https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/30349687

Congenital Lyme and the NIH

Carl Tuttle

Hudson, NH, United States

Mar 19, 2022 — 

Latest email sent to the Tick-Borne Disease Working Group…

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “Dennis.Dixon1@nih.hhs.gov” <Dennis.Dixon1@nih.hhs.gov>, “SSood@nshs.edu” <SSood@nshs.edu>
Cc: “tickbornedisease@hhs.gov” <tickbornedisease@hhs.gov>
(all members of the TBDWG)
Date: 03/19/2022 8:34 AM
Subject: Congress Commends NIH Collaboration with Advocacy Groups to Advance Research on Maternal-Fetal Transmission of Lyme Disease


To the Tick-Borne Disease Working Group,

Please see the news release below regarding congenital Lyme and the NIH.

Congenital Lyme was first identified in 1985 (Allen Steere) per the attached lengthy list of references and yet it took 37 years for the NIH to acknowledge this evidence? Isn’t this a crystal clear indication that our Public Health Agencies are COMPLETELY BROKEN!!

Congenital Lyme References
https://www.dropbox.com/s/g5am2pamxc1a4hx/Congenital%20Transmission%20of%20Lyme.doc?dl=0

We have autopsy results and a lengthy list of references proving chronic Lyme as well and that too is going unrecognized by members Dixon and Sood on this Working Group. Isn’t this a crystal clear indication that our Public Health representatives are COMPLETELY BROKEN!!

Announcement from Bruce Fries, President, Patient Centered Care Advocacy Group:

Congress Commends NIH Collaboration with Advocacy Groups to Advance Research on Maternal-Fetal Transmission of Lyme Disease (Please read this article!!)
https://www.webwire.com/ViewPressRel.asp?aId=284113

Note from Bruce Fries:

Since NIH has a history of noncompliance with appropriations directives for Lyme, the release includes language to hold them accountable. Success will be determined by the amount of grants funded that have measurable benefits for mothers and children.

Much of the long-term follow-up will be addressing the bias in the NIH special study sections that prevents grants from being approved for research that might challenge the mainstream dogma. Rather than calling the baby ugly, I think a better approach may be to push for creation of a special study section that focuses on tick-borne diseases and make sure the nomination and selection processes are open and transparent.

Many thanks to the advocates and advocacy groups who helped make this happen.

Bruce Fries
​President, Patient Centered Care Advocacy Group
Advisor for Research and Public Policy, Mothers Against Lyme
202-617-1592

BruceFries@Gmail.com

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u

Congenital Lyme and the NIH Part 2

Carl Tuttle

Hudson, NH, United States

Mar 21, 2022 — 

Please see the message below sent to the attention of Becky Salay, Chief-of-Staff for Congresswoman Rosa DeLauro. If you agree with my assessment why not send your comments to becky.salay@mail.house.gov referencing this petition update.

———- Original Message ———-

From: CARL TUTTLE <runagain@comcast.net>
To: “becky.salay@mail.house.gov” <becky.salay@mail.house.gov>, “caitlin.peruccio@mail.house.gov” <caitlin.peruccio@mail.house.gov>, “info@tfah.org” <info@tfah.org>,
Cc: All members of the Tick-Borne Disease Working Group
Date: 03/20/2022 10:34 AM
Subject: Re: Congress Commends NIH Collaboration with Advocacy Groups to Advance Research on Maternal-Fetal Transmission of Lyme Disease

DEPARTMENTS OF LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION, AND RELATED AGENCIES APPROPRIATIONS BILL, 2022
https://docs.house.gov/meetings/AP/AP00/20210715/113908/HMKP-117-AP00-20210715-SD003.pdf

Mar 20, 2022

2413 Rayburn House Office Building
Washington, DC 20515
Attn: Congresswoman Rosa DeLauro, Congenital Lyme and the NIH

Dear Rep DeLauro,

Please take a moment to read the following email thread and attachment addressed to the Federal Tick-Borne Disease Working Group. From the announcement below, the 2022 appropriations bill for the NIH signed into law on March 15 requires the NIH to advance research on maternal-fetal transmission of Lyme disease.

Maternal-fetal transmission of Lyme disease was identified in 1985 and it has taken 27 years for our Public Health Officials to recognize and investigate only after an act of congress?

Congenital Transmission of Lyme (personal Dropbox storage area)
https://www.dropbox.com/s/g5am2pamxc1a4hx/Congenital%20Transmission%20of%20Lyme.doc?dl=0

As you will read below, congenital Lyme is only the tip of the iceberg as chronic infection after extensive antibiotic treatment has been verified through autopsy studies. What does this mean? We have been dealing with an antibiotic resistant/tolerant superbug denied by the same Public Health Officials who have suppressed evidence of congenital Lyme for twenty-seven years!

Patient testimony all across America is describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin. Read the Written Public Comments published with each of the Working Group’s meetings to gain an understanding of the suffering. No matter how many of these comments are documented, no matter how many studies identifying persistent infection, the Federal representatives and past co-chair of this Working Group refer to chronic Lyme as a “religious belief.”

Written Public Comments
https://www.hhs.gov/ash/advisory-committees/tickbornedisease/meetings/index.html

Chronic Lyme as a “religious belief” [Dr. David Walker]
https://www.lymedisease.org/tuttle-comment-tbdwg-nov17/

Quote from Senator Richard Blumenthal: (2011)!!!

“Today for me culminates more than a decade of work and probably a decade more, because I’ve seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease”  Source: http://ctmirror.org/2011/07/18/blumenthal-takes-lyme-disease-fight-senate/

It is time to put an end to this Medical Mafia suppressing scientific evidence (for the purpose of controlling the narrative) and find a cure for this antibiotic resistant/tolerant superbug. Those of us who have studied the mishandling of Lyme disease are convinced that the rush to create a vaccine (LYMErix) is the root cause because a chronic relapsing seronegative disease did not fit the vaccine model. The FDA has fast-tracked a Lyme disease vaccine while this Working Group is in session; a vaccine for a disease that the IDSA describes as “Hard to Catch and Easily Treated” with 2-4 weeks of antibiotics.

So what is the message I’m trying to convey here? You or a loved one (and everyone else reading this message) is a single tick bite away from experiencing this travesty. One more important question Rep Delauro; How much Lyme disease is in America’s blood supply??

A response to this inquiry is requested.

Respectfully submitted,

Carl Tuttle
Hudson, NH

Cc: Rebecca Salay, MSc Chief of Staff (Please forward to Rep DeLauro)

Member of Gov Chris Sununu’s Lyme Disease Study Commission
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/30346445

Correspondence sent to the Tick-Borne Disease Working Group:

PETITION UPDATE
Congenital Lyme and the NIH
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/30349687

PETITION UPDATE
HB490 COMMISSION TO STUDY TESTING FOR LYME AND OTHER TICK-BORNE DISEASES
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/30346445

PETITION UPDATE
Evidence of chronic Lyme
https://www.che through autopsy studiesange.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/30304104

Public comment: Does that sound like a religious belief, Dr. Walker?

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