Treating Bartonella Cleared Most of My Son’s Symptoms of Autism

April 12, 2022

https://www.lymedisease.org/treating-bartonella-cleared-autism/

Treating Bartonella cleared most of my son’s symptoms of autism

By Debbie Kimberg

April 8, 2022

For years, I had no idea that I was infected with Lyme disease and related illnesses. There was nothing obvious, like pain or chronic fatigue. Instead, my symptoms were mild and crept up on me insidiously over my lifetime: anxiety, social anxiety, irritability, then migraines, thyroiditis, a little neuropathy in my fingertips and arthritis in my knuckles.

Little did I know that I had stealth infections that I would unsuspectingly transmit to my three sons during my pregnancies. This is known as congenital Lyme disease.

My three boys all exhibited very different presentations. When my oldest son was in preschool, he was charming, driven and precocious. But he was also oppositional, had excessive tantrums, trouble with transitions, picky eating, and was hypersensitive to seams in socks and sunlight.

My middle son was your typical child with ADHD. He was your happy-go-lucky kid in constant motion, hopping or running from place to place. In school, he had difficulty concentrating and with executive function. By middle school, he developed anxiety and a few panic attacks. Then in college, he suffered from multiple bouts of severe depression and chronic fatigue.

However, it was my youngest son, Sammy, who got the shortest end of the stick. He had issues from day one. His first year of development was mostly on track, but as the years progressed, he developed autism spectrum disorder (ASD), multiple vocal and movement tics, ADHD, learning disabilities, low reading comprehension, baby talk, age regression, bedwetting, antisocial behavior, oppositional defiant disorder (ODD), and OCD.

I thought this was just our life. Every family has their problems. Lots of kids have ADHD or ASD. It runs in families, right? My mild issues were under control. I didn’t think there was a single root cause to all of our problems.

Brain on Fire

Then I read Brain on Fire: My Month of Madness, by Susannah Cahalan. The author developed an infection that caused severe psychiatric and physical symptoms.

Inspired by the book, I made an appointment with a doctor of functional medicine to evaluate Sammy and give another opinion about his symptoms.  Sammy was 10 years old. After our intake interview, the doctor diagnosed him with Pediatric Acute Neuropsychiatric Syndrome (PANS). He had a majority of the symptoms, 29 in all:

  • Oppositional Defiant Disorder (ODD)
  • Obsessive Compulsive Disorder (OCD)
  • Vocal tics: squealing, grunting, stammering, throat clearing
  • Movement tics: a neck roll that first appeared at 6 months old, facial grimace, bending, swaying, spinning, hand flapping when excited, running at inappropriate times
  • Baby talk
  • Age regression
  • ASD
  • ADHD
  • Learning disabilities, low reading comprehension
  • Brain fog
  • Anxiety
  • Social anxiety
  • Depression
  • Antisocial (i.e. addicted to electronics, stayed in room, spoke quietly)
  • Bedwetting
  • Dysgraphia
  • Picky eating
  • Dilated eyes
  • Balance issues
  • Gluten and dairy sensitivity

Furthermore, his titers for strep and coxsackie virus were also sky high.

Lyme disease and co-infections

After six months on different antibiotics with little improvement, our doctor ran IGeneX tests on Sammy, his two older brothers, and me, for Lyme disease and co-infections. The results were confusing.

Two boys showed positive for Borrelia burgdorferi; Sammy and I had three indeterminant bands. Sammy was IGG positive for Babesia microti and only my middle son was positive for Bartonella henselae. In time, it was determined that all four of us were positive for the trifecta of tick-borne diseases—Borrelia, Babesia, and Bartonella.

I’ve heard that symptoms of congenital Lyme disease often show in children by age four. This is what we experienced with all three of my boys, though their presentations were vastly different.

An array of treatments–little progress

Once we had the diagnosis of Lyme disease and co-infections, we were optimistic that Sammy would quickly see improvements with treatment. Instead, we found ourselves traversing from doctor to doctor searching for a treatment that would help.

Over a period of five years, Sammy saw ten doctors in all and tried an array of antibiotics, herbals, homeopathics, supplements, and detoxes indicated for Lyme disease or PANS, with little progress.

Because Sammy was slightly better on the treatments versus nothing, we maintained a flicker of hope that eventually we would find a treatment that would work. In some cases, we abandoned certain treatments because his oppositional behavior became intense and untenable.

IVIG

With little progress after five years, we were excited when our neurologist got monthly high dose intravenous immunoglobulins (IVIG) approved by our insurance company. We had high hopes for the treatment.

The first five days after his initial treatment were tough. Like with many other treatments, Sammy became even more oppositional and impossible to deal with. Then, suddenly, as if a light switch had turned on, everything changed. Sammy became happy, social, and agreeable. His many tics were much better.

And, after years of poor memory, suddenly he could remember things! Like what he ate at his friend’s house for dinner and the names of all the kids who’d been with him. Since Sammy hit his teen years, he rarely spoke and only about a few topics obsessively such as when he was going to eat dairy and gluten again or wanting to play electronics all night. Now, he was much more neurotypical!

But the improvements were short-lived, typically lasting for only two weeks after each month’s infusion. And each month, the insurance company fought to discontinue the expensive treatment.

Delayed IVIG infusions wreaked havoc on Sammy’s behavior, causing him to devolve into depressive, oppositional episodes. After five treatments, our insurance company denied additional coverage. Despite such great improvements, Sammy was in the worst straits we had experienced.

What next?

We weren’t sure where to turn. With Sammy’s repeated attempts to run-away to ‘live with the beggars’ because our family rules were unbearable, we tried to check him into the psychiatric ward of a local children’s hospital. When the ER psychiatrist refused to admit him, we began searching for a long-term residential facility to keep him safe. My husband and I were heartbroken. How could our son see such dramatic improvements with IVIG, then so quickly become depressed and intolerant of everything around him?

After losing all hope from the failed IVIG treatment, our functional medicine doctor asked if we’d like to try disulfiram, a drug recently found to show great promise in treating Lyme and Babesia. She wasn’t aware of any other children who had tried it and expected Sammy would be one of the first.

It seemed like a longshot, but with no other options, what did we have to lose?

Disulfiram

The decision changed Sammy’s life. After one dose of disulfiram, Sammy’s oppositional behavior disappeared, his worst symptom at the time. No longer did he badger us for more dairy or gluten, insist on playing games all night, or threaten to run away. Suddenly, he was happy, agreeable, and more social. The overnight improvement of just those few symptoms was a miracle for our family life. We knew we were on the right track!

A few other symptoms improved on disulfiram during the six-month treatment: picky eating, dilated eyes, dysgraphia, most of bedwetting, antisocial behavior, and depression.

Yet, along with those important improvements, other symptoms intensified. These included OCD, age regression, baby talk, vocal and movement tics, brain fog, learning disabilities and ADHD. These symptoms proved annoying, but Sammy was happy and the symptoms were tolerable.

Targeting Bartonella

Despite Sammy’s negative Bartonella test, we suspected it due to his OCD.  We treated it next using an antibiotic protocol that included rifampin/rifabutin, clarithromycin, and minocycline. Again, we saw a major improvement in a very short time.

Suddenly, Sammy’s baby talk, age regression, hyperactivity, and eight vocal and movement tics resolved. These symptoms seemed intrinsically tied as they all cleared almost overnight. Sammy was thrilled when at six weeks into treatment, his gluten and dairy sensitivity resolved. He could eat whatever he wanted again with no worsening behavior! Bartonella treatment also fully cleared his bedwetting. None of our doctors seemed aware that these symptoms were caused by Bartonella. In fact, seventy percent of Sammy’s ASD symptoms appeared to be caused by Bartonella. It was an important discovery.

Good-bye to Special Ed classes

The most notable improvement came after four months of antibiotic treatment for Bartonella. Sammy, who had been in special education since preschool due to learning disabilities and low reading comprehension,  now began doing his homework independently. And his grades moved from low Cs to high As.

Remarkably, on statewide testing, he went from a fifth-grade reading level one year earlier to a tenth-grade level last spring. His IQ rose six points into the average range. And he suddenly passed out of his pragmatic language skills/social skills class, which he had made little progress in throughout his life. (Pragmatic language skills are knowing what to say–and how and when to say it.)

I’m pleased to share that the impossible happened. Last fall, in 11th grade, the school moved Sammy out of special education and into all grade-level classes, an exceptional outcome that was beyond our expectations. It was a first for his high school and an accomplishment that Sammy takes great pride in.

Learning disabilities due to brain fog?

In hindsight, the learning disabilities were caused by severe brain fog. Once the brain fog lifted, his IQ, executive functioning, and learning abilities returned to normal. Unlike what I had been told by many professionals, low executive function was not due to improper development of his frontal lobe. Instead, the AD in ADHD was due to severe brain fog and was treatable.

Furthermore, although Sammy had taken social skills classes every year since kindergarten, he had never shown improvement until he was treated for Borrelia and Bartonella.  Now, on his own accord, Sammy wanted to come out of his room to hang out with the family. Our quiet, reclusive son became the most talkative one at the dinner table, leading family conversations on a host of new topics we had no idea he had knowledge of, like Simon Cowell, Kobe Bryant, and inflation!

Today, Sammy is studying for his ACTs and planning to attend a four-year college. This was unthinkable 18 months ago, when we expected Sammy to need lifetime care and be unable to hold a job.

Sammy is 80% recovered from ASD and is still undergoing treatment to resolve three remaining symptoms out of twenty-nine: OCD, neck roll tic, and social behaviors. Sadly, his social behavior regressed seven months after finishing the six-month disulfiram protocol, so we are retreating the Borrelia and seeing some improvement.

What happened to our son is a medical miracle. I am so grateful to every doctor who helped us.

I have written a memoir that I am working to publish to explain our long, difficult, but ultimately successful journey. Even at 17-years-old, it’s possible to reverse learning disabilities and see a great recovery from ASD!

Debbie Kimberg updates their story on Instagram at @HijackedBrains. She can be contacted at debbie.kimberg@gmail.com.

____________________

HALLELUJAH!  This story clearly demonstrates the importance of treatment and the miraculous effects it can have.

For more:

Category:

Activism, Autism, Bartonella, Lyme, Psychological Aspects, Treatment

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After Accusing Hadid of Faking Illness, People Whine About Pictures of Worms Found in Her Body Being TMI

https://www.thelist.com/824583/this-inclusion-in-yolanda-hadids-memoir-was-beyond-tmi/

This Inclusion In Yolanda Hadid’s Memoir Was Beyond TMI

By Joey Keogh

April 7, 2022

Yolanda Hadid’s time on “The Real Housewives of Beverly Hills” was tumultuous to say the least. She started off healthy and happily married, but finished the show alone, estranged from the cast, and suffering from a chronic illness. Consider why Hadid and David Foster got divorced, which was at least partly to do with her stint on the show. In fact, the prolific music producer admitted to The Los Angeles Times, “The Beverly Hills Housewives was just kind of a nightmare for me and something that I really wish I hadn’t been part of.”

Hadid opened up about their shock split in her memoir, “Believe Me: My Battle with the Invisible Disability of Lyme Disease,” per Radar Online. The former model revealed how everything seemed fine until suddenly, just a few weeks short of their anniversary, Foster turned. After encouraging him to tell her what was going on, Foster allegedly told Hadid it was over during a testy phone call. In fact, when the multiple Grammy winner came back to their shared home to pick up a few things, he informed Hadid her “sick card” was up. (See link for article)

___________________

**Comment**

“Don’t believe me?  Here let me show you some pictures…..”

You have to hand it to Hadid.  The lady has moxie.

Time for the gaslighting to end.  Keep showing them the pictures.

Category:

Activism, Lyme, Parasites

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Bioweapons Expert Speaks Out & Pentagon Unit A1266 Studies Bioterrorism Agents in Kazakhstan & Collects 40,000 Ticks

April 11, 2022

https://articles.mercola.com/sites/articles/archive/2022/04/09/biolabs-in-ukraine

Bioweapons Expert Speaks Out About U.S. Bio labs in Ukraine

April 9, 2022

Analysis by Dr. Joseph Mercola

Story at-a-glance

  • According to bioweapons expert Francis Boyle, Russia’s accusation that Ukraine is conducting U.S.-funded bioweapons research appears to be accurate
  • If true, everyone involved is subject to life in prison under the Biological Weapons Anti-Terrorism Act of 1989
  • According to Boyle, the U.S. government and Pentagon have had a “comprehensive policy” to “surround Russia with biological warfare laboratories” and “preposition biological weapons” there for use against them
  • The problem with trying to make a distinction between “biodefense” and “biowarfare” is that, basically, there is none. No biodefense research is purely defensive, because to do biodefense work, you’re automatically engaged in the creation of biological weapons, and all dual use research can be used for military purposes. SARS-CoV-2 may be the result of such dual use research
  • Boyle believes we can hold the culprits behind the SARS-CoV-2 bioweapon accountable by asking local prosecutors to convene a grand jury to seek the indictment of those responsible for the pandemic for murder and conspiracy to commit murder

Excerpts of article:

“InfoWars” host Owen Shroyer interviews Francis Boyle, Ph.D., a Harvard educated lawyer and bioweapons expert with a Ph.D. in political science, about the biolabs in Ukraine, which Russia claims are engaged in U.S.-funded bioweapons research.

While the U.S. has vehemently denied Russia’s accusations, Boyle says that based on what he’s discovered so far, the labs in Ukraine are all conducting biological warfare research — including ethnic-specific biological weapons — at the behest of the U.S. Pentagon, just as Russian authorities are claiming.

Go here for a background on biolabs in Ukraine.
Go here for background on Metabiota, a U.S. firm with ties to WEF, DOD & is implicated in a cover-up.

According to Boyle, the justification that the labs are for bio defense and health purposes is nothing but a façade for the fact that they’re conducting offensive biological warfare research with genetic research, gain-of-function and synthetic biology.

And if it is so innocent, why did the US embassy remove all evidence of Obama constructed Ukraine bio weapons labs from its website?

When asked what the motive behind this kind of research might be, Boyle highlights two potential reasons:

  1. a global “Nazi cult” that wants rid the world of certain ethnic groups, hence the focus on DNA-based ethnic-specific weapons. Please see this video of Dr. Ariyana Love on this topic as well as this supporting evidence
  2.  money – made on the research and creation of biological weapons, and money made on the supposed cures, be they vaccines or therapeutics

Boyle states that because our federal government has been captured by those who seek to destroy the U.S. from within, it’s highly unlikely federal authorities, even judges, will ever enforce the Biological Weapons Anti-Terrorism Act, but that we need to go to our local prosecutors, states’ attorneys, district attorneys, county attorneys, etc., who have been empowered by the 10th amendment and are accountable to the people of the community. These elected officials can convene a grand jury and return indictments for murder and conspiracy to commit murder. He recommends a two-step plan – the first of which is aimed at those responsible for the COVID ‘pandemic,’ and the second of which is aimed for those behind the COVID shots.  Go here to see the list of 27 State AGs Suing Biden Administration Over Vaccine Mandates.

I highly recommend following Boyle’s advice and contacting your State Attorney General.  Here is more information including a sample letter:  Letter to AG and the felony indictment notice:  https://www.davidmartin.world/attorney-general-document (This document clearly lays out the criminal conspiracy of COVID)

http://  Approx. 3 Min

July, 2020

Pentagon Unit A1266

Bioterrorism Agents in Kazakhstan

https://veritybase.info/pentagon-unit-a1266-studies-bioterrorism-agents-in-kazakhstan/  Full article & pictures Here

By Dilyana Gaytandzhieva

SUMMARY:

The U.S. military biological research program in Kazakhstan started in 2008 and the Pentagon has spent more than $300 MILLION on two bio labs in this former Soviet country doing risky biological research. The two labs are:

  • Central Reference Laboratory in Almaty (also known as Kazakh Scientific Center of Quarantine and Zoonotic Diseases (KSCQZD)
  • Research Institute for Biological Safety Problems (RIBSP) in Otar

These labs are just two of the many Pentagon labs in 25 countries across the world. They are funded by the Defense Threat Reduction Agency (DTRA) under a $2.1 billion military program – Cooperative Biological Engagement Program (CBEP), and are located in former Soviet Union countries such as Kazakhstan, Georgia and Ukraine, the Middle East, South East Asia and Africa.

Unit A1266 and local scientists have collected 40,000 ticks from 13 regions in Kazakhstan. Why Kazakhstan? It borders Russia and China – the main rivals of the U.S.

They have isolated four bio-agents that post a serious bio-terrorism threat. The following bio agents have the potential to be engineered for mass aerosol dissemination and used as bioweapons:

A US Air Force C 17 cargo plane transported plague samples, a priority Pentagon project, from Kazakhstan the the U.S. as well as anthrax, tularemia, and coronavirus.  Plague has been developed as an aerosol weapon by several countries in the past.  The Pentagon project from 2015-2018 & funded by the DOD, showed all bat guano samples screened were positive for coronaviruses. 

More recently, Project GG-21, a five year long project with a possible 3 year extension studies “Arthropod-borne and zoonotic infections among military personnel in Georgia.”  Blood samples looking for the following pathogens will be obtained form 1,000 military recruits during their physical exam at the Georgian military hospital:

  • Bacillus anthracis
  • Brucella
  • CCHF virus
  • Coxiella burnetii
  • Francisella tularensis
  • Hantavirus
  • Rickettsia species
  • TBE virus
  • Bartonella species
  • Borrelia species
  • Ehlrichia species
  • Leptospira species
  • Salmonella typhi
  • WNV

The project report states:

“all volunteer deaths will be promptly reported (usually within 48 h of the PI being notified)” to the Georgian Military Hospital and WRAIR.

The author of the article points out that simply testing blood for antibodies cannot cause death, which raises the question why this statement is even given.

The results will NOT be given to the study participants and the samples will be stored at the controversial and heavily guarded Lugar Center, a U.S. funded (2.1 BILLION) Pentagon bio lab in the country of Georgia, known for laboratory incidents and scandals surrounding the US drug giant Gilead Science‘s Hepatitis C program which has resulted in at least 248 deaths. The cause of death in the majority of cases has been listed as unknown, internal documents have shown.

The Defense Threat Reduction Agency (DTRA) has funded a similar project involving soldiers in Ukraine code-named UP-8, which will look at the spread of Crimean-Congo hemorrhagic fever (CCHF) virus and hantaviruses in Ukraine as well as the potential need for differential diagnosis in patients with suspected leptospirosis. The project started in 2017 and was extended until 2020, internal documents show.

This project will also collect blood samples from 4,400 healthy soldiers in Lviv, Kharkov, Odesa and Kyiv. 4,000 of these samples will be tested for antibodies against hantaviruses, and 400 for the presence of antibodies against Crimean-Congo hemorrhagic fever (CCHF) virus. The results of the blood testing will also not be provided to the study participants.

The project report also states:

“serious incidents, including deaths should be reported within 24 hours. All deaths of study subjects that are suspected or known to be related to the research procedures should be brought to the attention of the bioethics committees in the USA and Ukraine.”

But, again, simply testing blood does not cause deaths or serious incidents – begging the question, are these soldiers being infected and then tested?

Similarly to “vaccine” manufacturers, DTRA-sponsored scientists have full indemnity if they cause deaths or injuries to the local population.

For more:

https://madisonarealymesupportgroup.com/2022/01/24/we-do-need-an-overhaul-of-public-health-just-not-the-way-walensky-wants/ And due to typical CDC bungling of every single thing it touches, there’s been a call for a public health overhaul.  Unfortunately, the Data Modernization Initiative’’ — a CDC plan to strengthen the health surveillance infrastructure will:

  • unify public health data systems at the state and federal levels
  • “help” states hire staff to work on data collection & analysis (using $3 BILLION CDC funds)
  • create a “Travelocity”-like system where a “cloud-based” framework would allow staff to quickly analyze data and understand what is happening in real-time. WHO minion Dr. Harari, a real life Dr. Evil, states “intelligent design, not created by “some God above the clouds,” “but our intelligent design,” and the “intelligent design of our Clouds, the IBM Cloud, the Microsoft Cloud, these are the new driving forces of evolution.”
  • This centralization and monopolization of health data will give the CDC even more power and authority, and sounds like a perfect prelude to global “vaccine” passports
The CDC already rules both research and the medical profession with an iron fist and medical freedom is increasingly under fire.

Nearly every single detail about the current COVID “White House Plan” is flawed.  Walensky wants to create an even more powerful federally based health system which further forces people into a box with no options or individualization, and which would be a top down approach where independent doctors wouldn’t stand a prayer of a chance.  As it is, independent doctors who dare defy the accepted narrative are being hunted down and persecuted.  These medical renegades are branded as giving “misinformation,” and Walenski’s plan would only amplify this polarization, and would take away the already few options for desperate patients.

 

Category:

Activism, Bartonella, Ehrlichiosis, Q Fever, research, Rickettsia, Ticks, Tularemia, Viruses

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Biden’s COVID Shot Mandate for Federal Employees Cleared by US Appeals Court But White House Delays Enforcement

https://www.theepochtimes.com/us-appeals-court-clears-bidens-covid-19-vaccine-mandate-for-federal-employees

US Appeals Court Clears Biden’s COVID-19 Vaccine Mandate for Federal Employees

By Zachary Stieber

Updated: April 7, 2022

President Joe Biden’s COVID-19 vaccine mandate for federal workers is back in effect after a federal appeals court ruling on April 7.

A panel on the U.S. Court of Appeals for the Fifth Circuit entered the ruling, overturning a district judge’s earlier block of the mandate.

U.S. District Judge Jeffrey Brown, a Trump appointee, had concluded that Biden lacked the statutory authority to issue the mandate. Two judges on the appeals court panel did not directly address that matter, but found that plaintiffs, a group of federal employees, should have taken their complaints to different venues.  (See link for article)

https://childrenshealthdefense.org/defender/court-reinstates-vaccine-mandate-federal-workers-white-house-delays-enforcement/

Court Reinstates Vaccine Mandate for Federal Workers, But White House Delays Enforcement

A federal court on Thursday upheld the Biden administration’s COVID-19 vaccine mandate for federal employees, but the White House told federal agencies “procedural steps” need to take place before the mandates can be enforced.

Excerpts:

Hours after the ruling, the White House told federal agencies to hold off on reinstating the mandates that would affect about 3.5 million workers.

According to The Washington Post, White House officials cautioned “there are still procedural steps that need to take place to lift the injunction, and it’s unclear when the agencies might begin enforcing the mandate.”

Commenting on Thursday’s ruling, Mary Holland, president and general counsel at Children’s Health Defense (CHD), said:

“CHD regrets the 5th Circuit’s decision to reimpose President Biden’s COVID vaccine mandate for federal workers. We support the federal workers who continue to press their claim that an experimental gene therapy vaccine mandate is an illegitimate use of federal power.”

(See link for article)
**Comment**
The White House claims 97% of federal employees are already “vaccinated,” yet 70% of COVID cases are in the vaxxed.

_________________

SUMMARY

  • The appeals court judges (both Clinton appointees) state the employees, under the Civil Service Reform Act of 1978 (CSRA),  should have taken the issue to the Merit Systems Protection Board.
  • If the workers prevailed with their complaint, the board can then order an agency to reinstate the worker or undertake other measures.
  • Employees who disagree with this process can then appeal to the federal appeals court.
  • In other words, the employees didn’t say “mother may I” to the right bureaucrats and due to their fax pax, mandates are for the moment legally rammed through.
  • The case has been remanded to U.S. District judge Jeffrey Brown (a Trump appointee) with instructions to dismiss it.
  • Judge Rhesa Barksdale (A George Bush appointee) dissented and states the “enactment of an executive order,” in this case a “vaccine” mandate, does not constitute an adverse action subject to the CSRA and describes the case as “a pre-enforcement challenge to a government-wide policy, imposed by the President, that would affect 2.1 million federal workers including the 6,000 members of Feds for Medical Freedom.”
  • The mandate was issued when the Delta variant was circulating and data shows the shots:
The issue of the mandates exceeding the president’s authority still hasn’t been addressed.

Important quote by the dissenting Barksdale:

“Simply put, CSRA does not cover pre-enforcement employment actions, especially concerning 2.1 million federal civilian employees. The district court, therefore, had subject-matter jurisdiction to hear plaintiffs’ claims,” added Barksdale, the other judge on the panel that decided on the motion to lift the injunction.

In other words, she states the workers did the right thing by going directly to the federal appeals court.

Another great example of government bureaucrats simply kicking the football down the field to another agency rather than to making a clear and simple ruling based upon the constitution which clearly gives the individual freedom in medical decisions.

In this interview at the Defeat The Mandates rally in Washington, D.C. on January 23, 2022, Steve Kirsch stressed that the government should not dictate what people do in their own medical choices, especially given the mandated products are proven to be outrageously unsafe. Further, he brings up the important point that if the shots are so “safe and effective,” then there should be no problem with “vaccine” manufacturers being held liable for damages. As it stands, these manufacturers are completely protected and shielded legally and have no incentive to create safe & effective products.

When the pandemic hit, Mr. Kirsch put his regular business in the hands of his co-founder and fully dedicated himself to finding an effective treatment for COVID-19. Using his engineering background, he did extensive research and consulted leading medical experts on the front lines of the pandemic — contacts from his past 20 years of funding medical research for glaucoma, diabetes, and cancer.

Steve Kirsch can be found here.

Go here to sign petition:  https://jbs.org/alert/stop-forced-covid-19-vaccinations/

Category:

Activism, vaccines, Viruses

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What It’s Like When You Know You’re Sick But Doctors Can’t Tell You Why

https://www.gq.com/story/meghan-orourke-chronic-disease?

What It’s Like When You Know You’re Sick but Doctors Can’t Tell You Why

A conversation with the poet and author Meghan O’Rourke about her struggle with chronic illness—and the “silent epidemic” of chronic disease nationwide.

By Andrew Zaleski

Image may contain Human Person Back and Art
Illustration by Michael Houtz; Photographs by Getty Images

Nothing was quite so unnerving for Meghan O’Rourke than never being able to fully explain why she didn’t feel well. Throughout her 20s, she was afflicted by a variety of symptoms: stabbing sensations up and down her arms and legs, brain fog and memory problems, night sweats, gastrointestinal issues. Around 2012, when O’Rourke was in her early 30s, she grew even sicker—but her doctors, unable to find anything distinct, attributed her physical health to stress and anxiety.

“There was this strange period of trying to articulate that I’m not myself, but I can’t tell you why or what it is that is wrong,” she says. “After about 15 years of going to doctors I started to have the conviction that something, in fact, was wrong, even though no one could recognize it.”

O’Rourke recounts the history, mystery, and unraveling of her unusual health in The Invisible Kingdom: Reimagining Chronic Illness, out this week. After decades of seeking, the poet, author, and Guggenheim Fellow finally has a grasp on the cause of her own persistent sickness.  (See link for article)

___________________

**Comment**

And, you guessed it, Megan has chronic Lyme disease.  You start to identify these cases 20 feet away by the litany of common migrating symptoms, and the inevitable gas-lighting from doctors who are too lazy and indoctrinated to figure it out.

Due to the neglect from health professionals for over 20 years, Megan, like so many others, spiraled down a dark vortex with innumerable conditions that will only worsen with time. She has EDS, POTS, and Hashimoto’s – all of which are quite common with Lyme/MSIDS patients.

Key quote:

“The kinds of illnesses I’m writing about in my book are called invisible illnesses because they are hard to measure, and we live in a medical system that likes measurement,” says O’Rourke.

Truer words were never spoken.

And, because Lyme/MSIDS can’t be “measured,” patients are simply written off.

Perhaps I’m “triggered” by the word “privileged,” but the author specifically uses that power-punched, emotionally laced word to describe her position in that she had the ability to advocate for her own care while others do not.

I would argue that to get through this gauntlet you will be REQUIRED to advocate for yourself.  But, just remember, you aren’t alone. While you will have to do the heavy lifting (the torturous treatment that makes you question the importance of living) you are never alone and you don’t have to reinvent the wheel.

Lyme/MSIDS patients are some of the most selfless and knowledgable folk I’ve met, and I’m indebted to the myriad of patients that have all helped me through the years.  This is why I do what I do.  I realized a long time ago that the best help comes from other sick patients and I needed to be a part of that band. 

These sick people will listen, commiserate as no one else can, point you in critical directions, give you all sorts of intel about educated doctors, treatment modalities, where to find the cheapest drugs, other conditions to consider (mold, MCAS, pain management, sleep help, how the detox….etc.) and perhaps most important of all, they will give you hope to keep shuffling.  Having trod the pot-holed riddled road themselves, they understand the importance of persistence, as that ONE or two things that really propel you forward may take a while to discover.  This is a journey – often a long one (life-long, even) and attitude is key.  There are ups and downs, days you won’t or can’t get out of bed, and many days you spend calculating how to pay for treatment and still be able to eat.  Add children and family (even infected ones) into this mix and you have bedlam of a magnitude that’s off the Richter scale and frightening as hell.

It’s a miracle we get through it at all.  But, we do.  And you will too.  Chin up and forge forward, and don’t be afraid to ask for help. 

Category:

Activism, Lyme, Psychological Aspects

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