Scroll to 1:20 to hear the Representatives behind the bills, their purpose and intent
All the speakers were for the two bills presented
- Speaker from UWM Center of Excellence of Vector Borne Diseases
- Friends of WI State Parks
- 2 Patients
- I speak at 2:16:00
While the two bills presented deal specifically with education and prevention, other bills have been proposed. Those are the ones I have deep concerns about. To read about the bills go here: https://madisonarealymesupportgroup.files.wordpress.com/2019/05/time-to-bite-back-against-lyme-disease-05-23-19.pdf
- LRBs 1652 and 3362 – Establishes a sixteen-member Tick-Borne Disease Study Committee to create a report for the legislature on consensus-based recommendations for policy changes on awareness, prevention, surveillance, diagnosis, reporting, and treatment of Lyme Disease
Since everything about Lyme/MSIDS is steeped in controversy, this panel could be made up of those who do not recognize that Lyme can be persistent, and that it’s common for coinfection involvement necessitating numerous drugs for extended periods of time. A great example of this happening as we speak is in the federal Tick Borne Disease Working Group: https://madisonarealymesupportgroup.com/2019/06/15/working-groups-abrupt-shift-excludes-lyme-patients/ Excerpt:
Dr. Shapiro is much more than just a representative of the IDSA. In addition to financial conflicts of interest that should preclude him from serving on the Working Group, for years Dr. Shapiro has notoriously waged war on Lyme patients, their doctors, and advocacy groups. Putting him on the Working Group shows tremendous lack of respect for Lyme patients and their concerns. (More than 21,000 people have signed our petition to remove Shapiro from the TBDWG.
On top of this, Shapiro accuses chronically infected, suffering patients with medically unexplained symptoms (MUS) and urges the medical community to develop ways to prevent “healthcare-seeking behaviors” by parents who believed their children may have Lyme disease: https://madisonarealymesupportgroup.com/2019/06/11/dr-eugene-shapiro-medically-unexplained-symptoms/
https://madisonarealymesupportgroup.com/2019/05/03/when-lyme-disease-doesnt-go-away/ Dr. Brian Fallon, a Columbia University Irving Medical Center psychiatrist states that patients with chronic, unexplained symptoms had all been healthy—until they got Lyme disease. These patients suffered from chronic pain, fatigue and cognitive problems that had a debilitating effect on their lives. They all had been treated with antibiotics with partial response but then relapsed.
SINCE SUCH PERSISTENT INFECTION WAS CONSIDERED IMPOSSIBLE, THEY WERE TOLD THEY WERE HYPOCHONDRIACS.