Archive for the ‘Lyme’ Category

Career & Life Lessons From Survivors of Chronic Lyme Disease

https://www.lymedisease.org/life-lessons-chronic-lyme/

Career and life lessons from survivors of chronic Lyme disease

By Fred Diamond, Nov. 9, 2021

We all know that Lyme disease can cause major career disruption. But what if overcoming the disease can help you find your life’s purpose and mission?

I host The Sales Game Changers Podcast for sales professionals around the globe. I interview sales leaders about tactics, strategies, and ideas. Because someone in my life has chronic Lyme disease, I became interested in learning more about how survivors could transform their lives.

I recently hosted an episode called, “How These Leaders Discovered Their ‘Why’ After Conquering Chronic Illness and How It Applies to Sales.”

I sought out people to interview who had overcome their disease, or at least contained it, and found a more purposeful way to focus their careers and lives.

Great sales professionals are always looking for ways to find their purpose and mission so they can better serve their customers. I knew these lessons would resonate with my audience.

I’ve met some amazing leaders who have battled chronic Lyme and have shifted their career paths and life efforts to helping others suffering from chronic illness. I am inspired by them all.

You can listen to the episode or read the complete transcript. This episode was one of our most listened to ever.

Guests

The guests included:

  • Gregg Kirk, a digital sales support marketing director who switched career paths after his decade-long struggle with Lyme disease. After reaching remission, he wrote the book “The Gratitude Curve” and founded a nonprofit Lyme patient fund called Ticked Off Foundation.
  • Tanya Hoebel, vice-president of The Lyme Center in Chico, California, as well as the co-host of the Integrated Lyme Solution podcast.
  • And JP Davitt, founder of Lymefriends and the author of “LYME BOOK: A Journey to Becoming One Day Better.” After overcoming chronic illness, he’s been focused on helping others make one day better.

All three have found their life’s purpose in helping others who are struggling with Lyme disease.

The shift to recovery

I asked when the shift to recovery took place and then how did this define their mission.

Gregg Kirk said, “The shift started when I was at my worst, I was at the point where I wanted to die. It was one of these weird situations where I wanted to die but I kept hanging around. Then I started looking inward. Why am I still here and why have I gone through this? Is this some kind of weird karma thing? Did I deserve this? Did I kill someone in a past life? Why am I going through all this mental and physical punishment? Then after I had that night, I let everything go. I just felt like my life had burnt to the ground and I started looking at my life in a different way.”

“I started thinking, maybe this disease is pointing me in a direction. Maybe I was going in the wrong direction in my life, as much as I liked my life at the time. I just started to let it happen. And the less I resisted, the more things started changing in very unexpected ways,” he said.

Tanya Hoebel said, “When I was nearing the end of my treatment, that was about 9 years into my illness, I could for the first time see the light at the end of the tunnel. I really had some faith that I was going to get better. I didn’t let it physically or emotionally ruin me because I continued to fight back. I thought, how can I possibly allow another human being go through even one day of what I’ve gone through over the last 9 years? My life changed at that moment.”

JP Davitt said, “When I was sick, I dreamt of a platform that would allow sick people to connect more easily with one another. I imagined a social platform that was more like online dating for wellness. I created an interactive health and wealth advisory practice, and my passion became my niche.”

Mission and meaning

I then asked them specifically what they created to further their mission and how it’s put more meaning into their life.

Tanya said, “I’m so thankful that I found another resource to end my suffering. It proved to me also, that someone on top of the world emotionally, financially, and at the top of their career like I was prior to Lyme can in one moment lose it all. I could have been one of those people homeless on the streets that you see roaming around and you often wonder why they’re there. That is what Lyme disease does physically, emotionally, and financially.”

“Because this positive person, me, contemplated suicide at one point, I thought I’ve got to do something, I’ve got to make a difference. That is when I became so involved in advocating for Lyme. I run a nonprofit organization, it’s called The Lyme Center, it’s based out of Chico, California and our mission is to educate and advocate for Lyme.”

“I’m also the co-founder of an incredible mentoring group on Facebook. This group has proved to be more than I ever dreamt it to be in such a short amount of time. We offer lots of treatment options and help educate them on so many different levels of Lyme because there are so many facets of it. I even managed to find time to cohost a weekly podcast, Integrative Lyme Solutions.”

JP said, “Lymefriends is a platform that acts like a dashboard for people with Lyme disease to go to, a one-stop-shop for all of the resources. I collect resources without worrying about any competition bringing everything together to help them finance sooner.”

“Whenever I was sick and having to streamline my efficiency with my body, it really taught me a lot about processes. Learning a lot about this process as I carried that over to healthcare and I was able to them form a goal to not just help with Lyme disease, but my goal really in the grand picture is to change the literacy and vocabulary of healthcare using technology.”

Gregg said, “There is a patient care problem. People have no money and they’re not getting diagnosed properly. When they finally are, they’re not getting the proper care.”

“I thought, if I had a billion dollars, what would I do? I thought I would create a healthcare system, like an insurance system that funded treatment because most of the treatments that worked for me were not covered by insurance, the herbal treatments and so forth. I thought, I don’t need to wait until I’m a billionaire, I can start a foundation, a nonprofit that people come to us, they get qualified through some documentation, and we give them monthly stipends. We’ve been able to help many people get the treatment they need.”

It was very inspiring to hear from some people who have overcome Lyme disease and have been able to give back in a big way and to give their lives more purpose.

The same can happen for you.

Fred Diamond is based in Fairfax, VA and can be contacted via Facebook. For a living, he runs the Institute for Excellence in Sales and hosts the Sales Game Changers Podcast. Someone close to him is a chronic Lyme survivor, which led to his Lyme-related advocacy.

Category:

Lyme, Psychological Aspects

Advocates Call on IDSA to Retract False Information on Congenital Lyme

https://www.lymedisease.org/advocates-call-for-idsa-retraction/

Advocates call on IDSA to retract false information on congenital Lyme

Nov. 9, 2021

Mothers Against Lyme, a group of advocates concerned about the impact of Lyme disease and its co-infections on pregnant women, children and families, is calling for retraction of a statement in the Infectious Diseases Society of America (IDSA), American Academy of Neurology (AAN), American College of Rheumatology (ACR) 2020 Clinical Practice Guidelines for the Prevention, Diagnosis and Treatment of Lyme Disease that contributes to misdiagnosis and harm to pregnant women and children who are congenitally infected.

On October 20, Mothers Against Lyme sent a retraction request letter to the editors of the journals that published the guidelines and the leadership of the sponsoring organizations. Copies were sent to the clinical practice guidelines committees of the sponsoring organizations and the co-authors of the guidelines. The guidelines were published in Clinical Infectious Diseases, Neurology, Arthritis Care & Research, and Arthritis & Rheumatology.

Page e12 of the guidelines “Treatment of Lyme Disease” section states:

“To date, Lyme disease in pregnancy has not been found to result in congenital infection or a syndrome of congenital abnormalities, and no additional treatment or monitoring of the mother or infant is recommended beyond the standard of care.”

According to the letter, the statement “To date, Lyme disease in pregnancy has not been found to result in congenital infection” is not true.

40 peer-reviewed articles

The letter cites more than 40 peer-reviewed articles, including a systematic review co-authored by a CDC epidemiologist, that provide evidence of congenital infection with Lyme disease.

The letter also cites studies and review articles that show adverse birth outcomes are common for both treated and untreated pregnant women with Lyme disease.

Adverse outcomes include fetal death, newborn death, and newborns with an abnormal outcome (e.g. birth defects, hyperbilirubinemia, respiratory distress).

According to Mothers Against Lyme Chair Isabel Rose:

“Correction of this error is vital and warrants an expedited review and notice of correction. The potential harm to mothers, children, and families from the inaccurate information in the IDSA, AAN, ACR Guidelines is significant. Providers who rely on the guidelines will fail to diagnose and treat Lyme disease in pregnancy and fail to recognize the offspring of women with Lyme disease as infants and children at risk. Countless tragic births and fetal losses will result, with a lifetime of harm to the children and their families.”

Authors contradict their own work

The letter also cites eight articles co-authored by IDSA, AAN, ACR Guidelines authors that “clearly contradict what they’ve written in the guidelines, and which address the issue of intrauterine transmission and fetal abnormalities head-on.”

Following are examples.

“It is clear that B. burgdorferi can be transmitted in the blood of infected pregnant women across the placenta into the fetus. This has now been documented with resultant congenital infections and fetal demise.”

“The precise risk to the developing fetus of maternal Lyme disease during pregnancy is unknown, although it is well documented that fetal infection can occur and may have deleterious outcomes, including malformations and death.”

“The aim of treatment of early Lyme disease during pregnancy is not only to treat the infection and prevent long-term sequelae but to eliminate the infection as quickly as possible so as to prevent congenital transmission to the fetus.”

Ignoring their own research

According to Rose:

“It is disheartening and alarming that the authors of medical guidelines that direct the care of pregnant women with Lyme disease are ignoring their own research to put forward guidelines based on ‘expert opinion’ rather than their own discoveries. Their own work conclusively proves that perinatal transmission of B. burgdorferi during pregnancy does occur and may have dire consequences for the pregnant mother and her fetus.”

The IDSA, AAN, ACR Guidelines say that “no additional treatment or monitoring of the mother or infant is recommended beyond the standard of care.”

Instead of denying the existence of congenital Lyme, the letter says “the Guidelines should acknowledge that Lyme bacteria can cross the placenta, both infecting and causing harm to unborn children, and describe the manifestations of Lyme in pregnancy that the research has uncovered and advise screening and treatment according to the knowledge we have to date.”

Research funding

Rose points out that researchers who depend on the IDSA, AAN, ACR Guidelines for information will be less likely to submit grant applications for much needed research if they rely on the statement that congenital Lyme disease does not exist.

She notes that this is especially important since more than $29 million in new annual funding for NIH has been appropriated that could support this type of research. NIH has also issued several notices of special interest to encourage research on Lyme and other tick-borne diseases. A recent notice includes a section that calls for research on “gestational Lyme disease” and the impact on pregnancy on immune response.

Rose says, “Correcting this error does not undo the harm. In addition to making this correction in a timely manner, the sponsoring organizations should encourage their members to conduct research on congenital Lyme that will improve health outcomes for pregnant women with Lyme disease and children who are congenitally infected.”

About Mothers Against Lyme

We’re a group of mothers and mother-advocates who are concerned about the impact of Lyme disease and its co-infections on pregnant women, children and families. Our focus includes awareness, education, advocacy and community building, as we promote research that advances diagnosis, treatment and prevention.

SOURCE OF PRESS RELEASE: Mothers Against Lyme

Related posts:

  1. Advocate asks IDSA to remove false statement about Lyme transmission
  2. IDSA removes inaccurate Lyme document from website
  3. TOUCHED BY LYME: CDC allows “possibility” of mother-fetus Lyme transmission
  4. IDSA lists complaints against TBD Working Group; advocates push back

Category:

Activism, Lyme, research, Transmission

Bell’s Palsy From Lyme Misdiagnosed, Patient Bedridden Due to Myth That it is ‘Rare’

https://danielcameronmd.com/bells-palsy-lyme-disease-misdiagnosed/

Bell’s palsy due to Lyme disease misdiagnosed, patient bedridden

Woman in hospital bed with Bell's palsy due to Lyme disease.
In their study “Bilateral Facial Nerve Palsy in a Young Woman From West Bengal: Do Not Forget Lyme Neuroborreliosis,” Kayal and colleagues describe the case of a 23-year-old woman, living in India, who was misdiagnosed with bilateral facial nerve palsy. [1]
By

Until recently, India has been considered a non-endemic region for Lyme disease, the authors point out. And, “Although it had been considered extremely rare in India, a recent study conducted in Nagarahole and Bandipur in South India surprisingly revealed a high seroprevalence (19.9%) of Borrelia burgdorferi infection in a population at risk (forest workers and staff).”

According to the case report, the young woman was admitted to the hospital with “rapidly evolving progressive weakness of all four limbs, and lancinating pain over the back of the neck and lower back, radiating to upper and lower limbs.”¹

Her symptoms had developed over a 1-week period and left the patient bedridden. Ten days prior, she had developed a fever, which resolved within 2 days.

Two months before the onset of symptoms (during the last months of her pregnancy), she developed a “slight deviation of her angle of the mouth toward the left side, along with grossly decreased taste sensation and difficulties in closing eyes, blowing, and whistling.” This lasted for one month.

She was diagnosed with right-sided Bell’s palsy but Lyme disease was not considered, initially.

The woman was treated with methylcobalamine and prednisolone. However, her symptoms did not improve.

Further testing revealed the patient was positive for Lyme disease by ELISA and PCR.

She was treated with intravenous ceftriaxone (2 g/day) and oral azithromycin (500 mg/day) for 14 days.

Three months after her discharge from the hospital, the woman was able to walk without assistance. And, at the 6-month follow-up visit, she had “no demonstrable neurological deficit.”

Currently, only 10 cases of Lyme disease have been reported in India. Four of these cases involved lower motor neuron–type facial paresis.

In this case, the patient “also had an asymmetric lower motor neuron–type bilateral facial paresis, which was misdiagnosed by her treating physicians as right-sided Bell’s palsy leading to a delay in diagnosis.”

Interestingly, the authors point out, none of these patients exhibited an erythema migrans (bull’s-eye) rash.

The authors’ suggest:

“The possibility of Lyme neuroborreliosis should be considered more often from now on because in the last year four cases with the kindred clinical syndrome have been described from a so-called “non-endemic zone.”

Related Articles:

Treatment varies for Bell’s palsy in children with Lyme disease

Patient with facial palsy from Lyme disease fails treatment

Can Bell’s palsy lead to nonflaccid facial palsy in Lyme disease?

References:
  1. Kayal N, Ghosh R, Mazumdar PS, Das S, Ghosh S, Pandit A, Benito-Leon J. Bilateral Facial Nerve Palsy in a Young Woman From West Bengal: Do Not Forget Lyme Neuroborreliosis. Neurol India 2021;69:997-1001

Category:

Lyme, research

Interview: U.S. Bioweapon Lab Suspected of Source of Lyme Disease

**UPDATE **

Here’s a more recent interview of Karl Gross man:  https://www.bitchute.com/video/GoCS7q3OigYj/ as well as a 2014 article he wrote discussing Plum Island, the Nazi connection (Operation Paperclip), and the experimentation on ticks and dropping them out of airplanes.

Go here for the timeline.

http://www.news.cn/english/2021-08/25/c_1310146419.htm

Interview: U.S. bioweapon lab suspected of source of lyme disease: expert

Source: Xinhua| 2021-08-25 00:22:15|Editor: huaxia

by Xinhua writer Xu Chi

GENEVA, Aug. 24 (Xinhua) — A U.S. government bioweapons lab, inspired by a Nazi bioweapons expert and with a mission to poison cattle in the Soviet Union, is believed to be the source of the lyme disease, said a university professor and a long-time investigative journalist in a recent interview with Xinhua.

Karl Grossman, a full-time professor of journalism at the State University of New York, has spent five decades investigating a U.S. government laboratory on Plum Island, known as the Plum Island Animal Disease Center, which is located about one mile (about 1609 meters) off Long Island of New York.

For Grossman, this laboratory is “shrouded in secrecy.”

“I wish, there would be ‘transparency.’ That’s the word that has been used for decades in the U.S., so that people would know what their government has done,” he said.

“I am hopeful, but I am kind of doubt it, considering the decades and decades of secrecy involving the Plum Island,” he added.

(See link for article)

__________________

**Comment**

Highlights:

  • Nazi bioweapon expert, Erich Traub, brought to the U.S. after WWII, is the ‘godfather’ of Plum Island laboratory
  • Traub, an active Nazi, did biological warfare experiments on the island of Riems to poison cattle in the U.S.S.R.
  • Fort Terry was also located on Plum Island for over 50 years
  • Eventually the U.S. Dept. of Agriculture took over the Plum Island lab
  • A document reprinted on the front page of Newsday, a newspaper on Long Island, stated the mission of Plum Island was to develop biological warfare weaponry to poison cattle and other livestock in former Soviet Union
  • Grossman was the first to expose this admission in 1971
  • When the USDA opened Plum Island for tours, the public relations person told Grossman, “we do defensive biological warfare”
  • Newsday in 1977 reported that an African Swine Fever outbreak in Cuba in 1971 was connected to an outbreak on Plum Island, the only place the disease existed
  • a 2007 report by the U.S. Government Accountability Office (GAO) exposed some of the pathogens (West Nile virus, Nipah virus, and Rift Valley Fever) on Plum Island “could also cause illness and deaths in humans”
  • Attorney John Loftus specialized in pursuing Nazis for the DOJ and tells in his book about Nazi scientists experimenting with poisoned ticks dropped from airplanes. He hypothesized that the infected ticks were the source of Lyme disease
  • Investigative journalist Kris Newby writes in her book that Willy Burgdorfer, the “discoverer” of Lyme, developed bioweapons for the DOD
  • An amendment in 2019 championed by Rep. Chris Smith (N.J.) resulted in Congress requiring the DOD to investigate; however, this is the third year in a row such a measure introduced by Mr. Smith, but neither received Senate approval

Grossman states:

“There’s the question of whether COVID-19 might have started at a laboratory in China. And for decades there’s the issue of how Lyme disease began. Both cry out for vigorous and full investigations.”  – Karl Grossman

For more:

Category:

Activism, Lyme

Judge Dismisses Lyme Disease Lawsuit Against IDSA, Doctors, but the Ordeal Has Left Its Scars

The following letters written by Lyme advocate Carl Tuttle were written to rebut this Medscape article, which tries to make the reader feel sorry for researchers that have actively worked against Lyme patients and the doctors who dare treat them.  A few details about Leonard Sigal:

  • In the book “Cure Unknown,” Sigal actually bragged that the money he received as payments from the Insurance Defendants was a great fund for his children’s college educations
  • This testimony written by Lyme patient and advocate Kathy White for the Kansas Senate states these payments Sigal & others received deprived suffering patients from proper diagnosis, treatment, and insurance coverage
  • On August 12, 1996 Dr. Leonard Sigal gave a deposition and testified that he reviewed many Lyme disease files for insurance companies, almost always denied coverage, and charged $560 an hour to perform his work. He testified that he reviewed files for most of the Insurance Defendants …
  • The Insurance Defendants paid Dr. Sigal to improperly deny insurance coverage to Lyme disease patients and to improperly influence the treating doctors to not provide long-term treatment for chronic Lyme patients.

And this is information only on Sigal.  There is a litany of misdeeds done by The Cabal.  The Medscape article is like ripping a scab off of Lyme/MSIDS patients.  No wonder Tuttle took them to task.  Personally, I view Medscape as “yellow journalism.”  I only read it to understand how the enemy thinks. 

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf

Judge Dismisses Lyme Disease Lawsuit Against IDSA, Doctors, but the Ordeal Has Left Its Scars

Nov 6, 2021 — 

The following letter was mailed directly to Robert N. Brisco, Chief Executive Officer of WebMD, parent company of Medscape and forwarded to the editors of Medscape via email.  There was no response whatsoever from Medscape. Go figure!  If you are as outraged as I am over the continued collusion to deny chronic Lyme disease why not voice your opinion to the Medscape editors: editor2@webmd.net

MEDSCAPE MEDICAL NEWS

Judge Dismisses Lyme Disease Lawsuit Against IDSA, Doctors, but the Ordeal Has Left Its Scars

https://www.medscape.com/viewarticle/961484
Tara Haelle October 25, 2021

Excerpt:

“The cause of PTLDS [chronic Lyme] is still under investigation, and the evidence does not support the idea of a persistent bacterial infection.”

Dear Mr. Brisco,

In reference to the recent Medscape article above I would like to call attention to the following letter addressed to Brenda Fitzgerald, MD former Director of the CDC. As you know, culture is the diagnostic gold standard for many bacterial infections but there appears to be a double standard in the case of Lyme disease especially when it threatens a thirty-year narrative.

Postmortem examination to discover the cause of death also appears to have been thrown out the window when Lyme disease is involved.

Seronegative Lyme in which no one will test positive using the current twenty-five-year-old two-tier testing algorithm has been suppressed for decades.

And you wonder why patients have filed a lawsuit against the Infectious Diseases Society of America (IDSA)?

What are the chances that the information/references in my 2017 letter below addressed to Dr. Fitzgerald will find its way into a Medscape article?  For the record, there was no response from Fitzgerald, Redfield or current CDC Director Rochelle P. Walensky, MD.

Cc: Tara Haelle, Independent science/health journalist, Timothy Flanigan, MD Professor, Brown University, Leonard Sigal, MD, Berkshire Medical Center, Daniel McQuillen, MD, President of IDSA, Raymond J. Dattwyler, MD, Professor New York Medical College

Letter to Brenda Fitzgerald, MD Director US Centers for Disease Control:
———- Original Message ———-

Dear Dr. Fitzgerald,
Untreated strep throat leads to rheumatic fever which can cause irreversible heart damage but rapid culture tests for strep available in the primary care setting has virtually eliminated rheumatic fever and the life-threatening complications associated with that disease.

Misdiagnosed and untreated Lyme disease creates the same life-altering/life-threatening consequences but this has been hidden from the worldwide medical community and general population. Just ask Duke University Professor Neil Spector who required a heart transplant after his Lyme infection went four years untreated. Spector’s laboratory tests (serology) were repeatedly negative. Faulty/misleading antibody tests are the root cause of unimaginable pain and suffering.

Lyme disease is capable of producing sudden death with no warning signs; [1,2,3,] heart damage requiring transplant, [4] paralysis with seizures, [5] lymphoma [6] and persistent infection after antibiotic treatment [7, 8,9,10,11] along with congenital transmission [12] and ability to create wheelchair bound patients [13]. The last time we recognized a disease with this potential to cause serious harm, (Zika) the CDC wanted 1.8 billion for research. [14]

Quote from Senator Richard Blumenthal:

“Today for me culminates more than a decade of work and probably a decade more, because I’ve seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease”

Source:  http://ctmirror.org/2011/07/18/blumenthal-takes-lyme-disease-fight-senate/

In regards to laboratory testing (culture), please see the following quote from Dr. Kenneth Liegner:

“In 1991 the Lyme disease organism, Borrelia burgdorferi, was grown from the cerebrospinal fluid of my patient Vicki Logan at the Centers for Disease Control in Fort Collins, Colorado despite prior treatment with intravenous antibiotics.  Her case made the front page of the New York Times Science Times in August of 1993.” -Kenneth Liegner, MD

Source:  http://cognitiveliberty.net/wp-content/uploads/2014/12/David-Dennis.pdf

Vicki Logan’s CDC Fort Collins Positive CSF Culture Report: (My personal Dropbox account):  https://www.dropbox.com/s/vthfdpn7gv8bne2/Logan%20CDC%20Fort%20Collins%20Positive%20CSF%20%20Culture%20Report.JPG?dl=0

Lyme patient Vicki Logan’s 1991 positive culture test performed by the Centers for Disease Control should have set off a red flag but was ignored while the focus remained on discrediting the sick and disabled Lyme patient population. [15]

Here are links to the seven page autopsy results of patient Vicky Logan showing histopathologic findings consistent with neurologic manifestations of chronic Lyme disease.

(Vicky Logan’s Autopsy results Page # 1 ,  2 ,  3 ,  4 ,  5 ,  6 ,  7 )

  1. https://www.dropbox.com/s/5ykib95sfp66adb/Logan%20Autopsy%201.JPG?dl=0
  2. https://www.dropbox.com/s/lysfqd3vjc63bkl/Logan%20Autopsy%202.JPG?dl=0
  3. https://www.dropbox.com/s/zq7kj953f7mejkn/Logan%20Autopsy%203.JPG?dl=0
  4. https://www.dropbox.com/s/uqkgxynm5bn88jg/Logan%20Autopsy%204.JPG?dl=0
  5. https://www.dropbox.com/s/id8bbppoiscxuiq/Logan%20Autopsy%205.JPG?dl=0
  6. https://www.dropbox.com/s/mnms2un02g19kg7/Logan%20Autopsy%206.JPG?dl=0
  7. https://www.dropbox.com/s/nfvqbidao16yynf/Logan%20Autopsy%207.JPG?dl=0
The destructive nature of Borrelia is evident in Vicky Logan’s liver (nutmeg liver), kidneys, heart, lungs and brain. The patient died after the insurer refused additional IV antibiotic therapy.

I would like to point out the following case study from Stony Brook Lyme clinic. I understand the patient received thirteen spinal taps, multiple courses of IV and oral meds, and relapsed after each one, proven by CSF antigens and/or PCR. The only way this patient (said to be a physician) remained in remission was to keep her on open ended clarithromycin- was on it for 22 months by the time of publication.

Seronegative Chronic Relapsing Neuroborreliosis. 
https://www.ncbi.nlm.nih.gov/pubmed/7796837
Lawrence C.a · Lipton R.B.b · Lowy F.D.c · Coyle P.K.d
aDepartment of Medicine, bDepartment of Neurology, and cDivision of Infectious Diseases, Albert Einstein College of Medicine, and dDepartment of Neurology, State University of New York at Stony Brook, New York, NY., USA

Eur Neurol 1995; 35:113–117  (DOI:10.1159/000117104)

Abstract

We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.

________________________

For the past three decades, Lyme disease has been portrayed as hard to catch and easily treated [16] while those who control the narrative (through editorial censorship) refuse to recognize this pathogen as an antibiotic resistant/tolerant superbug by suppressing evidence of persistent infection. [17] This misclassification has all but eliminated government funding that should have been equal to or greater than AIDS or Zika which are also life-altering/life-threatening infections in need of cures.

What we are dealing with here is an antibiotic resistant/tolerant superbug but the focus over the past three decades (as seen in the Lancet article) has been to discredit the sick and disabled along with the practitioners attempting to help these patients as opposed to finding new antimicrobials effective in eradicating all forms of the Borrelia spirochete; L-forms, round bodies and persister cells.

The truth about this devastating disease has been kept from the public for 43 years and there are no Public Service Announcements informing the public that you could become horribly disabled or die from Lyme disease

A worldwide community of physicians has been influenced by the ongoing disinformation campaign aimed at promoting the idea that Lyme is little more than a nuisance disease as health agencies across the globe are blindly following what has been deceitfully established here in the U.S.

We are dealing with a life-altering/life-threatening infection with faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control.

This has been a 43 year epic failure on the part of the CDC and now you inherited this travesty.

Will you continue to turn a blind eye to this 21st Century plague?

A response to this inquiry is requested.

Carl Tuttle
Independent Researcher
Lyme Endemic Hudson, NH USA
Reviewer, American Journal of Infectious Diseases

Lyme Disease: Call for a “Manhattan Project” to Combat the Epidemic
Raphael B. Stricker, Lorraine Johnson
Published: January 02, 2014DOI: 10.1371/journal.ppat.100379
http://www.plospathogens.org/article/info:doi/10.1371/journal.ppat.1003796

Cc: Associate Editors, Diagnostic Microbiology and Infectious Disease

References: ( Please read them!)

Category:

Activism, Lyme