruses

The Viral Delusion Docuseries

https://paradigmshift.uscreen.io/  Go Here for Trailer & Episode One for FREE when it debuts.

THE VIRAL DELUSION

The Tragic Pseudoscience of SARS-CoV2 & The Madness of Modern Virology

“Amazing. Should be translated into every language on the planet.” ~ Dr. Vicci Costa

The Untold Story Behind The Pandemic

The doctors, scientists and journalists featured in THE VIRAL DELUSION examine in detail the scientific papers that were used to justify the pandemic, and what they find is shattering. In this shocking, five-part, seven hour documentary series, they explode every single major claim, from the “isolation” of the virus to its so-called genetic sequencing, from the discovery of how to “test” for SARS-CoV2 to the emergence of “variants” that in reality, they explain, exist only on a computer. Their point: that the so-called SARS-CoV-2 virus exists only as a mental construct whose existence in the real world has been disproven by the science itself.

They then go back through history to reveal how the birth and growth of virology has led to massive misunderstanding and misdiagnosis of disease: from Smallpox to the Spanish Flu, Polio to AIDS, to COVID itself – putting the pandemic in a whole new context better understood not as settled science, but the tragic culmination of misunderstood biology by the growing cult of virology, built on pseudo-science, to which much of the rest of the medical profession defers without understanding or examination, and the tragic consequences that have been wrought in its name.

In 2019, the virologists took center stage, and for the first time on film, their methods, miscues and tragedy they have wrought are put under the spotlight, revealing the extraordinary leaps of fantasy buried in their methodology, the contradictions quietly acknowledged in their papers, their desperate effort to change language to justify their findings, the obvious incongruence of their conclusions and the extraordinary stakes for our entire society in whether we continue to blindly follow their lead into a full-scale war against nature itself.

Featuring: Andrew Kaufman, MD; Tom Cowan, MD; Stefan Lanka, Virologist; Torsten Engelbrecht, journalist; Claus Kohnlein, MD; Kevin Corbett, PhD RN; David Rasnick, Biochemist PhD; Mark Bailey, MD; Dawn Lester and David Parker, Authors; Stefan Scoglio, Biochemist PhD; Saeed Qureeshi, Chemist PhD; Celia Farber, Journalist; Harold Wallach, PhD; Pam Popper, PhD, ND; Charles Geshekter, PhD; Amanda Volmer ND, Jim West, Author; Larry Palevsky MD; and more.

  • Episode One:  Behind The Curtain of The Pandemic. The Pseudoscience of SARS-COV2
  • Episode Two:  Monkey Business. Polio, the Measles, and How It All Began…
  • Episode Three:  The Mask of Death: Smallpox, The Plague and The Spanish Flu
  • Episode Four:  AIDS – The Deadly Deception
  • Episode Five:  Genetic Sequencing The Virus That Isn’t There
See The Series. Share the wisdom of these brave and brilliant voices.

As scary as our times are, they are pregnant with possibility: the possibility for a wider understanding of our health and our politics, the possibility of working together to free ourselves from misguided medical authorities, disastrous heath protocols and the corruption and injustice that leads to poor access to healthy food, limited access to fresh clean water, dwindling opportunities to breathe fresh clean air, lives filled with extraordinary stress and the un-stopped toxification of our planet – the known causes of disease.

If you would like to organize a private screening, or to reach out, email us at mike@contagiousdelusions.com

Coming March 21, 2022

__________________

For more on the lack of viral isolation:

For the other side of the viral issue:

FYI: I do not claim to understand all of this.  It’s far above my pay-grade; however, I will state there is disagreement in the scientific community on the viral issue.  Regarding COVID, China’s chief epidemiologist is on record stating:

“They didn’t isolate the virus, and that is the problem.” ~ Dr. Wu Zunyou

One thing is for sure, something funny is clearly going on. Dr. Malone states it quite simply.

Category:

Activism, Viruses

The Chronic Lyme Debate & Tag Team of Sood and Dixon

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u

The Chronic Lyme Debate and tag team of Sood and Dixon

Carl Tuttle

Hudson, NH, United States

Mar 1, 2022 — 

The following correspondence was sent to the Tick-Borne Disease Working Group following today’s scheduled online meeting. The second meeting will be held tomorrow March 1st…

February 28 – March 1, 2022, TBDWG Meeting (online)

https://www.hhs.gov/ash/advisory-committees/tickbornedisease/meetings/2022-02-28/index.html

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “Dennis.Dixon1@nih.hhs.gov” <Dennis.Dixon1@nih.hhs.gov>, “SSood@nshs.edu” <SSood@nshs.edu>
Cc:  “tickbornedisease@hhs.gov” <tickbornedisease@hhs.gov>
(All members of the TBDWG)
Date: 02/28/2022 5:40 PM
Subject: Re: Questioning the appointment of Dr. Sunil K. Sood to the Working Group

To: Drs Dixon and Sood,

I happened to log onto today’s session right when the topic was persistent infection. I just finished a round of doxycycline for a chronic epididymitis that I have been treating for the past five months! As soon as symptoms return, I have been prescribed yet another antibiotic and the urologists aren’t telling me it’s post treatment epididymitis.

In my early twenties it took eighteen months to clear a chronic prostatitis and the military clinicians at the time didn’t say, “You’ve had enough antibiotics because chronic prostatitis is a religious belief.”

In reference to Lyme, my daughter returned to baseline health after 3.5yrs on a combination of antibiotics and my wife returned to baseline health after 2.5 years; both were seriously ill. Thanks to Dr. Sam Donta they received a diagnosis because both had CDC negative Western blots.  

I sent you and all members of the TBDWG a copy of Lyme patient Vicki Logan’s positive culture test performed at the CDC’s Fort Collins lab. Ms. Logan was treated with many months of oral and IV antibiotics so how does this one single patient culture immediately positive for the infection when hundreds of test subjects from the Klempner trials did not? You can understand why the Lyme patient community is suspect of NIH trials that may have design flaws leading to results that support the existing dogma.

In addition, what about this study of twelve Lyme patients from Canada?

Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease
http://www.mdpi.com/2227-9032/6/2/33

All of these patients were culture positive for infection (genital secretions, skin “Morgellons” and blood) even after multiple years on antibiotics so there was no relief from current antimicrobials. Some of these patients had taken as many as eleven different types of antibiotics.

Dr. Dixon, one of those studies you mentioned today showed patients with Lyme had a quality of life equal or worse to those with congenital heart disease and yet Lyme patients are routinely denied Social Security Disability compensation. Why is that?

For the record, here are links to the seven-page autopsy results of patient Vicky Logan showing histopathologic findings consistent with neurologic manifestations of chronic Lyme disease. (personal Dropbox storage area)

(Vicky Logan’s Autopsy results Page #1, 2, 3, 4, 5, 6, 7)

The destructive nature of Borrelia is evident in Vicky Logan’s liver (nutmeg liver), kidneys, heart, lungs and brain. The patient died after the insurer refused additional IV antibiotic therapy. (Medical Execution)

And we’re still debating persistent infection? WHY???

See additional references below…

Respectfully submitted,

Carl Tuttle
Hudson, NH

1. Seronegative Chronic Relapsing Neuroborreliosis.
https://www.ncbi.nlm.nih.gov/pubmed/7796837
Lawrence C.a · Lipton R.B.b · Lowy F.D.c · Coyle P.K.d

aDepartment of Medicine, bDepartment of Neurology, and cDivision of Infectious Diseases, Albert Einstein College of Medicine, and dDepartment of Neurology, State University of New York at Stony Brook, New York, NY., USA

Eur Neurol 1995; 35:113–117 (DOI:10.1159/000117104)

Abstract

We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.
___________________________________________________
Let’s review another early publication where persistent infection was recognized:

May 13, 1988

2. Fatal Adult Respiratory Distress Syndrome in a Patient With Lyme Disease
Michael Kirsch, MD; Frederick L. Ruben, MD; Allen C. Steere, MD; et al
JAMA. 1988;259(18):2737-2739. doi:10.1001/jama.1988.03720180063034

Abstract

A dry cough, fever, generalized maculopapular rash, and myositis developed in a 67-year-old woman; she also had markedly abnormal liver function test results. Serologic tests proved that she had an infection of recent onset with Borrelia burgdorferi, the agent that causes Lyme disease. During a two-month course of illness, her condition remained refractory to treatment with antibiotics, salicylates, and steroids. Ultimately, fatal adult respiratory distress syndrome developed; this was believed to be secondary to Lyme disease.

3. Granulomatous hepatitis associated with chronic Borrelia burgdorferi infection: a case report
http://www.labome.org/research/Granulomatous-hepatitis-associated-with-c
The patient had active, systemic Borrelia burgdorferi infection and consequent Lyme hepatitis, despite antibiotic therapy. Spirochetes were identified as Borrelia burgdorferi by molecular testing with specific DNA probes.

4. Culture evidence of Lyme disease in antibiotic treated patients living in the Southeast.
http://danielcameronmd.com/culture-evidence-of-lyme-disease-in-antibioti
Rudenko and colleagues reported culture confirmation of chronic Lyme disease in 24 patients in North Carolina, Florida, and Georgia. All had undergone previous antibiotic treatment

5. DNA sequencing diagnosis of off-season spirochetemia with low bacterial density in Borrelia burgdorferi and Borrelia miyamotoi infections.
https://www.ncbi.nlm.nih.gov/pubmed/24968274
Faulty/misleading antibody tests landed a sixteen year old male in a psychiatric ward when his lab results did not meet the CDC’s strict criteria for positive results. His Western blot had only four of the required five IgG bands. Subsequent DNA sequencing identified a spirochetemia in this patient’s blood so his psychiatric issues were a result of neurologic Lyme disease misdiagnosed by antiquated/misleading serology. This patient was previously treated with antibiotics.

6. The Long-Term Persistence of Borrelia burgdorferi Antigens and DNA in the Tissues of a Patient with Lyme Disease
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6963883/
Autopsy tissue sections of the brain, heart, kidney, and liver were analyzed by histological and immunohistochemical methods (IHC), confocal microscopy, fluorescent in situ hybridization (FISH), polymerase chain reaction (PCR), and whole-genome sequencing (WGS)/metagenomics. We found significant pathological changes, including borrelial spirochetal clusters, in all of the organs using IHC combined with confocal microscopy.

7. Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease
http://www.mdpi.com/2227-9032/6/2/33
“This pilot study recently identified chronic Lyme disease in twelve patients from Canada. All of these patients were culture positive for infection (genital secretions, skin and blood) even after multiple years on antibiotics so there was no relief from current antimicrobials. Some of these patients had taken as many as eleven different types of antibiotics.”
________________________

Persistent infection after extensive antibiotic treatment has been identified through the use of direct detection methods in academic centers and autopsy findings yet the average patient cannot obtain these tests to justify how sick they are with their chronic active infection. Serology cannot be used to gauge treatment failure or success which makes it the ideal tool for concealing persistent infection.

Serology has allowed the 30-year dogma to persevere [iii] whereas direct detection methods are exposing the exact opposite.

We are dealing with a life-altering/life-threatening infection with faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control whatsoever; a public health disaster. And what was the reason for the mishandling of this coexisting pandemic you might ask?

A chronic relapsing seronegative disease does not fit the vaccine model. The rush to create a vaccine here in the United States promoted the denial of persistent infection and focusing on the acute stage of disease hides the horribly disabled.

February 28 – March 1, 2022, TBDWG Meeting (online)

Live Webcast: https://www.hhs.gov/live/index.html Written Public Comment Day 1 – February 28, 2022 10:00- 10:10 am Welcome from the Working Group Roll Call: During roll call members are asked to state their organization and…
https://www.hhs.gov

Thanks to your support this petition has a chance at winning! We only need 52,101 more signatures to reach the next goal – can you help?

_________________
**Comment**
Tuttle is spot on. Why is a persistent infection with Lyme/MSIDS titled “post Lyme disease syndrome,” when other diseases are not labeled in such a way to purposefully deny persistent infection, and therefore appropriate treatment addressing the root of the problem?  He asks a great question and he also answers it: “a chronic, relapsing seronegative disease does not fit the vaccine model.”
Our government needs to cease and desist from being aligned with Big Pharma by owning patents on vaccines, owning patents on tests, as well as the organisms, and treatments.  Until they are prohibited from being allowed to have these conflicts, transparency is a pipe-dream, and patients will never be truly helped.  It’s very simple.  Further, there needs to also be a separation between industry, research institutions, monitoring boards, the media, medicine, and the government.  There needs to be serious accountability in science.  For science to prosper, there needs to be healthy debate, free speech, and honesty in research.  This has been lost – perhaps forever.
We too benefited from long-term treatment addressing all the coinfections, the pleomorphism of borrelia (Lyme), as well as periodic short stints of treatment when we relapse.  Many who are able to find this integrated, holistic treatment do as well, unfortunately, due to the way public health ‘authorities’ are labeling and defining this, mainstream medicine remains hopelessly in the Dark Ages, with doctors too afraid to treat, and many patients suffering needlessly due to misdiagnosis, denial, and/or lack of appropriate treatment.
For more:

Category:

Activism, Lyme