Archive for the ‘Activism’ Category

Update on AB313 – Wisconsin Lyme Patients

Update on Lyme Bill AB313 in WI

Jeannette and Mike met with Rep. Mursau {Marinette} regarding the 16 member panel proposed to offer recommendations for lyme diagnosis and treatment. Mursau certainly understood our concerns and was sympathetic to our cause.

Right now, there’s nothing indicating the bill will come up for a vote and Rep. Mursau did say he would not support it. His intentions introducing the bill were honorable in his belief he thought he was acting in the best interests of patients. He has heard from many constituents that are infected and can’t receive adequate treatment. He is very interested in helping lyme patients. We expressed that empowering a panel to determine treatment recommendations would not be the best option as there are already two sets of guidelines in place.

Rep. Mursau said our best course of action would be to contact Speaker Robin Vos and ask that AB313 NOT be brought to the floor. Speaker Vos has control over what gets brought up and what doesn’t.

Please let Speaker Vos know that members of the lyme community have discussed AB313 with Rep. Mursau and we’d like to see some changes made to it and to refrain from bringing it to the floor this session.

Speaker Vos can be reached here https://legis.wisconsin.gov/assembly/63/vos/contact/

If you are unfamiliar with AB313, please read this first before contacting Speaker Vos:  https://madisonarealymesupportgroup.com/2020/01/11/reminder-wi-lyme-patients-contact-legislators-to-stop-ab313/  There is a link within this article with the exact wording of AB313 as well as other helpful information.  The main thing to understand is that this bill could affect our doctors that are treating this properly as it is huge government overreach.

 

Category:

Activism, Lyme

WI – Amazing Testimonies on AB546 – Now Email Health Committee

THANK YOU, Wisconsin Citizens for

Amazing Testimonies Last Week on AB546!

Now Let’s Ask for the VOTE in the Assembly Executive Committee!

Support the Bill to Protect Complementary and Alternative Healthcare

We need your help NOW to contact your legislators to support Wisconsin’s “Safe Harbor” Practitioner Exemption bill, A546, a bill that will protect the right of homeopaths, traditional naturopaths, herbalist, energy healers and many more to offer their services to consumers in Wisconsin.  Help Wisconsin become the twelfth state to have a health freedom law protecting these practitioners!

How YOU Can Help:

1. Click Here to Email the Health Committee members and your personal legislators to ask for their support of AB546 and for it to be heard in an Executive session.  They heard the bill in Committee on January 7th and now, in order to VOTE it out of Committee, they have to hear it in an Executive meeting in order to move it and pass it out of the Committee.

2. Use this simple form to send WIHFC your testimony and we’ll submit it to the committee for you. See below for an example.  Sharing your story – in person or in writing – is crucial to the success of this bill!  Legislators love personal stories and your positive experience using complementary health could sway committee members to vote yes.

Example Message for Legislators: “Members of the Committee, my name is [insert name].  I live in [city].  I support AB546 and I want you to please VOTE YES on AB546, the “Consumer Protection for Complementary Healthcare” bill.  This bill is important to me because [insert your own brief reason why you support access to complementary and alternative health care]. Thank you.”

[i.e.,

– I depend on complementary and alternative health care for myself and my family and I want Wisconsin law to protect my rights as a consumer to a free and educated choice in health care providers.

OR

– I am a practitioner of complementary healthcare and a small business owner in Wisconsin. I want to serve my clients without the fear that my state’s laws could be used to treat me as a criminal.  Please update WI law to reflect what is happening in our state.]

Thanks in advance for helping pass AB546 into law.  Together, with your help, we can convince Wisconsin legislators to protect WI residents’ health freedom rights to access the healing modalities and practitioners they want.

For more about what this WI bill does for complementary and alternative health practitioners and their clients, see our website here (bill originally introduced as LRB-1960/1).  Read the bill here.  Read about Safe Harbor bills here.

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**Comment**

I know a lot of bills are coming out and it can be very confusing.  Please know the bill in this email has to do with protecting complimentary and alternative health care like homeopathy.  It is NOT the WI bill (AB313) about the 16 member panel that we are trying to squash as it is huge government overreach and could affect the way our Lyme docs treat us here in the state of WI.

 

 

 

 

 

Category:

Activism, Uncategorized

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Wisconsin Lyme Gala 2020

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Written

on January 15, 2020

“Bitten” Makes Many “Best of 2019” Book Lists

https://www.lymedisease.org/touched-by-lyme-bitten-makes-many-best-of-2019-book-lists/

08 JAN 2020

“Bitten” Makes Many “Best of 2019” Book Lists

By Dorothy Kupcha Leland

Bitten: The Secret History of Lyme disease and biological weapons

Bitten: The Secret History of Lyme Disease and Biological Weapons, by Kris Newby, got a lot of attention when published last May. Much of it came from the Lyme community, happy to see important questions being asked and seriously researched.Additional interest came from reporters and reviewers in the general press. Especially after Congressman Chris Smith spoke about it from the floor of the US House of Representatives.

Recently, a number of “Best of 2019” lists have brought new recognition to this important book.

Here’s a sampling:

Stanford Medicine’s “Scope” blog  

“My favorite biomedical read of the year chronicled a quest to uncover whether tick-borne infections were weaponized by the U.S. government during the Cold War. This book has all the ingredients of a good science thriller, including a compelling personal backstory (author Kris Newby’s interest was sparked by her own experience with Lyme disease; Newby is also a science communicator at Stanford); poorly understood disease-causing microbes; a mysterious scientist conducting possibly-nefarious research; Swiss bank accounts and medical experiments on conscientious objectors.

“But the best thing about Bitten is that it has prompted action in the real world. Last summer, after the book hit the news, the U.S. House of Representatives boosted funding for Lyme disease research and passed an amendment to investigate past bioweaponization of ticks, including asking whether infected ticks were ever accidentally released into the wild.”

Bookworm (from Business NH Magazine)

“It’s not cheating to put together Bitten by Kris Newby and Mosquito by Timothy C. Winegard in one Best Of, because they really belong side-by-side on your shelf. Newby’s book is about all the things that can bite you and maybe kill you. Winegard’s book is about one thing that bites and kills more humans than any other creature. How can you resist books like those?”

BookAuthority 

This is a website that curates non-fiction book recommendations. It puts “Bitten” as #1 on its list of “62 Best Public Health Books of All Time.”

STAT

STAT is a online news outlet that focuses on health and medicine. In June, it put Bitten as #8 on its list of The 23 best health and science books to read this summer.

Goodreads, a book recommendation website, also republished STAT’s list. Here’s what the STAT reviewer said:

“Bitten is a riveting narrative that digs into the origins of the Lyme disease epidemic. It connects many dots with compelling evidence and page-turning storytelling that point to the likelihood that a bio-weaponized tick program gone awry could have contributed to the more virulent forms of tick-borne illnesses that have been wreaking havoc on unwitting people for the past five decades. Doctors are not well-trained on tick-borne illness, diagnostics are inadequate, and there are no career tracks in the field other than a few courageous pioneers. Biotech is largely on the sidelines. Yet millions of people are being disabled. Perhaps this book will help stir some action. After all, we all are just one bite away from a nightmare illness.”

My 2 cents

So, there you have it–from reviewers who don’t necessarily have a dog in this fight. I didn’t personally create a “Best of 2019” book list. But if I did, Bitten would certainly be on it. Here’s the review I wrote last May:

Is Lyme disease a bioweapons experiment gone bad?

If you haven’t yet done so, I suggest you make reading Bitten your New Year’s resolution for 2020.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s Director of Communications. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.

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For more:  https://madisonarealymesupportgroup.com/2019/05/31/interview-with-kris-newby-author-of-bitten/

https://madisonarealymesupportgroup.com/2019/05/27/medical-thriller-about-a-government-cover-up/

https://madisonarealymesupportgroup.com/2019/07/21/newby-responds-to-washington-posts-slam-about-bitten/

https://madisonarealymesupportgroup.com/2019/07/16/house-orders-pentagon-to-say-if-it-weaponized-ticks-and-released-them/

https://madisonarealymesupportgroup.com/2019/07/31/tick-expert-admits-to-working-on-ticks-dropping-them-out-of-airplanes/

https://madisonarealymesupportgroup.com/2019/07/19/biological-warfare-experiment-on-american-citizens-results-in-spreading-pandemic/

Category:

Activism, Lyme, Ticks

Jenna Luche Thayer – Australian Lyme, A Global View

 Approx. 1 hour 20 min.

Jenna Luche Thayer – Australian Lyme, A Global View

Jenna clearly outlines the multi-layered complexities of the blocks causing difficulty in progressing best practise diagnosis and medical care with Lyme globally. Note: Jenna would also like to add that a Disulfiram protocol has been one of the very hopeful developments for both her and her husband. Jenna really benefited from this generic drug and her husband who was about to go on disability, is now in normal to high function including hiking and kayaking. There is hope for new treatments like this and more.
**Correction**: ‘a number of monkeys died from Ebola in the lab in my (then) home town of Reston VA; but no humans died’
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**Comment**
Jenna is truly a force to be reckoned with and the Lyme community is blessed to have her expertise in government corruption.  In this video she explains the complicated saga behind why Lyme patients are not getting coverage for treatment.  In brief it has to do with codes doctors use so patients obtain insurance coverage.  Without these codes, patients will not get coverage.
I’m so thankful she and her husband are doing so well on Disulfiram.  I would like to point out another side; however, so you as patient weigh the risk vs the benefit:

 

Category:

Activism, Lyme