https://www.treatlyme.net/guide/recovery-timeline-for-lyme-bartonella-babesia  Video Here

When You Might Start to Feel Better: The Lyme, Bartonella, and Babesia Timelines

In this video article, Marty Ross MD describes when you should start to feel better in your treatment. As Dr. Ross describes, it all depends on the which infections you are treating.

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**Comment**

This topic paramount, as patients desperately want their lives back.  At least I did.

I remember finding a man who was infected but had achieved his health back.  In a vast pool of sick people, he appeared to be a lone survivor.  Frantically, I emailed him for answers.  Per usual, he got right back to me with encouragement.  (This has been my experience time and time again.  Infected people “get it,” and immediately help those looking for it).

To be honest, I only remember one thing he said: “Don’t be depressed about feeling depressed.”  You may laugh, but that simple statement probably helped me more than any other advice, because this complex illness will truly sift you like wheat making you question your very sanity and your desire to continue with life.

I would compare having Lyme/MSIDS to being dropped behind enemy lines in an Arctic climate where you are given nothing but a toothpick and a shovel for survival.

I would love to say that I completely agree with Dr. Ross but it just wasn’t our experience.  Since both my husband and I are infected and have both waged this battle (and continue to wage it), I have two narratives I am quite intimate with – plus many other patients who tell me their stories.

Tracking improvement is like catching a greased pig.  Very hard to do.  Nothing about this is linear.  There are forward steps, stalls, and backward steps – sometimes within the same day!

I advise patients to keep a monthly calendar close by with lines on it for writing.  Write down your major symptoms every day.  This will really help if you are tracking others in your family as well.  If you don’t do this you will likely forget much of what you experience.

If possible, then take these notes and write or type up an executive summary noting the main symptoms.  This will help your Lyme literate doctor more than anything.  They are versed in the various symptoms and your documentation will show what infections are dominant at the time (and this varies from time to time.)

It is true that if you are not experiencing change (improvement or worsening) you are likely in a plateau which should indicate you need to change your treatment.  Be honest about this and talk with your LLMD about this so you are in agreement.  This is NOT an illness that you can just ‘trust the experts’ with.  You NEED to be a part of this unique partnership.  Admittedly, in the beginning you won’t know much and won’t be able to be much help, but in time you will become a quasi-expert.  I tell patients that doctors are experts in THE human body but you are the expert with YOUR body.  Your intel is indispensable to your physician.  If they don’t want your intel, it’s time to find a new doctor!

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