Archive for the ‘Lyme’ Category

FREE Virtual Lyme Disease Conference

Free Virtual Lyme Disease Conference

Hear from top Lyme disease doctors, researchers, organization executives, and more!

Featured speakers include Global Lyme Alliance’s Chairman, Paul Ross and GLA’s Chief Scientific Officer, Dr. Tim Sellati, who will present on Transformative Discoveries Resulting from GLA. See the full list of speakers here.

Event Details:

  • Sunday, March 27, 2022
  • 9 am – 9 pm EST
  • Free to register
  • Suggested donations will support Global Lyme Alliance

Click below to register for free today!

About the Event

Registration closes on Friday, 3.25.22

Band Aid Lyme, LLC
Band Aid Lyme is a Social Enterprise company serving non-profits by fundraising for Lyme Disease research and treatments by planning and hosting events. As a Social Enterprise, all net profits at this time will go directly to a chosen organization.  

The First Fundraising Event Beneficiary: Global Lyme Alliance (click for more info)

The Lyme Disease Conference will be on Sunday, March 27th, 2022 from 9 AM – 5 PM. 
The location will be held online ONLY, as a virtual conference. All are welcome to attend.

Schedule of Speakers

BONUS TIME and additional speakers have been added to the schedule!
It is going to be a Lyme Conference Marathon!!
**Please note that the air time will be Eastern Standard Time.**

9:00am – 9:06am:
Band Aid Lyme, LLC welcome
9:07am – 9:14am:
Global Lyme Alliance welcome from Paul Ross, Chairman of Global Lyme Alliance
9:15am – 9:40am:
Global Lyme Alliance presentation by Tim Sellati, Chief Scientific Officer of Global Lyme Alliance on “Transformative Discoveries Resulting from GLA”
9:41am – 10:42am: 
Karen Vanderhoof-Forschner, President of Lyme Disease Foundation, presenting on the “History of Lyme Disease”
10:43am – 11:36am:
Dr. Richard and Mrs. Lee Horowitz, Lyme Literate Medical Doctor and His Wife, presenting on Lyme Disease, generally
11:37am – 12:33pm: 
Dr. James Schaller, Advisory Board Member for Band Aid Lyme and Lyme Literate Medical Doctor, presenting on Bartonella
12:34pm – 1:03pm: 
Choukri Ben Mamoun, PhD, Professor of Medicine and Microbial Pathogenesis at Yale University School of Medicine, on Babesia Pathogenesis, Diagnosis and Therapy
1:04pm – 1:51pm: 
David Zuckerman, former Vermont Lieutenant Governor and State Senator, advocating for Lyme Disease Sufferers & wife, Rachel Nevitt, Lyme Sufferer and devoted Lyme Disease Advocate; And they own and operate a large Vermont farm!
1:52pm – 2:27pm: 
Brandi Dean and Tommy Farnsworth, on the nonprofit, Ride Out Lyme, LLC; Kerry Ann Lang, on support groups and mental health for Lyme sufferers
2:28pm – 2:49pm: 
Michelle McKeon, President of Lyme and Cancer Services & Licensed Clinical Nutritionist at Balancing Pathways
2:50pm – 3:49pm: 
Dr. Kenneth Liegner, Lyme Literate Doctor, presenting on “A Call for Collaboration in the Field of Vector-Borne Diseases”
3:50pm – 4:23pm: 
Mr. Gregg Skall, Esq. and Mrs. Monte Skall, Founders of non-profit NatCapLyme, “On the Front Lines – A NatCapLyme Perspective”
4:24pm – 5:24pm: 
Adina Bercowicz, Founder & Executive Director & Yan Zelener, PhD, from LymeTV
5:25pm – 6:00pm
Lindsay Keys & Winslow Crane-Murdoch, Directors of The Quiet Epidemic documentary film about Lyme Disease
6:01pm – 6:22pm
Christine Lorentzen, Functional Medicine Health Coach Candidate (2/22) & Lyme Patient Advocate;
6:23pm – 6:48pm:
Dr. Roni DeLuz, on Lyme Disease treatments and detox protocols from Martha’s Vineyard, MA, at the Healed Therapy Clinic
6:49pm – 7:38pm:
Kelly Franks, PharmD, Advisory Board Member for Band Aid Lyme, Lyme Awareness Advocate and Lyme Sufferer; Jennifer Crystal, Lyme Awareness Advocate, Lyme Sufferer, and Blogger for Global Lyme Alliance; John Zito, Father of deceased Lyme Sufferer
7:39pm – 8:08pm:
Dr. Felix Scholz, PhD Immunology, of Infectolab Americas on Blood Testing for Lyme & Co-Infections
8:09pm – 8:47pm:
Brian Karr of We Inspect, “How to Find Out if Hidden Mold is Impacting Your Health”
8:48pm – 9:03pm:
Joan Randall, on Magnet Therapy for Lyme Disease and Co-Infections from Integrative Wellness in Woodstock, VT
9:03pm – 9:04pm:
Closing statements

Category:

Activism, Babesia, Bartonella, Lyme, Psychological Aspects, Testing

Diagnosing Lyme Arthritis of the Hip in Children

https://danielcameronmd.com/diagnosing-lyme-arthritis-of-the-hip-in-children/

Diagnosing Lyme arthritis of the hip in children

lyme-arthritis-children

How can doctors distinguish a case of Lyme arthritis of the hip from transient arthritis or septic arthritis (SA) in children? A few findings from a recent review, published in the journal Cureus, may be helpful in making a correct diagnosis.

By

“The clinical presentation of Lyme arthritis (LA) of the hip can be similar to both acute bacterial septic arthritis (SA) and transient synovitis (TS),” explains Cruz and colleagues. ¹ “Differentiating between SA, LA, and TS of the hip can be challenging, even for the most discerning clinician.”

But, accurately diagnosing these conditions is important since treatment of each is distinct, states Cruz. So in an effort to identify any unique features, Cruz and his team performed a systematic review of all published studies involving pediatric patients with LA.

They identified 88 patients diagnosed with Lyme arthritis of the hip. The average age was 7.5 years. The authors compared these cases with those involving children with transient arthritis and septic arthritis. Transient arthritis causes hip pain and limping and occurs after a viral infection.

According to Cruz and colleagues, children with Lyme arthritis of the hip were more likely to bear weight. Still, one-third (33%) refused to bear weight but this is compared with more than 60% of the SA and TS patients who refused to do so.

Children with Lyme arthritis of the hip were less likely (23%) to have fever. Whereas more than half (53.8%) of the septic arthritis patients were febrile.

A review of laboratory data found neither the white blood count (WBC) nor the erythrocyte sedimentation rate (ESR) was a good marker for distinguishing Lyme arthritis of the hip from septic arthritis.

But, an ESR of at least 40 should prompt clinicians to obtain hip synovial fluid to evaluate for septic arthritis, Cruz says. Conversely, “an ESR less than 40 mm/hr could be worked up further with Lyme serology as LA or TS become more likely.”

A high synovial WBC of at least 65,000 cells/mm3 was proposed as a potential cutoff suggestive of bacterial septic arthritis. The synovial WBC was 47,533 – 64,242 cells/mm3 for Lyme arthritis. The synovial WBC was 105,432 – 260,214 cells/mm3 for septic arthritis.

Clinical judgment is still necessary when distinguishing these entities. And as Cruz suggests, “if significant hip irritability or other clinical signs of [septic arthritis] SA exist, then treatment for SA should be initiated.”

The authors did not discuss whether any of the children with transient arthritis might suffer from seronegative Lyme disease.

Related Articles:
References:
  1. Cruz AI, Jr., Anari JB, Ramirez JM, Sankar WN, Baldwin KD. Distinguishing Pediatric Lyme Arthritis of the Hip from Transient Synovitis and Acute Bacterial Septic Arthritis: A Systematic Review and Meta-analysis. Cureus. 2018;10(1):e2112.

For  more:

I’m not sure this study is helpful at all.  Also, it would be extremely unwise to put symptoms in a simplistic box.  Lyme/MSIDS has a way of creeping outside every body it’s put into.

Category:

Lyme, research

Dear Lyme Warrior Help! Lyme Disease and Mood Swings, Epstein-Barr Virus, and Body Aches

https://www.globallymealliance.org/blog/dear-lyme-warrior-help-

Dear Lyme Warrior…Help! Lyme disease and Mood Swings, Epstein-Barr Virus, and Body Aches.

by Jennifer Crystal on February 15, 2022

Every few months, Jennifer Crystal devotes a column to answering your questions. Below she answers some that she’s recently received. Do you have a question for Jennifer? If so, email her at lymewarriorjennifercrystal@gmail.com.
Were your moods always shifting with Lyme disease?

Lyme disease can cause anxiety and depression as well as other psychiatric issues, so certainly mood swings are not uncommon. In his book Lyme Disease: Medical Myopia and the Hidden Global Pandemic, psychiatrist Bernard Raxlen, M.D. describes patients who were “ordinarily upbeat, optimistic, outgoing, socially engaged and level-headed” experiencing a “personality shift” and becoming “irritable, disagreeable, withdrawn, antisocial and up-tight.” [i] Some Lyme disease patients feel that they become an entirely different person.

I generally kept my demeanor, but I certainly had mood swings much more easily than I did when I was healthy. I remember laughing in a buffet line with my sister, when suddenly I got cranky and snapped at her. “Whoa,” she said. “Why the sudden mood shift?” There could have been several explanations that probably were not mutually exclusive. It’s possible that my blood sugar dropped; one of my other tick-borne illnesses, babesiosis, causes hypoglycemia. I also may have run out of energy; the tank can fall to empty unexpectedly for Lyme patients, and when it does, there’s nothing left to give. The shift may also just have been indicative of the way tick-borne illnesses were affecting my brain.

Now that I am in remission, my moods are more stable, thanks to diminished infection in my body as well as medication for anxiety and depression. I get sad easily when I’m overtired, but that usually improves after a good night’s sleep. I do sometimes still get “Lyme rage”—going  from 0 to 60 very quickly when something small goes wrong—but again, this happens almost exclusively when my tank is on empty. Getting appropriate rest, pacing myself, keeping my infections at bay, and utilizing talk therapy and medication all have helped me stabilize my moods.

You mentioned you also had Epstein-Barr virus in addition to tick-borne illnesses. How did you get it under control?

Epstein-Barr virus (EBV) is the virus that causes mononucleosis. People who have infectious mononucleosis keep Epstein-Barr antibodies forever, but for most, the infection becomes dormant. For those struggling with compromised immune systems or other infections, however, Epstein Barr virus can either remain active after mononucleosis or get reactivated during times of stress. As I explain in my “Reactivated Infections: A Possible Piece of the Chronic Illness Puzzle” post, my own case of mono slipped into chronic active Epstein-Barr virus, leaving me bedridden for two years, because I didn’t realize my body was wrestling underlying tick-borne infections.

Many Lyme disease patients have high Epstein Barr titers for similar reasons—their immune systems are too overtaxed to adequately fight both tick-borne illness and EBV. Researchers are also newly discovering how EBV can actually cause other diseases, such as a recently discovered link between EBV and Multiple Sclerosis (MS).

No matter how Lyme disease and EBV are related, patients just want to relieve suffering from both. For me, this relief was concurrent. Once I adequately treated my tick-borne illnesses, my fatigue—caused by both the tick-borne illnesses and EBV—got much better.

In addition to antibiotics, anti-inflammatories, and anti-malarials for my tick-borne illnesses, my doctor also put me on a number of vitamins and supplements to help boost my immune system. These included Transfer Factors. It’s important to remember that what works for one patient might not work for another. There is no set protocol for treating tick-borne illness or EBV. Your LLMD, and perhaps your PCP, need to look at biomarkers to see how your immune system is functioning overall, what nutrients you might be missing, and what you may need to reduce your viral and bacterial loads.

Adjunct therapies like integrative manual therapy and neurofeedback helped with the impacts of all of my illnesses. Most importantly, EBV required rest, rest, and more rest. And as I also note in my “Reactivated Infections: A Possible Piece of the Chronic Illness Puzzle” post, my EBV is in remission, but it can flare up if I’m not careful. Talk to your doctors to see how you can get your own EBV under control.

When you had aches and pains with Lyme disease, did they extend into your quads? How about into your calves? Did the pain move around?

Yes! Something that sets Lyme disease pain apart from the pain of, say Rheumatoid Arthritis, is that it is migratory. You might feel it in your left elbow one day, and your right knee the next. Lyme is an inflammatory disease, and inflammation can happen anywhere in the body. You can feel pain in your joints as well as your muscles and bones. If you are experiencing this type of moving pain and have not yet seen a Lyme Literate Medical Doctor (LLMD) to determine if the pain might be caused by tick-borne illness, I encourage you to do so!

 [i] Raxlen, Bernard, M.D. with Cashel, Allie. Lyme Disease: Medical Myopia and the Hidden Global Pandemic. London: Hammersmith Health Books, 2019 (21).

Opinions expressed by contributors are their own. Jennifer Crystal is a writer and educator in Boston. Her work has appeared in local and national publications including Harvard Health Publishing and The Boston Globe. As a GLA columnist for over six years, her work on GLA.org has received mention in publications such as The New Yorker, weatherchannel.com, CQ Researcher, and ProHealth.com. Jennifer is a patient advocate who has dealt with chronic illness, including Lyme and other tick-borne infections. Her memoir about her medical journey is forthcoming. Contact her via email below.

Email: lymewarriorjennifercrystal@gmail.com

Category:

Lyme, Pain Management, Psychological Aspects

Comparisons Between the Lyme Disease & COVID Epidemics

https://www.bitchute.com/video/5QrCiJulL1Cm/  Video Here  (Approx. 1 hour 20 min)

Comparisons Between the Lyme disease and COVID Epidemics

3/2/22

Homepage: https://anomicage.com/

Jerry Leonard discusses Lyme Disease, bioweapons, and the connections to eugenics. He also delves into the manifestations of these tactics in our current global psychological and biological warfare operation.

A root of the problem is lucrative “vaccine” development by our public health ‘authorities’ who own patents on the organisms, tests, vaccines, and treatments, and pull in millions from licensing deals and technologies.

Most frightening of all is the creation of a new NIH which will merge national security with health security modeled after DARPA.  (Hopefully you can see where this is going, if not, read this).

  • Universities are involved in an unholy alliance with Big Pharma, the government, and mainstream media as they receive royalties (disingenuously classified as “federal compensation” rather than “outside income”) when they market patented technologies, yet taxpayers continue paying universities for research.
  • Many NIH scientists routinely fail to disclose royalty payments – one of whom is Fauci, the highest paid federal employee.
  • Researchers in academia obtain money from the government.  Dr. Fauci, holds the keys to the coffer.  Hopefully by now it is evident to all that he is one of the most corrupt individuals on the planet and he will do whatever it takes to get what he wants – lie, cover up, deny, and hide.  He is not only behind the COVID debacle, but the Lyme debacle as well. 

Until we demand transparency and for public health to be devoid of ties to Big Pharma, Big Tech, the media, and research institutions we will never get the truth.

COVID has brought much of this dirt into the light; however, it’s been going on for decades.  Lyme/MSIDS patients and the doctors who dare treat them have had to walk this pot-holed riddle path and deal with the censorship, denial, and bullying.

Patients have suffered unbelievable abuse by the medical profession and our government. Efforts have been made to no effect and the truth remains elusive, leaving us only to conclude our government has much to hide.

I also wrote an article back in 2020 on the playbook of public health ‘authorities.’  I followed this up with another article explaining how these ‘authorities’ blackball treatments that compete with their own lucrative treatments.

Unfortunately, many Lyme patients and advocacy groups continue to work with the very same corrupt individuals and organizations. That’s essentially asking the pot to call the kettle black.  It just isn’t gonna happen.  I’ve said this before, but it’s worth repeating: the only forward progress made in Lymeland is by independent researchers who do not vie for government grants.

If you are new to the Lyme war, please see:

Lyme/MSIDS is a politically incorrect disease and patients have everything stacked against them.

For more:

Category:

Activism, Lyme, vaccines, Viruses

Lyme and Tick-borne Diseases: A Primer for Mental Health Practitioners

https://psycnet.apa.org/doiLanding?doi=10.1037%2Fpri0000163

Lyme and tick-borne diseases: A primer for mental health practitioners.

Trunzo, J. J., Statlender, S. M., Leventhal, J. G., Reece, L., Berenbaum, S., & Bransfield, R. (2022). Lyme and tick-borne diseases: A primer for mental health practitioners. Practice Innovations. Advance online publication. https://doi.org/10.1037/pri0000163

Lyme and other tick-borne diseases can cause complex, multisystemic symptoms that pose diagnostic and treatment challenges. This article presents essential information about these infectious diseases and associated medical and neuropsychiatric symptoms. Knowledge of the full range of infection-driven symptoms with these diseases will enable mental health practitioners to (a) avoid misdiagnosis of their patients with a primary psychiatric disorder, (b) facilitate referrals for appropriate medical evaluation and treatment, and (c) help alleviate the suffering caused by these diseases. (PsycInfo Database Record (c) 2022 APA, all rights reserved)

Impact Statement

Lyme disease and other tick-borne diseases can have profound effects on mental health, quality of life, and the general functioning of individuals and family members. This article provides guidance for behavioral health clinicians on treating patients who are suffering from these diseases. It addresses essential issues related to diagnosis, treatment, and the collateral support needs of this complex population. (PsycInfo Database Record (c) 2022 APA, all rights reserved)

For more:

Category:

Lyme, Psychological Aspects, research