Archive for the ‘Activism’ Category

Can Lyme Steal Your Mind?

http://www.amenclinics.com/blog/can-lyme-steal-your-mind/?trk_msg=RV5QQ65CCVI4R57CV8PGKSB054&trk_contact=25HN640GN6IROQPP74BMQNTCPG&trk_sid=S1OO3ABQL8T30RUK21RS5028SG

Can Lyme Steal Your Mind?

can lyme steal your mindAdrianne was normal until the age of 16 when she went on a mountain vacation with her family. When they arrived at the cabin near Yosemite they were surrounded by 6 deer. It was a beautiful moment.

Ten days later Adrianna became agitated and started having auditory hallucinations. Her family brought her to a psychiatrist who diagnosed her as psychotic and prescribed medications, which didn’t help. The next 3 months were a torturous road of different doctors, multiple medications, and a cost near $100,000. Adrianna had become a shadow of her former self.

Desperate, her parents brought her to Amen Clinics for a scan. Her scan showed areas of unusually decreased activity. It caused our physician to look deeper at the potential causes of Adrianna’s symptoms, such as an infection or toxicity. It turned out she had Lyme Disease. After antibiotics, she got her life back.

Lyme Disease is on the Rise

The Lyme disease (LD) infection rate is increasing. It is the most commonly reported tick-borne illness in the United States.

Public health officials report between 30,000 and 36,000 cases of the disease a year. According to the Center for Disease Control, LD is now present in nearly half of U.S. counties in 43 states, a leap of nearly 45% since 1998.

What is Lyme Disease?

According to the CDC, “Lyme disease is caused by the bacterium Borrelia burgdorferi and is transmitted to humans through the bite of infected black legged ticks.” These ticks are mostly found in the Northeast and Mid-Atlantic states, the northern Midwest and the West Coast, and are often found on white-footed mice and white-tailed deer living in woods and high grass areas. Interestingly enough, Lyme disease was named after Lyme, Connecticut in 1975, the town where it was first identified.

Lyme disease can be effectively treated and cured

Doctors faced with treating the disease in early stages can successfully cure it with the use of antibiotics. Unfortunately, LD can be misdiagnosed because some doctors are not familiar with it. For those who feel they may have the disease, it is best to be diagnosed and treated by a Lyme Literate Medical Doctor that may likely to be a member of ILADS, the International Lyme and Associated Disease Society.

Symptoms may start with flu-like feelings such as fever, chills, sweats, possibly muscle aches, fatigue, nausea or joint pain. Physical symptoms often begin with what may look like a bull’s eye rash and in some cases even Bell’s Palsy (facial drooping). An even bigger problem, there may be no indication of a bite at all, which is a reason why Lyme disease may not be suspected. See some of our research on LD, click here.

Lyme disease is hard to detect

The disease has a way of manipulating the brain into thinking you’re not sick, as it slowly starts to work on neurological functions. LD is known as the great imitator because it can mimic various disorders such as Arthritis, Chronic Fatigue Syndrome, Fibromyalgia, ALS, ADHD, and Alzheimer’s disease, just to name a few.

Even in later stages of the illness, LD can be treated. However, some may have symptoms that can linger for months or even years following treatment. In some instances, people experience memory loss, depression, anxiety, trouble focusing, emotional tantrums, or personality changes. Many find themselves suffering, not understanding why they can’t seem to get better until they are finally properly diagnosed and get the treatment needed to become healthy.

How to protect yourself from Lyme disease

Protect yourself, children and pets against LD by avoiding areas where deer tick live, such as wooded bushy areas with long grass. You can also decrease your chances of getting LD by covering up, using insect repellant, clear brush or tick enticing areas, and remove ticks immediately with tweezers. The ticks are most active in May, June, and early July.

Parents may have concerns because children are affected with the disease more often than adults, but neurological symptoms of late-stage Lyme disease are found to be rare in children.

The first step in any healing process is an accurate diagnosis. If you or someone you know may be experiencing symptoms of Lyme disease, call us today at (888) 288-9834 or visit our website to schedule visit and find out more about how we can help.

 **Comment**
I am so thankful that the psychological/psychiatric issues of Lyme/MSIDS are being discussed much more of late.  Unfortunately, many doctors and therefore the public believe that this complex illness is nothing more than a little fatigue and joint pain.  While some may present that way, there are many more that present with neurological, gynecological, cardiac, muscular, vision, psychiatric, GI, and tendon issues (and more I’m forgetting).  Probably the least talked about is the psychiatric aspects – which is probably the reason these patients in the past were told they were delusional and making things up.  The symptoms are so unbelievable that I like to tell folks,
“You don’t get Lyme until you GET Lyme.”
Confession time:  Before I became infected I viewed my husband through a different lens.  My workaholic, type A, responsible, strong husband cried frequently, sat on the couch for hours playing “Candy Crush,” and limped.  He started drinking vodka secretively at night to get to sleep.  He was flushed all the time and slept most of the day and roamed the house like a zombie at night.  His speech was slurred.  He heard voices.  Once, he opened his mouth to speak and complete gibberish came out.  He developed rage and could not handle any sort of stress.
Then I started with symptoms.  My lens shifted as I finally understood as it was happening to me.
If your spouse, loved one, friend, or patient opens up and starts telling you bizarre symptoms, please don’t write them off.  It is my belief that many commit suicide after years of being marginalized.  They aren’t listened to, believed and validated.  They become isolated and deal with anxiety.  Some are so afraid, they take hours to work up the courage to go to the grocery store.
https://madisonarealymesupportgroup.com/2015/10/18/psychiatric-lymemsids/ An in-depth article on psychiatric symptoms.  Dr. Bransfield is an expert in this area.  Dr. Marke has done wonderful work as well.
https://madisonarealymesupportgroup.com/2017/01/17/lymemsids-and-psychiatric-illness/  Dr. Marke gives a lecture to psychiatrists which I highlight.
https://madisonarealymesupportgroup.com/2017/07/12/suicide-and-chronic-lyme-disease/  A therapist speaks who specializes in helping those with chronic Lyme/MSIDS.

Wisconsin – 117% Increase in Human Version of Mad Cow Disease

In a recent article by Dr. Mercola,  http://articles.mercola.com/sites/articles/archive/2017/07/25/chronic-wasting-disease.aspx?utm_source=dnl&utm_medium=email&utm_content=art3&utm_campaign=20170725Z1_UCM&et_cid=DM152228&et_rid=2092836335,  statistics reveal there is a a 117% increase in Wisconsin and an 85% increase in the U.S. of the human version of mad cow disease, Creutzfeldt-Jakob, which is a contagious neurological disease caused by eating beef contaminated with brain, spinal cord or other central nervous system tissue from infected cattle.

Now the Canadian Government is warning that chronic wasting disease (CWD), a similar disease found in the deer family may jump to humans as well.  Both mad cow disease and chronic wasting disease cause transmissible spongiform encephalopathies (TSE).

The deer family is also known to pick up hitchhiking ticks and carry them long distances.

This warning is due to a study which found CWD was transmitted to three out of five macaque monkeys infected with white tail deer meat.  There is also a systematic literature review showing CWD could also be transmitted to squirrel monkeys.

There is a potential for transmission to humans exposed to deer through diet, health products containing antler velvet, slaughter, velvet harvest, field dressing, preparing trophies and hunting lures.

The state of Wisconsin offers free CWD testing to hunters.

The Milwaukee Journal Sentinel states,

“Wisconsin Department of Natural Resources (DNR)] figures show that tens of thousands of hunters are killing deer in areas where CWD is prevalent and are not submitting them for testing. In 2016, in a CWD-prone area that the DNR describes as the southern farmland zone, 442 deer tested positive for disease out of 3,760 samples. More than 65,000 deer were killed in that zone and were not tested, according to DNR figures.”

Animals infected with CWD shed prions in saliva and urine and remain contagious for life and contaminate land and water.

Similar to Chronic Lyme Disease, CWD does not evoke a detectable immune response or inflammatory reaction. It is different; however, in that it is smaller than most viruses.  It also persists in the environment which is why animals raised in captivity are more likely to infect each other.  Avoid meat from those who force natural herbivores to eat animal parts (routine in concentrated feeding operations).

Researchers have also found an infectious protein (TDP-43) in Alzheimer’s patients is quite similar to prions in mad cow disease and CWD and was found in 200 of 340 autopsied brains of Alzheimer’s patients.  Patients with TDP-43 are 10 times more likely to have been cognitively impaired at death.

A 2005 study published in the journal Medical Hypotheses, stated:

“In the opinion of experts, ample justification exists for considering a similar pathogenesis for Alzheimer’s, Creutzfeldt-Jakob and the other spongiform encephalopathies such as Mad Cow disease. In fact, Creutzfeldt-Jakob and Alzheimer’s often coexist and at this point are thought to differ merely by time-dependent physical changes. A recent study links up to 13 percent of all ‘Alzheimer’s’ victims as really having Creutzfeldt-Jakob disease.”

**Please have your meat tested.  It’s free and it may save your life.**

How Long-Term IV Antibiotics Saved a Family

This is the story of three people who vastly improved with long-term IV antibiotics.  Although the CDC recently came out with a damning article for using IV treatment for Lyme/MSIDS,  https://www.cdc.gov/mmwr/volumes/66/wr/mm6623a3.htm?s_cid=mm6623a3_e, their anecdotal report of five patients who experienced complications due to the treatment brought on a fire-storm of rebuttals:  https://madisonarealymesupportgroup.com/2017/06/21/ilads-rebuttal-to-mmwr-article/

https://www.lymedisease.org/teenager-lyme-story/

A teenager’s story: Born with Lyme disease, finally on road to recovery

By Elizabeth Hancock

My Lyme disease story begins before I was even born. It starts with a nymphal tick, no bigger than the tip of a Sharpie, that infected my mother and changed the course of my family’s life.

A few years later my mom, still undiagnosed, had my brother, Tommy, and then two years later, she had me. From birth on, my brother and I were continually sick.

My mom persistently worked with the gastroenterologist, allergist, ENT, ophthalmologist, dermatologist, occupational therapist, physical therapist, speech therapist, and pediatrician to help us.

When I was a baby, my depleted immune system triggered several autoimmune disorders. I looked malnourished with a bloated stomach. By the time I was two, I was diagnosed with celiac disease.

A year later, still unaware of my Lyme disease, I was re-infected by a tick. Following the bite, my eyes crossed and I experienced headaches, back pain, night sweats, and even a small seizure. By the time I was four years old, we all had developed late-stage Lyme.

I used bifocals, my brother experienced multiple emergency visits for central nervous system issues, and my mom’s symptoms worsened considerably. She felt as though she was detached from the world physically and mentally. She experienced horrific tremors and pain from head to toe, and made many emergency room visits for shortness of breath. She couldn’t lift her head, get out of bed, or raise her children.

What pains me most is that this lifelong suffering could have been avoided had doctors listened to her and diagnosed us earlier. Even though we lived in a Lyme-endemic area on the east coast, finding a doctor that was knowledgeable and willing to treat us was like looking for a needle in a hay stack.

For years, although my mom consulted many orthopedic, rheumatology, infectious disease, and primary doctors with her classic Lyme symptoms, they always diagnosed her with something else.

Top specialists in New York City for neurology and rheumatology failed to recognize what was really wrong with her. My mom even specifically requested to be tested for Lyme multiple times, and the few doctors that agreed ran inappropriate tests that provided inaccurate results.

She had MRIs, CAT scans, spinal tap, bone density, nerve conduction tests, and many other labs and procedures, in an effort to determine what was the cause of all of her health problems. Unsure of the root cause, doctors began treating her as if she had ALS, MS, or fibromyalgia, with very strong narcotics.

My mom kept searching for answers and finally found a rheumatologist who was highly regarded in the Lyme community. Her appointment with this doctor lasted several hours and was a very in-depth exploration of her issues. They evaluated all of her records and completed the appropriate labs and brain scans for tick-borne diseases. She was positive for Lyme, Babesia, Bartonella and Ehrlichia.

Having been diagnosed so late, my mom was completely debilitated and had severe brain inflammation. Soon after her diagnosis, my brother and I were appropriately tested and found positive for Lyme, Babesia and Bartonella.

Finally, after a ten-year journey, we were all diagnosed and put on a rigorous treatment plan that included weekly visits and three years of PICC lines.

Fortunately, we had wonderful family support like our cousins, Brenda and Carol, who dropped everything to come live with us. My grandparents helped us with our homework, bathed us, and drove us to school and appointments. My dad supported the family, took care of my mom and did everything he could to ensure that my brother and I had a normal childhood despite the obvious tribulations.

I am lucky to have this kind of family support (especially my mom’s persistence), and I know without them I would not be on a positive road to recovery.

Elizabeth Hancock is entering her senior year in high school in Columbus, Ohio. She hopes to continue her education in college and work in Washington D.C. someday.

**Comment**

Here is a case of congenital Tick Borne Illness of two children and their infected mother who all benefitted from long-term IV antibiotics.  This story is hardly singular.  IDSA founder, Dr. Waisbren, also disagreed with the IDSA stance that Lyme can not persist.  His book, Treatment of Chronic Lyme Disease, highlights 51 cases, most of which used extended IV treatments successfully, often for years:  https://madisonarealymesupportgroup.com/2017/07/09/idsa-founder-used-potent-iv-antibiotics-for-chronic-lyme/

Please forward this story to those who believe that IV antibiotics are too dangerous and don’t work.

There are thousands of these cases out here in the real world, but not in Pubmed.

Why We’re Losing To Lyme Disease

http://www.wbur.org/radioboston/2017/07/17/losing-to-lyme (Click link to hear story) Approx. 8:30 Min.  July 17, 2017 Radio Boston

Lyme disease reports have more than doubled since 2005 but the disease remains drastically under-reported. While over 5,000 case of Lyme are reported in Massachusetts each year, there are probably more than 50,000 case a year.

With ticks predicted to be in particular abundance this year, CommonHealth explores the issue in a new series, “Losing to Lyme.”

Guests

Carey Goldberg, host of WBUR’s CommonHealth blog, which tweets @commonhealth.

Dr. David Scales, physician at Cambridge Health Alliance.

This segment aired on July 17, 2017.

**Comment

The diagnostic tests for Lyme are abysmal.  And compared to testing for other diseases, Lyme testing is an absolute joke.  I do not call testing that misses over half of all cases to be even remotely acceptable.  https://madisonarealymesupportgroup.com/2017/04/12/comparing-lyme-testing-with-hiv-testing/

Class and Race Profiling in the Vaccine Culture War

UPDATE:

Of course Youtube censored the following referenced commentary on how vaccines are a method for class and race profiling.  Go here to the NVIC website to listen or read the commentary.

  Approx. 16 min.

Published on Jul 20, 2017

Professors and medical doctors are protecting the multi-billion dollar global vaccine industry by using class and race profiling in academic journals and media reports to disempower the people by bullying, shaming and encouraging prejudice and discrimination against parents and doctors advocating for vaccine safety and informed consent protections in public health laws. Informed consent rights and freedom of thought, speech, religion and conscience are under attack in the U.S., Europe and other developed countries as vaccine developers and mandatory vaccination proponents lobby to eliminate vaccine exemptions. http://www.nvic.org/

Law Professor: Mothers of Unvaccinated Children Are Criminals
Boston Herald: Hang People Talking Bad About Vaccines
M.D. Professor Vaccine Developer Calls for “Funeral” of Vaccine Safety and Choice Advocacy
CDC on Mothers: Who Are They and Where Do They Live?
M.D. Professor and Vaccine Developer: “Snuff out” Vaccine Safety and Choice Advocates
M.D. Professor and Vaccine Developer: Take Away Vaccine Exemptions
For more on vaccines: