Archive for the ‘Activism’ Category

Worldwide Walkouts Start Today

https://childrenshealthdefense.org/child-health-topics/health-freedom/worldwide-walk-outs  Video Here

It’s Time.  No More Government Tyranny

Worldwide Walkouts will demand a return to freedom and democratic principles. Citizens around the globe are protesting loss of liberty, illegal mandates and tyrannical government overreach. Every man, woman and child is important to this movement!

View our full list of events and promotional graphics … and check back often as this list grows with more events!

Robert F. Kennedy, Jr., CHD Board Chair and Lead Counsel:
“No government in history has ever surrendered power in the absence of a demand. We need to tell these governments and their friends in the technocracy, the Silicon Valley billionaire boys club, the mainstream media, and the pharmaceutical industry that we will no longer tolerate their trampling of citizens’ rights.”

Upcoming WWW Event dates:

November 3rd
November 8-11th
November 19-20th
November 26th (Black Friday)

https://tv.gab.com/channel/childrenshealthdefense/view/chd-launches-hold-the-line-medical  Song Here

“Hold the Line”

CHD launches “Hold the Line” medical freedom song to kick-off Worldwide Walkouts Nov. 3, 2021

Artist: Ito da Truth featuring Ac Da Kid
Editor – Deana Vincuillo
Photo Credit: Souls of a Movement (IG: @soulsofamovement)
Producer: Aimee Villella McBride

Overview

Why?

People have been battered during the epidemic for the last 1.5 years. And now their jobs, livelihoods, education for their children and way of life is being threatened because they refuse to take a government and employer mandated injection.

Religious and medical exemptions are being rejected but that is a false choice anyway. Since when does anyone need an exemption to exercise their personal right to reject a foreign substance being injected into their body by the government?

Americans and the world need to stand up, walk out and just say NO. CHD will encourage recurring walkouts where citizens target specific industries and solidify our grassroots movement as a powerful voting block in elections to apply political pressure.

Who?

Children’s Health Defense and our State and International Chapters are joining citizens and organizations from all over the world as they come together for “WORLDWIDE WALKOUTS!”

What?

“WORLDWIDE WALKOUTS!” is a call for a global shut down to stop business as usual and celebrate human rights. Citizens around the world will be asked to unify for freedom and commit acts of civil disobedience to make their point. No masks, no vaccines, no testing. No coercion. The potential headlines: “500 towns in America and around the world have nurses, teachers etc. walk out for freedom,” “French and Italian Voters in acts of civil disobedience…”

Where?

Any mass gathering of people in peaceful noncompliance engaging in acts of civil disobedience. People can gather at local town halls, court houses, their department of education or state capitols or any high-profile, high-traffic area. Any location works and no event is too small or too large. They will only grow with time.

How?

Make it a celebration of unity. Create a unified voice with signage, posters, singing of popular songs, the national anthem, chants and more. Ask veterans, first responders, educators and children to speak. Create a community by asking the crowd to introduce themselves to their neighbor, encouraging hugs and holding hands to resist the mainstream narrative of social distancing and fearing close contact with others. Choose for everyone to wear a consistent color to unify the crowd visually. If you’re expecting larger crowds, or use of amplified sound you may need to consider securing permits with local municipal, precincts or community affairs offices, but people also have the right to peaceably assemble in public areas as long as they’re not obstructing vehicle or foot traffic.

Come back to this page for helpful planning information on this and future rallies including best practices (i.e., press releases, getting local media) and ways to order posters, flyers, T-shirts and more.

Articles, Brochures and Pamphlets

Worldwide Walkouts – Global Directory of Events!

Worldwide Walkouts kick-off on November 3rd is now 200+ events and growing!

Another Whistleblower Promptly Fired For Showing Pfizer Falsified Data. Got Science? Are You Sure?

**UPDATE Feb. 18, 2022**

Here is the case filing of the lawsuit against Pfizer:  https://www.documentcloud.org/documents/21206071-brook-jackson-lawsuit

Case 1:21-cv-00008-MJT Filed 01/08/21

Core allegations:

Making or Using False Records or Statements to Cause Claims to be Paid (31 U.S.C. § 3729(a)(1)(B)) 284.

  1. “From 2020 to the present, Defendants knowingly made, used, or caused to be made or used, false records or statements that were material to false and/or fraudulent claims paid or approved by the United States DoD. These false records or statements include the clinical trial protocol Pfizer submitted to the United States and the falsified source documents and data behind Defendants’ trial results and EUA application.

  2. By creating and carrying out their fraudulent schemes, Defendants knowingly and repeatedly violated Section 3729(a)(1)(B) of the False Claims Act. 286. Defendants’ false records were material to Pfizer’s claims for payment for the vaccine at issue. The United States DoD would not have paid Pfizer if it knew that the clinical trial protocol was not complied with by Defendants, because the protocol violations call the integrity and validity of both the entire clinical trial and Pfizer’s EUA into question.

  3. Defendants’ false records also went to the very essence of the bargain the United States contracted for. DoD contracted to purchase vaccines found effective by a valid clinical trial conducted according to the protocol submitted by Pfizer. The integrity of the entire clinical trial was compromised by the trial protocol violations, false source documents, and the false data that resulted, which calls the vaccine’s EUA into question. Had the United States DoD known of Defendants’ false records, it would not have paid Pfizer. 288. Defendants’ use, or causation of use, of material false records was a foreseeable factor in the United States DoD’s loss and a consequence of Defendants’ schemes. By virtue of Defendants’ actions, the United States DoD has suffered actual damages and is entitled to recover treble damages plus a civil monetary penalty for each false and/or fraudulent claim.”

    Access: Case 1:21-cv-00008-MJT Filed 01/08/21

https://www.bmj.com/content/375/bmj.n2635.full

Covid-19: Researcher blows the whistle on data integrity issues in Pfizer’s vaccine trial

BMJ 2021; 375 doi: https://doi.org/10.1136/bmj.n2635 (Published 02 November 2021) Cite this as: BMJ 2021;375:n2635

 
Paul D Thacker, investigative journalist
Revelations of poor practices at a contract research company helping to carry out Pfizer’s pivotal covid-19 vaccine trial raise questions about data integrity and regulatory oversight. Paul D Thacker reports

In autumn 2020 Pfizer’s chairman and chief executive, Albert Bourla, released an open letter to the billions of people around the world who were investing their hopes in a safe and effective covid-19 vaccine to end the pandemic. “As I’ve said before, we are operating at the speed of science,” Bourla wrote, explaining to the public when they could expect a Pfizer vaccine to be authorised in the United States.1

But, for researchers who were testing Pfizer’s vaccine at several sites in Texas during that autumn, speed may have come at the cost of data integrity and patient safety. A regional director who was employed at the research organisation Ventavia Research Group has told The BMJ that the company falsified data, unblinded patients, employed inadequately trained vaccinators, and was slow to follow up on adverse events reported in Pfizer’s pivotal phase III trial. Staff who conducted quality control checks were overwhelmed by the volume of problems they were finding. After repeatedly notifying Ventavia of these problems, the regional director, Brook Jackson, emailed a complaint to the US Food and Drug Administration (FDA). Ventavia fired her later the same day. Jackson has provided The BMJ with dozens of internal company documents, photos, audio recordings, and emails.

Poor laboratory management

On its website Ventavia calls itself the largest privately owned clinical research company in Texas and lists many awards it has won for its contract work.2 But Jackson has told The BMJ that, during the two weeks she was employed at Ventavia in September 2020, she repeatedly informed her superiors of poor laboratory management, patient safety concerns, and data integrity issues. Jackson was a trained clinical trial auditor who previously held a director of operations position and came to Ventavia with more than 15 years’ experience in clinical research coordination and management. Exasperated that Ventavia was not dealing with the problems, Jackson documented several matters late one night, taking photos on her mobile phone. One photo, provided to The BMJ, showed needles discarded in a plastic biohazard bag instead of a sharps container box. Another showed vaccine packaging materials with trial participants’ identification numbers written on them left out in the open, potentially unblinding participants. Ventavia executives later questioned Jackson for taking the photos.

Early and inadvertent unblinding may have occurred on a far wider scale. According to the trial’s design, unblinded staff were responsible for preparing and administering the study drug (Pfizer’s vaccine or a placebo). This was to be done to preserve the blinding of trial participants and all other site staff, including the principal investigator. However, at Ventavia, Jackson told The BMJ that drug assignment confirmation printouts were being left in participants’ charts, accessible to blinded personnel. As a corrective action taken in September, two months into trial recruitment and with around 1000 participants already enrolled, quality assurance checklists were updated with instructions for staff to remove drug assignments from charts.

In a recording of a meeting in late September2020 between Jackson and two directors a Ventavia executive can be heard explaining that the company wasn’t able to quantify the types and number of errors they were finding when examining the trial paperwork for quality control. “In my mind, it’s something new every day,” a Ventavia executive says. “We know that it’s significant.”

Ventavia was not keeping up with data entry queries, shows an email sent by ICON, the contract research organisation with which Pfizer partnered on the trial. ICON reminded Ventavia in a September 2020 email: “The expectation for this study is that all queries are addressed within 24hrs.” ICON then highlighted over 100 outstanding queries older than three days in yellow. Examples included two individuals for which “Subject has reported with Severe symptoms/reactions … Per protocol, subjects experiencing Grade 3 local reactions should be contacted. Please confirm if an UNPLANNED CONTACT was made and update the corresponding form as appropriate.” According to the trial protocol a telephone contact should have occurred “to ascertain further details and determine whether a site visit is clinically indicated.”

Worries over FDA inspection

Documents show that problems had been going on for weeks. In a list of “action items” circulated among Ventavia leaders in early August 2020, shortly after the trial began and before Jackson’s hiring, a Ventavia executive identified three site staff members with whom to “Go over e-diary issue/falsifying data, etc.” One of them was “verbally counseled for changing data and not noting late entry,” a note indicates.

At several points during the late September meeting Jackson and the Ventavia executives discussed the possibility of the FDA showing up for an inspection (box 1). “We’re going to get some kind of letter of information at least, when the FDA gets here . . . know it,” an executive stated. (See link for article)

Important excerpt:

Since Jackson reported problems with Ventavia to the FDA in September 2020, Pfizer has hired Ventavia as a research subcontractor on four other vaccine clinical trials (covid-19 vaccine in children and young adults, pregnant women, and a booster dose, as well an RSV vaccine trial; NCT04816643, NCT04754594, NCT04955626, NCT05035212). The advisory committee for the Centers for Disease Control and Prevention is set to discuss the covid-19 paediatric vaccine trial on 2 November.

Speaking off the record, other employees confirmed that the fired employee’s concerns were valid:
  • “Everything that you complained about was spot on.”
  • “I don’t think it was clean data. It’s a crazy mess.”
  • “I’ve never had to do what they were asking me to do, ever, It just seemed like something a little different from normal—the things that were allowed and expected.”
  • One employee with over 4-dozen clinical trials under her belt said she had never experienced such a “helter skelter” work environment.
  • Ventavia lacked enough employees to test trial participants who reported COVID-like symptoms, which is important because symptomatic COVID was the trial’s primary endpoint.  An FDA review showed that swabs were not taken from 477 people with suspected COVID.

____________________

For more on Pfizer’s corruption:

https://live.childrenshealthdefense.org/shows/doctors-and-scientists-with-brian-hooker-phd  Video Here from Oct. 28, 2021

Live Every Thursday at 9:00a.m. PT, 11:00a.m. CT, 12:00p.m. ET

Got Science? Are you sure?

‘Doctors And Scientists’ With Brian Hooker, PHD.

Dr. Brian Hooker invites some of the leading voices in science and medicine to break down the studies and weigh in on the controversies so the rest of us have an opportunity to understand the science that drives public health policy and medical progress.

See previous episodes within link as well.

For more:

PCR Proven An Unmitigated Disaster: Italy Reduces its COVID-19 Death Number by 97%. We Tried to Warn You

https://popularrationalism.substack.com/p/pcr-proven-an-unmitigated-disaster

PCR Proven An Unmitigated Disaster: Italy Reduces its COVID-19 Death Number by 97%. We Tried to Warn You.

The US is hellbent toward chronic worklosses of historic proportions.

James Lyons Weiler

Nov. 2, 2021

Since March, 2020, I’ve been sounding the alarm on the misuse of PCR test results as a proxy for a diagnosis of COVID-19, the disease caused by a SARS-CoV-2 infection. Based on first principles, it was clear to me then that the false positive rate of PCR conducted at high cycle threshold values would lead to far more false positive than true positive test results, leading to the lockdown that eventually happened.

OSHA is about to drop a rule that requires employees in companies with more than 100 workers to submit to a vaccination, or to tested and to mask in the workplace – and there will undoubtedly be a fourth wave when people start testing en masse.

Now, due to the realization that the “died with = died from” paradigm is dependent on the accuracy of the “with” part – which depends largely on PCR test kits. Given the use of high threshold values for “diagnosis” of COVID-19, the rates of cases and deaths have been grossly exaggerated. The evidence is so overwhelming – and coming in from all sources (except the US CDC) that Italy has revised its estimated number of deaths from COVID-19 from over 390,000 to less than 4,000 – overnight.

This means the US is poised for mayhem and chaos.

Fact checkers criticized IPAK for publishing information on the utterly flawed paradigm – and they were proven wrong.

Now, unless OSHA backs down from requiring vaccination or testing, which of course presumes:

  1. the safety of the vaccine (very much in question)
  2. that only unvaccinated persons can spread COVID-19 in the workplace (absolutely false)
  3. that routine, repeated, widespread asymptomatic testing won’t lead to a flood of chronic false positives (impossible)

The OSHA rule will lead to workloss at companies that follow their directive – and the worklosses will be of historic proportion.

Dr. Sin Hang Lee, MD points out that this is not the first time reliance on PCR test results as a proxy for medical diagnosis has led to disastrous results.

Mark Schiffman of the NCI on PCR HPV testing, which leads to >95% unnecessary colposcopic biopsies on hundreds of thousands of healthy women each year.  Lee pointed out (personal communication) this passage from Schiffman and colleague:

“Most HPV infections are benign, and over-reacting clinically to HPV positivity can cause psychological and possible iatrogenic physical (e.g., obstetrical) harm. We describe the built-in false positives in current tests, and the real harm that can result when the meaning of such false positive HPV tests is misunderstood. We suggest steps that could reduce harm being done by flawed tests and excessive clinical responses to positive HPV testing.”

We’re already poised for hyperinflation due to the harmful effects of the repeated stimulus payments based on printed money. When the economic shit hits the fan due to worklosses across the companies, well, I tried. Again, I’ve been at this since March, 2020, and others quickly followed suit. It is with no pleasure that I report to the skeptics: We tried to warn you.

I cannot convey the urgency with which we all must act to stop the OSHA rule from dropping. CALL YOUR SENATORS NOW.

_________________

**Comment**

I don’t need to tell Lyme/MSIDS patients that testing has worked in the reverse for tick-borne illness.  While false-positives are extremely high for COVID and HPV, testing for Lyme and coinfections is nearly always negative, an injustice that’s been going on for over 40 years and shows no sign of changing.  Further, the CDC has actively suppressed more accurate testing, and one researcher is suing it for using its regulatory power to block widespread application of a highly reliable direct DNA test and for channeling public funds to promote its own patented, but immature indirect metabolomics technology for Lyme disease diagnosis, a technology known to be prone to false positives.

For more on mortality:

For more on testing:

Update on Federal Lyme Funding For Fiscal Year 2022

https://www.lymedisease.org/lyme-funding-fy2022-cla/

Update on federal Lyme funding for Fiscal Year 2022

The Center for Lyme Action (CLA), a nonprofit based in Washington, D.C., lobbies on behalf of the Lyme community.   Its goal is to expand federal funding for Lyme disease and other tick-borne illnesses.  Here’s CLA’s latest message about what’s happening in Congress.

We’d like to update you on the Fiscal Year 2022 Congressional appropriations process for Lyme and tick-borne diseases.

As you may know, the House approved the following FY22 Lyme funding in late July:

  • $24 million for Centers for Disease Control and Prevention (CDC) Lyme & Tick-borne Disease (TBD) (+50% over FY21)
  • $7 million for Congressionally-Directed Medical Research Program (CDMRP) TBD Research Program (+$0% over FY21)
  • $5 million for LymeX Innovation Accelerator through a House Floor amendment with many of you weighing in with your support

We are now writing to let you know that the Senate Appropriations Committee last week — similar to last year– released “Explanatory Statements” for the Labor, Health and Human Services and Defense Appropriations with significant increases for Lyme disease:

+$20,000,000 increase for NIH NIAID (+50% over FY21) specifically Lyme disease and other tick-borne illnesses research.

+$2,000,000 for CDC (+12.5% over FY21) to support surveillance and prevention of Lyme disease and other high consequence tick-borne diseases in endemic areas as well as areas not yet considered endemic. (This includes funding for CDC’s vector-borne diseases program to expand the programs authorized under the Kay Hagan Tick Act.)

+$10,000,000 (+250% over FY21) for the Kay Hagan Tick Act, to address the increase in the incidence of vector-borne diseases and sustain the Regional Centers of Excellence program. (This includes state and local-level surveillance and research being conducted by partners.)

Additionally, both the House and Senate Appropriators released identical language calling for a plan to conquer Lyme and tick-borne diseases:

“The Committee looks forward to receiving the multi-year plan outlining innovation initiatives for conquering Lyme disease, which is due in December 2021.”

This is great news, but we’re not done yet with the FY22 appropriations work. The Senate and the House will go into negotiations soon. The only appropriations measures standing in the way are the $1.2 trillion infrastructure bill and the $3.5 trillion reconciliation bill with social and climate spending. And if the appropriations schedule is similar to last year, we may know the final result of the FY22 Appropriations for Lyme and tick-borne disease by the end of December.

We will continue to keep you posted on any additional developments as they come our way.

Best regards,

Jeff Crater, Bonnie Crater and Meredith Faucette
The Center for Lyme Action

P.S. For those of you interested in the details, below is the Explanatory Statement related to these Lyme Appropriations. This is the explanation from the Senate Appropriations Committee accompanying these increases for Lyme and TBD.

FY22 SENATE LABOR HHS APPROPRIATIONS

Centers for Disease Control and Prevention (CDC), Emerging and Zoonotic Infectious Diseases (NCEZID)

p. 82-83

Lyme Disease.—The Committee recommendation provides an increase of $2,000,000 in recognition of the importance of prevention and control of Lyme disease and related tick-borne diseases, and encourages CDC to support surveillance and prevention of Lyme disease and other high consequence tick-borne diseases in endemic areas as well as areas not yet considered endemic. The Committee includes funding for CDC’s vector-borne diseases program to expand the programs authorized under the Kay Hagan Tick Act (Public Law 116–94) to promote a public health approach to combat rising cases of tick-borne diseases. The Committee directs CDC to develop and implement methods to improve surveillance to more accurately report the disease burden, including through the development of real time data for reporting Lyme disease and other tick-borne diseases, as well as a process for estimating the prevalence of Post-Treatment Lyme Disease Syndrome. The Committee directs CDC to direct funding to improve early diagnosis of Lyme and related tick-borne diseases to prevent the development of late stage disease and more serious and long-term disability. The Committee encourages CDC to coordinate with NIH, the National Institute of Mental Health [NIMH], and the National Institute of Neurological Disorders and Stroke [NINDS] on publishing reports that assess diagnostic advancements, methods for prevention, the state of treatment, and links between tick-borne disease and psychiatric illnesses. The Committee urges CDC, in coordination with NIH, to include in their surveillance the long-term effects on patients suffering from post-treatment Lyme disease syndrome, or ‘‘chronic Lyme disease.’’ Additionally, given the impact of Lyme disease and the status of ongoing clinical trials, the committee requests a report within 180 days on CDC’s research to date and recommendations on actions needed to facilitate a successful Lyme disease vaccine rollout that will build confidence and encourage uptake should a vaccine be approved by the FDA.

p. 84
Vector-Borne Diseases [VBD].—The Committee includes an increase of $10,000,000 to address the increase in the incidence of VBD and sustain the Regional Centers of Excellence program, including State and local-level surveillance and research being conducted by partners. The Committee urges CDC to examine options to provide greater coverage in the Northwest region for VBD resources.

The National Institute of Health (NIH), National Institute of Allergy and Infectious Diseases (NIAID)

p. 122

Lyme Disease and Related Tick-Borne Illnesses.—The Committee includes a $20,000,000 increase for Lyme Disease and other tick-borne illnesses research. The Committee encourages NIAID to use these funds to prioritize the support of meritorious research that informs a better understanding of Lyme disease pathogenesis and encourages the development of improved diagnostics and vaccines. The Committee directs NIH to leverage this understanding to develop new tools that can more effectively prevent, diagnose, and treat Lyme disease, including long-term effects, and other tick-borne diseases. The Committee encourages the promotion and development of potential vaccine candidates for Lyme disease and other tick-borne diseases. The Committee directs NIH to conduct research to better understand modes of transmission for Lyme and other tick-borne diseases, including vertical transmission. The Committee urges NIH to incentivize new investigators to enter the field of Lyme disease and other tick-borne disease research. The Committee directs NIH to coordinate with CDC on publishing reports that assess diagnostic advancements, methods for prevention, the state of treatment, and links between tick-borne disease and psychiatric illnesses.

Office of the Secretary, General Departmental Management

p. 219

LymeX Innovation Accelerator.—The Committee commends the Office of the Secretary and its Chief Technology Officer for the Lyme Innovation Initiative, launched November 2018, and the LymeX Innovation Accelerator announced in October 2020. LymeX is a $25,000,000 public-private partnership to accelerate innovation in prevention, diagnostics, and treatments for Lyme and other tickborne diseases. The Committee looks forward to receiving the multi-year plan outlining innovation initiatives for conquering Lyme disease, which is due in December 2021.

FY22 SENATE DEFENSE APPROPRIATIONS

Other Department of Defense Programs, Defense Health Program

p. 223

Peer-Reviewed Medical Research Program.—The Committee recommends $370,000,000 for the Peer-Reviewed Medical Research Program. The Committee directs the Secretary of Defense, in conjunction with the Service Surgeons General, to select medical research projects of clear scientific merit and direct relevance to military health. Research areas considered under this funding are restricted to: Alzheimer’s, arthritis, autism, burn pit exposure, cardiomyopathy, congenital heart disease, diabetes, Duchenne muscular dystrophy, dystonia, eating disorders, emerging viral diseases, endometriosis, epidermolysis bullosa, familial hypercholesterolemia, fibrous dysplasia, focal segmental glomerulosclerosis, food allergies, Fragile X, frontotemporal degeneration, Guillain-Barre syndrome, gulf war illness, hemorrhage control, hepatitis B, hydrocephalus, hypercholesterolemia, hypertension, inflammatory bowel diseases, interstitial cystitis, lupus, malaria, metals toxicology, mitochondrial disease, multiple sclerosis, myalgic encephalomyelitis/chronic fatigue syndrome, myeloma, myotonic dystrophy, nephrotic syndrome, neurofibromatosis, non-opioid therapy for pain management, nutrition optimization, Parkinson’s, pathogen-inactivated blood products, peripheral neuropathy, plant-based vaccines, platelet like cell production, polycystic kidney disease, pressure ulcers, pulmonary fibrosis, reconstructive transplantation, respiratory health, Rett syndrome, rheumatoid arthritis, sleep disorders and restriction, suicide prevention, sustained release drug delivery, tick-borne diseases [emphasis added], trauma, tuberous sclerosis complex, vision, vascular malformations, and women’s heart disease. The Committee emphasizes that the additional funding provided under the Peer-Reviewed Medical Research Program shall be devoted only to the purposes listed above.

p. 224-225

Chronic Pain Management Research.—The Committee recommends $15,000,000 for a chronic pain management research program to research opioid-alternative or non-addictive methods to treat and manage chronic pain. Chronic pain is defined as a pain that occurs on at least half the days for 6 months or more and which can be caused by issues, including but not limited to: combat- and training-related physical or mental stress and trauma, migraines and chronic headaches, traumatic brain injury, arthritis, muscular-skeletal conditions, neurological disease, tick and vector-borne disease, other insect-transmitted or tropical disease, and cancer. The funds provided in the chronic pain management research program shall be used to conduct research on the effects of using prescription opioids to manage chronic pain and for researching alternatives, namely non-opioid or non-addictive methods to treat and manage chronic pain, with a focus on issues related to military populations. The Committee encourages the Department to collaborate with non-military research institutions, such as the institutions of the National Institutes of Health Pain Consortium and the institutions represented in the Interagency Pain Research Coordinating Committee, to address the efforts outlined in the 2016 National Pain Strategy.

Raising Lyme Awareness One Car Magnet At a Time

https://www.lymedisease.org/lyme-awareness-car-magnets/

TOUCHED BY LYME: Raising awareness, one car magnet at a time

Dorothy Kupcha Leland

Oct. 28. 2021

A Pennsylvania teenager and her mom have come up with a great way to raise Lyme disease awareness in their community. They want to share the idea with everyone. And it’s so easy, you could even do it from bed.

Sarah P, who prefers not to give her last name, was bitten by a tick at age 13. She didn’t have a bull’s-eye rash, a fever, or joint pain—so her pediatrician said, “Nothing to worry about. You’re fine.” (Even though Pennsylvania is a hot bed for Lyme and other tick-borne diseases.)

Over the next several years, Sarah developed many seemingly unrelated symptoms that would come and go. Anxiety, headaches, leg pain. Followed by heart palpitations, GI issues, and memory problems. Eventually, POTS /dysautonomia symptoms set in, causing dizziness, nausea, and migraines.

No answers

Sarah saw a lot of specialists: a dysautonomia clinic, a neurologist, a G.I. doctor, an ENT, cardiologists, and physical therapists. Still, no answers and no improvement.

Then a neighbor told Sarah’s mom that her own daughter had been diagnosed with POTS as well. And it turned out that her POTS symptoms were caused by Lyme disease. Spurred on by their neighbor’s story, Sarah’s family sought out a Lyme-literate medical doctor. That LLMD diagnosed Sarah with Lyme and co-infections.

Throughout the arduous treatment process, Sarah and her mom wanted to warn other people about how one bite from an infected tick can ruin a person’s life. But how can you do anything when you are so sick and exhausted? How do you join a Lyme march in Washington or give a public speech when just getting out of bed is so difficult? The idea of Lyme advocacy seemed utterly impossible. And then Sarah had an idea.

Car magnets

While out on a drive with her mom, Sarah noticed a car sporting an awareness magnet for another disease. Hmmm, she thought. Could that work for Lyme? Would people even pay attention to it?

Then, she thought, what if you created a more specific magnet—such as NEURO Lyme Awareness, or CARDIO Lyme Awareness?

That might pique people’s curiosity. “NEURO Lyme? What the heck is THAT?” Such questions might lead them to pay more attention to the topic.

After a bit of research, the duo found that magnets can be quickly created via an online printing service or a local print shop. Soon, they turned their family van into a mobile bulletin board.

They’ve been so happy with the results, they want to share this idea with everybody.

Sarah and her mom have already done the design work. You are welcome to download the jpeg files from this blog—and create your own magnets.

Small magnets can be printed individually on rectangles or ovals, or several images can be placed on one large rectangular car magnet and cut apart easily with scissors.

Sarah’s mom negotiated with the online magnet printer StickyLife.com for a 15% discount if you use the following code: LYMEAWARE15. (Limited to one-time use per customer.)

Sarah, now 19, is in her second year of treatment and continues to fight for her health every day, Under the care of her LLMD, she says many of her symptoms have resolved. She reports that she can read again, enjoys writing her own music, and may start taking a couple of college courses.

Bravo, Sarah! I hope your health continues to improve and that these magnets will start popping up all over the country. I’ll be placing my order soon.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s Vice-president and Director of Communications. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

Click on the download button below the design you would like. Right click the image and select “Save image as” to save to your computer. Go to an online magnet printing company (or a local print shop that makes magnets) and upload the file with your order. When you receive the magnets, you just stick them on your car. Easy-peasy!