Don’t forget the support group meeting this Saturday. For more info:
- Saturday, November 9, 2019
- East Madison Police Station – 809 S Thompson Dr. Madison, WI
- 2:30-4:30pm
Hope to see you all there!
November 9, 2019 Meeting Reminder
November 6, 2019
Lyme Vaccines Show New Promise, and Face Old Challenges
OCT 15, 2019 —
Please see today’s email below…..
Although Willyard’s article contains more truths than propaganda it is missing the detail outlined below.
Lyme Bumper Stickers (Public Service Announcement)
https://www.ebay.com/itm/123659578861
——— Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: cwillyard@nasw.org, tickbornedisease@hhs.gov
Cc: (98 Undisclosed recipients)
Date: October 15, 2019 at 8:32 AM
Subject: Lyme Vaccines Show New Promise, and Face Old Challenges
Lyme Vaccines Show New Promise, and Face Old Challenges
https://www.medscape.com/viewarticle/919555
Published October 07, 2019 By Cassandra Willyard
On October 14, 2019 Cassandra Willyard wrote:
“My editor at Undark pitched me the idea. I’ve written about it before.
See: https://www.nature.com/articles/nm0714-698
Dear Ms. Willard,
Thank you for responding to my inquiry. I wanted to share the following references missing from your article and an email I sent to Dr. Stanley Plotkin who has previously published on the subject of Lyme disease vaccines. (Lemons and Lyme) I have carbon copied the Tick-Borne Disease Working Group.
_______________________
I would like to point out the following case study from Stony Brook Lyme Clinic. I understand the patient received thirteen spinal taps, multiple courses of IV and oral meds, and relapsed after each one, proven by CSF antigens and/or PCR. The only way this patient (said to be a physician) remained in remission was to keep her on open ended clarithromycin– was on it for 22 months by the time of publication.
Seronegative Chronic Relapsing Neuroborreliosis.
https://www.ncbi.nlm.nih.gov/pubmed/7796837
Lawrence C.a · Lipton R.B.b · Lowy F.D.c · Coyle P.K.d
aDepartment of Medicine, bDepartment of Neurology, and cDivision of Infectious Diseases, Albert Einstein College of Medicine, and dDepartment of Neurology, State University of New York at Stony Brook, New York, NY., USA
Eur Neurol 1995; 35:113–117 (DOI:10.1159/000117104)
Abstract
We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.
“In 1991 the Lyme disease organism, Borrelia burgdorferi, was grown from the cerebrospinal fluid of my patient Vicki Logan at the Centers for Disease Control in Fort Collins, Colorado despite prior treatment with intravenous antibiotics. Her case made the front page of the New York Times Science Times in August of 1993.” – Kenneth Liegner, MD
Source: http://cognitiveliberty.net/wp-content/uploads/2014/12/David-Dennis.pdf
Vicki Logan’s CDC Fort Collins Positive CSF Culture Report: (My personal Dropbox account)
Lyme patient Vicki Logan’s 1991 positive culture test performed by the Centers for Disease Control should have set off a red flag but was ignored while the focus remained on discrediting the sick and disabled Lyme patient population. [1]
Here are links to the seven page autopsy results of patient Vicki Logan showing histopathologic findings consistent with neurologic manifestations of chronic Lyme disease.
(Vicki Logan’s Autopsy results Page #1, 2, 3, 4, 5, 6, 7) My personal Dropbox storage area.
The destructive nature of Borrelia is evident in Vicki Logan’s liver (nutmeg liver), kidneys, heart, lungs and brain. The patient died (Medically Executed) after the insurer refused additional IV antibiotic therapy.
__________________________
The following pilot study recently identified chronic Lyme disease in twelve patients from Canada. All of these patients were culture positive for infection (genital secretions, skin and blood) even after multiple years on antibiotics so there was no relief from current antimicrobials. Some of these patients had taken as many as eleven different types of antibiotics.
Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease
http://www.mdpi.com/2227-9032/6/2/33
_____________________________
ANTIBIOTICS
Article Published: 11 October 2019
The Long-Term Persistence of Borrelia burgdorferi Antigens and DNA in the Tissues of a Patient with Lyme Disease Eva Sapi 1,*, Rumanah S. Kasliwala 1 , Hebo Ismail 1 , Jason P. Torres 1 , Michael Oldakowski 1 , Sarah Markland 1 , Gauri Gaur 1 , Anthony Melillo 1 , Klaus Eisendle 2 , Kenneth B. Liegner 3,4,5 , Jenny Libien 6 and James E. Goldman 7
https://www.mdpi.com/2079-6382/8/4/183/pdf
Conclusions: In summary, this study provides several lines of evidence that Borrelia can persist in the human body not only in the spirochetal but also in the antibiotic-resistant biofilm form, even after long-term antibiotic treatment. The presence of infiltrating lymphocytes in the vicinity of B. burgdorferi biofilms suggests that the biofilm might trigger chronic inflammatory responses.
Letter to Dr. Stanley Plotkin regarding the Lyme vaccine:
——— Original Message ———-
From: Carl Tuttle <runagain@comcast.net>
To: stanley.plotkin@vaxconsult.com
Cc: chris.smith@mail.house.gov, collin.peterson@mail.house.gov, ddutko@hanszenlaporte.com, evpdean@upenn.edu, zaoutis@email.chop.edu, JPIDS.EditorialOffice@oup.com
Date: September 19, 2018 at 9:48 AM
Subject: Lemons and Lyme by Stanley A. Plotkin
Journal of the Pediatric Infectious Diseases Society
13 September 2018 P L O T K I N C O L U M N
Lemons and Lyme
Stanley A. Plotkin
Emeritus Professor of Pediatrics, University of Pennsylvania, Doylestown
Excerpt:
“It is odd that there is a lobby against the development and deployment of a vaccine against the disease by people who think they are suffering from Lyme infection in a chronic form, the existence of which remains doubtful. They believe that the first vaccine against Lyme disease caused chronic arthritis.”
Sept 19, 2018
Perelman School of Medicine
University of Pennsylvania
3400 Civic Center Boulevard
Building 421, Philadelphia, PA 19104
Dr. Plotkin,
“It is odd” that the two principal investigators of the previous Lyme vaccines, Allen Steere for SmithKlineBeecham’s LymeRix and Gary Wormser for Connaught’s vaccine (which never made it to market) have been named in a racketeering lawsuit. (See attached court document)
https://www.dropbox.com/s/18uyrli878ug51m/LymeDisease%20RICO%20Lawsuit.pdf?dl=0
It is believed that Lyme disease was pigeonholed into its current status by the two principal investigators of the previous Lyme disease vaccines as these investigators conceptualized a disease that would enable vaccine development.
A preventive vaccine for Lyme disease would not satisfy the FDA if a chronic persistent infection and seronegative disease exist. The lead author of the one-size-fits-all IDSA Lyme treatment guideline (which matches the conceptualized disease) was the principal investigator of Connaught’s Lyme vaccine, Dr. Gary Wormser. This is a flagrant conflict of interest. Have we been dealing with an antibiotic resistant/tolerant superbug purposely concealed to promote vaccine development?
Forty one years ago Allen Steere knew that antibiotics used to treat Lyme disease were not working:
Lyme arthritis: an epidemic of oligoarticular arthritis in children and adults in three connecticut communities. (1977)
Steere AC, Malawista SE, Snydman DR, Shope RE, Andiman WA, Ross MR, Steele FM.
https://www.ncbi.nlm.nih.gov/pubmed/836338
Excerpt:
“The best treatment for this illness is not clear. Some physicians have reported that penicillin or tetracycline results in disappearance of the skin lesion (41,42), but others find antibiotics ineffective. Four of the patients with expanding skin lesions received penicillin but still developed arthritis.”
A PubMed.gov search will find hundreds of papers reporting persistent Borrelia infection.
Summary to Cassandra Willyard:
For the past three decades, Lyme disease has been portrayed as hard to catch and easily treated [2] while those who control the narrative (Through editorial censorship) refuse to recognize this pathogen as an antibiotic resistant/tolerant superbug by suppressing evidence of persistent infection. [3] This misclassification has all but eliminated government funding that should have been equal to or greater than AIDS or Zika which are also life-altering/life-threatening infections in need of cures.
What we are dealing with here is an antibiotic resistant/tolerant superbug but the focus over the past three decades (as seen in the Lancet article) has been to discredit the sick and disabled along with the practitioners attempting to help these patients as opposed to finding new antimicrobials effective in eradicating all forms of the Borrelia spirochete; L-forms, round bodies and persister cells. [Biofilm forms]
The truth about this devastating disease has been kept from the public for 43 years and there are no Public Service Announcements informing the public that you could become horribly disabled or die from Lyme disease
A worldwide community of physicians has been influenced by the ongoing disinformation campaign aimed at promoting the idea that Lyme is little more than a nuisance disease as health agencies across the globe are blindly following what has been deceitfully established here in the U.S.
We are dealing with a life-altering/life-threatening infection with faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control; a public health disaster.
This has been a 43 year epic failure on the part of the CDC and of course none of what I have presented here is found in your article.
You or a loved one is a single tick bite away from experiencing this travesty.
Sincerely,
Carl Tuttle
Lyme Endemic Hudson, NH
Cc: Editor in Chief TOM ZELLER JR.
Additional References:
1. Lyme disease antiscience
http://www.thelancet.com/journals/laninf/article/PIIS1473-3099(12)70054-3/fulltext
2. Lyme Disease Is Hard to Catch And Easy to Halt, Study Finds
New York Times By GINA KOLATA Published: June 13, 2001
http://www.nytimes.com/2001/06/13/us/lyme-disease-is-hard-to-catch-and-easy-to-halt-study-finds.html
Excerpt: But some who have treated hundreds of patients with long-term antibiotics, like Dr. Sam L. Donta of Boston University Medical Center, were not convinced. The antibiotics in the studies were not given for a long enough time, Dr. Donta said, and he would have chosen different ones. Perhaps all that the studies show, he said, is ”that this particular treatment doesn’t work.”
3. Peer Reviewed Evidence of Persistence of Lyme Disease Spirochete Borrelia burgdorferi and Tick-Borne Diseases after the mandated one-size-fits-all IDSA treatment approach: (700 articles)
https://www.dropbox.com/s/n09sk90eo6xz7ua/700%20articles%20LYME%20EvidenceofPersistence-V2.pdf?dl=0
____________________
**Comment**
If you haven’t signed Tuttle’s Petition calling for a Congressional investigation of the CDC, IDSA and ALDF, please do so here: https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf
Tuttle’s tireless advocacy is appreciated by all.
For more on the Lyme vaccine: https://madisonarealymesupportgroup.com/2018/07/01/lyme-vaccine-fail-safety-ignored/
https://madisonarealymesupportgroup.com/2019/10/28/researchers-race-to-develop-lyme-disease-vaccine/
https://madisonarealymesupportgroup.com/2019/07/23/lyme-disease-vaccines-past-future/
As most of you are aware, there are numerous Lyme bills currently being voted on at the Wisconsin Capital: https://madisonarealymesupportgroup.com/2019/11/01/update-on-wisconsin-lyme-bills-please-contact-your-representative-on-ab-313/
Many of these are quite good as they address things like putting signage at park locations warning about the risk of ticks and Lyme disease and making bug spray available; however, there is one bill – AB 313, which poses a serious threat to patients & to the doctors who dare treat them.
Exact wording of the bill: Assembly Bill 313
AB 313, previously LRBs 1652 and 3362 – Establishes a sixteen-member Tick-Borne Disease Study Committee to create a report for the legislature on consensus-based recommendations for policy changes on awareness, prevention, surveillance, diagnosis, reporting, and treatment of Lyme Disease.
This bill would allow Governor Evers to appoint a 16 member advisory panel to offer recommendations on how doctors diagnose and treat Lyme disease.
Many of us have explained to our representatives about the potential for that bill to go side-ways since nothing about Lyme/MSIDS is agreed upon in the medical community as well as the fact that appropriate Lyme guidelines already exist.
This bill is huge government overreach – telling doctors how to diagnose and treat patients. All of the Lyme literate doctors I spoke with oppose this bill for numerous reasons – one of which is the fact this bill could seriously interfere with the way they currently treat patients as well as could increase scrutiny of their medical practice. They are already under severe scrutiny with many having to pay fines to the state medical board: https://madisonarealymesupportgroup.com/2012/03/04/dr-hoffmann-updated/ My own doctor spent over 50K to protect his practice against such a witch hunt.
There are currently two different Lyme disease guidelines in play:
- Infectious Disease Society of America (IDSA) Guidelines: https://www.idsociety.org/practiceguidelines#/name_na_str/ASC/0/+/ Under the IDSA’s tutelage, patients have been abused for decades and are told they have “medically unexplained symptoms” or MUS. Then they are sent to a psychiatrist and given anti-depressants. For an example for the typical handling of Lyme disease by mainstream medicine, see this graph:
- International Lyme and Associated Diseases Society (ILADS) Guidelines: https://www.ilads.org/patient-care/ilads-treatment-guidelines/
Lyme literate doctors follow the ILADS guidelines as they take into account that people are often infected with numerous pathogens and that many of these pathogens are persistent, necessitating treatment to be overlapping in nature and often for an extended period of time. They also acknowledge that sexual and congenital transmission can occur.
The IDSA guidelines, followed by the majority of doctors, pretty much states that 21 days of doxycycline will cure this. They still deny the persistence of borrelia and other pathogens as sexual and congenital transfer.
The two guidelines couldn’t be more different yet we can not force doctors to follow one or the other. The old saying, “You can lead a horse to water but you can’t make them drink,” comes to mind. As much as we would love to force all doctors to follow the ILADS guidelines we shouldn’t. The practice of medicine is still, thankfully, up to the practitioner who underwent years of schooling to become a doctor. Doctors aren’t told how to treat cancer, diabetes, or a broken leg and they shouldn’t be told how to treat Lyme/MSIDS either.
Currently, patients need to see an experienced practitioner who is trained by ILADS. This requires doctors to have continuing medical education specifically in the treatment of tick borne illness. Mainstream medicine does not require this and most doctors are woefully educated; however, the choice to treat Lyme/MSIDS patients appropriately should be up to the practitioner.
Please write the following Representatives behind AB313 and let them know we oppose it:
Introduced by Representatives Mursau, Milroy, Anderson, Crowley, Edming, Gruszynski, Hesselbein, Kulp, B. Meyers, Ohnstad, Ott, Ramthun, Rodriguez, Sargent, Shankland, Sinicki, Snyder, Spreitzer, Tauchen, Thiesfeldt, Tusler and Rohrkaste; cosponsored by Senators Cowles, Miller, Hansen, Kapenga, Larson, Olsen, Petrowski, Ringhand, Smith and Tiffany
Please see the following letter written by Mike Nickel, current moderator for the online Wisconsin Lyme support group:
Letter regarding AB313
Dear Rep. Mursau
My name is Mike Nickel. I’m the past president of the Wisconsin Lyme Network {501 c3}, a statewide non-profit dedicated to the education of lyme disease and tick-borne illness to the general public and medical community of Wisconsin. We have liaison with medical professionals not only in Wisconsin, but nationwide as well as multiple Wisconsin support/patient groups as well as nationwide. The largest organization of MD’s in the country that deals exclusively with lyme disease and tick-borne illness is called ILADS. {International Lyme and Associated Disease Society of America}. www.ILADS.org
All of our organizations statewide and nationwide adamantly oppose AB313. It is our firm belief that the state legislature will greatly endanger lyme patient care and the practice of the state MD’s that provide that care by passing AB313. ILADS has already established lyme and tick-borne treatment guidelines which are utilized by ILADS trained practitioners nationwide.
We’re completely puzzled why the state of Wisconsin feels it should empanel a committee, made up largely of lay people to recommend any type of medical procedure much less something as complicated and severe as tick-borne illness.
Parts of the legislation are fine and some of the other Lyme bills are endorsed by us but AB313 recommending “guidelines’ can cause great harm to the patient community and even drive our lyme treating practitioners out of the state of WI.
Insurance companies and Medical boards can use any “recommendation of short-term antibiotics” as an excuse to sanction Doctor’s not treating to those specific guidelines. This would literally destroy effective treatment for the scores of lyme patients in this state and the 30,000 newly infected here annually.
On behalf of the Wisconsin lyme community we ask that you please pull this bill. I would be more than happy to meet with you personally and discuss how we could proceed with a bill that would be fully supported by the community and be of great help to patients. I and other advocates look forward to working with the Assembly on effective legislation to benefit our patients. Please let me know a date that would work for you.
Thank you for your consideration,
Mike Nickel
_____________________
My letter to the Wisconsin Representatives:
Dear Wisconsin Representatives,
My name is Alicia Cashman, and I head up the Madison Lyme Support Group. Both my husband and I fought a ten year battle in treatment for Lyme/MSIDS and have finally achieved our health back. I can directly attribute this health to going to doctors trained by the International Lyme and Associated Diseases Society (ILADS). These doctors take on huge risk treating patients appropriately as they stand in direct opposition to the Infectious Disease Society of America (IDSA).
There is a very real probability that Assembly Bill 313 could put these ILADS trained Wisconsin doctors in jeopardy.
Thankfully in the United States medical practitioners are still allowed the freedom to diagnose and treat patients in the way they feel is best. I’m surprised that you would even consider telling doctors how to diagnose and treat patients. This is huge government overreach.
Every single ILADS trained Wisconsin doctor I spoke with is opposed to AB 313.
Why would you want to make things harder for our health professionals who already take on significant risk in treating us? Currently, patients from other states come to the state of Wisconsin where we have a handful of doctors who treat this appropriately. Passage of this bill could potentially make them want to take their practices elsewhere where they have a God-given freedom to diagnose and treat patients under the Hippocratic Oath free of government interference.
While I appreciate the intent, legislation has often worked directly against patients as well as doctors under the law of unintended consequences. I feel AB 313 would follow this path as it calls upon a panel that very well could be stacked against patients, not to mention the fact that nobody has the right to dictate how a practitioner treats patients.
Currently, there is activity at the federal level which is following this law of unintended consequence: https://madisonarealymesupportgroup.com/2019/05/20/petition-remove-eugene-shapiro-from-federal-tbd-working-group/. The Federal Tick borne disease Working Group is now stacked with Infectious Disease doctors who deny the chronic/persistent nature of Lyme disease, that it can be sexually and congenitally transmitted, and that it takes far more than 21 days of doxycycline to affectively deal with this polymicrobial illness.
Also, back when Representatives Craig and Sargent wanted to put the nursing board in charge of “best practices” on how to treat Lyme disease, which would have effectively replaced one tyranny with another, a Wisconsin pediatrician showed up to the public hearing stating that Lyme testing used by ILADS treating physicians was “home brewed,” despite these labs being CLIA-certified, and passing the most stringent requirements for labs. This is just one example among a thousand how mainstream doctors continue to side with the Infectious Disease Society of America (IDSA) and its biased approach. I found his statement directly on the CDC website.
I’ve written this before but I include it again as it serves as a solid reminder that until things change at the federal level, state legislation will continue to be undermined by the CDC: https://madisonarealymesupportgroup.com/2017/07/07/cdc-sabotages-state-laws-protecting-lyme-patients/. This makes perfect sense when you understand the backstory: https://madisonarealymesupportgroup.com/2019/02/22/why-mainstream-lyme-msids-research-remains-in-the-dark-ages/ and https://madisonarealymesupportgroup.com/2019/07/19/biological-warfare-experiment-on-american-citizens-results-in-spreading-pandemic/.
I seriously implore you to please remove AB 313.
Sincerely,
Alicia Cashman
Madison Lyme Support Group
Address
Phone number
GLA OVERSEES SCIENTIFIC ASSESSMENT OF LYME DISEASE TREATMENT REGIMENS USING RIGOROUS EVIDENCE-BASED APPROACH
STAMFORD, CONN (November 4, 2019)—In an effort to move beyond anecdotal evidence to sound scientific validation in the Lyme treatment equation, Global Lyme Alliance (GLA) announced today that it is expanding its research efforts to include the first in a series of clinical studies to determine the effectiveness of non-validated, physician-developed Lyme treatment regimens.
At the request of a small group of motivated patients, GLA is taking the bold step towards validating community-based, physician-developed, Lyme disease treatment regimens by using the rigorous evidence-based clinical research process.
“There’s a high level of ambiguity surrounding the multitude of treatment options being offered to patients throughout the Lyme community; as such, GLA is committed to evaluating, through established scientific assessment, the efficacy of these patient care approaches,” said Timothy Sellati, Ph.D., GLA’s Chief Scientific Officer (CSO).
GLA’s first study will focus on the treatment regimen developed by Joseph Jemsek, M.D., the founder of the Jemsek Specialty Clinic of Washington D.C. Dr. Jemsek was chosen for his willingness to put his “Jemsek Protocol®” to the test following a thorough evaluation by GLA of several patients who experienced positive results from working with the physician.
“I am honored to be selected by GLA to be a part of their first study,” said Dr. Joseph Jemsek. “ I am confident in the treatment regimen I have developed to help patients suffering from this insidious disease and look forward to putting it through the extensive scientific assessment detailed in the clinical study.”
Through this initiative, a range of microbiological, immunological, genetic and metabolic assays will be conducted to distinguish patients who experience varying degrees of clinical improvement vs. those who do not along with a series of quality of life assessments. Within the patient population that responds favorably, changes in specific biomarkers may offer insights on why the Jemsek Protocol works.
“By collaborating with multiple prestigious academic partners, our hope is that at the end of this study we’ll identify biological-based indicators of treatment success that can be broadly used in evaluating other treatment options being pursued by Lyme patients suffering from persistent symptoms,” said Dr. Sellati.
To support this and GLA’s growing pipeline of studies GLA’s CSO has assembled a team of experts in clinical project development and management, regulatory compliance, biostatistics and Lyme disease nursing. These individuals as well as the GLA’s bio- and data-repositories will ensure the integrity of the clinical study process, the collected data and biospecimens.
“Our ultimate goal is to shift the paradigm of treating Lyme disease from uncertainty, misunderstanding, and helplessness, to one of clarity. Our Lyme community has expressed frustration with the slow progress in Lyme research, lack of treatment options and specifically, the lack of scientific buy-in on community-based treatment regimens. We listened to their concerns and are committed to supporting research that impacts the Lyme community today,” said Scott Santarella, GLA’s CEO. “We have to put all the science we can behind this disease, including the disparate treatments being offered to patients. The Lyme community deserves more.”
Lyme disease is the most common vector-borne illness in the U.S., and its incidence is growing rapidly. More than 427,000 people in the U.S. are newly diagnosed each year. Moreover, up to 20% of those who are diagnosed and treated early with standard-of-care antibiotics continue to suffer from a variety of symptoms. A recent GLA study estimated that more than two million patients could suffer from post-treatment Lyme disease by 2020. GLA is committed to better understanding treatment options to help patients.
For questions about GLA call 203-969-1333 or visit GLA.org. For questions regarding the clinical study contact 833-GLA-LYME (833-452-5963).
About Global Lyme Alliance
Global Lyme Alliance is the leading 501(c)(3) organization dedicated to conquering Lyme and other tick-borne diseases through research, education, awareness, and patient services. GLA has gained national prominence for funding some of the most urgent and promising research in the field, while expanding education and awareness programs for the general public and physicians. We support those around the globe in need of information about tick-borne diseases, finding a Lyme treating physician, and with the first Lyme-specific peer-to-peer mentor support program. Learn more at GLA.org.
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**Comment**
To which we all said, “AMEN and AMEN!”
For more on the study: https://madisonarealymesupportgroup.com/2019/05/18/more-than-2-million-could-suffer-from-post-treatment-lyme-disease-syndrome-in-2010-study-says/
Two million is a lot of people; however, according to microbiologist Holly Ahern, that number is still low. The study uses the often quoted 10-20% who suffer with long term symptoms but Microbiologist Holly Ahern in this article: https://madisonarealymesupportgroup.com/2019/02/25/medical-stalemate-what-causes-continuing-symptoms-after-lyme-treatment/ explains that the percentages don’t account for the 30-40% who are diagnosed and treated late. When you simply add the 10-20% with the 30-40% you get a whopping 60% that could potentially go on to have persistent symptoms.
In this article I refute a Newsweek article that calls this an “Untreatable form of Lyme disease.” https://madisonarealymesupportgroup.com/2019/04/29/is-the-sky-truly-going-to-fall-for-patients-with-the-untreatable-form-of-lyme-disease/ This monster can be treated but not in the way it’s currently being treated in mainstream medicine. For an example see recipe below:
My husband and I are living proof that you can achieve your health back.
There are many more who have gotten back to the other side of health and you can too. If you are struggling with hope – let me give you some. Hang tight and learn all you can so you can partner with your health professional. Together you can beat this.
Courtesy: Microbiologist Tom Grier
Yes, you are reading this correctly – the boneheads at Yale state that you shouldn’t get treatment even if you have the EM rash (which is indicative of Lyme disease), and test positive on tests, and that you should just wait around on your laurels to get worse.
There are still far too many noodle-headed doctors still following this antiquated and unscientific advice.
Please remember, some of the sickest patients NEVER test positive on tests which look for antibodies.
And while the EM rash is indicative of Lyme, many, many never get it. No one I work with gets the rash. The graph from Lyme Disease Organization shows those getting the rash range from 27-80% – hardly a sure thing. https://www.lymedisease.org/lymepolicywonk-how-many-of-those-with-lyme-disease-have-the-rash-estimates-range-from-27-80-2/
Don’t trust mainstream medicine with tick-borne illness. Get to an ILADS trained health professional.
