Archive for the ‘Activism’ Category

New UK Lyme Disease Clinic Accepting Patients

https://lymediseaseclinic.co.uk/lyme-disease-news/

Lyme Disease Clinic UK now accepting new patients in our London Clinic

Dr Carsten Nicolaus will be in London to assist and mentor Dr Josh Berkowitz.

Dr. Nicolaus has been instrumental in helping get the Lyme disease clinic in the UK set up and has personally trained and mentored Dr Berkowitz. Lyme Disease Clinic UK has an ongoing collaboration with the BCA-clinic in Germany and our doctors speak to Dr Nicolaus regularly to discuss patient treatments and protocols.

Dr Joshua Berkowitz

After graduating from Birmingham University Medical School in 1971, Dr Josh became a Member and later a Fellow of the Royal College of Obstetricians and Gynecologists (FRCOG). For nearly twenty years, Dr Josh was a Consultant Obstetrician / Gynecologist in a private medical practice and then diversified into a number of other medical practices specialising in specific areas. These include IV Boost, Wimpole Aesthetics and The IV Doc in London.

Dr Josh has a big interest in Lyme Disease and attends ILADS conferences on a regular basis. He recently spent a week working with Dr Carsten Nicolas at the BCA clinic in Augsburg, Germany who he will be collaborating with to offer treatment and diagnostics for Lyme Disease in the UK.

Dr Josh is registered with the General Medical Council (GMC). He is a member of ILADS, the British Medical Association, The Royal Society of Medicine and the British Association of Cosmetic Doctors.

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Lyme Disease Clinic

48 Wimpole Street
London W1G 8SF
United Kingdom
Phone: +44 (0)203 095 0009
Email: info@lymediseaseclinic.co.uk

For media & press interviews please contact our main switchboard on: +44 (0)20 3095 0009. Alternatively you may wish to email your full request. info@lymediseaseclinic.co.uk

Category:

Activism, Lyme, Treatment

Can Bee Stings Treat Lyme Disease?

https://www.texasmonthly.com/articles/can-bee-stings-treat-lyme-disease/

DECEMBER 2019

Can Bee Stings Treat Lyme Disease?

Treatments for chronic Lyme disease are controversial and expensive. As a last resort, some patients are pursuing this unproven and painful alternative.
BY KATY VINE
DATE NOV 20, 2019

When Tricia Gschwind pulled up to a Whataburger along I-35 in Round Rock one morning last May, she wasn’t craving a breakfast platter. She was there to make an exchange. “I never bought drugs at a Whataburger,” she said, easing into a parking space. “I assume this is what that’s like.”

Gschwind (pronounced GISH-wind) stepped out of her car, straightening her royal blue cat-eye sunglasses as strands of her hair flitted in the breeze. She recognized a Toyota SUV that arrived some thirty seconds later. A graying beekeeper in a polo shirt approached. His name was Jim Colbert, and after a quick hello, they got right down to business. Into Gschwind’s hands he delicately placed two four-inch-long wooden palettes—imagine tiny, mesh-covered mancala boards—each holding about fifty live honeybees, buzzing softly.“I guess this is drone season,” Gschwind said, alluding to the previous batch of bees she’d purchased from him, which had included some stinger-less males. Gschwind needed bees that could sting. “Is that why it’s not unusual for me to find so many drones in the mix?” (See link for full article)

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For more:  https://madisonarealymesupportgroup.com/2016/02/05/bee-sting-saves-lyme-patient/

Another patient, Deb, has regained her health due to Bee Venomon Therapy (BVT):

 “I’m getting my life back. I have control of my healing. Best of all my sense of humor is restored. This feels great. If I can get better in mere months of treatment, anyone can!”  

And:

“This is a highly effective form of treatment which most any patient can afford. I was spending $32/month for my mail order bees and treating at home.”

For videos by Deb go to:  http://flippinlyme.wix.com/flippinlyme#!videos/cuzq

For Deb’s site and to read about her journey, go to:  http://flippinlyme.wix.com/flippinlyme#!home/c121p

Apitherapy to treat Lyme & Co-infections  Eugene OR  (For the written protocol, vendor links, and more materials go to:  https://www.facebook.com/groups/1492038901037893/

http://www.blogtalkradio.com/flippinlyme

 

Category:

Activism, Lyme, Treatment

Hospitals Sue Trump to Keep Negotiated Prices Secret

https://www.nytimes.com/2019/12/04/health/hospitals-trump-prices-transparency.html

The administration wants to require hospitals to reveal the rates they privately negotiate with insurers for all sorts of procedures, amid the public outcry over surprise medical bills.

The hospital groups argue in their lawsuit that the rule will not accomplish the administration’s aim of helping consumers avoid surprise bills.
Credit…Hilary Swift for The New York Times

By Reed Abelson

The hospitals, including the American Hospital Association, argued in a lawsuit filed in United States District Court in Washington that the new rule “is unlawful, several times over.”  (See link for full article)

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For more:  https://madisonarealymesupportgroup.com/2019/11/23/trump-smashes-hospital-bill-secrecy-sham-forces-hospitals-to-publicly-publish-secret-prices-so-that-consumers-can-make-informed-choices/

Category:

Activism

Latest in Anti-IDSA/Insurers Lawsuit: Kaiser Settles

https://www.lymedisease.org/torrey-v-idsa-kaiser-settles/?

Dorothy Kupcha Leland
03 DEC 2019

TOUCHED BY LYME: Latest in anti-IDSA/insurers lawsuit: Kaiser settles.

Torrey vs IDSA et al

On the Tuesday before Thanksgiving, two documents were filed electronically in the case of Torrey vs. IDSA et al.

That’s the federal lawsuit filed by a group of Lyme patients against six members of the Infectious Diseases Society of America and eight insurance companies.

The named individuals are all authors of the IDSA Lyme disease treatment guidelines. The suit essentially charges that the six have been in cahoots with the insurance companies to deny appropriate medical treatment to patients with Lyme disease.

Both sides have been meeting with mediator David Folsom, a retired judge from Texas. Folsom is the one who filed the documents.

Kaiser Permanente settles

The first document says that Kaiser Permanente (one of the eight insurance companies named in the suit) has SETTLED with the plaintiffs! Read it here: Torrey et al, Kaiser settles

The second one says that the mediation session between the plaintiffs and the rest of the defendants has been suspended.  It notes, “the undersigned mediator will continue to work with the parties in an effort to settle.” Torrey et al, mediation suspended

At this point, that’s all we know. Raises lots of interesting questions, doesn’t it? Like what did Kaiser Permanente agree to? And what are the sticking points with the other defendants?

Thanks to journalist Mary Beth Pfeiffer, for alerting the Lyme community to this development via Twitter. Pfeiffer maintains an information hub about the case on her website.

Mary Beth Pfeiffer@marybethpf
 ·

UPDATE: Torrey case mediation has been suspended with IDSA, 6 docs and 7 insurance cos. Settlement reached with @KaiserPermenent. No further info. I’m reaching out. @danaparish @PKhakpour @ChroniLyme @UKLyme @LonnieRhea

View image on Twitter

Mary Beth Pfeiffer@marybethpf

UPDATE 2: @KaiserPermenent is no longer a Torrey defendant; terms/amount of settlement unknown—but this is encouraging. Other parties still must work out issue of discovery/provision of documents. The suit lives. See filings etc here: https://www.thefirstepidemic.com/lyme-lawsuit

TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s Director of Communications. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

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https://madisonarealymesupportgroup.com/2017/12/09/25303/  10-Points- Suing Architects of Lyme Policy As Task Force Meets to Review it

Category:

Activism, Lyme

A Holiday Letter to Loved Ones From the Chronically Ill

https://www.psychologytoday.com/us/blog/turning-straw-gold/201512/holiday-letter-loved-ones-the-chronically-ill

A Holiday Letter to Loved Ones from the Chronically Ill

Not your typical “here’s what I did this year” holiday letter.

Posted Dec 06, 2015

By Toni Bernhard J.D.

Turning Straw Into Gold

Jez Tims/Unsplash.com
Source: Jez Tims/Unsplash.com

As is true every year at this time, I’ve received several holiday cards from family and friends that have also contained a letter in which they share their news from this past year. I enjoy these letters, although sometimes it’s hard to read about the places people have visited and the things they’ve done since I was virtually housebound all year. Reading these letters made me wonder what I’d put in a holiday letter were I to send one out to family and friends. Here’s how it would read: (See link for article)

Category:

Activism, Lyme