Correction
The BVT class has been canceled on Sat. Feb 6th, but we will have a regular support meeting. You can all check the status of my cognitive function at that time. 🙂
Archive for the ‘Uncategorized’ Category
BVT Class canceled – Hearing Reminder
I regret to inform you that the Bee Venom Therapy class we had scheduled for Feb. 3 has been canceled. We plan to do this in the future so stay tuned. We will have a regular support group instead this Saturday from 2:30-4:30.
Also, please remember the public hearing on item AB768 this Wednesday, Feb. 3, at 10am at the Capital regarding: Rules regarding diagnosis and treatment of Lyme disease and requiring the exercise of rule- making authority.
https://madisonarealymesupportgroup.wordpress.com/2016/01/26/public-hearing-update/
Please go to the information desk on the main floor and ask for the hearing room (415 Northwest) for the Lyme Disease issue. They will direct you as the Capital is a bit of a labyrinth.
Hope to see you all there
Public Hearing Update
After speaking with the office of Representative Sanfelippo, please note that the committee will be speaking on the Lyme Treatment issue first, right at 10:00. Thank you to those who made phone calls on this matter.
Also, please note that the issue is about getting the Wisconsin State Medical Board to make rules on Lyme Disease treatment, and while that may seem a wise thing at first blush, please know that it is often the folks on this very board who come after LLMD’s for treating outside the horrifically inadequate CDC guidelines. It’s a bit like asking the wolves to guard the hens.
We need to make sure that the committee understands there is a huge schism in the medical community on Lyme Disease treatment with the CDC on one side of the fence and ILADS on the other – and this fence is barbed. Never shall the twain meet. The CDC doesn’t believe chronic Lyme exists and feels Lyme is hard to catch and easy to treat. ILADS believes in chronic Lyme and that it’s easy to catch and difficult to treat.
There couldn’t be more polarization on this one.
Also, important to note: patients rarely have just Lyme or borrelia, but are infected with multiple pathogens (Bartonella, Babesiosis, Mycoplasma, viruses, fungus, and stuff not even named yet) with multiple strains that tests do not pick up. If you read the Babesia article, you realize they are finding new strains monthly. https://madisonarealymesupportgroup.wordpress.com/2016/01/16/babesia-treatment/
So, in a nutshell, MSIDS (multi systemic infectious disease syndrome), rather than the limited label of Lyme Disease – is a complex illness that takes time and numerous treatments with a variety of things to be effective.
The best thing this committee can do is protect doctors who dare to treat outside the CDC guidelines
Please go to the information desk on the main floor and ask for the hearing room (415 Northwest) for the Lyme Disease issue. They will direct you as the Capital is a bit of a labyrinth.
Hope to see you all there
WI Public Hearing Feb 3
http://www.channel3000.com/news/Bill-would-set-standards-for-treatment-of-Lyme-disease/37560682 (Go here for informative video)
Committee on Health
PUBLIC HEARING – FEBRUARY 3RD
Wisconsin Capitol Building 2 East Main Street, Madison, WI
Begins: 10:01 AM 415 Northwest (subject to change)
Items AB658; AB659; AB660; AB708; AB709; AB710; AB711; AB712; AB713; AB736; AB752; AB765; AB766; AB768
AB768 – Rules regarding diagnosis and treatment of Lyme disease and requiring the exercise of rule- making authority.
Main Authors: Rep David Craig, Assembly District 83 (R-Big Bend) Rep.Craig@legis.wisconsin.gov (888) 534-0083
Senator Frank Lasee, Senate District 1 (R-De Pere) Sen.Lasee@legis.wisconsin.gov (608) 266-3512
Authors/Sponsors: Representatives Craig, Sargent, Ballweg, Considine, Jagler, Kahl, Kremer, T. Larson, A. Ott, Petersen, Sinicki,
Skowronski, Spreitzer, Thiesfeldt and Kooyenga; cosponsored by Senators Lasee, C. Larson, Olsen and Vinehout.
Committee Members ( Link http://docs.legis.wisconsin.gov/2015/committees/assembly/1406 )
Assembly District 15 (R – New Berlin)
Rep.Sanfelippo@legis.wisconsin.gov
(608) 266-0620 (888) 534-0015
Assembly District 55 (R – Neenah)
Rep.Rohrkaste@legis.wisconsin.gov
(608) 266-5719 (888) 534-0055
Assembly District 87 (R – Glen Flora)
Rep.Edming@legis.wisconsin.gov
(608) 266-7506 (888) 534-0087
Assembly District 82 (R – Franklin)
Rep.Skowronski@legis.wisconsin.gov
(608) 266-8590 (888) 534-0082
Assembly District 59 (R – Kewaskum)
Rep.Kremer@legis.wisconsin.gov
(608) 266-9175 (888) 534-0059
Assembly District 25 (R – Manitowoc)
Rep.Tittl@legis.wisconsin.gov
(608) 266-0315 (888) 529-0025
Assembly District 40 (R – Waupaca)
Rep.Petersen@legis.wisconsin.gov
(608) 266-3794 (888) 947-0040
Assembly District 44 (D – Janesville)
Rep.Kolste@legis.wisconsin.gov
(608) 266-7503 (888) 947-0044
Assembly District 8 (D – Milwaukee)
Rep.Zamarripa@legis.wisconsin.gov
(608) 267-7669 (888) 534-0008
Assembly District 7 (D – Milwaukee)
Rep.Riemer@legis.wisconsin.gov
(608) 266-1733 (888) 529-0007
Assembly District 78 (D – Madison)
Rep.Subeck@legis.wisconsin.gov
Polar VorTicks
If you’ve always believed that cold temperatures kill ticks….well, think again.
http://thebark.com/content/ick-its-tick-my-dog
Fact: In most areas of the country, “tick season” runs from April to November, however, infection can occur any time of the year. For example, in the winter, some tick species actually move indoors, while other species make a type of “internal antifreeze” to survive during the winter months. This is often why veterinarians will recommend year-round tick prevention.
Tick guy, Tom Mather, shows how ticks survive in 3 degrees overnight under snow cover.
Personally, I have buddies pulling live ticks off their dogs in the middle of February in Wisconsin when it’s been below zero quite frequently.
Ticks are marvelous ecoadaptors and can survive the harshest conditions as long as they can find leaf litter in dry weather and snow cover in frigid weather.
And regarding all the clamor of “climate change,” independent Canadian tick researcher John Scott has proven it has absolutely nothing to do with tick proliferation and therefore the spread of Lyme/MSIDS: https://madisonarealymesupportgroup.com/2018/11/07/ticks-on-the-move-due-to-migrating-birds-and-photoperiod-not-climate-change/
https://madisonarealymesupportgroup.com/2018/08/13/study-shows-lyme-not-propelled-by-climate-change/ Warm winters are lethal to I. scapularis (black-legged) ticks. In fact, overwinter survival dropped to 33% when the snow melted.
So…..when people push the idea that warmer winters somehow make ticks more abundant you can explain with science on your side that warmer winters actually kill ticks.
