Orange Simple Company NewsletterWLN Newsletter in link
Great info on Wisconsin’s Tick App, latest research about how Lyme outsmarts the immune system, a Spring Lyme conference in La Crosse, WI, and a WI Lyme Walk (TBD).
For more on the tick app: https://madisonarealymesupportgroup.com/2018/05/31/tick-app-wi-tick-chats-testing/
https://www.mixcloud.com/widget/iframe/?feed=%2FLDNRT%2Fdarin-ingels-nd%2F (Go here for podcast)
Dr. Ingels is a respected leader in natural medicine with numerous publications, international lectures and more than 25 years experience in the healthcare field. He received his Bachelor of Science degree in medical technology from Purdue University and his Doctorate of Naturopathic Medicine from Bastyr University in Seattle, Washington. Dr. Ingels completed a residency program at the Bastyr Center for Natural Health.
Darin Ingels is a Naturopathic Doctor who has Lyme and shares his story of finally getting his life back. The healing path was slow and difficult, but over time he found the steps that worked for himself and his patients. He has written a book that outlines the steps to healing and discusses the process during this interview with Linda. If you have Lyme disease or even another autoimmune condition, you can benefit from this interesting and informative interview.
Review by Ken Bruce
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For more: https://madisonarealymesupportgroup.com/2018/04/04/the-lyme-solution-my-comments/
As to sexual transmission: https://madisonarealymesupportgroup.com/2017/02/24/pcos-lyme-my-story/ All I can say is ALL my initial symptoms were gynecological and I’ve worked with numerous couples that both have Lyme. Coincidence, regarding a pathogen that can borrow through any tissue and is a cousin to syphillis?
The podcast date says 2018, but Ingels speaks of research that came out “last week” regarding sexual transmission. The last research I can find was in 2014….and crickets.….this is a very important issue and deserves current research. It very well could explain why Lyme/MSIDS is growing by leaps and bounds and shows no sign of slowing down.
https://www.ncbi.nlm.nih.gov/m/pubmed/30287411/
OBJECTIVES: There is controversy whether non-specific symptoms can be related to previous Lyme borreliosis (LB). Positive serology can be considered a proxy for a previous or persistent infection with LB. We assessed non-specific symptoms and serology in patients suspected of LB referred to a Lyme centre.
METHODS: Included were adult patients who visited a Lyme centre between 2008 and 2014. Before medical consultation, serum samples were taken and questionnaires on non-specific symptoms completed. The prevalence of non-specific symptoms was calculated for patients with positive and negative IgG serology. Logistic regression was used to obtain odds ratios (ORs) with 95% confidence interval (CI) for an association between positive serology and non-specific symptoms.
RESULTS: Of 1439 included patients, 31.6% (455/1439) had positive serology. The most common non-specific symptoms were severe fatigue (61.4%, 883/1439), sleep disturbances (54.8%, 789/1439), and stiffness of neck/back (52.6%, 757/1439). The prevalence of severe fatigue was 53.0% (241/455) in patients with positive serology versus 65.2% (642/984) in patients with negative serology (OR 0.74; 95% CI 0.58-0.94). The prevalence of sleep disturbances was respectively 46.2% (210/455) versus 58.8% (579/984) (OR 0.73; 95% CI 0.58-0.93). The prevalence of stiffness of neck/back was respectively 47.7% (217/455) versus 54.9% (540/984) (OR 0.85; 95% CI 0.67-1.06).
CONCLUSIONS: In patients referred to a Lyme centre, non-specific symptoms did not occur more frequently in patients with positive serology compared to patients with negative serology. Hence, a questionnaire on non-specific symptoms cannot be used for identifying patients with possible “post-Lyme borreliosis symptoms” in clinical practice.
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**Comment**
I find it increasingly baffling how “positive serology” on a test that misses over half of all Lyme cases and is commonly known as being notoriously abysmal is still being used for research purposes. Move on people! This test is worthless!
I feel sorry for the sad-suckers who didn’t get a positive. They were sent home empty-handed to continue suffering in silence. Notice that MORE of the people testing negative had a considerably higher preponderance of symptoms…..
Also, notice the symptoms….severe fatigue, sleep disturbances, and stiff back/neck. Those are notorious Lyme symptoms! In fact it screams Lyme (particularly the back/neck issue).
How about they treat these people clinically for Lyme and then retest? By giving a provoking agent, it would be interesting to see how many of these sero-negatives turn into positives.
I guess someone would have to use their God-given brain to do that….and we wouldn’t want to have to do that now would we?
https://www.ncbi.nlm.nih.gov/m/pubmed/30282363/
We describe the case of a 61-year-old woman diagnosed with Borreliosis at the age of 57. Subsequently, the patient developed depression, anxiety, and behavioral disturbances. A lumbar puncture excluded the condition of Neuroborreliosis. The diagnostic workup included: an MRI scan, a 18F-FDG PET, a 123I-ioflupane-SPECT, an amyloid-β PET, a specific genetic analysis, and a neuropsychological evaluation.
Based on our investigation, the patient was diagnosed with probable behavioral-frontotemporal dementia (bvFTD), whereas in the previous years, the patient had been considered firstly as a case of Post-Treatment-Lyme Disease and, secondly, a psychiatric patient.
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**Comment**
Here we have a woman with an actual Lyme diagnosis who goes on to develop depression, anxiety, and behavioral disturbances. (All common symptoms with neuro-Lyme: https://madisonarealymesupportgroup.com/2015/10/18/psychiatric-lymemsids/, https://madisonarealymesupportgroup.com/2018/08/25/neuropsychiatric-lyme-borreliosis-an-overview-with-a-focus-on-a-specialty-psychiatrists-clinical-practice/, https://madisonarealymesupportgroup.com/2018/06/04/ld-diagnosis-took-forever-because-of-mental-health-stigma/)
Despite mainstream knowledge of absolute proof of abysmal testing, they state they ruled out infection despite a prior diagnosis based on a lumbar puncture.
In this informative read from Columbia University, we learn that there are specific steps to be followed for lumbar punctures regarding Lyme as well as the fact that patients may have neurologic Lyme Disease but still test negative on the Lyme index (an index used with cerebrospinal fluid in a lumbar puncture) https://www.columbia-lyme.org/diagnosis.
This scenario has played out so many times it’s like a skip in a record.
How about a clinical trial of antimicrobials known to have action against borrelia and then retest her (called a provocation test)? Clinicians in the field understand how elusive this organism is. A full work-up needs to be done on symptomology as it could possibly be a different pathogen altogether known to be transmitted by ticks and other bugs. How about also testing for other tick borne pathogens known to give behavioral symptoms like Bartonella? https://madisonarealymesupportgroup.com/2017/07/01/one-tick-bite-could-put-you-at-risk-for-at-least-6-different-diseases/ (It could be one of 18 and counting pathogens spread by ticks)
You see, something is causing this “probable behavioral-frontotemporal dementia (bvFTD).”
All they’ve done here is slap a name to it but they haven’t found the cause. Without the cause they will not treat appropriately.
How many more are going to slip through the cracks and loose their minds due to poor testing?
For more on the abysmal testing: https://madisonarealymesupportgroup.com/2017/08/15/reliability-of-lyme-testing/
https://madisonarealymesupportgroup.com/2018/09/08/whats-the-best-test-for-lyme-dr-rawls/
More on the relationship between Alzheimer’s, Dementia, ALS and Lyme: https://madisonarealymesupportgroup.com/2016/06/09/alzheimers-byproduct-of-infection/ Kris Kristofferson was wrongly diagnosed with Alzheimer’s but had Lyme Disease. For years doctors told Kristofferson it was either Alzheimer’s or dementia, and may have been the result of blows to his head from boxing, football and rugby. The medication he was given gave him bad side effects and didn’t help. Since starting treatment for Lyme Kristofferson “has made remarkable strides.” His wife Lisa said,
“all of the sudden he was back.” Although he still has some bad days, there are other days when he is “perfectly normal,” she said.
https://madisonarealymesupportgroup.com/2017/06/10/the-coming-pandemic-of-lyme-dementia/ Bacteria are usually ignored despite its historical and current significance in dementia research. Today, the main bacterial threat to acquiring dementia comes from Lyme disease—a bacterium borrelia burgdorferi.
