Archive for the ‘Lyme’ Category

How Much Undiagnosed Lyme is Driving the Chronic Disease Epidemic of Our Time?

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/33771723?

How much undiagnosed Lyme is driving the chronic disease epidemic of our time?

Carl Tuttle
Hudson, NH, United States
Aug 6, 2025

The attached photo complements this petition update and can be found here:

Children with Autism Spectrum Disorder
My son tested positive for Lyme Disease.
https://community.babycenter.com/post/a55368175/my_son_tested_positive_for_lyme_disease

Consider the following…..

“We will only treat those with a bullseye rash and/or a positive two-tier serological test. All else will filter into the healthcare system and if the spirochete is anything like syphilis left untreated it should turn into a moneymaker.”

I have heard through the Lyme community that only 15% of actual cases test positive; those with a robust immune response typically seen in the swollen knee presentation of the disease (Lyme arthritis). The 1994 Dearborn Conference established stringent testing setting the bar too high which was more likely to be positive with the swollen knee. They also removed the two most important markers (band 31 and 34. Outer surface proteins A and B)

Those markers needed to be removed for vaccine development of an OspA based vaccine because everyone who received those shots would test positive for Lyme disease.

The CDC estimates yearly cases of Lyme at 476,000

If 476,000 represents 15% of the actual cases, the other 3,173,333 filter down through the medical system to be treated for something else.

Interviewed Lyme patients in the documentary Under our Skin say the following:
 
-I was misdiagnosed with chronic fatigue syndrome
 
-I was misdiagnosed with MS
 
-I was misdiagnosed with Lupus
 
-I was misdiagnosed with Fibromyalgia
 
-I was misdiagnosed with ALS

Study detects tick-borne illness in teens hospitalized for depression
https://www.lymedisease.org/hospitalized-teens-lyme-depression/

June 10, 2021

-Ten patients were diagnosed with DSM-5 Major Depressive Disorder, seven were additionally diagnosed with Generalized Anxiety Disorder, and three had made serious suicide attempts.

-Ten adolescents picked at random with mental illness severe enough that they required institutionalization—nine of them had evidence of tick-borne infections and nine had evidence of autoimmune encephalitis

What was it that the CDC learned from the Tuskegee experiment when senator Ted Kennedy exposed the crime?

What happens when Lyme is left untreated as the Tuskegee Airman were?

There are dozens of studies from two continents identifying borrelia in the brains of Alzheimer’s patients and one NIH study claiming they could not find the Lyme disease spirochete. A coauthor of that single study is Adriana Marques, gatekeeper of who receives funding for Lyme disease research at the NIH. Marques used serology to claim there was no evidence of an association between Lyme disease and autism.

How many grants has Marques awarded to research chronic Lyme disease?

There are 700 peer reviewed studies identifying persistent infection and 2 NIH studies (by the same researcher!) that claim they could not find the Lyme disease spirochete in those treated following the IDSA’s treatment guideline.

Currently There is a Lyme disease vaccine in stage III clinical trials.

Does a chronic relapsing seronegative disease fit the vaccine model?

How do you prove vaccine efficacy in the general population if we do not know who has or does not have the infection? (immune suppressive infection)

Pfizer is using culture, PCR, DNA sequencing and serology testing in the trial participants to gauge efficacy because serology is so unreliable yet it has been the only lab test offered to the public for the past 30yrs. Let that sink in!

The current serological test for Lyme disease cannot be used to gauge treatment failure or success which makes it the ideal tool for concealing chronic infection.

Advanced Laboratory Services developed a culture test claiming 80% positive results. The CDC’s Barbera Johnson effectively put them out of business claiming contamination issues.

If that is the case why didn’t the CDC work directly with Advanced Laboratory Services to perfect their direct detection culture method?

Milford Molecular Diagnostics was working directly with the CDC on proficiency testing of their DNA sequencing test for Lyme disease. When Dr Sin Lee published a case of chronic Lyme proven through DNA sequencing all communication with the CDC ended abruptly with no explanation. As a result, Dr. Lee filed a $57.1 million lawsuit against the CDC.  Proving chronic Lyme disease threatened the existing false public health narrative.

George Mason University’s urine antigen test was eliminated from the LymeX prize competition and voted out by Adriana Marques but in the same month received a $1,176,645 grant in federal funding from the U.S. Department of the Army “to revolutionize Lyme disease detection and diagnosis with urine testing.” Many of us believed that the urine antigen test offered the best hope for the detection of Lyme in all stages of disease. Was this technology eliminated because the test threatened the existing IDSA/CDC dogma as it could detect chronic Lyme (which must never be identified) as this would expose the truth? By the way, Galaxy validation data (unpublished) shows that their Nanotrap® Urine Test will often confirm active infection in patients with negative TTT (Two-Tiered Testing) serology results.

SUMMARY

Is it possible that a large portion of the chronic diseases of our time (with no known etiology) are in fact a result of Lyme disease left untreated and there has been a concerted effort into hiding/avoiding the truth to preserve that profitable revenue stream in treating these chronic diseases? Finding the correct treatment for Lyme in all stages of disease is not in the best interest of a pharmaceutical industrial complex hell-bent on treating (not curing) with a lifetime of expensive drugs.

Carl Tuttle

Category:

Activism, Autism, Lyme

Justin Timberlake Reveals His ‘Relentlessly Debilitating’ Battle With Lyme Disease

The 44 year old singer was previously called out for cancelling multiple shows during the tour.

“If you’ve experienced this disease or know someone who has — then you’re aware: living with this can be relentlessly debilitating, both mentally and physically…

“When I first got the diagnosis I was shocked for sure.

“But, at least I could understand why I would be onstage and in a massive amount of nerve pain or, just feeling crazy fatigue or sickness.  ~ Justin Timberlake

https://www.morgellonssurvey.org/tick-in-a-box-why-didnt-justin-timberlake-get-morgellons/

Tick in a Box: Why Didn’t Justin Timberlake Get Morgellons?

 by 

Picture this: Justin Timberlake, the king of pop who brought sexy back, is out there cryin’ a river on stage during his Forget Tomorrow World Tour, but not because of a bad breakup—nah, it’s because he’s secretly battling Lyme disease, that sneaky tick-borne villain. On July 31, 2025, JT dropped the bomb on Instagram, revealing he’d been diagnosed with Lyme, describing it as “relentlessly debilitating” with nerve pain so bad it felt like his body was staging a mutiny. Fans were shocked—how did the guy who once gifted us “Dick in a Box” end up with a “Tick in a Box” instead? But here’s the real head-scratcher: JT got Lyme, but he didn’t spiral into Morgellons, that bizarre skin condition often lurking in Lyme’s shadow like an unwanted sequel nobody asked for.

Lyme disease, caused by those pesky Borrelia bacteria from tick bites, affects hundreds of thousands annually, turning everyday folks into exhausted zombies. Morgellons? That’s the plot twist where your skin feels like it’s hosting a bug rave, complete with fibers emerging like confetti from hell. Some dismiss it as delusion, but evidence ties it to Lyme. Yet, only a tiny fraction of Lyme sufferers—think 5-10%—get hit with Morgellons. JT dodged it, and we’re here to unpack why, with a dash of humor (because who doesn’t love a good JT pun?) while keeping things real about the serious stuff. We’ll break it down like one of his dance routines: smooth, informative, and with plenty of links to dive deeper, like this New York Times piece on his announcement. No medical degree required—just curiosity and a sense of humor.

Justin Timberlake isn’t just a singer; he’s a human Swiss Army knife—actor, dancer, golfer, and apparently, tick magnet. After wrapping his epic two-year tour on July 30, 2025, he hit Instagram with the news: “I’ve been battling some health issues, and was diagnosed with Lyme disease—which I don’t say so you feel bad for me—but at least I could understand why I would be onstage and in a massive amount of nerve pain or just feeling crazy fatigue or sickness.” Oof, talk about a plot twist worthy of a thriller. Fans had been whispering about his “lackluster” energy on stage, as noted in this Page Six article, but now it all makes sense. Lyme had him feeling like he’d been hit by a truck, or maybe just a very determined tick.

His symptoms? Nerve pain that could make even the toughest cry me a river, fatigue so deep it rivals a post-concert hangover, and unexplained sickness that had him questioning if he was “bringing sexy back” or just bringing sickness back. No skin drama mentioned, though—no itching, no sores, no fibers—which is why Morgellons stayed off his setlist. Support rolled in from everywhere: *NSYNC buddy Chris Kirkpatrick praised his resilience on Insta, saying it was “rare,” while Backstreet Boys’ AJ McLean dropped a “respect” bomb. Even on X (formerly Twitter), fans like TooFab highlighted the love.

JT joins a star-studded Lyme club: Avril Lavigne was bedridden for years, Bella Hadid calls it her “invisible illness,” and Shania Twain blamed it for vocal woes. Check out this Business Insider list for more celeb stories. But JT’s quick diagnosis (mid-tour, per CNN) and likely antibiotic blitz might be why he avoided extras like Morgellons. Living in tick hotspots like Tennessee or New York? Prime real estate for a “tick in a box” surprise. His transparency? Pure gold—encouraging tick checks after that golf game or hike. As USA Today notes, he’s boosting awareness big time.  (See link for article)

_______________

A few points on the article:

  • The bulls-eye rash is highly variable and many never get it.  Hardly anyone I work with sees a tick or a rash.
  • Ticks do not need 36-48 hours to transmit.  Minimum attachment time for transmission has NEVER been done.
  • Climate change has NOTHING to do with tick or tick-borne illness proliferation.  Ticks will be the last species on planet earth – vying for position with cock-roaches and IRA agents.
  • Symptoms are also highly variable and could immediately be severe – like Lyme carditis.
  • Chronic Lyme affects far, far more than 10-15%.  The literature only counts those diagnosed and treated early and completely ignores the larger subset of people diagnosed and treated late.  Add up the two groups and a whopping 40-60% go on with lingering symptoms.
  • Not all who treat with doxy for 10-21 days are ‘golden,’ and treatment failures have been found in every study ever done.
  • Sadly, those with Morgellons are gaslit even worse than Lyme/MSIDS patients.

Category:

Activism, Climate, Lyme, Morgellons, Ticks, Transmission

WSJ Says Chronic Lyme Was Once Dismissed But Doctors Are Coming Around – I Disagree

FILE_7701.pdf  Article Here

Chronic Lyme Disease Was Once Dismissed. More Doctors Are Coming Around.

Newer trials are starting to track Lyme patients and investigate potential treatments

By Brianna Abbott Jul 20, 2025

(See link above for article)

_____________

Why This Research Won’t Help Patients One Iota

By Alicia Cashman, Madison Lyme Support Group, Wisconsin

7/24/25

Summary of WSJ article:

  • A 63 year old Massachusetts woman was told in 2015 the root of her odd, flulike illness was likely Lyme disease.  (This website has hundreds if not thousands of such stories)
  • For the next decade she cycled through ‘unproven’ treatments and got push-back from doctors. (They must push the ‘not proven’ issue to keep us all from getting extended antibiotics which would make a majority of us better)
  • When MIT starting recruiting ‘people just like her,’ she felt validated.
  • The article then states ‘long COVID,’ is what is bringing chronic Lyme more credibility.
  • True to form and right on cue, long time player – Dr. John Aucott of Johns Hopkins, who has studied chronic Lyme for TWO decades but hasn’t budged the needle an inch, repeats the narrative that ‘long COVID’ has given chronic Lyme more ‘acceptance.’ (You must understand that there’s a lot of grant money for those who ignore the fact the COVID shots are likely behind ‘long COVID. It must also be stated that ‘long COVID’ looks exactly like other post-viral syndromes.) Vaccine injury gets ZERO grant money because our own government and researchers are beholden to Big Pharma. Vaccines are the cash cow of research.
    • The cat is let out of the bag on the final page of the article when it’s stated that the study includes acute Lyme and ‘long COVID’ participants.
      • First, notice that the reason we are hearing the clanging mantra of ‘long COVID’ is because it’s a part of the study. A lie can travel halfway around the world while the truth is putting on its shoes.
      • Second, notice that they are ONLY looking at ACUTE Lyme – something that’s been studied ad nauseam.  This research once again omits the sickest patients who never have any research done on them.
    • Thirdly, the cat continues to be let out when it’s stated they are looking for whether a molecule left behind could be driving inflammation.  Right there – they are admitting their bias that this is not a chronic, persistent infection that could be cured or benefitted with anti-microbial treatments.
  • The author is oblivious to the fact that Post-Treatment Lyme Disease Syndrome (prolonged symptoms for at least 6 months after treatment) doesn’t include a HUGE subset of patients who were diagnosed and treated late.  This continued regurgitated ignorance is allowing research to be skewed in favor of chronic Lyme only affecting 5-20% of patients – which is a much smaller deal than 40-60%, when those diagnosed and treated late are included.
  • The article repeats a falsehood: that in order to get Lyme one NEEDS to be bitten by a bacteria-carrying tick.  Congenital Lyme has been proven, and there is much to indicate  sexual transmition as well.
  • The reason they ignore anything but ticks is because then they can state their next falsehood, which fits the ‘climate change‘ narrative, which has been proven false by an independent tick researcher.
  • Third falsehood: a 2-4 week course of antibiotics cures the disease.
  • Fourth falsehood: blood tests can help determine if a person has antibodies against the pathogen. Seronegativity has been a big part of the Lyme debate from the beginning.
    • Part of the reason for this is the fact one of the most specific bands for Lyme was taken out of testing at the Dearborn, MI conference because it interfered with vaccine development.
    • Another reason is the fact that arbitrary levels of antibodies have been set, keeping a majority of those infected from ever testing positive.
    • Yet another reason is the fact that there has been a concerted suppression of microscopy  which is considered the gold standard for syphilis diagnostics. Similarly to the attacks on ivermectin and HCQ for COVID, ‘the powers that be’ continue to attack any test other than the CDC 2-tiered test for not being ‘FDA approved,’ even though the CDC test is not ‘approved’ either.
  • Fifth falsehood: there are no treatments that have been proven safe and effective after the initial antibiotics. My husband and I were in intense treatment for over 5 years using multiple antibiotics, among other things, simultaneously. Without this life-saving treatment I wouldn’t be writing this article today.
  • Proving that nobody’s coming around to accept Lyme Disease – read, “Gaslighting and Cults: Our Baffling Relationship With Tick-Borne Diseases,” written this past January, 2025.

This study won’t help chronically infected patients.  Don’t expect anything from this.  It’s the same crap, different day.  

For more:

Until we start OVER, and I mean from square one, research is all tainted and biased.  Don’t believe me?  Listen to Willy himself:

http://

Willy Burgforfer, Ph.D. Lyme Disease ‘Discoverer’

Category:

Activism, Lyme, Testing, Ticks, Transmission, Treatment, Uncategorized

A Masterclass on Tick-Borne Illness: Dr. Burrascano

http://  1 Hour 14 Min

Dr. Joe Burrascano: A Masterclass on Tick-Borne Illness

Jul 16, 2025
Bay Area Lyme Foundation
Dr. Joseph J. Burrascano Jr., a pioneer in the field of Lyme, began his practice in East Hampton, NY, in 1981, where he identified and detailed the clinical aspects of Lyme in a high-prevalence area. Renowned for his groundbreaking diagnostic and treatment guidelines since 1984, he has advised the CDC, NIH, and U.S. Senate, authored extensive publications, and is a founding member of ILADS, continuing to educate globally.
For more:

Category:

Lyme, Testing, Treatment

Expert Briefing on Ticks & Lyme Disease

http://

Expert Briefing on Ticks and Lyme Disease

May 29, 2025

Johns Hopkins Bloomberg School of Public Health experts Nicole Baumgarth and Thomas Hart discuss ticks and the growing threat of Lyme and other tickborne diseases.
Lyme disease is on the rise in the U.S., according to the CDC, mainly in the Northeast, Upper Midwest, and parts of the West. In 2023, state health departments reported more than 89,000 cases of Lyme disease in humans to the CDC, but the actual number of cases is likely much higher due to underreporting and misdiagnosis.
If left untreated, Lyme disease can lead to serious complications affecting the heart, joints, and nervous system. Other tickborne illnesses are also of concern, including Powassan virus and Heartland virus. There is currently no vaccine against tickborne illnesses.
Ticks Pose an Increasing Health Risk https://publichealth.jhu.edu/2025/tic…
Tickborne Diseases Are on the Rise—Here’s What To Know https://publichealth.jhu.edu/2023/lym…
Lyme and Tickborne Diseases Research and Education Institute video    • Lyme and Tickborne Diseases Research and E…  
Ticks Are Dangerous video    • Ticks Are Dangerous  
About Ticks and Tickborne Disease https://www.cdc.gov/ticks/about/index….
Lyme Disease Surveillance and Data https://www.cdc.gov/lyme/data-researc…
Lyme Disease https://www.cdc.gov/lyme/index.html
  • 00:00 Introduction
  • 01:40 What is Lyme disease
  • 04:12 Rates of Lyme disease
  • 9:10 Status of a vaccine
  • 10:30 Tracking infection rates
  • 11:25 Vaccine challenges
  • 13:30 Ubiquity of tick bites
  • 14:45 Diagnosing lesser known tickborne illnesses
  • 16:10 How to improve diagnosis
  • 19:00 Diagnosing illnesses
  • 20:10 This year’s tick season
  • 20:40 Symptoms of Lyme disease
  • 22:10 Other tickborne illnesses
  • 23:20 Dogs and ticks
  • 24:40 Ticks in the environment
  • 25:30 Preventing tick bites

_______________

**COMMENT**

Sadly, researchers continue to slice and dice this complex illness into a singular infection they call ‘Lyme disease,’ when truth be told, patients are often infected with numerous things working synergistically together, making the illness much more complex, harder to identify and treat, and much harder to overcome. So the very name, ‘Lyme disease,’ is inadequate for most patients.

I realize why they do this: due to their very specific work, they must omit variables to conduct research – at least within the current allopathic model of one drug and vaccine, for one disease.  Unfortunately, this is often not what we are dealing with at all in reality.

Category:

Lyme, research, Testing, Ticks, Transmission, vaccines