Archive for July, 2018

Beyond Diagnosis: What it Takes to Overcome Lyme, Fibro, and CF – Dr. Rawls TONIGHT

Sorry for the late notice on this:

Join Dr. Rawls TONIGHT (7/18/18),​ at 8pm EDT, for a special LIVE webinar to discover the hidden connection between chronic Lyme disease, fibromyalgia, chronic fatigue syndrome, and other chronic illnesses, and how that translates to finding truly effective remedies.
Topics covered during the webinar will include:

  • The factors that make you most susceptible to chronic illness.
  • Why the current epidemic of chronic illness is destined to continue.
  • The surprising link between fibromyalgia, chronic Lyme disease, and chronic fatigue syndrome.
  • How redefining diagnosis could open new doors to recovery.
  • The essential elements for restoring your health.

As always, a LIVE Q&A session with Dr. Rawls will immediately follow the presentation and a SPECIAL DRAWING for those who attend!

Don’t miss out on this informative webinar.

Register here:  https://rawlsmd.com/webinars/beyond-diagnosis-what-it-takes-to-overcome/?utm_campaign=webinar+_hash_24+-+boiling+point+-

Category:

Activism, Lyme

HHS Not to Be Trusted With Lyme

https://www.change.org/p/1120418/u/23024031?utm_medium=email&utm_source=petition_update&utm_campaign=380451&sfmc_tk

Lawsuit initiated by Robert F. Kennedy, Jr. against Health and Human Services (HHS)

Carl Tuttle
Hudson, NH
JUL 18, 2018 — Please see the following email addressed to representatives Smith and Peterson who are proposing additional Lyme disease legislation. (Cc: Tick Borne Disease Working Group)

This is not meant to be disrespectful in any way but is an eye opener for the HHS track record.

Legislation over thirty years has not resolved the Lyme crisis here in the United States as there is tight control over Lyme disease policy refusing to recognize that Lyme disease can cause horrific disability and death. Until Lyme is upgraded to a life-altering/life-threatening infection like AIDS we will see continued health and disability claim rejections stemming from the racketeering scheme associating Lyme to the “aches and pains of daily living.”

Anyone wishing to contact the Lyme Disease Working Group can send an email to:

tickbornedisease@hhs.gov

——— Original Message ———-
From: Carl Tuttle
To: tickbornedisease@hhs.gov, chris.smith@mail.house.gov, collin.peterson@mail.house.gov
Cc: mark.dayton@state.mn.us, daniel.tillson@mail.house.gov, kvf1@comcast.net, iturko@umd.edu, allen.l.richards.civ@mail.mil, richard.wolitski@hhs.gov, scott.cooper@cms.hhs.gov, khoney@stanford.edu, ddutko@hanszenlaporte.com, kalachakra108@aol.com, adam.durand@mail.house.gov, info@smith4nj.com, marisa.kovacs@mail.house.gov, ddiallo@sisterlove.org, tamir.elnabarawy@mail.house.gov, matt.hadro@mail.house.gov, cbb0@cdc.gov, smithr@mmc.org, dennis.dixon1@nih.hhs.gov, estella.jones@fda.hhs.gov, mary.noonan@mail.house.gov, james.berger@hhs.gov, vanila.singh@hhs.gov, lise.nigrovic@childrens.harvard.edu, sdonta@comcast.net, wendyadams1@gmail.com, ptourad1@jhmi.edu, don.wright@hhs.gov, jaucott2@jhmi.edu, olx1@cdc.gov, kbechto1@jhmi.edu

Date: July 17, 2018 at 3:34 PM
Subject: Lawsuit initiated by Robert F. Kennedy, Jr. against Health and Human Services (HHS)

July 17, 2018
The Honorable Chris Smith and Collin Peterson
United States House of Representatives
2373 Rayburn House Office Building
Washington, D.C. 20515
Dear Representatives Smith and Peterson,

I would like to call attention to a recent lawsuit initiated by Robert F. Kennedy, Jr. against Health and Human Services (HHS) regarding their refusal to respond to a Freedom of Information Act request.

In 1986 President Ronald Regan passed the Vaccine Injury Compensation Act known as VICA to protect the vaccine manufacturers from lawsuits as a result of injury or death.

HHS was required to put a task force together to oversee the safety of childhood vaccines and report to congress every two years.

Informed Consent Action Network (ICAN) submitted a FOIA request looking for records relating to the required HHS task force and reporting to congress asking for each two year report.

After a year and a half of no response Robert F. Kennedy, Jr was instrumental in obtaining a court ordered stipulation.

Here is what was revealed from that lawsuit per the following article:
http://bolenreport.com/robert-f-kennedy-jr-and-an-amazing-vaccine-legal-victory/

“The department’s search for records did not locate any records responsive to your request. The Department of Health and Human Services (HHS), Immediate Office of the Secretary (IOS) conducted a thorough search of its document tracking system and the Department also conducted a comprehensive review of all relevant indexes of HHS Secretarial correspondence records maintained at federal record centers that remain in the custody of HHS. These searches did not locate records responsive to your request, or indicate that records responsive to your request and in the custody of HHS are located at federal records center.”

So basically, no one has been performing the vaccine safety testing since 1986. Thirty-two years!
_______________________________________

Congressman Smith and Peterson,

You are looking to pass Lyme disease legislation requiring Health and Human Services to report to Congress:

Excerpt From the following link: https://chrissmith.house.gov/news/documentsingle.aspx?DocumentID=401130

“The legislation also calls for a new national strategy on tick-borne diseases, and requires the HHS Secretary to report to Congress on federal efforts to diagnose and treat Lyme and on how best to foster collaboration between federal tick-borne disease programs.”

Also taken from that link:

“So many patients suffer from the debilitating effects of this disease that persist for years, especially if not detected early, while being told that their illness does not exist,” Rep. Smith, the author of the bill, said.

You have identified the injustice outlined in the SHRADER & ASSOCIATES, LLP racketeering lawsuit in which the Centers for Disease Control has played an integral role as they have aligned themselves with the seven defendants named in this RICO lawsuit.

You are counting on Health and Human Services to correct this injustice? Seriously?

If we are to resolve the Lyme disease crisis here in the U.S. any agency/individual who has been involved in setting Lyme disease policy has to be removed from that position of authority.

The only way to do this is to initiate a congressional investigation of the CDC, IDSA and American Lyme disease Foundation through subpoena power requiring testimony under oath. It is also time to request the full contents of the 3000 pages of emails from CDC employees Barbara Johnson, Paul Mead and David Dennis. As previously mentioned, 50% of those FOIA documents were redacted. What has the CDC hidden from the public and our legislators?

FOIA request to CDC took five years to fulfill
https://ire.org/blog/transparency-watch/2013/05/20/foia-request-cdc-took-five-years-fulfill/

Why do we continue to dance around this blatantly obvious offense?

Sincerely,

Carl Tuttle
Lyme Endemic Hudson, NH

________________

**Comment**

Kudos to Mr. Tuttle for speaking the obvious.  Why are we trusting the people behind this fiasco?  They’ve already shown their true colors for long enough.

The Cabal must end.

https://madisonarealymesupportgroup.com/2017/01/13/lyme-science-owned-by-good-ol-boys/

https://madisonarealymesupportgroup.com/2016/11/29/spider-attacks-cdc/

https://madisonarealymesupportgroup.com/2018/04/06/cdcs-troubling-lack-of-research-ethics/

https://madisonarealymesupportgroup.com/2017/09/25/speaking-of-fake-science-fifty-seven-million-anti-trust-lawsuit-against-cdc-lyme-tests/

https://madisonarealymesupportgroup.com/2017/12/13/suppression-of-microscopy-for-lyme-diagnostics-professor-laane/

https://madisonarealymesupportgroup.com/2017/10/06/remembering-dr-masters-the-rebel-for-lyme-patients-who-took-on-the-cdc-single-handedly/

https://madisonarealymesupportgroup.com/2018/01/31/when-als-is-lyme-letter-to-tbi-working-group/

https://madisonarealymesupportgroup.com/2018/06/14/corruption-human-rights-violations-against-lyme-doctors-scientists-and-parents-now-on-united-nations-record/

https://madisonarealymesupportgroup.com/2018/06/21/the-corruption-of-evidence-based-medicine-killing-for-profit/

https://madisonarealymesupportgroup.com/2017/01/28/sit-down-science/

https://madisonarealymesupportgroup.com/2017/01/02/fake-science/

Category:

Activism, Lyme, Uncategorized

Asian Tick Now in North Carolina

https://www.charlotteobserver.com/news/local/article214748110.html

This article in the Charlotte Observer is noted to be an “aggressive biter.”  A warning has been given to veterinarians to be on the look out as this tick clones itself and spreads rapidly.  It has even drained cattle of their blood.

They can spread disease to humans.

Read more here:

https://madisonarealymesupportgroup.com/2018/03/01/asian-ticks-mysteriously-turn-up-in-new-jersey/

https://madisonarealymesupportgroup.com/2018/04/21/ticks-from-hell-survived-the-winter/

https://madisonarealymesupportgroup.com/2018/06/27/tick-discovery-highlights-how-few-answers-we-have-about-these-pests-in-the-u-s/

https://madisonarealymesupportgroup.com/2018/06/12/first-longhorned-tick-confirmed-in-arkansas/

https://madisonarealymesupportgroup.com/2018/05/26/tick-from-hell-now-sited-in-west-virginia/

https://madisonarealymesupportgroup.com/2018/07/18/asian-tick-now-in-new-york/

Category:

Activism, Anaplasmosis, Ehrlichiosis, Lyme, Transmission, Viruses

Asian Tick Now in New York

https://www.wgrz.com/article/news/health/a-new-dangerous-tick-found-in-new-york/71-574781863

The New York state Health Department has found the Asian “long horned” (Haemaphysalis longicornis) or Bush tick in Westchester County.

Normally found in Asia, this tick clones itself and spreads rapidly.  It has been found in New Jersey, Virginia, West Virginia, North Carolina, Arkansas, and now New York.

If seen, contact the New York State Department of Agriculture and Markets Division of Animal Industry at 518-457-3502 or dai@agriculture.ny.gov.

For more on the Asian tick:  https://madisonarealymesupportgroup.com/2018/03/01/asian-ticks-mysteriously-turn-up-in-new-jersey/

https://madisonarealymesupportgroup.com/2018/04/21/ticks-from-hell-survived-the-winter/

https://madisonarealymesupportgroup.com/2018/06/27/tick-discovery-highlights-how-few-answers-we-have-about-these-pests-in-the-u-s/

https://madisonarealymesupportgroup.com/2018/06/12/first-longhorned-tick-confirmed-in-arkansas/

https://madisonarealymesupportgroup.com/2018/05/26/tick-from-hell-now-sited-in-west-virginia/

So far we know it can spread SFTS (sever fever with thrombocytopenia syndrome), “an emerging hemorrhagic fever,” causing fever, fatigue, headache, nausea, muscle pain, diarrhea, vomiting, abdominal pain, disease of the lymph nodes, and conjunctival congestion, but the potential impact of this tick on tickborne illness is not yet known. In other parts of the world, this Longhorned tick, also called the East Asian or bush tick, has been associated with several tickborne diseases, such as spotted fever rickettsioses, Anaplasma, Ehrlichia, and Borrelia, the causative agent of Lyme Disease.

So, this is no benign little sucker…..

Category:

Activism, Anaplasmosis, Ehrlichiosis, Lyme, Ticks, Viruses

Estimating the Cost of Lyme – Patients Please Help By Filling Out Survey

http://www.beetlepress.com/estimating-cost-lyme-disease-united-states/

Estimating the Cost of Lyme Disease in the United States

By

laurie-johnson-e1529101738447

Climate Cost Project offers new economic data on Lyme disease

AMHERST—Laurie T. Johnson, the executive director and co-founder of the Climate Cost Project, said increased rates of Lyme disease have been linked to climate change, and are one of the more serious and least understood of its costs.

Her organization, the Climate Cost Project, is a new data and documentary project that is helping to uncover, understand and visualize the costs of climate change to American communities.

“We know very little about uninsured costs people across America are experiencing from climate change impacts. Having seen friends and families devastated both personally and financially by Lyme disease, we felt it was important to start understanding the real costs of the disease to individuals,” Johnson said.

She added that because insurance covers little to none of patients’ treatment costs, experts have no idea how much the disease actually costs individuals and society. But between medical treatment and lost work time, Johnson notes they can easily add up to hundreds of thousands of dollars in health care expenses and lost income.

Johnson, who holds a doctoral degree in economics, co-founded the project because, as an environmental economist and instructor at the University of Massachusetts, she understood how little data there was on the immediate costs of climate change to the American economy.

The project has created a data portal to allow individuals to report their climate costs on a range of climate issues, from flooding to tick-borne illness. Its other major mission is creating the Witnessing Change Video Competition, which invites documentarians to tell the stories of climate change from their own community in short video format.

According to the Center for Disease Control, the number of reported cases of Lyme disease—transmitted by ticks—has more than tripled in the United States since the late 1990s.

“Right now, the disease is highly regional, with 14 states in the Northeast and upper Midwest accounting for 95 percent of confirmed cases,” Johnson said, noting the disease is starting to spread rapidly, with ticks carrying Lyme disease in almost half of all counties across the country.

With few treatment options, and so few covered by insurance, patients are left on their own to find alternative treatments and pay for them, she said.

Consider Dana Carnegie’s story, for example.

Carnegie is a long-time resident of Amherst and works as the communications manager for Girl Scouts of Central & Western Massachusetts.

She contracted Lyme disease in 2006. A standard three-week course of antibiotics eliminated her classic flu-like symptoms at the time, but nine years later, new and more severe symptoms appeared, including debilitating joint pain, numbness, chronic exhaustion and memory loss.

Carnegie tested positive again for Lyme in 2015. This time her treatment took over two years, and much of it was not covered by insurance. She estimates she spent anywhere from $10,000 to $20,000, but feels lucky that she could afford it, had plenty of sick time to cover missed work, and feels fully recovered.

“Unfortunately, Dana’s story is not unique,” Johnson said, explaining that preliminary data from a new survey on Lyme disease costs from the Climate Cost Project finds over half of respondents spending at least $30,000.

Almost one-third spent over $75,000, some more than $200,000, Johnson said. But out of all this spending, only a handful reported experiencing no chronic symptoms at all over the last year. More than half also reported missing work, on average more than four years.

For context, according to the Kaiser Family Foundation, average uncovered costs for some of the most expensive out-of-pocket conditions cap out at around $2,000 per year.  For an analysis of who is most vulnerable for out-of-pocket expenses, visit https://www.healthsystemtracker.org/brief/who-is-most-at-risk-for-high-out-of-pocket-health-spending/#item-start.

“We’ve heard from patients and physicians across the country with stories like Dana’s, many significantly worse. We believe the data is just the tip of the iceberg,” said Sieren Ernst, CEO and co-founder of the Climate Cost Project. “Compared to other diseases, out-of-pocket spending may be orders of magnitude higher for tick-borne illness than other diseases. The more data we are able to get from the survey, the clearer the picture we will have.”

The Climate Cost Project is currently looking for people impacted by tick-borne illness and flooding to complete its surveys. You can visit their surveys at www.climatecostproject.org/cic, and learn more about the tick-borne illness survey at https://www.climatecostproject.org/about-tick-borne-illness-survey.

________________

**Comment**

According to Canadian, independent tick researcher John Scott, who also happens to struggle with Lyme, the pandemic we are seeing with Lyme/MSIDS has nothing to do with climate change:  https://madisonarealymesupportgroup.com/2017/08/14/canadian-tick-expert-climate-change-is-not-behind-lyme-disease/

He even goes as far to say it’s a red-herring to divert us from the fact nothing has been done to help patients for over 30 years.  A cover-up scheme dating back to the 80’s, it has nothing to do with tick movement as ticks are ecoadaptive and can tolerate wide temperature fluctuations. 

A quick test is to ask yourself what more climate change research will actually accomplish for patients.

Answer…..NADA.

I do hope that this study puts a dollar figure to the cost for patients.  That would be helpful intel and would demonstrate, clearly, just how devastating this pandemic truly is.

For a great video on ticks in winter: 

Ticks left overnight in 3 degrees sprang back to life once they warmed in Tom Mather’s hand…..

Then we have ticks on HOT beaches:  https://madisonarealymesupportgroup.com/2018/06/07/ticks-on-beaches/

and caves:  https://madisonarealymesupportgroup.com/2017/10/27/israeli-kids-get-lyme-disease-from-ticks-in-caves/

Do you REALLY believe climate change has anything to do with this plague?

Category:

Activism, Lyme, research, Ticks