Archive for the ‘Lyme’ Category

Lyme Disease & Medical Fraud: Federal Lies, Medical Lies, and Statistics Kindle Book

By Alan Foos

https://www.amazon.com/Lyme-Disease-Medical-Fraud-Statistics-ebook/dp/B01M2679DA/ref=monarch_sidesheet  (Book written in 2016)

Millions are suffering with Lyme disease while being drained further by a predatory medical industry, criminal CDC and fraudulent pharmaceutical industry. You probably know some if you aren’t one. They’re being treated for bipolar disorder, fibromyalgia, MS, Alzheimer’s, MS, schizophrenia, personality disorder or many other bogus diseases. The money is in drugs that don’t work, especially psychoactives which in the long term will create the symptoms they are supposed to treat. If you were blind sided by Lyme, you likely lost your career, maybe your home and family. Here is how I fared for 47 years, what I learned that would have saved me all those nightmares. It would have also saved my wife who was also destroyed by Lyme disease and our three children born with it. I give you no illusions or false promises, only how I met God, fought the fight and won the game long before I found out about Lyme. Also, you may request a link to a FLIPPING BOOK online version of the book which is much easier to use. For an example of a technical flipping book I’ve written, see http://foosresearch.appspot.com

https://www.foosresearch.com/lymelikeme.html  (From 2020)

Foos writes about his long struggle Lyme disease.  This is not for the faint of heart – but no Lyme/MSIDS story ever is.  The desperation is tangibly felt, as is the cruel, abusive attitudes of clueless doctors who are much more willing to write you off as a nut-job than a person struggling with numerous pathogens – any one of which can kill you but together put you in a pit of despair so deep you wonder if you will ever be able to crawl out of it.

Foos was particularly challenged with a complete mental and physical breakdown and a near death experience. He had severe infections in his sinuses, facial tissues, legs and feet.  Struggling with involuntary facial contortions and facial agony, Foos, like so many, had to find answers for himself.  Being a biologist and soils engineer, he labored day and night slaving in the lab to learn the scientific properties of bentonite.

Category:

Activism, Lyme, Treatment

Answers Still Needed About Possible Biowarfare Connection To Lyme Disease

https://www.lymedisease.org/lyme-biowarfare-pat-smith-lda/

Jan. 10, 2022

Answers still needed about possible biowarfare connection to Lyme disease

By Pat Smith

Forty-six years after a mother alerted public health about an unknown disease affecting her Connecticut neighborhood, patients still await answers about Lyme disease and help from the federal government− little has been forthcoming.

It’s been 37 years since I first saw Lyme as a board of education member in New Jersey, and 29 years since I first contacted New Jersey Congressman Chris Smith for help regarding Lyme disease.

I approached him because my school district had many seriously ill students and staff members who could find little medical help and no assistance for disrupted educations. Congressman Smith set up a Washington DC meeting for me with CDC and NIH officials to present a report on nine Monmouth/Ocean NJ school districts in the same situation, yet no public health authorities were involved to help the districts.

Shocking devastation

Officials were shocked and could not believe the devastation I described to them. They subsequently came to NJ and did their own study of five of the school districts, which confirmed the effects on the districts and these children. Congressman Smith held a Congressional meeting in Wall Township which overflowed the room. The CDC presented its study, and I spoke at this meeting as did my daughter who was then suffering seizures from Lyme.

The CDC refused to publish its school study, continuing to tell me they would, so the LDA asked the Lyme Times [published by LymeDisease.org] to publish it a few years ago for all to read, as it had been presented publicly by CDC.

Patients and advocates have been benefiting from Mr. Smith’s efforts to help us change that situation. Working with Congressman Smith, the Lyme Disease Association has been able to get bills introduced and passed over decades; educate federal & state legislators; help set up a federal Tick-Borne Disease Working Group under the Department of Health and Human Services; help parents threatened with Munchausen-by-proxy [an accusation that the parents have made the child sick] whose children were going to be removed because of long-term treatment with antibiotics; and help doctors whose licenses were threatened for treating with antibiotics. Sadly, some parents still have had their children removed and Lyme-treating physicians continue to be harassed.

Unanswered questions

Uncomprehendingly, we are left with many asked but unanswered questions. There continues to be government resistance to solving even the most basic issues. One is the continued use of tests discussed during a 1994 meeting where dissenting researchers were refused the right to present a minority report—tests which studies have shown are less than 50% accurate, whereby a person can test negative and still have the disease. Scientists have come forth over time with tests to be examined, but CDC has appeared to have neither considered them nor recommended them for further study to our knowledge.

Why do CDC and NIH continue to rely on one set of treatment guidelines for Lyme disease which recommend (read: allow) only a few weeks of doxycycline for a complex organism such as Borrelia burgdorferi bacteria that causes Lyme disease, when there is another set of guidelines that permit doctor discretion?

Why are patients still told: it’s in your head; you need a psychiatrist; you’re cured because you had two weeks of treatment; you have to learn to live with it; don’t use alternative therapies; it’s not Lyme? (When you ask what is it, the response is a shrug.)

Why are some patients being misdiagnosed with MS, ALS, CFS, FM, lupus, ADD, RA, Alzheimer’s, and Parkinson’s which turn out to be Lyme and other tick-borne diseases apparently causing these symptoms in a number of cases?

Why are doctors who help patients get better with long-term and combinations of antibiotics still called quacks, unable to be a part of insurance plans, and subject to medical board actions?

Why is research being privately funded in prestigious institutions investigating antibiotic treatment options while the government says research is done, and that long-term antibiotics don’t work and can be harmful?

Denial of chronic Lyme

Many doctors, scientists, patients, and advocates have known for decades it’s “chronic Lyme”—persisting symptoms after short-term treatment. This occurs in 20% or more of Lyme patients−often combined with other tick-borne diseases, almost 20 of which are now found in the US, and can be acquired singly or in combinations.

Those suffering or helping these patients have been ridiculed in media over the decades, with Lyme called a housewife’s disease, a yuppie disease, mass hysteria, conspiracy theory, hoax perpetrated by those anti science.  In 2021, the “long haulers” of COVID 19 have thankfully not been scorned or shamed, why are “chronic Lyme” sufferers singled out for this abuse?

Why investigate any biowarfare origins?

The origins of COVID19 have already been investigated and linked with the NIH having been shown to have funded “gain of function” research—modifying a biological agent to confer new or enhanced activity to that agent. Why is it then a conspiracy theory to investigate the murky origins of Lyme?

Biowarfare has been out there for hundreds of years.

“Man has used poisons for assassination purposes ever since the dawn of civilization, not only against individual enemies but also occasionally against armies. However, the foundation of microbiology by Louis Pasteur and Robert Koch offered new prospects for those interested in biological weapons because it allowed agents to be chosen and designed on a rational basis.”  (F. Frischnecht, Pasteur Institute: 2003, EMBO, “The History of Biological Warfare”-see NIH website)

It’s time for government transparency. Provide whatever the truth is about tick releases and other tick-borne disease experiments that some US scientists have come forth with and that government documents appear to support

476,000 people are diagnosed and treated annually in the US according to CDC. They and the general public deserve to know what happened in the past, to aid in the search for prevention and cure of Lyme and other tick-borne diseases.

Pat Smith is President of the Lyme Disease Association, which funds research, promotes education and jointly puts on an annual scientific conference with Columbia University. From 2017-2020, she served on the federal Tick-Borne Disease Working Group.

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Category:

Activism, Lyme, Testing

When Will I Start to Feel Better?

https://www.treatlyme.net/guide/recovery-timeline-for-lyme-bartonella-babesia  Video Here

When You Might Start to Feel Better: The Lyme, Bartonella, and Babesia Timelines

In this video article, Marty Ross MD describes when you should start to feel better in your treatment. As Dr. Ross describes, it all depends on the which infections you are treating.

Resources

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**Comment**

This topic paramount, as patients desperately want their lives back.  At least I did.

I remember finding a man who was infected but had achieved his health back.  In a vast pool of sick people, he appeared to be a lone survivor.  Frantically, I emailed him for answers.  Per usual, he got right back to me with encouragement.  (This has been my experience time and time again.  Infected people “get it,” and immediately help those looking for it).

To be honest, I only remember one thing he said: “Don’t be depressed about feeling depressed.”  You may laugh, but that simple statement probably helped me more than any other advice, because this complex illness will truly sift you like wheat making you question your very sanity and your desire to continue with life.

I would compare having Lyme/MSIDS to being dropped behind enemy lines in an Arctic climate where you are given nothing but a toothpick and a shovel for survival.

I would love to say that I completely agree with Dr. Ross but it just wasn’t our experience.  Since both my husband and I are infected and have both waged this battle (and continue to wage it), I have two narratives I am quite intimate with – plus many other patients who tell me their stories.

Tracking improvement is like catching a greased pig.  Very hard to do.  Nothing about this is linear.  There are forward steps, stalls, and backward steps – sometimes within the same day!

I advise patients to keep a monthly calendar close by with lines on it for writing.  Write down your major symptoms every day.  This will really help if you are tracking others in your family as well.  If you don’t do this you will likely forget much of what you experience.

If possible, then take these notes and write or type up an executive summary noting the main symptoms.  This will help your Lyme literate doctor more than anything.  They are versed in the various symptoms and your documentation will show what infections are dominant at the time (and this varies from time to time.)

It is true that if you are not experiencing change (improvement or worsening) you are likely in a plateau which should indicate you need to change your treatment.  Be honest about this and talk with your LLMD about this so you are in agreement.  This is NOT an illness that you can just ‘trust the experts’ with.  You NEED to be a part of this unique partnership.  Admittedly, in the beginning you won’t know much and won’t be able to be much help, but in time you will become a quasi-expert.  I tell patients that doctors are experts in THE human body but you are the expert with YOUR body.  Your intel is indispensable to your physician.  If they don’t want your intel, it’s time to find a new doctor!

For more:

Category:

Lyme, Psychological Aspects, Treatment

Wilderness Medical Society Writes Clinical Practice Guidelines for TBI’s. They Also Are Wrong

https://www.wemjournal.org/article/S1080-6032(21)00163-0/fulltext

Wilderness Medical Society Clinical Practice Guidelines for the Prevention and Management of Tick-Borne Illness in the United States

Published:October 09, 2021DOI:https://doi.org/10.1016/j.wem.2021.09.001
The Wilderness Medical Society convened an expert panel to develop evidence-based guidelines for the prevention and management of tick-borne illness (TBI). Recommendations are graded based on quality of supporting evidence according to criteria put forth by the American College of Chest Physicians. The guidelines include a brief review of the clinical presentation, epidemiology, prevention, and management of TBI in the United States, with a primary focus on interventions that are appropriate for resource-limited settings.
Strong recommendations are provided for the use of DEET, picaridin, and permethrin; tick checks; washing and drying clothing at high temperatures; mechanical tick removal within 36 h of attachment; single-dose doxycycline for high-risk Lyme disease exposures versus “watchful waiting;” evacuation from backcountry settings for symptomatic tick exposures; and TBI education programs. Weak recommendations are provided for the use of light-colored clothing; insect repellents other than DEET, picaridin, and permethrin; and showering after exposure to tick habitat. Weak recommendations are also provided against passive methods of tick removal, including the use of systemic and local treatments. There was insufficient evidence to support the use of long-sleeved clothing and the avoidance of tick habitat such as long grasses and leaf litter. Although there was sound evidence supporting Lyme disease vaccination, a grade was not offered as the vaccine is not currently available for use in the United States.  (See Link for article)
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**Comment**
Any document that refuses to include ILADS material is rigged.  In the conclusion the authors admit:
The recommendations presented in this CPG are largely consistent with those presented by the CDC (https://www.cdc.gov/ticks/index.html)
In essence they are telling us they’ve used tax-payer dollars to tell us nothing new.
  • These guidelines are a regurgitation of the accepted narrative by a supposed “expert panel” whom were chosen based on interest or research experience.
  • They essentially sifted through The Cabal’s research with keywords, and then looked at existing guidelines and CDC references – all of which are stacked against patients, but of course were peer-reviewed.
  • They didn’t even address the polarity which exists in both Lyme/MSIDS research and clinical practice.
  • The first glaring misnomer & simplification is that they state the black-legged tick is only in the Eastern US, despite independent research showing migrating birds are spreading ticks globally and that patients are infected globally.
  • While there is a greater risk of being bitten at certain times of the year, you can be bitten 24/7/365.  Never forget that and never let your guard down.
  • They continue to downplay transmission if you remove the tick before 72 hours.  Don’t buy it.  I know too many who have defied this 4-cornered box, including myself.  Remove all ticks ASAP.
  • They continue to push the one-dose doxy prophylactic treatment which doesn’t work. Neither does two pills. Unfortunately, researchers still believe the EM rash is some magical symbol.  The EM rash comes and goes at will and should never be a marker for effectiveness of treatment.
  • The EM rash is a poor indicator of Lyme, and highly variable, although if you have it, you ARE INFECTED WITH LYME, no testing needed – start treatment ASAP.
  • Ironically, if the doctor can’t identify the tick, or if attachment time is unknown, they still recommend the “wait and see” approach, even though that particular refrain has caused untold damage.
  • The “experts” then give a complicated diagram showing a triage of events (many of which are faulty) leading to either remaining in the field or evacuating.  In other words, they are asking you to again trust the “experts” and their four-cornered box which has been defied again and again.
  • And lastly, and certainly expected is their belief in a Lyme vaccine as an “attractive option,” despite the fact patients have literally been maimed by it.

Category:

Lyme, Prevention, research, Treatment

BBC: Lyme Disease

http://  Interview starts approx. 2:25:39

BBC: Lyme Disease

BBC Radio London interview The FIGHT LYME NOW Campaign with NHS GP Dr. Michael Wetzler 12/12/2021

Dec. 12, 2021

BBC Radio London INSPIRIT radio show presenter Jumoke Fashola interviews Demetrios Loukas and NHS GP Dr. Michael Wetzler of The FIGHT LYME NOW Campaign.

I believe this interview is only available for 29 days.

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Category:

Activism, Lyme