Archive for the ‘Lyme’ Category

104 Degree Fever For 8 Days – Interview With Child on Lyme Disease

https://www.cbc.ca/listen/live-radio/1-29/clip/15787307

Information Radio – MB with Marcy Markusa – July 15, 2020

11-year-old wraps up her long battle with Lyme Disease . . . with a party!

A wrap party to mark the end of a long fight. After facing over 1,000 treatments, 11-year-old Emily Arsenault tells guest host Pat Kaniuga about her battle with Lyme disease and why she wanted to throw a party to mark her recovery.

Emily struggled with rage, high fever, and a stiff neck.  She’s not alone.  Very few things cause a stiff neck – it’s a hallmark symptom of Lyme disease.

For more:  https://madisonarealymesupportgroup.com/2015/10/18/psychiatric-lymemsids/

https://madisonarealymesupportgroup.com/2018/04/15/ld-the-brain-podcast-with-dr-bransfield/

https://madisonarealymesupportgroup.com/2017/10/01/panspandas-steroids-autoimmune-disease-lymemsids-the-need-for-medical-collaboration/

https://madisonarealymesupportgroup.com/2020/03/24/is-your-child-crazy-or-sick-mental-illness-vs-medical-disorder/

https://madisonarealymesupportgroup.com/2019/09/05/school-nurse-documents-nineteen-lyme-disease-case-studies-misdiagnosis-is-rampant/

https://madisonarealymesupportgroup.com/2019/03/26/study-says-only-about-18-of-children-with-lyme-recall-tick-bite/

 

 

 

Summer Reading: ‘Lyme And Not the Fruit: The Battle of the Tick and How I’m Not Letting It Win’

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Lyme, and Not the Fruit: The Battle of the Tick and How I’m Not Letting It Win

By Peyton N. Leonard, author, composer, actress

Kindle Edition

Lyme sucks! Many struggle with ways to handle it – understandably. Lyme is the fifth most common disease in the U.S. and the only treatment is antibiotics, which don’t always kick it in the butt. Many suffer from chronic pain, fatigue, and downright hopelessness. I certainly would know, but God, my family, and the different techniques I’ve learned have all helped me to persevere. I hope this book will encourage you to do the same.

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**Comment**

Great summer read that you can get for FREE by signing up for a Kindle Unlimited 30 day trial (which will automatically renew for $9.00/mo) OR only pay $2.99 for the Kindle price.

Go here:  https://www.amazon.com/Lyme-Not-Fruit-Battle-Letting-ebook/dp/B01J9EQFPG

For more on Peyton: https://peytonnaomileonard.com/about

Can I Catch Lyme Disease Without a Tick Bite? 3 Alternative Ways of Transmission

https://www.bca-clinic.com/can-i-catch-lyme-disease-without-a-tick-bite-3-alternative-ways-of-transmission/

Can I Catch Lyme Disease Without A Tick Bite? 3 Alternative Ways Of Transmission

As awareness of Lyme disease as a public health threat increases, so does the concern around its transmission and treatment. People are starting to realise the very real danger of Lyme infection, and they have a lot of questions, especially around alternative ways Lyme disease is transmitted.

Understanding the basics of Lyme transmission, diagnosis and treatment can go a long way in helping allay fears around this increasingly common disease. Let’s break down some of the most popular questions people have about Lyme disease.

How do you catch Lyme disease?

Lyme disease is a bacterial infection caused by a corkscrew-shaped bacterium known as Borrelia burgdorferi. It is typically transmitted to humans by Ixodes ticks, also known as black-legged or deer ticks. When ticks feed on rodents, other small mammals or certain birds that are infected with Borrelia burgdorferi, the ticks themselves become infected. When a tick carrying Borrelia burgdorferi bites a human, the bacterium spreads from the tick to the bitten human, leading to Lyme disease.

Can you catch Lyme disease without a tick bite?

Although far less common than tick bites, there are some additional ways that Lyme is transmitted. Here are three alternative ways of transmission:

  1. During pregnancy

There is some evidence that Lyme disease can spread from a woman who is pregnant to her placenta, leading to potential complications. However, it appears that these problems can be avoided when the Lyme-infected mother receives antibiotic treatment for her Lyme disease. Lyme disease has not been found to be transmitted through breast milk.

  1. Through a blood transfusion

Scientists have determined that the bacteria responsible for Lyme disease can live in the blood of an actively infected person even after it has been drawn and placed in storage. Although there are no known cases of Lyme infection through a blood transfusion, a person with Lyme disease who is receiving treatment should not give blood. After antibiotic treatment has been completed, however, Lyme patients may be eligible blood donors.

  1. During sex

Scientists are very much at odds over whether Lyme disease can be transmitted sexually. While some research indicates that Lyme bacteria may be passed from person to person during sex, the Centers for Disease Control (CDC) states that there is no credible evidence supporting the claim that Lyme disease can be transmitted through sexual contact.

What should you do if you’ve been bitten by a tick?

Because tick bites are the main way that Lyme disease is transmitted, taking precautions to avoid being bitten can be your first line of defence. Some of the ways to protect yourself from ticks are:

  • Avoid wooded areas, long grass, fallen logs and other tick habitats.
  • If you’re going to be in an area where you may be exposed to ticks, dress protectively. Wear a hat, long-sleeved shirt and long trousers tucked into your socks. If you have long hair, pull it back.
  • Use tick repellent. Active ingredients that have been shown to repel ticks include DEET, picaridin and lemon eucalyptus.
  • Check for ticks periodically while outdoors, and take a shower as soon as you get home.

If you’ve been bitten by a tick, do your best to remain calm. Avoid methods like smearing Vaseline on the tick or burning it with a match, as neither of these works to remove the tick. Instead, follow these steps:

  • Take care to avoid squeezing or squashing the tick.
  • Using a tweezers with a fine point or a special tool designed to remove ticks, grasp the tick as close to your skin as possible.
  • Steadily and firmly pull the tick straight out.
  • Once the tick is out, disinfect the bite area and wash your hands thoroughly.
  • Place the tick in a small bottle or plastic bag. If it’s still alive (which is preferable for identification purposes), add a small green leaf or damp tissue to the container.
  • Explore your options for having the tick tested.

    How do you know if you have Lyme disease?

    After you’ve been bitten for a tick, it’s important to watch for symptoms of Lyme disease so you can seek treatment as soon as possible. Symptoms of early Lyme disease include:

    • An expanding red rash that sometimes resembles a bullseye or target
    • Headaches and neck stiffness
    • Fever
    • Fatigue
    • Joint pain and swelling
    • Weakness or paralysis of facial muscles
    • Lightheadedness or fainting
    • Heart palpitations or chest pain

    Seek medical attention immediately if you experience any or all of these symptoms of Lyme disease. The sooner the disease is diagnosed and treated, the better the chances of treating it successfully.

    Knowing you’re at risk for Lyme disease can be scary, especially when the disease seems to be spreading so rapidly. But arming yourself with knowledge about Lyme disease and the different ways it’s transmitted can help you be more aware of what you need to do to protect yourself.

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**Comment**

The same CDC that is spreading misinformation about COVID-19 has been spreading misinformation about Lyme/MSIDS for 40 years.  

A nurse uncovered 33 years of congenital transmission in the research:    https://madisonarealymesupportgroup.com/2018/06/19/33-years-of-documentation-of-maternal-child-transmission-of-lyme-disease-and-congenital-lyme-borreliosis-a-review/

A dermatologist from South American took it upon himself to document evidence for sexual transmission:   https://madisonarealymesupportgroup.com/2018/02/06/lyme-in-the-southern-hemisphere-sexual-transmission/

A gynecologist‘s perspective:  https://madisonarealymesupportgroup.com/2020/07/12/can-lyme-be-sexually-transmitted-or-passed-on-to-a-fetus/

My story – initially symptoms were all gynecological: https://madisonarealymesupportgroup.com/2017/02/24/pcos-lyme-my-story/

A recent study showing strong evidence for sexual/congenital transmission:  https://madisonarealymesupportgroup.com/2020/06/12/formidable-evidence-for-sexual-transmission-of-lyme-disease-first-study-to-document-aca-rashes-in-canadian-patients/

Pilot study demonstrates sexual transmission:  https://madisonarealymesupportgroup.com/2019/05/11/lyme-found-in-genital-lesion-sexual-transmission-studies-screaming-to-be-done/

Phd’s, with a specialty in cell-wall deficient form of Bb, believes Lyme is sexually transmitted:  https://madisonarealymesupportgroup.com/2019/04/02/transmission-of-lyme-disease-lida-mattman-phd/

https://madisonarealymesupportgroup.com/2019/05/24/microbiology-professor-im-convinced-lyme-disease-is-transmittable-from-person-to-person/

A microbiologist’s perspective:  https://madisonarealymesupportgroup.com/2020/04/19/letter-to-chronic-lyme-denialists-from-a-microbiologist/

FREE: Live Lyme & Sleep Webinar (7/22/20)

https://rawlsmd.com/webinars/lyme-sleep/

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Lyme & Sleep with Dr. Bill Rawls

Wednesday, 7/22 at 8pm EDT (LIVE)

When you have Lyme disease, the pursuit of sleep can become your white whale: You know you need it to help your body heal, and yet sleep evades you each time your head hits the pillow — even when you’re bone-tired and doing everything right to bring on slumber.

Why is sleep dysfunction so common among Lyme patients, and what can you do to get the restorative rest your body needs to fire up its natural healing processes?

Join a live webinar with Dr. Bill Rawls, author of the bestselling book Unlocking Lyme, who knows firsthand what it’s like to live with chronic Lyme disease and related sleep issues. He’ll shed new light on how Lyme sabotages sleep on a cellular and hormonal level, and share natural ways to simultaneously support your recovery and cultivate much-needed sleep.

PLUS: Don’t miss an exclusive gift for webinar attendees, and have your questions ready for a LIVE Q&A on Lyme and chronic pain with Dr. Rawls.

Dr. Rawls will discuss:

  • Why sleep dysfunction is both a key component of Lyme disease and an obstacle to recovery
  • How it’s possible to feel completely exhausted at night and yet still struggle to sleep
  • Hidden sleep disruptors we encounter every day
  • The 6 key steps to reclaiming restorative rest
  • The best herbs and natural remedies that do the double duty of encouraging Lyme recovery and cultivating normal sleep 
  • Numerous insights during the live Q&A with Dr. Rawls

(To reserve your seat, click on top link)

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For more:  https://madisonarealymesupportgroup.com/2019/12/18/5-tips-to-calm-a-restless-mind-before-going-to-sleep/

https://madisonarealymesupportgroup.com/2018/04/20/a-remedy-for-lyme-related-insomnia/

https://madisonarealymesupportgroup.com/2018/08/23/sleep-sweet-sleep/

https://madisonarealymesupportgroup.com/2018/04/02/cant-sleep-18-plants-herbs-can-help/

 

 

 

 

 

 

 

Cavalier Attitude Towards Lyme Infection is Misplaced

https://danielcameronmd.com/lyme-infection/

CAVALIER ATTITUDE TOWARDS LYME INFECTION IS MISPLACED

man with lyme infection looking up in woods

Some medical professionals and their patients have dismissed Lyme disease, believing the prevalence and potential damage a Lyme infection can cause is over-exaggerated. But what happens if your family is directly affected? A researcher from the University of Pennsylvania shares his story “Lemons and Lyme” in the Journal of the Pediatric Infectious Diseases Society.

“One day, when traveling in California for a meeting, I received a call informing me that one of my sons, then aged 39, had been walking his dog when he collapsed into unconsciousness with a heart rate of 35/minute and had been taken to a local hospital,” writes Plotkin.¹ A Lyme infection was suspected.

His son was diagnosed immediately by a cardiologist familiar with Lyme disease.

“My son Alec received a pacemaker and, of course, an intravenous antibiotic,” writes Plotkin. “Fortunately, he has recovered, but his experience convinced me that a cavalier attitude towards Lyme infection is misplaced.”

Furthermore,

“An aspect of Alec’s case is instructive in that he was not exposed in the woods or someplace where ticks are an obvious hazard but within sight of his own house.

Some people don’t get Lyme disease until they GET Lyme disease.

References:
  1. Plotkin SA. Lemons and Lyme. J Pediatric Infect Dis Soc. 2018;7(4):267-269

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**Comment**

I’m thankful this medical professional had the cajoles to admit this.  In time, the treatment of Lyme/MSIDS will get the proper attention it deserves – if only due to the fact it is going to affect so many people it will become undeniable.  

Another important point is that this man’s son was treated with IV antibiotics – a treatment that has been put unfairly under the microscope and bad-mouthed by “authorities”:  https://madisonarealymesupportgroup.com/2017/06/23/no-bias-in-mmwr-for-any-other-infectious-disease-requiring-iv-antibiotics-except-for-lyme/  In short, the CDC cherry-picked 5 cases that had poor outcomes using IV therapy and then wrote a paper scaring the bejesus out of doctors. They clearly wanted to send a strong message to doctors that this therapy is unsafe.

What’s interesting about the MMWR paper is that one of the authors, a CDC epidemiologist, allegedly solicited IDSA doctors for evidence of harm from IV antibiotic treatments, essentially bribing them by offering co-authorship of the report if anecdotes were used. No such solicitation was made for IV treatment success stories.  There has been hot debate on Lyme treatments for decades. The MMWR paper is only one example of bias which is embedded within the CDC. There are many success stories using IV therapy by a Wisconsin Doctor and IDSA founder who disagreed with his colleagues on how to treat Lyme disease. https://madisonarealymesupportgroup.com/2020/04/26/cdc-playbook-learning-from-lyme/

How many patients would have died without this life-saving therapy?  God only knows, but “authorities” are up to their old tricks with COVID-19 as well – badmouthing any treatment that competes financially with their own (they do this with testing too):  https://madisonarealymesupportgroup.com/2020/06/06/fraudulent-hcq-covid-19-study-in-lancet-exposed/

https://madisonarealymesupportgroup.com/2020/06/02/successful-covid-19-critical-care-stonewalled-by-cdc/

There are many who would profit from this treatment but due to this biased paper and the propaganda it promotes, most doctors are scared to death to treat patients with IV antibiotics. This is just another great example of how doctors who treat Lyme patients have been singled out and crucified on the Lyme crucible and how politics has driven science.

But wait!  This is happening to doctors who speak out on the COVID-19 narrative as well:  https://www.startribune.com/sen-scott-jensen-says-complaints-about-covid-19-comments-may-be-political/571650782/  Dr. Jensen, also a senator, now finds himself a subject of a state medical board investigation after he spoke out on how hospitals are essentially being bribed to code deaths COVID-19:  https://madisonarealymesupportgroup.com/2020/04/11/hospitals-paid-extra-to-list-patients-as-covid19-3x-as-much-if-the-patient-is-on-a-ventilator/

This type of censorship seems to be the new normal.

For a great read on chronic Lyme: https://madisonarealymesupportgroup.com/2020/04/19/letter-to-chronic-lyme-denialists-from-a-microbiologist/

Some people are so biased they couldn’t hear truth if it slapped them in the face. They don’t care if there’s a back-story of corruption – if all the research has been rigged for a predetermined outcome.  All they believe in is placebo-controlled, randomized trials in black and white.  Unfortunately, regarding Lyme/MSIDS, those too have been corrupted by “scientists” with conflicts of interest that reads like a rap sheet:  https://madisonarealymesupportgroup.com/2017/01/13/lyme-science-owned-by-good-ol-boys/

And recently, regarding COVID-19, we’ve learned that in fact scientists can be flat-out wrong, have conflicts of interest, AND lie:  https://madisonarealymesupportgroup.com/2020/06/06/fraudulent-hcq-covid-19-study-in-lancet-exposed/

Regarding research on Lyme treatment, many crucial nuances that will determine outcome – just like with COVID treatment, are not followed in study parameters – which will purposely give a poor outcome:  https://madisonarealymesupportgroup.com/2019/02/22/why-mainstream-lyme-msids-research-remains-in-the-dark-ages/

Hopefully, these facts are enlightening you to the fact that authorities and science are not to be solely trusted.  Both are being used right now to sway people – rather than remaining objective.

Question everything and run things by your practitioner(s) who is/are working on the front-line. Get numerous opinions and then use your God-given brain to make decisions.