Archive for the ‘Lyme’ Category

Hunterdon Health Participates in Lyme Disease Vaccine Study – Buyer Beware!

https://www.tapinto.net/towns/flemington-slash-raritan/sections/health-and-wellness/articles/hunterdon-health-participates-in-lyme-disease-vaccine-study

Hunterdon Health Participates in Lyme Disease Vaccine Study

By Kathleen Seelig
Published October 19, 2023 

Lyme disease is a tick-borne illness that can cause serious long-term symptoms if untreated.  For people who live in areas where ticks are common, a preventative vaccine would be better than current measures like insect repellants and checking for ticks.  This clinical trial will evaluate if an investigational vaccine is safe and effective for preventing Lyme disease in people 18 years and older.  By choosing to volunteer, you will represent others like you – in age, race, ethnicity and from communities like ours.

Who may participate:

Healthy adults (18 years of age and older) who live in places or participate in activities that increase their risk for Lyme disease.  (See link for article)

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**Comment**

New Jersey typically ranks in the top three states for Lyme disease.  In other words, nearly the entire state is filled with people carrying borrelia in their bodies – along with other pathogens.

I’m opposed to a Lyme disease “vaccine” for anyone, but injecting a population with borrelia antibodies already present in their bodies, that many are able to suppress and live harmoniously with, is not only dangerous but stupid.  The main action of a vaccine is to lower the immune system so that it mounts an effective immune response to whatever it is being injected with.  This, right here, is why many are forever negatively affected.

The Lyme “vaccine” as well as Lyme testing – has a long and sordid backstory, which really got the entire disease on the wrong foot from the get-go, and it’s been a crazy-train ever since with no hope of straightening out unless infected patients do the work themselves.  The government is not our answer – which means government funded research isn’t our answer either.  Both are hopelessly corrupt.

Because borrelia and the other stealth pathogens which often come with it don’t hang around in the blood for long testing has been a bust since they are blood tests.  A Lyme “vaccine,” has also been a bust because it didn’t confer immunity, gave people Lyme-like symptoms, and utilized OspA, the known ingredient that can cause auto-immunity in some.  Four people actually died after it.

How do you vaccinate for something that changes?  And how do you vaccinate for a disease that is typically caused by multiple pathogens all working symbiotically together?  And how do you vaccinate for something that is able to shape-shift and survive the immune system and treatment?

Until ‘the powers that be’ recognize these simple truths, we are left to ride on the crazy-train.

For more:

  • The article then glorifies Klempner’s Lyme PrEP, which we keep being told isn’t a vaccine but a monoclonal antibody “preventative treatment,” that directly gives you the antibody.  What they fail to mention is Lymerix as well as Lyme PrEP both use OspA  – the very antigen of Lyme disease that is blamed for causing devastating Lyme-like symptoms. They erroneously state it’s “just antibodies.”  If only it were that simple.  Antibodies, as stated previously, are not always harmless. Watch this brief video to understand the interplay between antigens and antibodies.
  • Klempner was also the trial administrator of the Connaught OspA Lyme vaccine in the 1990s, and is quite aware of the adverse effects of injecting OspA into people.  He also was an author of the 2006 IDSA guidelines that were the subject of an investigation by Senator Richard Blumenthal which exposed undisclosed financial conflicts in many of the panelists as well as the fact they simply ignored alternative medical opinion (which is happening again with COVID). Those guidelines relied heavily on his 2001 “retreatment” study in which most of the participants had not been treated in the first place. 
  • To state that Lyme patients and advocates do not trust Klempner would be the understatement of the year and further, I’m with Lyme advocate Carl Tuttle: we don’t want any Lyme vaccines until the issue of chronic/persistent infection is acknowledged. As you can see from this article, there are those who still believe what we are suffering from is a “scam that should be condemned”.
  • They then mention Sam Telford, also part of the Lyme Cabal, who blames the spread of deer, and suburbanization in America, never once mentioning experimentation on ticks by infecting them with numerous pathogens and releasing them, in fact dropping them, from airplanes.  Telford, a professor of infectious disease and global health at Tufts University, helped discover the mechanism that led to the development of Lymerix and ran one of the clinical trials that tested it. He is now part of a group of biotech professionals who have formed an alliance and want to bring back the vaccine. This article, written by a doctor, methodically records the devastation Lymerix caused but which is completely ignored by Cabalists like Telford who continue to state Lymerix was “effective.” Telford, a Chronic Lyme denialist, teaches biosecurity, specializes in the bioweapon Tularemia, and was the director of a bio-level 3 lab in Groton, Massachusetts that works on dangerous, tickborne diseases on the government’s select agent list.  He’s funded by the NIH and the military-industrial complex.
If that isn’t enough to get you running the other direction, I don’t know what will.

Category:

Activism, Lyme, research, Ticks, vaccines

Interstitial Cystitis & Bladder Symptoms in Lyme & Bartonella

https://www.treatlyme.net/guide/interstitial-cystitis-lyme  (Article and video Here)

Updated: 10/13/23

Interstitial Cystitis and Bladder Symptoms

By Dr. Marty Ross

Some patients with Lyme disease and bartonella infection have symptoms similar to those seen in a bladder infection. These symptoms include

  • urge to urinate,
  • bladder pain and pain on urination,
  • bladder cramping, and
  • increased frequency of urination.

When these symptoms occur, a bladder infection should be ruled out by a healthcare provider. When it is ruled out, these symptoms are often the result of a condition called Interstitial Cystitis. Depending on a person’s age and other risk factors, a urologist may need to evaluate the bladder with a fiberoptic scope to assure that cancer is not present and to confirm a diagnosis of Interstitial Cystitis.

In this article I review the ways to support Interstitial Cystitis with natural medicines in a Lyme disease treatment.  (See link for article and video)

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For more:

Category:

Bartonella, diet and nutrition, Lyme, Supplements, Treatment

Yet Another “Unique” EM Rash

https://danielcameronmd.com/unique-presentation-em-rash/

A UNIQUE PRESENTATION OF AN EM RASH

unique-EM-rash

The rash, indicative of Lyme disease, does not always present as a classic “bull’s-eye rash,” as this case report demonstrates. A broad spectrum of lesions has been reported in patients with Lyme disease (LD). In fact, one study found only 6% of the lesions in LD patients had the “classic bull’s-eye or ring-within-a-ring pattern.” [1]

By 

In the case report, “A Non-Classical Presentation of Erythema Migrans in a 51-Year-Old Woman With Early Manifestation of Lyme Neuroborreliosis (Bannwarth Syndrome),” Lorquet et al. describe a 51-year-old female who presented with general malaise, headache, neck stiffness, and an expanding rash consistent with Lyme neuroborreliosis.2

The woman reported having a worsening of her symptoms over a 4-day period and a rash which expanded on her upper back but she did not recall any tick bites.

“She stated that [the rash] started as a small area of redness, spreading rapidly,” the authors wrote.

Clinicians suspected she might have cellulitis and prescribed cephalexin and valacyclovir. But her symptoms did not improve.

“The “bull’s-eye” appearance of erythema migrans is not the only cutaneous manifestation of the acute stage of Lyme disease. There can be multiple variations of the rash, as demonstrated in the patient.”

According to the patient, “the rash had gotten larger and more pruritic [itchy] and that her headache had become more severe, also causing severe pain that radiated to the right side of her neck,” the authors wrote.

The erythema migrans (EM) rash covered two-thirds of her back and had a 5 cm crusted plaque in the center. There was a second circular rash that appeared, as well, behind the woman’s right ear.

READ: The many presentations of the Lyme disease rash

Clinicians treated her symptoms with intravenous ondansetron, ketorolac, pantoprazole, and saline. But also empirically treated for Lyme disease with doxycycline.

After Lyme disease testing was positive, the woman was diagnosed with Lyme Neuroborreliosis, also known as Bannwarth syndrome in Europe.

Bannwarth syndrome (BS) is a typical manifestation of early Lyme neuroborreliosis (LNB) in Europe. It is characterized by painful radiculopathy, neuropathy, varying degrees of motor weakness and facial nerve palsy, and cerebrospinal fluid (CSF) lymphocytic pleocytosis.3

“Several weeks later, the patient had made a full recovery and was back to her baseline level of functioning,” the authors wrote.

They point out, “The “bull’s-eye” appearance of erythema migrans is not the only cutaneous manifestation of the acute stage of Lyme disease. There can be multiple variations of the rash, as demonstrated in the patient.”

Related Articles:

Single dose of doxycycline for treatment of tick bite only prevents a Lyme disease rash

Erythema migrans rash doesn’t always have a bull’s-eye appearance

Lyme disease mimics cellulitis skin infection

References:
  1. Schotthoefer A M, Green C B, Dempsey G, et al. (October 25, 2022) The Spectrum of Erythema Migrans in Early Lyme Disease: Can We Improve Its Recognition? Cureus 14(10): e30673. doi:10.7759/cureus.30673
  2. Lorquet JR, Pell R, Adams J, Tak M, Ganti L. A Non-Classical Presentation of Erythema Migrans in a 51-Year-Old Woman With Early Manifestation of Lyme Neuroborreliosis (Bannwarth Syndrome). Cureus. 2023 Jun 4;15(6):e39931. doi: 10.7759/cureus.39931. PMID: 37416051; PMCID: PMC10319937.
  3. Shah A, O’Horo JC, Wilson JW, Granger D, Theel ES. An Unusual Cluster of Neuroinvasive Lyme Disease Cases Presenting With Bannwarth Syndrome in the Midwest United States. Open Forum Infect Dis. 2017 Dec 23;5(1):ofx276. doi: 10.1093/ofid/ofx276. PMID: 29383323; PMCID: PMC5777478.

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**Comment**

So many thoughts here.

  • The rash issue has caused frequent, unnecessary delays in diagnosis and treatment as doctors are not properly educated on actual science, but have been fed a CDC-narrative.  Most doctors are unaware that this rash is diagnostic for Lyme disease, and that misdiagnosis can have fatal consequences.
  • Aucott reports that 54% of Lyme disease patients who present without a rash are misdiagnosed.
  • The designation of Bannwarth Syndrome is also confusing and has caused massive misdirection.  The symptoms are nearly synonymous with most cases of Lyme & can cause severe burning, stabbing, biting, or tearing pain & responds poorly to analgesics:
    • radicular pain (100%)
    • sleep disturbances (75.3%)
    • headache (46.8%)
    • fatigue (44.2%)
    • malaise (39%)
    • paresthesia (32.5%)
    • peripheral nerve palsy (36.4%)
    • meningeal signs (19.5%)
    • paresis (7.8%)
  • This case study shows many of the problems that continue on unabated in Lymeland.

Category:

Lyme, research, Testing, Treatment

“The Quiet Epidemic” Coming to Philadelphia

https://www.cbsnews.com/philadelphia/news/lyme-disease-philadelphia-the-quiet-epidemic-sarena-snider/  News story here (Approx. 6 Min)

New documentary about Lyme disease, The Quiet Epidemic, is coming to Philadelphia

BY STEPHANIE STAHL, WILL KENWORTHY

 / CBS PHILADELPHIA

PHILADELPHIA (CBS) — There are more cases of Lyme disease in Pennsylvania than anyplace else in the country. Now there’s a new documentary about Lyme coming to Philadelphia.

An executive producer for the documentary grew up in the area and had her own struggles with Lyme disease.

“I always think about it, especially before going into the woods,” Sarena Snider said.

Snider loves being outside on the Main Line but is careful about ticks after she and several family members battled Lyme disease.

“It took me two years to really figure out what was going on,” she said.

(See link for article and news story)

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**Comment**

It must be noted that Snider states that getting a Lyme literate medical doctor is “really important.”

Now, why would this be?

Anyone with experience in Lymeland knows that due to the ongoing, unchanging polarization in the medical community most doctors are too afraid to diagnose and treat this for fear of being persecuted by bought-out state medical boards and professional groups who are part and parcel of the overt monopolization of medicine.

 It is true that an independent doctor could save your life.

These independent doctors are the only doctors who will take on the Lyme/MSIDS beast and many of them have paid dearly for doing so.

So far the corrupt IDSA (Infectious Diseases Society of America) has succeeded against lawsuits accusing the group of forcing doctors to abide by their antiquated and unscientific Lyme guidelines.

The IDSA, similarly to the FDA, has stood its ground by stating the guidelines are merely “medical opinions” not held as “facts.” Many doctors that have been attacked for going against these supposed “medical opinions” would disagree with this notion as they have been fired, had their licenses revoked, hospital privileges suspended and have been publicly degraded.

This time doctors sued the FDA for unlawfully interfering.

But here we have yet another patient expressing to others the need to get an independent, Lyme literate doctor to obtain true help. The reason for this is crystal clear:

Doctors are held hostage by the IDSA guidelines.
Period.

The Torrey case appears doomed already as the U.S. Circuit Judge Kyle Duncan indicated he is leaning towards affirming dismissal of the lawsuit.

“My concern here is there has to be a forum for debating scientific questions,” the Donald Trump appointee told Speer. “And this is a scientific question — how to treat this. We all know that. There has to be a forum for that. And we can’t have lawsuits against people who are debating the scientific question in a forum.”

The problem, of course, is that there is no forum for debating COVID or Lyme/MSIDS which is why doctors have had to break away from the IDSA juggernaut to form their own group called ILADS (International Lyme and Associated Diseases Society) who have created their own Lyme Guidelines.

Government sponsored talking heads denying life-saving treatment in lieu of a lucrative but ineffective and dangerous “vaccine” is the “new norm,” where doctors get kick-backs for pushing them.

Category:

Activism, Lyme, Treatment, vaccines

Do You Have to be a Millionaire to Heal From Lyme Disease?

https://www.lymedisease.org/does-it-take-millionaires-fortune/

Does it take a millionaire’s fortune to heal from Lyme disease?

Aug. 18, 2023

International supermodel Bella Hadid has an estimated net worth of $25 million.

Actress Riley Keough, granddaughter of Elvis Presley, has just been named sole custodian of Graceland mansion and the family shares of Elvis Presley Enterprises, reportedly worth $500 million.

In addition to being super-wealthy, these two glamorous women have something else in common. Both have recently spoken publicly about having Lyme disease—and the challenges they’ve faced in getting well again.

In a cover story in Vanity Fair magazine, Keough says she went to a clinic in Switzerland: “It’s a holistic treatment center and offers all kinds of things that you can’t really do in America yet, like cleaning your blood.”

At about the same time the Vanity Fair issue came out, Bella Hadid posted on Instagram about recently undergoing more than 100 days of intensive treatment for Lyme disease and co-infections, after “15 years of invisible illness.” Although no specifics of treatment are given, accompanying photos suggest that IVs were certainly part of her protocol.

For sick and suffering Lyme patients who are NOT multi-millionaires—typically forced to travel long distances to even find a practitioner who acknowledges their illness, and then must pay out of pocket because insurance companies won’t cover such treatments—these news stories can seem like a cruel joke.

“What do either of these women have to complain about?” is an oft-asked question on Facebook. “If I had money like that, all my problems would be solved.”

But as other commenters on Facebook frequently respond, even having boatloads of money doesn’t necessarily make the problem go away. Bella Hadid’s rich family and her Lyme-experienced mother Yolanda still couldn’t shield her from 15 years of suffering.

However, one thing that such celebrity news coverage certainly does is raise the profile of Lyme disease in the news media. As an example, LymeDisease.org has received a raft of media inquiries in the wake of the Bella/Riley revelations. Just this morning, I received a message from a news service in China, seeking comment on the situation.

Here are just a few examples of the widespread news coverage of Bella and Riley:

Yahoo News: Bella Hadid and Riley Keough undergo intensive treatments for Lyme disease. The average person can spend up to $10,000 a week treating the condition.

Today Show:  Bella Hadid opens up about journey with Lyme disease. What to know about the condition

Daily Express (UK):  Elvis Presley’s granddaughter Riley Keough opens up about ongoing battle with Lyme disease

TOUCHED BY LYME is written by Dorothy Kupcha Leland, President of LymeDisease.org. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide, and of the forthcoming title Finding Resilience: A Teen’s Journey Through Lyme Disease. Contact her at dleland@lymedisease.org.

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**Comment**

The older I get and the more I see and hear, the more I believe healing is truly as individual as the case itself and money can have little to do with it.  

That’s not to say treatment doesn’t cost money.

I added up that we spent about $15K per year per person when we were treating years ago.  I’m sure this price has gone up now.

But I also know people who grow their own herbs and make their own medicine for pennies that are doing marvelously.  This woman was “healed” of chronic Lyme through dry fasting (although like most other patients, she utilized many treatments). I believe one of the biggest keys is being invested in healing and making it a natural part of life. There’s a lot of these people in Wisconsin – people that refuse to give up.  People that love nature, are great examples of good stewards of the earth, and that have an attitude of fortitude.  Now, that’s not to say that they don’t succumb to periodic episodes of melancholy or even weariness but they know that’s not healthy for mind or body and determine to overcome it.

Even with the major trials of life these remarkable patients plod on – determined to be well.

I must say that just talking to these patients encourages me to also plod on.  You see, this mentality is contagious – infectious really, and is a weapon/treatment all its own that doesn’t get enough press or attention.

My ear is to the ground and I’ve followed these wealthy stars traversing the world for treatment.  None of them are completely well and they all suffer despite their wealth and opportunity.  What does this tell you?  All their money, seemingly, isn’t the key.  I’m not downplaying the importance of treatment, but treatment afforded through money is only one prong of this multi-pronged fork and it takes everything to overcome this beast.

My advice: be content with what you have.  Don’t covet what others have.  Learn from everyone – rich or poor and determine in your own mind that YOU ARE GOING TO GET WELL!  Accept nothing else.  One caveat: do not put pressure on yourself as pressure equals stress and stress is a killer.  Calmly do your research.  Calmly experiment to find what works.  Calmly talk to other patients and take notes. Calmly apply what you learn, be patient, and have the contagious attitude of fortitude.

That’s the advice from an aging grey hair who at one point just wanted to cash her chips in.
NEVER QUIT!

And never lose your sense of humor.

P.S. – While the exact clinic in Switzerland is not listed, I can tell you right now that “cleaning the blood” is not a cure-all as borrelia does not hang out in the blood, which is the root of most treatment and testing problems.  This is also why antibiotics are not a “cure all” in the sense that you can not do a couple months of abx and be “cured.” Borrelia loves the brain, synovial fluid, and immunopriviledged sites that are protected by the body. You can clean the blood until the cows come home and these turds are safely and patiently hiding out.

Treating Lyme/MSIDS requires patience!

If it’s this clinic, it uses the same approach as this German clinic that focuses on hyperthermia or active fever therapy. Read this patient’s experience who went there.  Please note that when I quizzed this German doctor’s experience with hyperthermia “curing” Lyme, he said patients need “tune ups” which is code for it isn’t curative.  I’m not belittling this treatment at all and know many have greatly benefitted from it but I’m a realist and don’t want patients believing that this treatment is the answer to their dreams.  It may be, but it also may not be – just like every other treatment under the sun.  

And lastly and most importantly, always keep in mind that Lyme is just the tip of the spear as patients are typically infected with far more than just Lyme and it all requires savvy, individualized treatment and no two cases look alike.

For more:

Category:

Activism, Hyperthermia, Lyme, Treatment