Archive for the ‘Lyme’ Category

More Evidence Lyme Disease Can Persist After Treatment

https://www.lymedisease.org/lyme-can-persist/

Even more evidence that Lyme disease can persist after antibiotics

1/27/26

A review of the medical literature has found long-term infection in animal models and persistent infection despite antibiotic therapy in humans with ongoing symptoms of Lyme disease. The study was published in the open access journal Advances in Infectious Diseases.

Lyme disease is a tick-borne infection caused by Borrelia burgdorferi, a type of corkscrew-shaped bacteria known as a spirochete.

In 2021, the Centers for Disease Control and Prevention announced that Lyme disease is much more common than previously thought, with over 476,000 new cases diagnosed each year in the United States.

That makes Lyme disease seven times more common than hepatitis C virus infection, 15 times more common than HIV/AIDS and 49 times more common than tuberculosis in the United States.

The current study was conducted by nurse practitioner Melissa Fesler and internist Raphael Stricker from Union Square Medical Associates, a multispecialty medical practice in San Francisco, and Lorraine Johnson, chief executive of the patient support group LymeDisease.org.

Review identifies long-term infection in both people and animals

“Our findings address a major controversy over persistent symptoms in Lyme disease,” said Fesler, an author of the published study. “The results suggest that infection with the Lyme spirochete persists in some patients despite supposedly adequate antibiotic therapy.”

Previous studies have shown that the Lyme spirochete could survive antibiotic therapy in monkeys and humans. In the present study, researchers analyzed 56 studies from the medical literature.

In 10 animal studies and 25 human studies (see table below), Lyme spirochetes were able to survive antibiotic therapy as shown by culture, tissue microscopy and xenodiagnosis (transfer of infection via tick bites).

Borrelia burgdorferi was detectable for 2-46 months after antibiotic therapy in rodents, dogs, monkeys, horses and humans.

“The presence of live spirochetes in symptomatic patients supports the role of ongoing infection in these patients,” said Lorraine Johnson. “When patients remain ill after antibiotic therapy, clinicians need to consider the possibility of persistent infection and the need for continued treatment.”

Dr. Stricker pointed to the implications for Lyme disease treatment raised by the study.

“This study is bad news for Lyme disease patients and their doctors,” he said. “We need to develop better antimicrobial treatments for these suffering patients, and we need to do it now.”

In the journal article’s acknowledgements, the authors wrote, “This article is dedicated to the memory of Pat Smith and Alan MacDonald.” Both individuals spent decades advancing understanding of the persistence of Lyme bacteria after antibiotic treatment, each contributing in their own distinct way.

SOURCE: Union Square Medical Associates

Category:

Activism, Lyme, research

Yet Another Mainstream Media Hit Piece Minimizing Lyme Disease

https://www.cbc.ca/player/play/video/9.7048962

Why do so many celebrities have Lyme disease?

January 17, 2026

Celebrity claims are fueling confusion about the risks of Lyme disease. For The National, CBC’s senior health reporter Christine Birak investigates what’s really behind the boom in high-profile cases and uncovers a big-money industry profiting off chronic illness. [Correction: A previous version of this video included images of American dog ticks. It’s been updated to include images of blacklegged ticks.]

(See link for article & video)

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**Comment**

Trust me when I say that there is far more than images of ticks that require correcting!  Senior health reporter Christine Birak has a lot to answer for in this extremely biased and faulty piece.  The controversy regarding tick-borne illness is most probably older than the journalist herself, yet she doesn’t spend even one minute on it.

While we are told that the story uncovers a ‘big-money industry profiting off chronic illness,’ such as Lyme disease, no such thing occurs.  The truly big money is controlled by Big Pharma and the Government with patent royalties, and research grants, but is never mentioned. See: https://madisonarealymesupportgroup.com/wp-content/uploads/2019/06/conflictreport.pdf

The journalist only interviews people who deny chronic, persistent infection. Never once does a Lyme literate doctor from ILADS get to present the controversy in detail, with global research demonstrating persistent infection, time and time again.

The story paints a picture that sick celebrities are taken at face value, are never questioned, and are simply poor, sorry sods who are simply wrong and not to be taken seriously.  Imagine for a moment if this same tactic was used with sick celebrities who have cancer…..

The story is nine grueling, factually inaccurate minutes I’ve taken the time to correct below:

SUMMARY

  1. Pulling a tick off before 24 guarantees nothing. Pathogens can be in the salivary glands which means transmission can and does happen rapidly.  They should have interviewed independent Canadian tick researcher John Scott.  He immediately would have set them straight on all things tick related.
  2. Early antibiotic treatment has to be early enough, long enough, and smart enough, but again, does not a guarantee a person will not develop a chronic infection requiring years of complex, expensive, and savvy treatment, not to mention the fact untold numbers are misdiagnosed or undiagnosed – making their cases even tougher because they weren’t caught early.  This large subgroup is simply kicked to the curb.
  3. There are other pathogens complicating the picture besides multiple strains of borrelia that cause disease and are transmitted by ticks.  They each require different treatments but aren’t even mentioned in this piece.
  4. The ‘experts’ that say there are ‘no risk areas’ are full of beans. To date, ticks are marching into places they’ve never been before, yet because of Andrew Spielman‘s antiquated and faulty maps of where ticks supposedly are and are not, untold numbers are being denied diagnoses and treatment.  See: the-counfounding-debate-over-lyme-in-the-south-speilmans-maps.  The fact ticks travel globally on birds,  reptiles, and mammals, as well as the fact our government spread ticks via airplane hasn’t helped either.
  5. ‘Early Lyme’ being ‘straight forward’ to diagnose is laughable.  This website has recorded story after story of those who were misdiagnosed and sent home only worsen into chronic Lyme. Doctors are still telling people with an EM rash that it’s just a spider bite, and sending them packing. In my experience, most patients have to figure it all out themselves. Lyme/MSIDS has been called a ‘do it yourself plague.’
  6. The reporter states that in 2024, Canada had 5,700 reported cases of Lyme. In the U.S. even the corrupt CDC admits that the number of Lyme disease cases is likely much higher than reported, due to under-reporting and changes in surveillance methods. In 2024 in the U.S., reported cases of Lyme disease rose from an average of about 37,000 from 2017–2019 to 62,000 in 2022. That’s an increase of nearly 70%. In order to report a case, you must meet the strict and arbitrary CDC reporting criteria using a test that is only 50% sensitive in the early phase of disease. Further, each state has their own voluntary reporting standards and ‘low incidence’ states are held to a stricter standard by having to show not only positive lab evidence, but clinical info which puts a heavy burden on local health officials. Lack of awareness and under-diagnosis is still a known long-standing issue for many states including California. You can’t count something that hasn’t been reported and you can’t report something you aren’t educated about. Due to these issues, the CDC includes insurance claim data to estimate cases. In 2021, there were 24,611 cases reported but the CDC estimated the actual number to be 476,000.  In the past, the CDC has said that Lyme disease cases are underreported by a factor of 10, which if used for 2024 – would total 620,000 annual cases.  Source Hopefully, it’s clear to see all of this is very unclear!
  7. Chronic Lyme is recognized by science, but you have to depart from IDSA ‘approved’ science, look at the global science, and realize Lyme/MSIDS will never fit neatly into a large randomized controlled trial (RCT). RCTs were designed for standardized drug testing, not complex, multi-systemic conditions such as Lyme/MSIDS.  This is something ‘mainstream’ medicine refuses to acknowledge, and the media blindly follows. Lyme science has been rigged from the get-go and continues to entirely omit the sickest patients due to how they create the study design for research.
  8. The doctor who spoke in the news story, Dr. Paul Auwaerter of Johns Hopkins has a long, known history of denying chronic Lyme. He only presents one side of a very disputed coin. To only choose to represent one side and over emphasizing that there’s a ‘whole industry created for chronic Lyme that’s taking advantage of people’ is not only unethical from a journalistic perspective, it ignores people like me, my husband, and virtually every single patient I work with who very well might be dead without this life-saving treatment.  Unconscionable.  
  9. All independent testing is presented as quackery – a long used trick of the establishment to monopolize testing. Cabalists spout ‘unvalidated’ test, as if there’s a true gold standard.  Make no mistake, currently ALL testing for tick-borne disease is abysmal – and everyone knows it until biased pieces like this are presented and they revert back to regurgitating and not thinking.
  10. Since the report is made by CBC News in Canada, they should have at least interviewed Vett Lloyd, a biology professor at Mount Allison University in New Brunswick, who says most Lyme cases are missed with the standard test. She co-authored a study  with Dr. Ralph Hawkins, a clinical associate professor at the University of Calgary, using data from New Brunswick where they found the two-tiered tests miss 90 per cent of real Lyme infections. In Ontario, she says about 80 per cent of cases are missed.
  11. Current testing relies upon measuring antibodies that take 4-6 weeks to develop, can not distinguish between active infection from prior exposure or measure response to treatment.  The window for accurate testing is so small that only a handful of those infected are getting positives.  Trust me, there’s few false negatives. As Dr. McDonald aptly states:

    “If false results are to be feared, it is the false negative result which holds the greatest peril for the patient.” –Alan McDonald, Pathologist

  12.  Cabalists admit early diagnosis and treatment is best as the infection worsens with time, so how does a test that takes over a month to work help at all?
  13. A gold standard culture method test did exist but was disappeared due to the CDC testing monopoly.  There’s been a long and concerted effort to suppress direct detection tests.  In 2025, a study showed two investigational diagnostics outperform current tests for early detection yet nothing changes.
  14. The same doctor would rather regurgitate the long-held Cabalist phrase of ‘medically unexplained symptoms,’ (MUS) as the cause of why people are unwell than dare to even consider tick-borne infections and learn from ILADS.
  15. The journalist continues following the Cabalist MO when she makes sure to politely empathize that there are sick people who feel dismissed by the system, but that ‘private testing’ comes with significant risk – and then cites a paper done with the same faulty study design by none other than Dr. Paul Auwaerter, the same doctor who denies chronic Lyme and uses the MUS diagnosis so freely.  Seeing a trend yet?
  16. Treatment for early Lyme disease is not so ‘simple,’ due to the fact that many continue with symptoms – proving it’s obviously not working! Not to mention treatment failures have been seen in nearly every antibiotic study ever done. 
  17. It is not rare to have chronic Lyme when you consider the fact researchers only count those who are diagnosed and treated early into this group. When you add in those diagnosed and treated late, a whopping 40-60% go on to suffer long-term symptoms.
  18. The piece uses the infamous Cabalist term ‘Post Treatment Lyme Disease Syndrome’ (PTLDS) which is horribly inaccurate, and faulty to the core. Then, while stating it’s ‘incurable,’ the report bashes alternative treatments and gives the ancient yet faulty 2001 Klempner study as ‘proof’ long term antibiotics don’t work and carry significant risks. In other words, just accept your sad, sorry lot, stay sick, and die already.
  19. The piece finishes with stating the media needs to be more critical of extremely ill celebrities who claim they have Lyme disease – as if being sick isn’t hard enough! Imagine if this was posited for cancer patients!  Can you even imagine?  Yet, it’s perfectly fine to dismiss Lyme/MSIDS patients.
  20. Another issue completely bypassed by this piece is that due to the controversy, doctors are too afraid to diagnose and treat patients, giving yet another reason for massive underreporting. For decades doctors have had to close their practices or have been sanctioned and have had to pay hefty fines.  My own doctor went through this gauntlet, paying 50K to protect his practice.  This is why LLMD’s do not accept insurance.  It’s quite often the insurance companies turning them in.  All of this plays a part in this Shakespearian like tragedy and should be fairly represented.

It’s high time the media wakes up and smells the coffee.  There was once a time when journalists endeavored to be unbiased, present the various sides of a story, and let the reader/viewer come to their own conclusions.  Sadly, those days appear to be long gone.  My journalism profs are rolling over in their graves.

 

 

 

 

 

 

 

Category:

Activism, Lyme, research, Testing, Ticks, Transmission, Treatment

A Blind Spot on Autism

https://www.lymedisease.org/autism-infectious%E2%80%91disease-lens/

Looking at autism through an infectious‑disease lens

The following excerpt comes from A Blind Spot on Autism. The book is co‑authored by Debbie Kimberg, a mother and advocate whose writing for LymeDisease.org has chronicled her son’s improvement after treatment for vector‑borne infections including Borrelia, Bartonella, and Babesia. She partners with Dr. Ed Breitschwerdt, one of the world’s leading Bartonella researchers. Together, they blend lived experience and scientific expertise to explore biological patterns they believe have been overlooked in autism research.

By Debbie Kimberg and Dr. Ed Breitschwerdt

Article Excerpts:

From the moment we step into a doctor’s office, we’re taught to think of health problems as separate boxes. A child’s learning issues go to a specialist for educational testing. A sibling’s anxiety is treated by a mental health professional. A parent’s autoimmune disease is managed by a rheumatologist. A grandparent’s memory loss goes to neurology.

Medicine is organized this way.

This book brings together two perspectives rarely combined: the lived experience of navigating these patterns as a parent and patient advocate, and the decades of research from one of the world’s leading infectious disease experts. Our goal is not to dismiss the work already done on autism, but to attempt to connect the dots between existing research that has remained scattered across a thousand scientific papers, often among different fields of study. When viewed together, these studies point toward a hypothesis that could explain both the near-exponential rise in autism cases and the convoluted web of health problems in so many families.

This is not the first time medicine has been blindsided by an invisible infectious cause. History is full of examples where an infectious trigger hid in plain sight for decades before science caught up. Syphilis was once thought to be a mysterious neurological illness, ulcers were blamed on stress, and HIV was first recognized only by its complications. Each time, the truth emerged slowly, in pieces, and often against the resistance of the medical establishment.

….Bartonella species may represent one of the most stealth and dangerous pathogens seen in generations, pathogens that have been allowed to spread silently, reshaping the health of millions without recognition.  (See link for article & ordering info)

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**Comment**

Sadly, autism is only one such illness with an infectious connection.  In this study, it was found that 92% of pediatric bip0lar disorder had tick-borne infections exposure.  PANS is connected with Lyme and mycoplasma.

For more:

 

Category:

Autism, Babesia, Bartonella, Lyme, Uncategorized

Lyme Community Loses Three Leaders and Friends

Lyme Community Loses Three Friends

The Lyme community has recently lost three trail blazers: Dr. Alan B. MacDonald (pathologist), Dr. Alex Shikhman (rheumatologist & advocate), and Dr. Charles Crist (physician & advocate).

RIP – you will all be greatly missed.

 

Category:

Activism, Lyme

How Ticks Became Bioweapons

https://spectator.com/article/how-ticks-became-bioweapons/

How ticks became bioweapons

By Kris Newby

1/19/26

On December 18 last year, Donald Trump signed into law an order to “review and report on biological weapons experiments on and in relation to ticks [and] tick-borne diseases.” The investigation is long overdue but even so, the facts it uncovers will come as a shock to many. A growing body of evidence shows that during the Cold War ticks were tinkered with and used as delivery mechanisms for biological warfare agents. And these weaponized ticks may have been released both intentionally and unintentionally on an unsuspecting public by the US military.

Ticks and the diseases they transmit (such as Lyme) pose a growing threat to Americans, the military and to agriculture. Record numbers of tick bites have been reported in New York (in 2024), Maine (in 2024), and Wisconsin (in 2023). The Centers for Disease Control and Prevention estimates approximately 500,000 new cases of Lyme disease annually. About one-third of patients do not respond to recommended treatment protocols.

Bioweapons specialists infected ticks with pathogens to cause disabilityand death to potential enemies

If these microbes have been genetically altered, we need to know. If the military harmed civilians through irresponsible experiments, the government has an obligation to acknowledge and remedy those harms. And if the original outbreak near Lyme, Connecticut, in the 1970s resulted from a hostile foreign act, future biosecurity protections must be strengthened. Knowing the root cause of an epidemic is vital in developing treatment strategies, containing the outbreaks and preventing future ones. And then there’s the issue of what else ticks may be carrying. (See link for article)

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**Comment**

Sadly, Newby propitiates the ‘climate change’ myth regarding tick and disease proliferation.  This is a key point as there are only so many research dollars which are highly sought after.  By perpetuating a myth, we purposely limit those funds even further by funding research that has already been proven false.

The article does, however, go through the chronology of tick research as well as the fact researchers dropped these infected ticks on unsuspecting populations (Operation Mongoose, etc.)

Important excerpt:

….documents obtained by the CIA during the Cold War showed that the Soviets were conducting bioweapons-related experiments on ticks, including exploring ways to get ticks to reproduce more rapidly, selectively crossbreeding tick species so they could carry disease agents that caused tick-borne encephalitis and dropping infected ticks from aircraft and balloons. Intelligence reports on “entomological warfare” stoked fear and paranoia in the Pentagon, and the Cold War bug-borne weapons race began.

For more:

 

Category:

Activism, Lyme, Ticks