Archive for the ‘Babesia’ Category

Best Lab Test for Lyme, Bartonella, & Babesia

https://www.treatlyme.net/guide/best-lab-test-for-borrelia-bartonella-babesia  Video Here (Approx. 8 Min)

Immunoblot is Best Test for Lyme, Bartonella, and Babesia—Here is Why

By Dr. Marty Ross

This video article on testing has two parts.

  • First, I review the differences between IGenex Immunoblot and Armin or Infectolab Americas Elispot testing for the big three tick-borne infections of Borrelia (Lyme), Babesia and Bartonella.
  • The last section of the video compares IGenex Immunoblot and Galaxy Labs PCR tests for Bartonella.

There is clarifying information below the video. Here you can find more information about the meaning of sensitivity and specificity. I also identify the different strains IGenex detects versus the more limited strains Armin or Infectolab Americas detects. Finally, I explain why I do not use Vibrant Labs or DNA Connexions testing.

Terms and Definitions for Tests

To help understand when to use a test or the meaning of a result physicians consider the test sensitivity and specificity.

  • Sensitivity is the ability of a test to find an illness in all people with the illness.
  • Specificity is the ability of a test to correctly identify people without an illness from all people who do not have the illness.

IGenex Immunoblots are Best Because They are Most Sensitive and Specific

IGenex Immunoblot testing is more sensitive for Borrelia, Babesia, and Bartonella testing than Armin and Infectolab Elispot testing because it looks for reactions to more strains of each infection.

  • Borrelia. The test detects antibodies against eight strains including B. afzelii, B. garinii, and B. burgdorferi.
  • Bartonella. The test detects antibodies against the family of Bartonella which includes 15 types thought to infect humans. In addition, it detects specific antibodies against four specific strains named B. henselae, B. vinsonii, B. elizabethae, and B. quintana.
  • Babesia. The test detects antibodies against the family of Babesia which includes B. odecoilei. It also detects specific antibodies against two specific strains named B. microti, and B. duncani.

(See link for article and video)

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CDC’s New Online Tool Gives Useful, If Slightly Flawed, Information

https://www.lymedisease.org/cdc-tick-bite-data-tracker/

CDC’s new online tool gives useful, if slightly flawed, information

May 16, 2023

By Lonnie Marcum

The CDC has recently updated its website regarding ticks and their diseases.

The changes include a new online tool called the Tick Bite Data Tracker.  It allows users to track and visualize tick-borne disease data in the United States, advancing our ability to raise awareness.

The new tool provides information on diseases transmitted by ticks such as Lyme disease, anaplasmosis, Rocky Mountain spotted fever, and ehrlichiosis.

The CDC webpage also gives information on the most common North American types of ticks and 16 known diseases transmitted by ticks such as babesiosis, Borrelia miyamotoi, Powassan virus, STARI, Colorado tick fever and more.

In addition, the CDC offers an updated page on Alpha-gal syndrome, an allergy to red meat and products derived from mammals. The condition is triggered by the bite of a tick.

National collaboration

The Tick Bite Data Tracker is part of the National Syndromic Surveillance Program (NSSP) which is a collaboration among the CDC, local health agencies, state health departments and private sector partners. The NSSP allows these partners to collect, share and analyze electronic healthcare data in near real-time as it is processed.

Because there is no medical diagnostic ICD code for “tick bite,” the emergency department visits for tick bites are identified by specific words used in the medical record. For example, “tick” or “tick” and “bite.”

The Tick Bite Data Tracker includes interactive maps, graphs and tables that allow users to explore the data in different ways. Users can view data on a national or state level, as well as by county or even zip code in some areas.

One of the most interesting aspects of this new site is the ability to track emergency department visits for tick bites by week and month. This eliminates the strict reporting criteria that adversely affects statistics in lower incidence states like Florida, Texas and California.

What we see on the Tick Bite Data Tracker is simply the number of persons per 100,000 with reported tick bites who sought care in an emergency room. The new data can indicate when tick bites are most common in a region, and unlike other CDC surveillance data, it is updated weekly, rather than annually.

Tick bites peak in Spring

You can clearly see in the graph below how tick bites peak in the spring in almost all regions of the United States.

Unfortunately, the CDC lumps every state west of Nebraska as the “West.” Therefore, areas with higher incidence of tick bites, like California, are averaged with areas of lower incidence like Wyoming—giving an inaccurate picture.

In my opinion, at the very least, the CDC should have divided this huge region into the southwest and northwest to offer better representation of what is happening in those zones—but that’s another topic.

The site also points out several limitations of the tracker tool: “Results might not be generalizable to emergency departments that are not contributing data to the BioSense Platform. The keywords used to identify tick bite visits may under- or overestimate emergency department visits related to tick bites because of differences in coding, reporting, and availability of chief complaint text data between jurisdictions or over time. Finally, aggregated data by region might be less useful than state or local data.”

So essentially, you have to take this data for what it is: a slightly flawed tool that gives us a glimpse into what is happening in the tick-borne disease world.

Lyme Awareness Month is an opportunity to educate the public about the risks of Lyme disease and promote strategies for prevention and early detection. I hope you’ll use the Tick Bite Data Tracker, as well as additional information spread throughout the pages of our website to spread awareness.

LymeSci is written by Lonnie Marcum, a Licensed Physical Therapist and mother of a daughter with Lyme. She served two terms on a subcommittee of the federal Tick-Borne Disease Working Group. Follow her on Twitter: @LonnieRhea  Email her at: lmarcum@lymedisease.org.

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**Comment**

A flawed tool that will  continued to be used against patients like the Iron Curtain.

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Natural Treatment for Lyme Disease

https://www.globallymealliance.org/blog/natural-treatment-for-lyme-disease

Did you know that natural remedies like herbal medicine can help patients to heal from Lyme disease?

Lyme disease, caused by the bacterium Borrelia burgdorferi, is the most common vector-borne disease in the United States. Once only associated with woodsy areas like Northeastern United States and the upper Midwest, Lyme is now in every state except Hawaii and in many places throughout the world. Lyme is transmitted through a tick bite (specifically, by black-legged ticks), and is commonly known for its tell-tale symptom of erythema migrans rash. In addition to or in lieu of rash, this tick-borne infection, also known as Lyme borreliosis, can cause flu-like symptoms, joint pain, fever, fatigue, chills, and swollen lymph nodes in its early stage. If not treated, Lyme can spread to other parts of the body such as the nervous system, heart, and joints, causing neurological symptoms such as brain fog and Bell’s palsy, cardiac symptoms like heart palpitations and POTS, and rheumatic symptoms like Lyme arthritis (not to be confused with rheumatoid arthritis). For some, this infectious disease causes chronic illness, with persistent symptoms like chronic fatigue.

Whether dealing with early or chronic Lyme, you need to know how to best treat the infection and relieve your symptoms, and may be wondering if naturopathic medicine or herbal remedies might help.

Can Natural Treatments Help with Lyme Disease?

Lyme disease is a bacterial infection that should be treated with antibiotic therapy by a healthcare provider, but natural treatments like herbal medicine can potentially help remedy symptoms. Natural remedies may also help support your immune system, which is impacted by Lyme disease, and may help with cellular repair, sleep, detoxification, and inflammation.

What Are the Best Herbs for Lyme Disease?

The best herbal remedies for Lyme disease include:

  • Cryptolepis sanguinolenta
  • Black walnut (Juglans nigra)
  • Sweet wormwood (Artemisia annua)
  • Cat’s claw (Uncaria tomentosa)
  • Japanese knotwood (Polygonum cuspidatum)
  • Chinese skullcap (Scutellaria baicalensis)
  • Cistus incanus

This does not mean, though, that you should just take all of these remedies if you have Lyme disease. Natural doesn’t always mean better, or safer; each of these products can have side effects and can interact with antibiotic treatment or other medication.

Research Information About Herbal Medicine and Lyme Disease

The seven herbal medicines listed above have been shown in research to kill the Lyme disease bacteria in test tubes. In a study conducted at the Johns Hopkins Bloomberg School of Public Health, cryptolepis sanguinolenta completely eradicated the bacteria (whereas the antibiotics doxycycline and cefuroxime did not). Cryptolepis has also been used for the tick-borne illness babesiosis.

Researchers at Johns Hopkins Bloomberg School of Public Health have also studied the effect of essential oils on Borrelia burgdorferi. In a study of 35 essential oils, researchers found that oil derived from garlic cloves, myrhh trees, thyme leaves, cinnamon bark, allspice berries, and cumin seeds showed strong activity against “persister” forms of the Lyme disease bacterium.

These studies show good potential and may be exciting news, particularly for chronic Lyme disease patients, but further research is needed to determine the efficacy of herbal remedies.

How to Choose Herbal Supplements

Talk to your Lyme Literate Medical Doctor (LLMD) about the best supplements for you, and where to buy them. They’ll likely want you to consider:

  • Brand—research brands and make sure the one you pick is reputable
  • Ingredients—make sure the supplement doesn’t have extra, unnecessary ingredients
  • Form—there are a variety of ways to take supplements, including tea, capsules, and tinctures
  • Side effects and interactions—make sure you talk with your LLMD about possible side effects of each supplement and how it might interact with your other treatment

Should You Speak to Your Doctor Before Using Natural Remedies?

Yes. You should always consult your LLMD before taking any supplement or doing any kind of alternative treatments. Though natural remedies can often be purchased over the counter, they can interact with prescription medications (or with each other) and can have negative side effects. Your doctor should help you determine which natural remedies are best for you (remembering that every case of Lyme disease is different, and there is no set protocol), and they should also give you dosage instructions.

Lyme Disease Treatment

Though some natural remedies can possibly help with Lyme disease, they are not guaranteed to help and don’t have guaranteed properties. Lyme disease treatment, whether natural, traditional, or a combination thereof, should always be done by a healthcare provider.

Treatment for Lyme disease varies depending on the stage of the infection, severity of symptoms, presence of co-infections, age, and other clinical factors. The most common treatment for early stage Lyme disease is a 14-21 day course of oral antibiotics, whereas late stage Lyme disease should be treated with 3-6 weeks of oral antibiotics (depending on the type of antibiotic used) or 2-4 weeks of intravenous antibiotics. Treatment should be extended or repeated in the event of persistent or recurrent symptoms.

Other treatments for Lyme disease such as Disulfiram (Antabuse) and dapsone are also being studied. Your LLMD will determine the best course of treatment for you. For more information on Lyme Disease treatment, see https://www.globallymealliance.org/about-lyme/treatment/.

Maintaining a Healthy Lifestyle

If you’re battling Lyme or other tick-borne disease, it’s important not just to treat the infection but to make lifestyle changes that can help your body best fight the disease. This can be particularly important if you are fighting chronic disease. A healthy lifestyle should include a program of light exercise as tolerated, good nutrition, and good sleep hygiene. While on antibiotics, taking a probiotic containing acidophilus will replenish the “good” bacteria in the GI tract. Organic yogurt and kefir are also good sources of probiotics.

You may also want to try some adjunct therapies such as integrative manual therapy, neurofeedback, physical therapy, and talk therapy, which can complement your Lyme treatment and help you on your overall journey to health. Always consult with your physician first regarding non-prescription treatments, adjunct therapies, nutrition and exercise programs.

The above material is provided for information purposes only. The material (a) is not nor should be considered, or used as a substitute for, medical advice, diagnosis, or treatment, nor (b) does it necessarily represent endorsement by or an official position of Global Lyme Alliance, Inc. or any of its directors, officers, advisors or volunteers. Advice on the testing, treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient’s medical history.

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A Child Can No Longer Walk. Before COVID, There Was Lyme Disease Denial

https://rescue.substack.com/p/a-child-can-no-longer-walk-before

A Child Can No Longer Walk. Before Covid, There Was Lyme Disease Denial.

Lyme disease left her paralyzed at 11. Now 19, the girl blessed by the Pope is suing doctors who refused to treat.

APR 29, 2023

Julia Bruzzese, now 19, whose Lyme disease went undiagnosed and untreated for nearly two years, causing paraplegia at age 11. A medical malpractice lawsuit has been filed in New York City on her behalf.

This is a story of medical ignorance: How an infection was allowed to fester even when safe, generic drugs could have stopped it.

No, this is not about covid-19. This is a story of Lyme disease.

Before a pandemic came along, Lyme disease was among the most controversial and, in late stages, abysmally treated infection in medicine.

As covid wanes, the tick-borne illness is still all those things. That is why a nineteen-year-old woman, who represents chronic Lyme sufferers worldwide, is suing a dozen doctors, a pediatric practice, and three hospitals in New York City for medical malpractice.

If anybody can change the image and practice of Lyme disease, it is Julia Rose Bruzzese of Brooklyn, the girl in a wheelchair who met the Pope on an airport tarmac at the age of twelve in hope of a miracle. Maybe, just maybe, she will get it.

First, her odyssey.  (See link for article)


SUMMARY:

  • Julia had a glaring EM rash the doctors simply ignored.
  • This error of ignorance was repeated over two more years and she was accused of making it all up.
  • When her dad suggested it might be tick-borne illness he was treated like he was using profanity.
  • Julia’s lawsuit contends that the continued refusal of doctors and hospitals resulted in her life in a wheelchair and she is seeking judgement and financial damages that would be fair, adequate and just.
  • Her father has fought battles for Julia before when attempting a medical insurance appeal.
  • Author of the article, Mary Beth Pfeiffer, has interviewed scores of others with similar stories of Lyme ruin and denial.
  • Due to this medical controversy another group of doctors has formed the International Lyme and Associated Diseases Society (ILADS) which faults the IDSA for using low-quality and flawed evidence behind their entire paradigm.
    • This group still insists upon using a 30 year old diagnostic test that is wrong some 40% of the time with early infection and anywhere from 7086% in late infection.  Yet this test is followed like the Rosetta Stone.
    • This group also recommends longer prophylactic antibiotics after tick bites and initial infection, and retreatment for persisting symptoms.  Due to this approach, Julia finally felt her feet for the first time in months.
  • Julia experienced extremely abusive situations by doctors throughout this journey including gas-lighting, taking away her wheelchair to see if she would get up to use the bathroom, poking prods into her lifeless legs when she slept, waking up to a large group of doctors looking down on her to observe a supposed case of “conversion disorder,” being dragged along a hospital hallway, and taking all her weight but then dropping her despite her cries of pain.
  • The family has had financial troubles due to this.
  • Julia has faced frightening litany of symptoms that have progressed and worsened over time due to lack of treatment. She has had GBS, POTS, distended bladder, cognitive impairment, vision and hearing difficulties, insomnia, atrophy, migratory joint pain, encephalitis, seizures, severe fatigue, osteopenia, and many other problems.
  • The defendants have denied all claims in the lawsuit, filed in March 2021.
  • Julia made global news when she sought a blessing from the Pope in 2015.
  • Finally able to obtain testing, she now had evidence of 5 infections: Lyme, Babesia, Tularemia, and Bartonella and received treatment which helped but did not cure her long-ignored condition.
  • Julia’s story is now chronicled in a critically acclaimed documentary that is now screening around the country.
  • The ignorance being experienced is largely to a one-size-fits-all medical model which is a huge ongoing problem.
  • While Julia’s lawsuit is a year or more from trial, another trial is coming in May for a “wrongful death” in a young man who had a negative test but ended up dying from Lyme carditis.  A case report in Cardiovascular Pathology journal two years later documented the damage to his heart. There, in color, were corkscrew-shaped Borrelia burgdorferi spirochetes, the causative agent of Lyme disease. Similarly to Julia, he was not treated with a round of antibiotics that likely would have spared him.  Journal articles continue to minimize the severity of tick-borne illness by insisting that they are self-limiting conditions.  Therefore, doctors are lazy and apathetic toward a complex illness that has and will kill or maim a good number of patients.
  • A false narrative also continues to insist that people are over diagnosed with Lyme due to supposed false positive tests.
  • Despite stories like this (and thousands more) nothing has changed in Lymeland. 
  • What’s the answer?  Good question.  Pfeiffer thinks maybe big money payouts will help our plight. Recently a Maine lawsuit awarded a family 6.5 million from a hospital and doctor in the Lyme carditis death of a twenty-five-year-old man in 2017.
    • The lawyer who won the case is the same lawyer in Julia’s case as well as in the other Lyme carditis death.  He has yet to earn a dime.  How many lawyers will fight for sick Lyme patients without a living wage?  Food for thought.
  • Like all good dads, Julia’s father is worried for her future, but Julia’s greatest weapon continues to be her optimism.  She is in pre-med, paints, crochets, bakes, and is a make-up artist.

Tick Disease Endemic in 10 States; What That Means

https://weather.com/health/video/tick-disease-now-endemic-in-10-states-heres-what-that-means  News Video Here (Approx. 1 Min)

Tick Disease Endemic In 10 States; What That Means

The Weather Channel

April 1, 2023

Some tick diseases are at record highs and one in particular is Babesiosis which is now endemic in 10 states.  Pets can be infected with it as well.

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