https://www.statnews.com/2019/08/22/lyme-disease-vaccine-market/
That may seem like a long time to wait, especially since there are several Lyme disease vaccines available for dogs. But it’s taken researchers almost two decades to get this close — for the second time. See top link for full story.
https://www.hhs.gov/ash/advisory-committees/tickbornedisease/meetings/2019-9-12/index.html
The tenth meeting of the Tick-borne Disease Working Group will be from 8:30 a.m. to 5 p.m. ET. For this meeting, the Working Group will receive reports from the eight subcommittees that were formed during the June 4, 2019, meeting and continue to focus on plans to develop the next report to the HHS Secretary and Congress on federal tick-borne activities and research, taking into consideration the 2018 report.
Federal Register Meeting Announcement
We encourage you to register 
for the meeting.
Members of the public can attend the meeting via webcast. Instructions for attending this virtual meeting will be posted prior to the meeting.
Public Comment – Information and Instructions
The public will have an opportunity to present their views to the Working Group during the meeting’s public comment session or by submitting their views in writing.
Verbal comments:
Written comments (posted on this webpage and accessible to the public):
The letter in the link above was written by microbiologist Tom Grier, who is director of pathology studies for the Dr. Paul H. Duray Pathology Fellowship.
In it, he explains why Lyme disease is so confusing, what the medical experts got wrong, and the following untrue facts have been disseminated by the IDSA, CC, NIH, Yale, Harvard, SUNY, and Mayo Clinics for decades:
Here’s 700 references demonstrating pathogen persistence: Peer-Reviewed Evidence of Persistence of Lyme:MSIDS copy
Here is documentation proving the conflicts of interests: ConflictReport
Grier’s letter takes on exactly what I was referring to when I wrote my comment about this article: https://madisonarealymesupportgroup.com/2019/08/24/its-time-to-get-serious-about-tick-borne-diseases/ If we are truly going to “get serious” about this pandemic, then we need to be concerned about what type of research is being funded. Right now there is a Pied Piper pushing a climate change agenda with research. Current tick research has already proven it a mute point and has even revealed faulty, biased research pushing an ideology that doesn’t pan out: https://madisonarealymesupportgroup.com/2019/06/17/ontario-public-health-officials-called-out-on-shoddy-biased-research-utilizing-an-erroneous-climate-change-model-to-program-a-futuristic-tick-problem/ This type of research is diverting dollars from neglected areas that demand answers such as accurate testing and diagnostics as well as transmission studies and effective treatments.
https://blogs.scientificamerican.com/observations/its-time-to-get-serious-about-tick-borne-diseases/
By Mary Beth Pfeiffer on
In the article in the above link, the author compares the treatment of Lyme/MSIDS patients with how those with AIDS were treated in the 80’s. She notes that patients with tick-borne diseases are dismissed similarly to how AIDS patients were, and are labeled anti-science, and are summarily denied insurance reimbursement. The author also compares the fact there are over 11,500 studies on AIDS compared to the 55 for Lyme.
She then aptly points out:
Unfortunately, the author erroneously states that the lone star tick has migrated due to the climate warming; however, research has shown warmer winters are actually lethal to ticks and that ticks are extremely eco-adaptive and equipped for survival: https://madisonarealymesupportgroup.com/2018/08/13/study-shows-lyme-not-propelled-by-climate-change/
Independent research has shown that birds and photoperiod are behind the movement of ticks: https://madisonarealymesupportgroup.com/2018/11/07/ticks-on-the-move-due-to-migrating-birds-and-photoperiod-not-climate-change/ This fact demonstrates why tropical ticks are found in Canada and Canadian ticks are found in the topics. They didn’t walk here because the weather was nicer.
I think we would disagree; however, on how research dollars should be spent. If we are to truly “get serious,” we need to admit that the statically paltry research dollars need to go toward issues that directly affect patient well-being. I say, “NO MORE” funding on climate data which has not and will not help suffering Lyme/MSIDS patients. We need to start over with a blank slate. This complex illness is NOT what we’ve been told it is. There is much indicating it’s a STD, is spread congenitally, and potentially by other insects. We still don’t have accurate testing that picks up ALL pathogens involved. We still don’t have adequate treatment. And, we still don’t have a means of paying for treatment. There are so many other important issues that haven’t been addressed in over 40 years when the initial outbreak happened.
AUG 21, 2019 —
The 3rd letter below addressed to Cynthia L. Sears, MD, FIDSA, President of the IDSA highlights yet another example how Lyme is “destroying lives, ending careers while leaving its victim in financial ruin.”
#1. It’s time to recognize that we need an entirely different approach; anything less is inhumane
#2. IDSA treatment guideline has been identified as a “predatory device”
Lyme Bumper Stickers (Public Service Announcement)
https://www.ebay.com/itm/123659578861
——– Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: csears@jhmi.edu
Cc: PracticeGuidelines@idsociety.org, tickbornedisease@hhs.gov, chris.smith@mail.house.gov, (88 Undisclosed recipients)
Date: August 20, 2019 at 9:22 AM
Subject: ‘Mommy, I just want to die:’ Mother recalls daughter’s fight against Lyme disease
On Aug 17, 2019 Carl Tuttle wrote: “I have 1,100 pages of comments describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin. This PDF file is evidence that the Infectious Diseases Society of America has grossly misrepresented the disease and has left the horribly disabled to fend for themselves when the one-size-fits-all treatment guideline fails.”
Aug 20, 2019
IDSA
1300 Wilson Boulevard
Suite 300
Arlington, VA 22209
Attn: Cynthia L. Sears, MD, FIDSA, President
Re: Draft Lyme Disease Guidelines Public Comment
Dear Dr. Sears,
We can add the following article to the growing number of patients describing a disease that is “destroying lives, ending careers while leaving its victim in financial ruin.”
August 20, 2019
By Heather Schlitz, AccuWeather staff writer
Excerpt:
Though Nicole’s doctors prescribed her a year’s worth of antibiotics that Jennifer said saved her daughter’s life, allowing her to go to college, become a nurse and later, a mother of three kids, Auwaerter is skeptical that long-term antibiotics benefit patients with post-traumatic Lyme disease syndrome.
The Lecrones emptied their bank accounts to pay for the uninsured doctor’s visits and to keep injecting $5,000-a-month Rocephin, an antibiotic, into Nicole’s IV. They lost their house and 401(k). Jennifer’s husband drove a truck for 15 hours a day. Jennifer’s oldest daughter, a high school student and varsity soccer player, gave her mom the paychecks she earned from working part-time at Subway and told her mom to use it to buy groceries and pay bills. The family struggled to function as Nicole languished in bed.
__________________
Dr. Sears…. This patient experience is happening all across America and the IDSA is 100% responsible for the mishandling of this devastating disease misclassifying it as “hard to catch and easily treated.”
What is the motivation for downplaying the severity of Lyme disease Dr. Sears?
A response to this inquiry is requested.
Carl Tuttle
Lyme Endemic Hudson, NH
