Madison Area Lyme Support Group

The serious critique below (copy to the Tick-Borne Disease Working Group) requires a response from the IDSA!

Lyme Bumper Stickers (Public Service Announcement)
https://www.ebay.com/itm/123659578861

——— Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: csears@jhmi.edu
Cc: filet@summa-health.org, alexa011@mc.duke.edu, larry.k.pickering@emory.edu,hboucher@tuftsmedicalcenter.org, PracticeGuidelines@idsociety.org
Date: August 17, 2019 at 9:33 AM
Subject: Re: Draft Lyme Disease Guidelines Public Comment

Aug 17, 2029

IDSA
1300 Wilson Boulevard
Suite 300
Arlington, VA 22209
Attn: Cynthia L. Sears, MD, FIDSA, President

Re: Draft Lyme Disease Guidelines Public Comment

Dear Dr. Sears,

The 2006 IDSA treatment guideline for Lyme disease has been identified as a “predatory device” as stated in the Lisa Torrey vs IDSA lawsuit:

https://www.dropbox.com/s/18uyrli878ug51m/LymeDisease%20RICO%20Lawsuit.pdf?dl=0

Excerpt:

“169. The 2006 Guidelines do not have a legitimate purpose. The IDSA, the IDSA Panelists, and the Insurance Defendants use the Guidelines as a predatory device to injure doctors who do not follow the Guidelines. The 2006 IDSA Guidelines also prevent doctors from providing patients with proven treatment options because the IDSA Guidelines are extremely restrictive. The IDSA Guidelines also limit patients’ ability to obtain health care and eliminate patients’ choice of medical treatment in the Lyme treatment market.”

________________________________________

As a follow-up to my previous letter dated Aug 6, 2019 I want to make this perfectly clear; repackaging the 2006 predatory device exposes the IDSA to additional litigation for the following reasons:

#1 Failure to acknowledge persistent infection and seronegative disease as identified in the references of my previous letter.

#2 Failure to acknowledge that Post Treatment Lyme Disease Syndrome (PTLDS) after early treatment and untreated Lyme of months, years or decades are two entirely different disease states.

#3 Failure to acknowledge patients who have had a prolonged exposure to the pathogen are almost always incapacitated as exposed in the Under or Skin documentary:

Under Our Skin – Extended Trailer (5 minutes)
https://www.youtube.com/watch?v=sxWgS0XLVqw&feature=channel_page

#4 Promotion that Lyme is hard to catch and easily treated by members of the Infectious Diseases Society of America.

#5 Failure to inform the medical community that the only FDA test available for Lyme disease is useless for the first 4-6 weeks after a tick bite and no better than a coin toss thereafter. As stated by Paul Mead of the CDC:

“… serologic tests cannot distinguish active infection, past infection, or reinfection. Reliable direct-detection methods for active B. burgdorferi infection have been lacking in the past but are needed and appear achievable.” –Paul Mead (as a coauthor of the Schutzer paper)

By the time serology tests are positive, the spirochetes have already invaded various deep tissues, like those in syphilis, and are hard to eradicate with antibiotics

We are dealing with an antibiotic resistant/tolerant superbug [1] that is completely incapacitating if not treated immediately and since humans do not produce antibodies for 4-6 weeks after a tick bite serology is an inappropriate laboratory test but absolutely essential for the purpose of concealing persistent infection. (chronic Lyme)

1. Standard antibiotic treatment for Lyme disease does not kill persistent Borrelia bacteria.

http://droopyyoupi.blogspot.com/2015/08/standart-antibiotic-treatment-for-lyme.html

-What has tuberculosis and Borrelia burgdorferi in common? In the late stage of the disease occurs persistent (tolerant) bacteria, which essentially means that the bacteria lasts and lasts and lasts. They protect themselves against antibiotics and are difficult to treat.

– Both Borrelia burgdorferi and tuberculosis is relatively easy to cure in the early stages, even with the use of one antibiotic. In the late stage it is impossible to cure the disease with the same type of treatment in the acute phase, said Dr. Ying Zhang when he visited the year NorVect conference.

#6 Failure to recognize Lyme disease as a horribly disabling infection; misclassifying the disease as a low-risk and non-urgent health threat.

Example:

Latent Lyme Disease Resulting in Chronic Arthritis and Early Career Termination in a United States Army Officer (Published: 06 March 2019)

CDT Thomas Weiss; CDT Peter Zhu; CDT Hannah White; LTC Matthew Posner; J. Kenneth Wickiser; MAJ Michael A. Washington; LTC Jason Barnhill

https://academic.oup.com/milmed/advance-article/doi/10.1093/milmed/usz026/5370051?searchresult=1

This previously healthy cadet when found unfit for duty received a 100% service connected disability after discharged from active military service. Lyme has been portrayed as a simple nuisance disease by the defendants named in the Texas racketeering lawsuit so obtaining disability for this infection as a civilian is virtually nonexistent.

Dr. Sears… I represent 80,000 individuals who are calling for a congressional investigation into the deliberate mishandling of Lyme disease here in the United States and everyone who signs my petition has an opportunity to leave a comment. I have 1,100 pages of comments describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin.This PDF file is evidence that the Infectious Diseases Society of America has grossly misrepresented the disease and has left the horribly disabled to fend for themselves when the one-size-fits-all treatment guideline fails.

As representative of those 80,000 individuals, please be advised that I am pursuing council to determine legal action against your 2019 predatory device.

Respectfully submitted,

Carl Tuttle

Lyme Endemic Hudson, NH

Previous letter sent to Dr. Sears:

It’s time to recognize that we need an entirely different approach; anything less is inhumane

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/24913464