by Jennifer Crystal
TIPS AND RESOURCES FOR LIVING IN THE PRESENT DURING CHALLENGING TIMES.
As schools resume and cooler weather rolls in, the country is bracing for a possible second wave of COVID-19. The U.S. death toll recently surpassed 200,000, and the last two weeks have seen an increase of cases in many areas. With concerns about what fall and winter will bring, especially as we move into flu season, it can be hard to stay grounded in the present.
Lyme patients know this conundrum all too well. Late-stage tick-borne illnesses end to follow a relapsing pattern: patients have good days and bad days, sometimes good months and bad months. When we’re feeling well, we have a hard time trusting and enjoying that health, because we know the other shoe could drop at any moment. We, too, are always bracing for another wave.
Not only is it hard to stay present when you’re worried about the future, but it can be difficult to enjoy the present when it itself is difficult. The pandemic has people at their wit’s end trying to negotiate working from home with homeschooling, isolating from loved ones, and worrying about illness and finances. In acute phases of Lyme and other tick-borne illnesses, patients also feel at their wit’s end as they deal with crushing fatigue, joint aches, migraines, and neurological symptoms. In both cases, the suffering can be so intense that people wish they could escape to a better time in the past or future.
While escapism has its merits, it’s important that we accept our current situation(s) and find ways to live presently. Why? Because no matter how bleak the present is, it’s all we are guaranteed. Whether we’re healthy or ill, living in a pandemic or not, none of us know what tomorrow will bring. Therefore, we can’t let the present pass us by.
What I’ve learned from living with tick-borne illnesses for over 20 years, from battling long-haul COVID-19, and from sometimes wanting to escape from both, is this: the best way to stay present is to prepare for the future. Our anxieties are valid and have their place. Acknowledging them can help us prepare for the worst, and that can then allow us to live more fully in the present.
What does preparation look like in practice? During COVID-19, we can wear face masks, following social distancing protocols, wash our hands, and create contingency plans for school and work. While these steps don’t guarantee we won’t get COVID-19, they do lower our risk. Contingency plans give us safety nets.
During periods of remission from tick-borne illness, we can stay on maintenance medication or supplements, continue with adjunct therapies, exercise, eat well, follow good sleep hygiene, and try to keep stress levels down. If we’re in remission or even if we have recovered completely, we can continue to Be Tick AWARE™, taking precautions like wearing repellent, doing tick checks, and staying on cleared paths so as not to get re-infected. We can make sure we have a good support system—doctors, caregivers, resources. As with COVID-19 precautions, these steps won’t make us immune to another tick bite or relapse, but they do lower the risk.
Once we’re prepared for the future, we can live more freely in the present. Even in trying times, there are ways to enjoy ourselves, and ways to reduce stress. In my post “What Lyme Patients Can Teach Us About the New Normal”, I outline some ideas for managing school and work this fall. In my post “Adding Joy and Pleasure to Life, No Matter When”, I talk about enjoying small moments and activities while we wait for health, for bigger moments and activities to be possible, for better days. Even in a pandemic, families can create fun rituals like weekly movie or game nights. Even in the throes of illness, Lyme patients can enjoy a friend’s visit, laugh over just five minutes of a silly movie, or give themselves an at-home spa treatment.
One difference between battling Lyme and living through a pandemic is that we are all experiencing the latter together. We have similar fears. We have similar hopes. And we can find ways to enjoy the present, together. As I’ve said before, there is comfort in that solidarity.
Opinions expressed by contributors are their own.
Jennifer Crystal is a writer and educator in Boston. Her memoir about her medical journey is forthcoming. Contact her at firstname.lastname@example.org.
While I’m all about preparing for the future and living in the present, there are numerous inaccuracies in this article that require addressing:
- Data has proven that COVID-19 mortality is no worse than the flu: https://madisonarealymesupportgroup.com/2020/08/31/cdc-quietly-updates-numbers-showing-only-9210-americans-died-from-covid-19-alone-the-rest-had-other-serious-illnesses/, https://madisonarealymesupportgroup.com/2020/09/05/ucla-study-finds-for-average-50-64-year-old-chances-of-dying-from-covid-19-are-1-in-19-1-million/
- If you are truly concerned about becoming ill, don’t make the mistake of believing a face-mask is going to protect you: https://madisonarealymesupportgroup.com/2020/08/13/best-video-on-masks-yet-new-health-problems-emerging-from-continuous-mask-wearing-but-attempted-murder-charges-sought-for-those-who-refuse-them/, https://madisonarealymesupportgroup.com/2020/08/23/covid-19-important-potential-side-effects-of-wearing-face-masks-that-we-should-bear-in-mind/ , https://madisonarealymesupportgroup.com/2020/09/25/and-those-face-shields-they-dont-work-either/ And there’s evidence masks cause infections: https://madisonarealymesupportgroup.com/2020/10/08/medical-doctor-warns-that-bacterial-pneumonias-are-on-the-rise-from-mask-wearing/, https://madisonarealymesupportgroup.com/2020/09/20/coronavirus-cases-hospitalizations-soar-in-hawaii-since-indoor-and-outdoor-mask-mandates/
- We’ve been told by numerous experts there will be no second wave: https://madisonarealymesupportgroup.com/2020/09/25/chief-science-officer-for-pfizer-says-second-wave-faked-on-false-positive-tests-pandemic-is-over/, https://madisonarealymesupportgroup.com/2020/07/08/lockdown-lunacy-2-0-second-wave-not-even-close/, https://madisonarealymesupportgroup.com/2020/09/10/covid-19-data-explained/
- While it’s true we are heading into the cold/flu season don’t make the mistake of blaming everything on COVID-19: https://madisonarealymesupportgroup.com/2020/09/25/the-only-circuit-break-in-the-pandemic-we-need-now-is-from-the-governments-doom-mongering-scientific-advisers-who-specialize-in-causing-panic-and-little-else-say-prof-carl-henneghan-and-dr-tom/ Excerpt: Between now and Dec. doctors see a:
- four-fold increase in consultations in general practice in a GOOD Year
- they see an 8 fold increase in an epidemic year
- 50% increase in deaths between now and January (And none of this has anything to do with COVID)
- All COVID-19 numbers are highly suspect. Remember, hospitals are getting monetary incentives to label things COVID: https://madisonarealymesupportgroup.com/2020/08/10/cdc-director-acknowledges-hospitals-have-a-monetary-incentive-to-overcount-coronavirus-deaths/
- As for cases, that’s’ easy too. They are testing far more people utilizing a test that is wrong more than half the time, and that can’t differentiate dead viral pieces from infectious virus: https://madisonarealymesupportgroup.com/2020/08/15/the-continuing-saga-of-muddled-covid-19-case-number-miscounts-that-are-being-used-to-take-away-your-freedoms/, https://madisonarealymesupportgroup.com/2020/08/14/tests-for-sars-cov-2-in-south-korea-cant-distinguish-virus-from-viral-fragments/, https://madisonarealymesupportgroup.com/2020/08/09/gov-mike-dewine-of-ohio-tests-positive-then-negative-for-coronavirus/, https://madisonarealymesupportgroup.com/2020/07/01/us-scientist-manufactured-pandemic-testing-people-for-any-strain-of-coronavirus-not-specifically-covid-19/, https://madisonarealymesupportgroup.com/2020/03/21/study-shows-covid-19-testing-as-bad-as-lyme-msids-testing/
To help alleviate the fear-mongering that is pervasive, the best most productive thing you can do is bolster your immune system. This action will help you no matter what comes down the pike and will give you peace of mind.
For more: https://madisonarealymesupportgroup.com/2020/10/13/bartonella-how-to-protect-yourself-from-this-stealthy-intruder/ While this article is about Bartonella, the steps to protect yourself from one invader is true for another.
As you can see, there is much you can do to make yourself a tough target. Learn all you can about your own body and potential things you can do to bolster your immune system. Discuss these options with your doctor and come up with a plan. This will be a much more effective, long-lasting plan than plopping a mask on.