Archive for the ‘Lyme’ Category

WSJ Says Chronic Lyme Was Once Dismissed But Doctors Are Coming Around – I Disagree

FILE_7701.pdf  Article Here

Chronic Lyme Disease Was Once Dismissed. More Doctors Are Coming Around.

Newer trials are starting to track Lyme patients and investigate potential treatments

By Brianna Abbott Jul 20, 2025

(See link above for article)

_____________

Why This Research Won’t Help Patients One Iota

By Alicia Cashman, Madison Lyme Support Group, Wisconsin

7/24/25

Summary of WSJ article:

  • A 63 year old Massachusetts woman was told in 2015 the root of her odd, flulike illness was likely Lyme disease.  (This website has hundreds if not thousands of such stories)
  • For the next decade she cycled through ‘unproven’ treatments and got push-back from doctors. (They must push the ‘not proven’ issue to keep us all from getting extended antibiotics which would make a majority of us better)
  • When MIT starting recruiting ‘people just like her,’ she felt validated.
  • The article then states ‘long COVID,’ is what is bringing chronic Lyme more credibility.
  • True to form and right on cue, long time player – Dr. John Aucott of Johns Hopkins, who has studied chronic Lyme for TWO decades but hasn’t budged the needle an inch, repeats the narrative that ‘long COVID’ has given chronic Lyme more ‘acceptance.’ (You must understand that there’s a lot of grant money for those who ignore the fact the COVID shots are likely behind ‘long COVID. It must also be stated that ‘long COVID’ looks exactly like other post-viral syndromes.) Vaccine injury gets ZERO grant money because our own government and researchers are beholden to Big Pharma. Vaccines are the cash cow of research.
    • The cat is let out of the bag on the final page of the article when it’s stated that the study includes acute Lyme and ‘long COVID’ participants.
      • First, notice that the reason we are hearing the clanging mantra of ‘long COVID’ is because it’s a part of the study. A lie can travel halfway around the world while the truth is putting on its shoes.
      • Second, notice that they are ONLY looking at ACUTE Lyme – something that’s been studied ad nauseam.  This research once again omits the sickest patients who never have any research done on them.
    • Thirdly, the cat continues to be let out when it’s stated they are looking for whether a molecule left behind could be driving inflammation.  Right there – they are admitting their bias that this is not a chronic, persistent infection that could be cured or benefitted with anti-microbial treatments.
  • The author is oblivious to the fact that Post-Treatment Lyme Disease Syndrome (prolonged symptoms for at least 6 months after treatment) doesn’t include a HUGE subset of patients who were diagnosed and treated late.  This continued regurgitated ignorance is allowing research to be skewed in favor of chronic Lyme only affecting 5-20% of patients – which is a much smaller deal than 40-60%, when those diagnosed and treated late are included.
  • The article repeats a falsehood: that in order to get Lyme one NEEDS to be bitten by a bacteria-carrying tick.  Congenital Lyme has been proven, and there is much to indicate  sexual transmition as well.
  • The reason they ignore anything but ticks is because then they can state their next falsehood, which fits the ‘climate change‘ narrative, which has been proven false by an independent tick researcher.
  • Third falsehood: a 2-4 week course of antibiotics cures the disease.
  • Fourth falsehood: blood tests can help determine if a person has antibodies against the pathogen. Seronegativity has been a big part of the Lyme debate from the beginning.
    • Part of the reason for this is the fact one of the most specific bands for Lyme was taken out of testing at the Dearborn, MI conference because it interfered with vaccine development.
    • Another reason is the fact that arbitrary levels of antibodies have been set, keeping a majority of those infected from ever testing positive.
    • Yet another reason is the fact that there has been a concerted suppression of microscopy  which is considered the gold standard for syphilis diagnostics. Similarly to the attacks on ivermectin and HCQ for COVID, ‘the powers that be’ continue to attack any test other than the CDC 2-tiered test for not being ‘FDA approved,’ even though the CDC test is not ‘approved’ either.
  • Fifth falsehood: there are no treatments that have been proven safe and effective after the initial antibiotics. My husband and I were in intense treatment for over 5 years using multiple antibiotics, among other things, simultaneously. Without this life-saving treatment I wouldn’t be writing this article today.
  • Proving that nobody’s coming around to accept Lyme Disease – read, “Gaslighting and Cults: Our Baffling Relationship With Tick-Borne Diseases,” written this past January, 2025.

This study won’t help chronically infected patients.  Don’t expect anything from this.  It’s the same crap, different day.  

For more:

Until we start OVER, and I mean from square one, research is all tainted and biased.  Don’t believe me?  Listen to Willy himself:

http://

Willy Burgforfer, Ph.D. Lyme Disease ‘Discoverer’

Category:

Activism, Lyme, Testing, Ticks, Transmission, Treatment, Uncategorized

A Masterclass on Tick-Borne Illness: Dr. Burrascano

http://  1 Hour 14 Min

Dr. Joe Burrascano: A Masterclass on Tick-Borne Illness

Jul 16, 2025
Bay Area Lyme Foundation
Dr. Joseph J. Burrascano Jr., a pioneer in the field of Lyme, began his practice in East Hampton, NY, in 1981, where he identified and detailed the clinical aspects of Lyme in a high-prevalence area. Renowned for his groundbreaking diagnostic and treatment guidelines since 1984, he has advised the CDC, NIH, and U.S. Senate, authored extensive publications, and is a founding member of ILADS, continuing to educate globally.
For more:

Category:

Lyme, Testing, Treatment

Expert Briefing on Ticks & Lyme Disease

http://

Expert Briefing on Ticks and Lyme Disease

May 29, 2025

Johns Hopkins Bloomberg School of Public Health experts Nicole Baumgarth and Thomas Hart discuss ticks and the growing threat of Lyme and other tickborne diseases.
Lyme disease is on the rise in the U.S., according to the CDC, mainly in the Northeast, Upper Midwest, and parts of the West. In 2023, state health departments reported more than 89,000 cases of Lyme disease in humans to the CDC, but the actual number of cases is likely much higher due to underreporting and misdiagnosis.
If left untreated, Lyme disease can lead to serious complications affecting the heart, joints, and nervous system. Other tickborne illnesses are also of concern, including Powassan virus and Heartland virus. There is currently no vaccine against tickborne illnesses.
Ticks Pose an Increasing Health Risk https://publichealth.jhu.edu/2025/tic…
Tickborne Diseases Are on the Rise—Here’s What To Know https://publichealth.jhu.edu/2023/lym…
Lyme and Tickborne Diseases Research and Education Institute video    • Lyme and Tickborne Diseases Research and E…  
Ticks Are Dangerous video    • Ticks Are Dangerous  
About Ticks and Tickborne Disease https://www.cdc.gov/ticks/about/index….
Lyme Disease Surveillance and Data https://www.cdc.gov/lyme/data-researc…
Lyme Disease https://www.cdc.gov/lyme/index.html
  • 00:00 Introduction
  • 01:40 What is Lyme disease
  • 04:12 Rates of Lyme disease
  • 9:10 Status of a vaccine
  • 10:30 Tracking infection rates
  • 11:25 Vaccine challenges
  • 13:30 Ubiquity of tick bites
  • 14:45 Diagnosing lesser known tickborne illnesses
  • 16:10 How to improve diagnosis
  • 19:00 Diagnosing illnesses
  • 20:10 This year’s tick season
  • 20:40 Symptoms of Lyme disease
  • 22:10 Other tickborne illnesses
  • 23:20 Dogs and ticks
  • 24:40 Ticks in the environment
  • 25:30 Preventing tick bites

_______________

**COMMENT**

Sadly, researchers continue to slice and dice this complex illness into a singular infection they call ‘Lyme disease,’ when truth be told, patients are often infected with numerous things working synergistically together, making the illness much more complex, harder to identify and treat, and much harder to overcome. So the very name, ‘Lyme disease,’ is inadequate for most patients.

I realize why they do this: due to their very specific work, they must omit variables to conduct research – at least within the current allopathic model of one drug and vaccine, for one disease.  Unfortunately, this is often not what we are dealing with at all in reality.

Category:

Lyme, research, Testing, Ticks, Transmission, vaccines

Mayo Lyme Disease Clap-Trap Part 3

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/33714016

Tomorrow’s Cure: New frontiers in Lyme disease detection — just in time for summer (Part 3)

Carl Tuttle
Hudson, NH, United States
Jul 17, 2025

Follow-up email to Dr. Allen Steere, guest speaker from the Mayo Clinic’s “Tomorrow’s Cure” podcast. (Please see part 1 and 2)

Steere’s picture was found here:

https://www.massgeneral.org/doctors/17513/allen-steere

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “asteere@mgh.harvard.edu” <asteere@mgh.harvard.edu>, “cathy@cathywurzer.com” <cathy@cathywurzer.com>, “d.balzer@mayoclinic.org” <d.balzer@mayoclinic.org>
Cc: “newsbureau@mayo.edu” <newsbureau@mayo.edu>, “cwurzer@mpr.org” <cwurzer@mpr.org>, “Pritt.bobbi@mayo.edu” <Pritt.bobbi@mayo.edu>, “tomorrowscure@mayo.edu” <tomorrowscure@mayo.edu>, “mayoclinicnewsnetwork@mayo.edu” <mayoclinicnewsnetwork@mayo.edu>, “genevieve@prx.org” <genevieve@prx.org>, “Secretary@HHS.gov” <Secretary@HHS.gov>, “pam.bondi@usdoj.gov” <pam.bondi@usdoj.gov>
Date: 07/17/2025 7:59 AM EDT
Subject: Re: Tomorrow’s Cure: New frontiers in Lyme disease detection — just in time for summer

Allen Steere, MD, Rheumatologist
Professor of Medicine, Harvard Medical School
Director of Translational Research in Rheumatology, Massachusetts General Hospital

Dr. Steere,

I would like to call attention to your quote below found on Mayo Clinic’s “Tomorrow’s Cure” podcast page:

“Lyme disease is challenging to detect given its ability to mimic other illnesses or appear asymptomatic altogether. “There may not be specific symptoms when the patient comes in that would tell them this is a vector-borne disease,” said Dr. Steere. “There may be symptoms that we commonly see with infection, or they may also be absent.”  Given this challenge, the development of better diagnostic tools is critical.”

As you know, serology cannot be used to gauge treatment failure or success which makes it the ideal tool for concealing a chronic infection. It sounds to me like serology was the perfect product to support the mantra, “chronic Lyme does not exist.”

It has been 50 years since you discovered Lyme disease in those cluster of children in Lyme, Connecticut and now you are finally admitting we need better tests??

Quote regarding CULTURE for Lyme disease @16:23 into the podcast…

“What we would really like is to have something that is truly associated with the infection itself and of course the best thing is to be able to identify the organism or at least some component of the organism by testing for this particular protein or the organism itself by culturing it which of course is the best way but very difficult to do in Lyme disease once late in the infection.” -Allen Steere

As previously reported, the CDC produced a positive culture in Lyme patient Viki Logan and from the 2018 Middelveen et al study Borrelia burgdorferi were cultured from the blood of seven subjects, from the genital secretions of ten subjects, and from a skin lesion of one subject. The cultures were subjected to corroborative microscopic, histopathological and molecular testing for Borrelia organisms in four independent laboratories in a blinded manner. Cultures from control subjects without Lyme disease were negative for Borrelia using these methods.

These examples are proof of chronic Lyme disease as culture is the gold standard for definitive diagnosis of bacterial and fungal infections worldwide but when it threatens the existing paradigm suddenly it becomes “not particularly useful.”

My Claim: A chronic relapsing seronegative disease does not fit the vaccine model so evidence of persistent infection (following the one-size-fits-all IDSA mandated treatment protocol) must be concealed/ignored at all costs.

Why is this proof of chronic Lyme disease despite extensive antibiotic treatment ignored Dr Steere?  Is the deliberate suppression of this evidence a crime?

A response to this inquiry is requested.

Carl Tuttle
Independent Researcher
Hudson, NH

Cc: Cathy Wurzer, Host

Deb Balzer Mayo Clinic Senior Communications Specialist

Robert F. Kennedy, Jr. Secretary of the U.S. Department of Health and Human Services

Pam Bondi, US Attorney General

_______________

For more:

Category:

Activism, Lyme, Testing, vaccines

Mayo Clinic: Same Lyme Disease Clap-Trap Just in Time For Summer

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/33704283?

Tomorrow’s Cure: New frontiers in Lyme disease detection — just in time for summer

Carl Tuttle
Hudson, NH, United States
Jul 14, 2025

What has been presented here in Tomorrow’s Cure is the same old dogma propagated for decades by those who have controlled this false public heath narrative.

Dr. Allen Steere would be doing us all a favor by retiring.

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “tomorrowscure@mayo.edu” <tomorrowscure@mayo.edu>
Cc: “newsbureau@mayo.edu” <newsbureau@mayo.edu>, “cwurzer@mpr.org” <cwurzer@mpr.org>, “asteere@mgh.harvard.edu” <asteere@mgh.harvard.edu>, “Pritt.bobbi@mayo.edu” <Pritt.bobbi@mayo.edu>
Date: 07/13/2025 3:00 PM EDT
Subject: Tomorrow’s Cure: New frontiers in Lyme disease detection — just in time for summer

Tomorrow’s Cure: New frontiers in Lyme disease detection — just in time for summer

Deb Balzer July 2, 2025
https://newsnetwork.mayoclinic.org/discussion/tomorrows-cure-new-frontiers-in-lyme-disease-detection-just-in-time-for-summer/

“Dr. Steere identified Lyme disease in 1976 while investigating a cluster of children in Lyme, Connecticut, who were experiencing unexplained arthritis. His research ultimately led to the discovery and naming of the disease. Since then, researchers have devoted their efforts to advancing diagnostic tools, treatments and vaccine development.”

Mayo Clinic “Tomorrow’s Cure” podcast
Attn: Cathy Wurzer, Host

Dear Cathy,

Thirty-five  years ago Dr. Allen Steere identified chronic Lyme disease which should have set off a red flag prompting an immediate search for better antimicrobials but then did a 180° as he became principal investigator (PI) of the Phase 3 clinical trial for the first Lyme disease vaccine. So all the eggs were put into the vaccine basket while a campaign was orchestrated to discredit the sick and disabled patient population along with the courageous clinicians attempting to help these patients. Apparently, a chronic relapsing seronegative disease did not fit the business model of patent royalties, vaccine development and pharmaceutical profits. That rush to create a Lyme vaccine early in the discovery phase (of the Lyme epidemic) eliminated the research desperately needed to find a cure for an infection that was not responding to antibiotic treatment as reported by Dr. Allen Steere in 1990 and the disabled Lyme community ever since.

Here is Dr. Steere’s 1990 publication summary for your review:

The New England Journal of Medicine 

Published November 22, 1990

Chronic neurologic manifestations of Lyme disease
https://www.nejm.org/doi/full/10.1056/NEJM199011223232102

This is what Steere was reporting in 1977:

Lyme arthritis: an epidemic of oligoarticular arthritis in children and adults in three connecticut communities. (1977)
Steere AC, Malawista SE, Snydman DR, Shope RE, Andiman WA, Ross MR, Steele FM.
https://www.ncbi.nlm.nih.gov/pubmed/836338

Excerpt:

“The best treatment for this illness is not clear. Some physicians have reported that penicillin or tetracycline results in disappearance of the skin lesion (41,42), but others find antibiotics ineffective. Four of the patients with expanding skin lesions received penicillin but still developed arthritis.”

__________________________

In 1991 the Lyme disease organism, Borrelia burgdorferi, was grown from the cerebrospinal fluid of Lyme patient Vicki Logan at the Centers for Disease Control in Fort Collins, Colorado despite prior treatment with intravenous antibiotics. The patient died when the insurer refused additional IV antibiotics. Here is a copy of Logan’s CDC positive culture report for your review.

(Vicki Logan’s Chronic Lyme Autopsy results Page #1, 2, 3, 4, 5, 6, 7)

The destructive nature of Borrelia is evident in Vicky Logan’s liver (nutmeg liver), kidneys, heart, lungs and brain. The patient died after the insurer refused additional IV antibiotic therapy.

There are 700 peer-reviewed publications referencing persistent infection and in a 2018 study all patients were culture positive even after multiple years on antibiotics so there was no relief from current antimicrobials. Some of these patients had taken as many as eleven different types of antibiotics.

Quotes from the Tomorrow’s Cure podcast

Lyme disease testing:

Quote from Dr Pritt @ 15:11min into the podcast…

“…but later on, the antibody tests that we have are quite good at detecting those late-stage manifestations…”

1. Serology is so unreliable that in 2013 Virginia Governor Bob McDonnell signed HB1933 into law requiring healthcare providers to notify those tested that current laboratory testing can produce false negatives.

2. Governor Chris Sununu’s 2020-2021 commission to study diagnostic testing for Lyme disease  concluded that the FDA approved two-tier serologic immunoassay for Lyme was not reliable in all stages of disease; no better than a coin toss.
 
3. Peer-reviewed evidence of “Seronegativity in Lyme borreliosis and Other Spirochetal Infections” 16 September 2003  https://www.dropbox.com/s/3d6m45jzlhhwalu/Seronegativity.pdf?dl=0

4. I would like to point out the following case study from Stony Brook Lyme clinic. I understand the patient received thirteen spinal taps, multiple courses of IV and oral meds, and relapsed after each one, proven by CSF antigens and/or PCR. The only way this patient (said to be a physician) remained in remission was to keep her on open ended clarithromycin- was on it for 22 months by the time of publication.

Seronegative Chronic Relapsing Neuroborreliosis.
https://www.ncbi.nlm.nih.gov/pubmed/7796837

Lawrence C.a · Lipton R.B.b · Lowy F.D.c · Coyle P.K.d

aDepartment of Medicine, bDepartment of Neurology, and cDivision of Infectious Diseases, Albert Einstein College of Medicine, and dDepartment of Neurology, State University of New York at Stony Brook, New York, NY., USA

Eur Neurol 1995; 35:113–117 (DOI:10.1159/000117104)

Abstract

We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.

Lyme disease vaccines:

Quotes from Dr Steere:

@ 26:41min: “I think we’ve had an effective and save vaccine for Lyme disease for over twenty years.”

@ 27:49 min: “From antivaccine movements the manufacturer decided it just was not worth the risk.”

This was not an “antivaccine movement” as there was substantial risk of serious harm to public health!

REPORT ON LYlMErix
Prepared by: SHELLER, LUDWIG & BADEY
Submitted to: VACCINES AN-D RELATED BIOLOGICAL PRODUSTS ADVISORY COMMITTEE   Jan 31, 2001

Excerpt:

The people who have contacted us were, prior to vaccination with LYMErix, healthy, active and energetic. Indeed, the very reason they sought the LYMErix vaccine was their desire to preserve their healthy, active lifestyle. However, what they experienced was a dramatic degradation of their health and quality of life. As will be described below, these previously healthy individuals are now afflicted with painful, at times debilitating arthritic symptoms, including joint pain and swelling, as well as extremely severe Lyme-disease-like symptoms which have persisted to this day.

LymeRix Vaccine Victim’s Stories and Related- Articles
https://www.dropbox.com/scl/fi/0jxjhg58v4zey5bl3s1xj/LYMErix-Vaccine-Victims-Stories-FDA-Jan-2001.pdf?rlkey=vmicwpln1e850otvtal0mw9y6&dl=0

JUDGEMENT, FINAL ORDER AND DECREE GRANTING FINAL APPROVAL OF THE CLASS ACTION SETTLEMENT:
https://www.lymedisease.org/wp-content/uploads/2018/05/2003-Vaccine-Judgement.pdf

What has been presented here in Tomorrow’s Cure is the same old dogma propagated for decades by those who have controlled this false public heath narrative.

Mark Twain once said, “It is easier to fool people than to convince them that they have been fooled.”

Has the wool been pulled over your eyes Cathy Wurzer?

Carl Tuttle
Independent Researcher
Hudson, NH
 
Letter to the editor published in BMJ June 10, 2020
Re: Lyme borreliosis: diagnosis and management
https://www.bmj.com/content/369/bmj.m1041/rr-1

Category:

Activism, Lyme, vaccines