Author Archive

How Much Money is CDC Paying Mathematica to Propagate Their False Lyme Narrative?

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/31334901

How much money is the CDC paying Mathematica to propagate their false Lyme disease narrative?

Carl Tuttle

Hudson, NH, United States

FEB 22, 2023 — 

Please see the latest email addressed to the management team at Mathematica hired by the CDC to promote the false Lyme disease narrative under the guise of “Guidance.”

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “achen@mathematica-mpr.com” <achen@mathematica-mpr.com>, “info@mathematica-mpr.com” <info@mathematica-mpr.com>, “pdecker@mathematica-mpr.com” <pdecker@mathematica-mpr.com>
Cc: “lwx1@cdc.gov” <lwx1@cdc.gov>, “frederick.chen@ama-assn.org” <frederick.chen@ama-assn.org>, “gmarx@cdc.gov” <gmarx@cdc.gov>, “acoyne@mathematica-mpr.com” <acoyne@mathematica-mpr.com>, “jconstantine@mathematica-mpr.com” <jconstantine@mathematica-mpr.com>, “ctrenholm@mathematica-mpr.com” <ctrenholm@mathematica-mpr.com>, “tbarnes@mathematica-mpr.com” <tbarnes@mathematica-mpr.com>, “sboudreau@mathematica-mpr.com” <sboudreau@mathematica-mpr.com>, “jdevallance@mathematica-mpr.com” <jdevallance@mathematica-mpr.com>, “sara.berg@ama-assn.org” <sara.berg@ama-assn.org>, “jack.resneck@ucsf.edu” <jack.resneck@ucsf.edu>, “jack.resneck@ama-assn.org” <jack.resneck@ama-assn.org>, “todd.unger@ama-assn.org” <todd.unger@ama-assn.org>, “jon.burkhart@ama-assn.org” <jon.burkhart@ama-assn.org>, “karen.kmetik@ama-assn.org” <karen.kmetik@ama-assn.org>, “sanjay.desai@ama-assn.org” <sanjay.desai@ama-assn.org>, “william_henderson@paul.senate.gov” <william_henderson@paul.senate.gov>

Date: 02/22/2023 9:27 AM
Subject: How much money (taxpayer dollars) is the CDC paying Mathematica to propagate their false Lyme disease narrative?

To the management team at Mathematica,

Here are the facts about Lyme disease:

Persistent infection after extensive antibiotic treatment has been identified using direct detection methods in academic centers and autopsy findings [i] yet the average patient cannot obtain these tests to justify how sick they are with their chronic active infection. Serology cannot be used to gauge treatment failure or success which makes it the ideal tool for concealing persistent infection.

Serology has allowed the 30-year dogma to persevere [ii] whereas direct detection methods are exposing the exact opposite.

We are dealing with a life-altering/life-threatening infection with faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control whatsoever; a public health disaster. And what was the reason for the mishandling of this coexisting hidden pandemic you might ask?

A chronic relapsing seronegative disease does not fit the vaccine model. You cannot prove vaccine efficacy when we do not know who has or does not have the infection.

The rush to create a vaccine here in the United States promoted the denial of persistent infection and focusing on the acute stage of disease hides the horribly disabled.

With nearly 100,000 signatures, the Change.org petition calling for a congressional investigation into the mishandling of Lyme disease has collected 1,100 pages of heart wrenching comments from horribly disabled Lyme patients all across America.

Here are just nine randomly selected comments from patients disabled from Wormser’s “nuisance disease” whose junk science has been financed by the CDC with an open checkbook. (RO1 CK 000152) [iii]

Comments collected from the Change.org petition calling for a congressional investigation:
https://www.dropbox.com/s/d40isfeff5h806o/petition_comments_Oct%2028%202020.pdf?dl=0

1.  My 16 year old daughter has late stage, neurological Lyme Disease. I have watch over the past several years as she has had to give up so much. She has stopped playing sports (basketball, soccer, and softball), dancing, eating many different foods, going to school, and even just spending time with friends. We have been to many different doctors with many different specialties looking for answers and have finally received a clinical diagnosis of Lyme Disease from two doctors who are working together to try to help her. The challenge now is to get her strong enough to endure the treatment that she is facing. We are told it may take years of treatment to get her to a reasonable quality of life. It is devastating to see my daughter struggle with all of this at a time when her friends are enjoy things like prom, graduations, and even just youth group activities while she sits at home suffering. This is a terrible disease!
Catherine Weakley, Virginia Beach, VA

2.  My best friend’s life has been devastated by Lyme Disease for the last several years. If only her doctors had taken her concerns and symptoms seriously in the beginning and administered the proper tests, she may not have gone through so many years of pain. I accompanied her to these appointments and watched first hand as her symptoms were ignored and mis diagnosed over and over again. She has gone through years of suffering that could have been prevented had she been diagnosed at the start and given antibiotics. For the sake of her and the many others who are suffering needlessly I urge you to investigate this matter fully and support education, awareness, acceptance and action throughout the medical community.
Samantha Erin Barragar, Malibu, CA

3.  I have been suffering from Neurological Lyme Disease since I was 15 years old. A year and a half ago, I had a serious flare up that has left me disabled with seizures, tremors, cognitive issues, immobility, and chronic pain. The severity of this disease should not be overlooked, and warrants significant research. The outdated and immoral IDSA guidelines must be investigated for the sake of all current and future persons infected with Lyme. Our voices deserve to be heard!
Caren Dandeo, Middletown, NJ

4.  I’m positive for lyme and co infections and was getting better with treatment, then insurance stopped paying. I’m wheelchair bound now and cannot stand, move, or take care of myself. United HealthCare cited the CDC guidelines of 28 days of antibiotics of treatment. THAT’S NOT ENOUGH.
Doug Frenz, Hudson, OH

5.  I’m only 20 years old and I’ve suffered from Lyme Disease for the past 6 years of my life. For the first few years of my disease I went undiagnosed; doctors would tell me I was crazy, and I continued to get sicker and sicker. My 15 year old sister is also really sick with Lyme and has been for years. It breaks my heart. There has to be something serious done about this epidemic, and fast.
Niki Mitchell, Binghamton, NY, NY

6.  My 4 Lyme tests came back “negative” according to my PCP’s. I was “negative” for 8 years while I did indeed have Lyme. When I visited 2 LLMD’s they both verified that I had Lyme. Had it been caught 8 years prior it could have been cured. Instead, it spread to all parts of my body and brain. I in turn became a burden on the healthcare system and lost all of my assets. Accurate testing MUST be developed!
Serenaty S, New York, NY

7.  I am disabled, in a wheelchair, and currently on IV medicine to try and kill off Lyme, Babesia, and Bartonella. I am in huge debt because insurance refuses to pay for anything – not doctor visits, not medicine, nothing. Too many are sick and dying. Enough.
Wendy Vogt, Redwood City, CA

8.  My husband has been diagnosed with neurological lyme and the coinfections of bartonella and babesia. We spent years going form doctor to doctor trying to find out what he has. His illness reached the point where he is no longer able to work. Our insurance company will not approve the IV antibiotics he needs to get better due to the current CDC guidelines. The illness does not just affect the patient but the entire family. Lyme needs to be addressed.
Kathy Wilder Bichler, Fair Lawn, NJ

9.  Spent over $100,000 dollars to get our son well in Oklahoma. 21 doctors would not recognize Lyme disease because of ignorance. We went out of state to find a LLMD. It is an awful disease and in so many ways. His Lyme test only had one band positive so according to the CDC is not proof of Lyme. Well wrong…he was pulled 5 ticks off himself and 3 days later severally I’ll for the next 2 1/2 years of being homebound. We where lucky we had a savings but I took our retirement money.
Diana Clock, Bixby, OK

Carl Tuttle
Hudson, NH

“In the fullness of time, the mainstream handling of Chronic Lyme Disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government, and the entire insurance industry colluded to deny a disease.”   -Kenneth B. Liegner, MD, Internal Medicine, New York, USA

References:

[i] 700 articles LYME Evidence of Persistence (personal Dropbox storage area)
https://www.dropbox.com/s/n09sk90eo6xz7ua/700%20articles%20LYME%20EvidenceofPersistence-V2.pdf

[ii] Lyme Disease Is Hard to Catch And Easy to Halt, Study Finds
New York Times By GINA KOLATA Published: June 13, 2001
https://www.nytimes.com/2001/06/13/us/lyme-disease-is-hard-to-catch-and-easy-to-halt-study-finds.html

[iii] Effective propaganda/racketeering scheme all financed through taxpayer dollars!
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/25694689

Category:

Activism, Lyme, Testing, vaccines

Pacemakers for Lyme Carditis

https://danielcameronmd.com/pacemakers-for-lyme-carditis/

PACEMAKERS FOR LYME CARDITIS

pacemaker-lyme-carditis

Some patients with Lyme carditis (LC) require implantation of a pacemaker. Yeung and Baranchuk discussed the need for “preventing unnecessary implantation of permanent pacemakers in otherwise healthy young individuals” in the Journal of the American College of Cardiology in 2019.

By 

Lyme disease can directly infiltrate the heart leading to an exaggerated inflammatory response when spirochetes penetrate the heart. Lyme carditis can appear within 1 to 2 months after the onset of a Lyme disease infection, wrote Yeung and Baranchuk.¹ They point out, the most common presentation of LC (90%) is high-degree atrioventricular (AV) block (AVB).

AV block due to Lyme disease can be successfully treated with antibiotics in a hospital setting. However, in some cases, a temporary or permanent pacemaker is required. In reviewing the literature, Besant and colleagues found that 17.9% of patients with LC required a permanent pacemaker and 10.3% required a temporary and a permanent pacemaker.²

“High-degree atrioventricular block is the most common presentation of [Lyme carditis], and usually resolves with antibiotic therapy.”¹

Yeung et al. highlighted the importance of avoiding a permanent pacemaker “to prevent the inherent risks of pacemaker implantation, including periprocedural infections and complications, lead dislodgement, etc.”

Furthermore, the authors emphasized the importance in avoiding a permanent pacemaker in children. “An unnecessary pacemaker implantation would result in a subsequent lifetime of multiple pulse generator changes, psychological/physical sequelae, and burden of associated cumulative health care costs.”

They concluded, “A systematic approach to the diagnosis and treatment of LC will facilitate the identification of LC in patients with high-degree AVB, thus preventing unnecessary implantation of permanent pacemakers.”

Both a standard transvenous temporary pacemaker lead, or modified temporary–permanent transvenous pacing are available.

“In modified temporary– permanent transvenous pacing, an active fixation lead is attached to a resterilized permanent pace- maker generator taped to the patient’s skin and used as a temporary external device, which allows for early ambulation,” wrote Yeung and Baranchuk.

A permanent pacemaker has been recommended if AV conduction is not restored.

Related Articles:

Successful removal of pacemakers in patients with Lyme carditis

5 things to know about Lyme carditis

How common is Lyme carditis in patients referred for pacemaker implantation?

References:
  1. Yeung C, Baranchuk A. Diagnosis and Treatment of Lyme Carditis: JACC Review Topic of the Week. J Am Coll Cardiol. Feb 19 2019;73(6):717-726. doi:10.1016/j.jacc.2018.11.035
  2. Besant G, Wan D, Yeung C, et al. Suspicious index in Lyme carditis: Systematic review and proposed new risk score. Clin Cardiol. Dec 2018;41(12):1611-1616. doi:10.1002/clc.23102

For more:

Category:

Heart Issues, Inflammation, Lyme, research

WHO World Takeover Closer: Take Action

**UPDATE**

https://standforhealthfreedom.com/action/exit-who/  Go here to contact your reps to EXIT THE WHO by supporting HR79 (WHO Withdrawal Act)

Go here for a background on the WHO’s dystopian nightmare

https://www.theepochtimes.com/biden-admin-negotiates-deal-to-give-who-authority-over-us-pandemic-policies

Biden Admin Negotiates Deal to Give WHO Authority Over US Pandemic Policies

New international health accord avoids necessary Senate approval
A logo is pictured outside a building of the World Health Organization (WHO) in Geneva, Switzerland. (Denis Balibouse/Reuters)
A logo is pictured outside a building of the World Health Organization (WHO) in Geneva, Switzerland. (Denis Balibouse/Reuters)
By Kevin Stocklin
February 18, 2023Updated: February 21, 2023

The Biden administration is preparing to sign up the United States to a “legally binding” accord with the World Health Organization (WHO) that would give the Geneva-based United Nations health agency the authority to dictate America’s policies during a pandemic.

Despite widespread criticism of the WHO’s response to the COVID pandemic, U.S. Health and Human Services Secretary Xavier Becerra joined with WHO Director-General Tedros Adhanom Ghebreyesus in September 2022 to announce “the U.S.-WHO Strategic Dialogue.” Together, they developed a “platform to maximize the longstanding U.S.–WHO partnership, and to protect and promote the health of all people around the globe, including the American people.”  (See link for article)

SUMMARY:

  • the “zero draft” (pdf) of a pandemic treaty now seeks ratification by all 194 WHO member states, then there’s a meeting on Feb 27 when members will then sign the document.
  • the zero draft grants the WHO the power to declare and manage a global pandemic emergency. Once a health emergency is declared, all signatories, including the United States, would submit to the authority of the WHO regarding treatments, government regulations such as lockdowns and vaccine mandates, global supply chains, and monitoring and surveillance of populations.
  • all of this gives the WHO their long sought after highly restrictive centralized, vaccine and medication-based response to control populations.
  • the zero draft is part of a two-track effort with an initiative by the World Health Assembly to create new global pandemic regulations that would supersede the laws of member states.

“Both [initiatives] are fatally dangerous,” Francis Boyle, professor of international law at the University of Illinois College of Law, told The Epoch Times. “Either one or both would set up a worldwide medical police state under the control of the WHO, and in particular WHO Director-General Tedros.

If either one or both of these go through, Tedros or his successor will be able to issue orders that will go all the way down the pipe to your primary care physicians.”

  • zero draft would require nations to monitor and regulate against “substandard and falsified pandemic-related products,” which simply means they tell doctors what they can use. Period.
  • there’s a clause in the draft to make it legally binding without being ratified by legislatures, which simply means :

“Whoever drafted this clause knew as much about U.S. constitutional law and international law as I did, and deliberately drafted it to circumvent the power of the Senate to give its advice and consent to treaties, to provisionally bring it into force immediately upon signature,” Boyle said. In addition, “the Biden administration will take the position that this is an international executive agreement that the president can conclude of his own accord without approval by Congress and is binding on the United States of America, including all state and local democratically elected officials, governors, attorney generals, and health officials.”

  • the Biden admin found that U.S. health care doesn’t fall under the authority of the federal government – it’s in the domain of the states.  To circumvent this impediment, they went to the WHO to get around domestic opposition.
  • despite admission from the WHO’s Independent Panel on the “toxic cocktail” of bad decisions regarding the COVID pandemic made by the WHO, their answer is greater centralization, more power, and more money to the corrupt WHO.
  • the agreement calls for “One Health Surveillance,” (also embraced by the UN, CDC, World Bank, and other globalists) which now includes all human activities and includes all the popular buzz words: climate, racism, carbon emissions, etc. The definition of this little ditty will be pounded out in the future but member states are required to invest, implement, and strengthen it.
  • member states agree to support the official narrative and will counteract ‘misinformation.’
  • the agreement redefines sovereignty and human rights from individual rights to collective rights as can be seen in countries like Austria who criminalized the refusal to take the COVID shot, and states like NY that mandated “vaccine” passports, segregating residents into a privileged class and a second-tier unvaccinated class.

Do we believe in equality, or do we believe in a feudal system where a few people are at the top, controlling society, telling others what to do?

https://merylnass.substack.com/p/sir-jeremy-farrar-helped-fauci-cover

Sir Jeremy Farrar who helped Fauci cover up the origin of COVID, was central in the Recovery and Solidarity trials that overdosed 2600 patients with hydroxychloroquine, now heads to WHO for world takeover

So it is good to read between the lines and see what his forked tongue has to say–what narratives is he pushing now? Full text with comments below.

Meryl Nass
‘There may still be surprises’: Jeremy Farrar warns of pandemic perils ahead.

[He is asking for $3.5 Billion for CEPI to develop pandemic vaccines, and $100-200 Billion for pandemic preparedness, and a 15x increase in the WHO budget—you bet he’s gonna warn us about surprises and tell us he can buy us safety.—Nass]

(See link for article)

_________________

Go here for more on Jeremy Farrar.

**Comment**

Nass takes the article about Farrar written by The Guardian, and makes important comments & reminders we need to be aware of:

  • He filed to find drugs for COVID and learned that you lose a lot of money if you find a cure.
  • Viruses always continue to mutate but he attempts to use fear about variants if the virus is allowed to continue to circulate.
  • He pushes fear of the flu, particularly H1N1 for which his company CEPI has promised a vaccine in 100 days, but hasn’t promised safety and efficacy or liability
  • He insists the world should be ready for the next pandemic, despite the US having spent $150 Billion since the anthrax letters, yet we had nothing when COVID erupted or was deliberately thrown at us.
  • Nass reminds us that Farrar deliberately killed people to prevent HCQ being used for COVID, by overdosing 1,591 patients, of whom 396 died in the UK alone
  • When Farrar complains about exhausted and undervalued healthcare workers, Nass points out these workers were forced to either use useless and harmful treatments and vaccines, quit their jobs or be fired.
  • When he speaks of his consideration of resigning over the outcomes of bad decisions (preventable deaths) Nass points out these bad decisions included withholding effective drugs, locking people down over and over, and then blaming others when these policies predictably kill a lot of people.
  • Farrar, called the Bill Gates of Europe, states he’s been targeted on social media and has received death threats.
  • Nass reminds that it was Farrar who organized the phone call with Fauci and a dozen others in which they decided how to organize a coverup of the origin of COVID by writing a paper insisting it couldn’t have come from a lab. Wellcome staff helped write it anonymously, but were listed in a press release from Scripps which Nass exposed here, here, and here.
  • While Farrar states that conspiracy theories are amplified now and get more airtime, Nass points out intelligence agencies have done nothing but attempt to control every narrative with Farrar never taking responsibility for anything, and who is always ready with a quip that sounds good, and then misdirects – just like Fauci and Walensky.
  • His role at WHO is new and yet to be defined.
  • Being a good globalist, he listed all the buzz words including climate crisis, pandemics, and equity, which Nass points out are all being used by the WHO to take over world sovereignty to control us.
  • Lastly, he states that if we revert to making policies with a lack of evidence the world will be in a worse place, but Nass points out that he was at the forefront of imposing policies with absolutely no evidence behind them.

Category:

Activism, vaccines, Viruses

Australia Caught Hiding “Vaccine” Deaths

https://rebekahbarnett.substack.com/p/breaking-australias-drug-regulator

BREAKING: Australia’s drug regulator hid vaccine deaths from the public, concerned that ‘disclosure could undermine public confidence’

The hidden deaths include two children, seven and nine years old, who both suffered fatal cardiac arrests which the TGA assessed as causally linked to Covid vaccination

Rebekah Barnett

Documents obtained under Freedom of Information (FOI) request by Dr Melissa McCann reveal that the TGA appears to have hidden numerous vaccine-induced deaths from the public view, including those of two children.

Dr McCann shared the shocking revelation in her address at the Covid Vaccine Conference, hosted by Clive Palmer’s United Australia Party over the weekend in Brisbane, Melbourne and Sydney. The event featured leading ICU physician Dr Pierre Kory, cardiologist and epidemiologist Dr Peter McCullough, and McCullough’s collaborator, author John Leake.

Addressing sold out crowds, Dr McCann shared the extraordinary lengths she had to go to to extract causality assessment documents relating to the TGA’s investigation of reported deaths after Covid vaccination, which were obtained under FOI request in a process that took six months. Dr McCann lodged the request after seeing an unexpectedly high number of patients coming through her clinic experiencing adverse events after immunisation (AEFIs). She also noticed a high number of serious AEFI reports in the in the DAEN database, including the reported death of a 14 year old in October 2021.  (See link for article)

______________

http://

Link 

**Comment**

Without these FOIA requests we would be completely in the dark.  Government agencies should be transparent and honest in their reporting.  The fact they aren’t should be proof enough they are not ever to be trusted.   I assure you that Australia is far from alone in hiding the maimings and deaths linked to these clot shots.  This is why we should never trust these governmental agencies.  They have long ago forgotten their role as public servants.

The doctor that submitted the FOIA is turning her efforts to a COVID vaccine class action to force some transparency, which is expected to file within the month.

Category:

Activism, vaccines

Clinical Microbiology Reviews; “Lab Diagnosis of Lyme Borreliosis”

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u

Clinical Microbiology Reviews; “Laboratory Diagnosis of Lyme Borreliosis”

Carl Tuttle

Hudson, NH, United States

FEB 21, 2023 — 

Please see the inquiry below addressed to the authors of this publication titled Laboratory Diagnosis of Lyme Borreliosis. There has been no response from Branda or Steere…

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “branda.john@mgh.harvard.edu” <branda.john@mgh.harvard.edu>, “asteere@mgh.harvard.edu” <asteere@mgh.harvard.edu>
Cc: “cmr-eic@asmusa.org” <cmr-eic@asmusa.org>, “jdienbard@chla.usc.edu” <jdienbard@chla.usc.edu>, “fcfang@uw.edu” <fcfang@uw.edu>, “louisa.messenger@unlv.edu” <louisa.messenger@unlv.edu>, “johann.pitout@cls.ab.ca” <johann.pitout@cls.ab.ca>, “schuetz.audrey@mayo.edu” <schuetz.audrey@mayo.edu>, “cmstaley@umn.edu” <cmstaley@umn.edu>, “achen@mathematica-mpr.com” <achen@mathematica-mpr.com>, “info@mathematica-mpr.com” <info@mathematica-mpr.com>, “pdecker@mathematica-mpr.com” <pdecker@mathematica-mpr.com>, “lwx1@cdc.gov” <lwx1@cdc.gov>, “frederick.chen@ama-assn.org” <frederick.chen@ama-assn.org>, “gmarx@cdc.gov” <gmarx@cdc.gov>, “acoyne@mathematica-mpr.com” <acoyne@mathematica-mpr.com>, “jconstantine@mathematica-mpr.com” <jconstantine@mathematica-mpr.com>, “ctrenholm@mathematica-mpr.com” <ctrenholm@mathematica-mpr.com>, “tbarnes@mathematica-mpr.com” <tbarnes@mathematica-mpr.com>, “sboudreau@mathematica-mpr.com” <sboudreau@mathematica-mpr.com>, “jdevallance@mathematica-mpr.com” <jdevallance@mathematica-mpr.com>, “sara.berg@ama-assn.org” <sara.berg@ama-assn.org>, “jack.resneck@ucsf.edu” <jack.resneck@ucsf.edu>, “jack.resneck@ama-assn.org” <jack.resneck@ama-assn.org>, “todd.unger@ama-assn.org” <todd.unger@ama-assn.org>, “jon.burkhart@ama-assn.org” <jon.burkhart@ama-assn.org>, “karen.kmetik@ama-assn.org” <karen.kmetik@ama-assn.org>, “sanjay.desai@ama-assn.org” <sanjay.desai@ama-assn.org>, “william_henderson@paul.senate.gov” <william_henderson@paul.senate.gov>

Date: 02/10/2023 9:02 AM
Subject: Clinical Microbiology Reviews; “Laboratory Diagnosis of Lyme Borreliosis”
Clinical Microbiology Reviews
Published online 2021 Jan 27
 
Laboratory Diagnosis of Lyme Borreliosis
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7849240

John A. Branda and Allen C. Steere

“Lyme borreliosis is caused by a growing list of related, yet distinct, spirochetes with complex biology and sophisticated immune evasion mechanisms.”

Dear Drs. Branda and Steere,
I read your manuscript with great interest. While searching for the word “seronegative” I came across seven results in your publication but could not find the following references:

There is a wrongful death lawsuit in the state of NY where a 17yr old collapsed in his front yard later pronounced dead at the hospital. His Lyme test was negative.

1. Wrongful death suit shows pitfalls of IDSA Lyme guidelines
Joseph Elone died of Lyme disease
By Mary Beth Pfeiffer Sept 9, 2019
https://www.lymedisease.org/elone-wrongful-death-lawsuit-lyme/

In Pennsylvania there was a civil lawsuit against doctors who misdiagnosed Lyme disease as multiple sclerosis. The patient had four negative serologies but the fifth one came back positive.

2. Pa. Supreme Court to Hear Medical Liability Case with Statute of Limitations Implications
https://www.pamedsoc.org/list/articles/Statute-of-Limitations

Duke University Oncologist Dr. Neil Spector required a heart transplant; his Lyme serology was repeatedly negative.

3. Gone in a Heartbeat: A Physician’s Search for True Healing
https://lymediseaseassociation.org/book-list/gone-in-a-heartbeat-a-physician-s-search-for-true-healing-by-neil-spector-md/

I would like to point out the following case study from Stony Brook Lyme clinic. I understand the patient received thirteen spinal taps, multiple courses of IV and oral meds, and relapsed after each one, proven by CSF antigens and/or PCR. The only way this patient (said to be a physician) remained in remission was to keep her on open ended clarithromycin- was on it for 22 months by the time of publication. Standard antibody tests were negative.

4. Seronegative Chronic Relapsing Neuroborreliosis.  
https://www.ncbi.nlm.nih.gov/pubmed/7796837
Lawrence C. Lipton R.B. Lowy F.D. Coyle P.K.

Department of Medicine, Department of Neurology, and Division of Infectious Diseases, Albert Einstein College of Medicine, and Department of Neurology, State University of New York at Stony Brook, New York, NY., USA

Abstract
We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.

5. Seronegativity in Lyme borreliosis and Other Spirochetal Infections 16 September 2003
https://www.dropbox.com/s/3d6m45jzlhhwalu/Seronegativity.pdf?dl=0

Here is a recent wrongful death lawsuit in the state of Maine: (I understand Mr. Smith’s Lyme test was negative)

Mercy Hospital, physician ordered to pay $6.5M for deadly misdiagnosis
Pete Smith, 25, died in 2017 after a doctor failed to recognize the signs of Lyme Disease
https://www.wmtw.com/article/mercy-hospital-physician-ordered-to-pay-dollar65m-for-deadly-misdiagnosis/42745675

Regardless of your so-called “advances in diagnostics” these references prove serology has always been the wrong diagnostic tool for an infection that often produces no detectable antibodies in all stages of disease. 1   “Spirochetes with complex biology and sophisticated immune evasion mechanisms” as you pointed out in your summary.

Is there a reason why the references I have presented here are missing from your publication?
A response to this inquiry is requested.
A copy of this inquiry has been sent to the management team at Mathematica Policy Research who have recently been contracted by the CDC.

Respectfully submitted,
Carl Tuttle
Hudson, NH

Cc: CMR Editorial Board

Reference:

1.  HB490 COMMISSION TO STUDY TESTING FOR LYME AND OTHER TICK-BORNE DISEASES
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/30346445

In November 2021, a commission created by the State of New Hampshire finished an exhaustive investigation of Lyme disease test accuracy. The commission reported that only 20-30% of people exhibit antibodies at detectable levels, and the commission concluded that “CDC-approved serologic tests for Lyme disease are unreliable in all stages of the disease.”

Category:

Activism, Lyme, research, Testing