Archive for the ‘Treatment’ Category

National Committee Creates New Acronym for Lyme: IACI

Lyme IACI, pronounced “Lyme eye-ACK-ee” is the latest fantasy dreamt up by the National Academies of Sciences, Engineering, and Medicine – the congressionally chartered organization that serves as the ‘collective’ scientific national academy of the U.S., which proudly deploys the climate, health, and equity propaganda pushed by globalists.  The sponsors of the organization are none other than:

AstraZeneca
Burroughs Wellcome Fund
Grantham Foundation
JPB Foundation​
McCall MacBain Foundation
Rockefeller Foundation

Are you getting this yet?

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/

Inquiry to the Deputy Director of the Vector-Borne Diseases Division at the CDC

Carl Tuttle
Hudson, NH, United States
Jul 31, 2024

Notice to everyone who has signed this petition:

The following so-called “National Committee” has been established turning persistent Lyme symptoms into a new acronym: Lyme Infection-Associated Chronic Illness (Lyme IACI)

Medscape

‘Doesn’t Fit Anything I Trained for’: National Committee Examines Treatment for Chronic Illness Following Lyme Disease

https://www.medscape.com/viewarticle/doesnt-fit-anything-i-trained-national-committee-examines-2024a1000dru

So now, Chronic Lyme will be swept under the rug for more decades to come despite the mountain of evidence that we have been dealing with an antibiotic resistant/tolerant superbug!

I don’t think this committee is looking to solve (expose) the chronic Lyme epidemic …. it seems more likely this is an opportunity to exploit the chronically infected with money making pharmaceuticals to treat the symptoms of an antibiotic resistant/tolerant superbug.

“Lyme IACI” conveniently sweeps chronic Lyme under the rug.

Please see the email below addressed to Dr. Ben Beard of the CDC with carbon copy to all members of this committee. I ask that everyone demand a response from Beard. You can copy all email addresses below and send a private email or post a comment to the NASEM Committee’s website: https://www8.nationalacademies.org/pa/feedback.aspx?type=project&key=HMD-HSP-23-07

Inquiry to Ben Beard:

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “cbb0@cdc.gov” <cbb0@cdc.gov>
Cc: “jjohnson@genevausa.org” <jjohnson@genevausa.org>, “theerhisamariee@gmail.com” <theerhisamariee@gmail.com>, “jaucott@jhmi.edu” <jaucott@jhmi.edu>, “cbb0@cdc.gov” <cbb0@cdc.gov>, “jraitt1@stanford.edu” <jraitt1@stanford.edu>, “dclauw@med.umich.edu” <dclauw@med.umich.edu>, “john.leong@tufts.edu” <john.leong@tufts.edu>, “avindra.nath@nih.gov” <avindra.nath@nih.gov>, “charles.chiu@ucsf.edu” <charles.chiu@ucsf.edu>, “elliot.cowan@partnersindiagnostics.com” <elliot.cowan@partnersindiagnostics.com>, “beth.jaworski@nih.hhs.gov” <beth.jaworski@nih.hhs.gov>, “roger@lundquist.org” <roger@lundquist.org>, “rachele.hendricks.sturrup@duke.edu” <rachele.hendricks.sturrup@duke.edu>, “info@lymebiobank.org” <info@lymebiobank.org>, “lorrainejohnson@outlook.com” <lorrainejohnson@outlook.com>, “wendyadams1@gmail.com” <wendyadams1@gmail.com>, “Leith.States@hhs.gov” <Leith.States@hhs.gov>, “tindall.matt@gmail.com” <tindall.matt@gmail.com>, “stacie.hudgens@clinoutsolutions.com” <stacie.hudgens@clinoutsolutions.com>, “raymond_dattwyler@nymc.edu” <raymond_dattwyler@nymc.edu>, “timothy.sellati@globallymealliance.org” <timothy.sellati@globallymealliance.org>, “nklimas@nova.edu” <nklimas@nova.edu>, “kester@genevausa.org” <kester@genevausa.org>, “nicole@nicolemalachowski.com” <nicole@nicolemalachowski.com>, “marcom@genevausa.org” <marcom@genevausa.org>, “stephen.gluckman@pennmedicine.upenn.edu” <stephen.gluckman@pennmedicine.upenn.edu>, “epocratesMedia@athenahealth.com” <epocratesMedia@athenahealth.com>, “epocrates@athenahealth.com” <epocrates@athenahealth.com>
Date: 07/31/2024 7:40 AM EDT
Subject: Inquiry to the Deputy Director of the Vector-Borne Diseases Division at the CDC

Charles B Beard
Deputy Division Director, Division of Vector-Borne Diseases
Centers for Disease Control and Prevention

Dear Dr. Beard,

In 1991 the Lyme disease organism, Borrelia burgdorferi, was grown from the cerebrospinal fluid of patient Vicki Logan at the Centers for Disease Control in Fort Collins, Colorado despite prior treatment with intravenous antibiotics. The patient died when the insurer refused additional IV antibiotics. I have attached a copy of Logan’s positive culture report for your review:

Logan CDC Fort Collins Positive CSF Culture Report (Personal Dropbox storage area)
https://www.dropbox.com/scl/fi/agca4ynn9ok2ykgw6484q/Logan-CDC-Fort-Collins-Positive-CSF-Culture-Report.JPG?rlkey=krhiecm1xdmqs6ubhvjxuzzeo&dl=0

In 1995 the following publication identified treatment-resistant neuroborreliosis:
 
European Neurology 1995
Seronegative Chronic Relapsing Neuroborreliosis
https://www.karger.com/Article/Abstract/117104

In 2018 all patients were culture positive even after multiple years on antibiotics so there was no relief from current antimicrobials. Some of these patients had taken as many as eleven different types of antibiotics. Barbour-Stoener-Kelly (BSK) medium was used and is the same complex medium used in the NIH funded Klempner antibiotic trials.

Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease
https://www.mdpi.com/2227-9032/6/2/33

A recently published autopsy study for a young Lyme patient who committed suicide identifies chronic Lyme disease in the patient’s brain which was responsible for his neurological symptoms.

Concurrent Infection of the Human Brain with Multiple Borrelia Species
Published in MDPI Nov. 29, 2023
https://www.mdpi.com/1422-0067/24/23/16906

Excerpt:

The diverse strategies used by spirochetes to avoid the host immune system and persist in the host include active immune suppression, induction of immune tolerance, phase and antigenic variation, intracellular seclusion, changing of morphological and physiological state in varying environments, formation of biofilms and persistent forms, and, importantly, incursion into immune-privileged sites such as the brain. Invasion of immune-privileged sites allows the spirochetes to not only escape from the host immune system but can also reduce the efficacy of antibiotic therapy. 

In addition, there are 700 peer reviewed publications identifying persistent infection and more evidence of seronegative disease.

Question:

As Deputy Director of the Vector-Borne Diseases Division at the CDC, why has all the evidence indicating Borrelia as an antibiotic resistant/tolerant superbug been ignored for decades?

A response to this inquiry is requested.

Please hit reply all when responding.

Carl Tuttle
Hudson, NH

_______________

**Comment**

When reading the Medscape article, please notice the following:

The committee will not make recommendations on specific approaches to diagnosis and treatment when it issues a report in early 2025 but will instead present “consensus findings” on treatment for chronic illness associated with Lyme disease, including recommendations for advancing treatment.

There have been only a few randomized controlled trials (RCTs) conducted on what the committee is calling Lyme Infection-Associated Chronic Illness (Lyme IACI) for now, and no National Institutes of Health (NIH)-funded RCTs in the past 20 years or so. It’s an area void of the US Food and Drug Administration-approved therapies, void of any consensus on the off-label use of medications, and without any current standard of care or proven mechanisms and pathophysiology, said John Aucott, MD, director of the Johns Hopkins Medicine Lyme Disease Clinical Research Center, Baltimore, one of the invited speakers at a public meeting held by the NASEM in Washington, DC, in July.”

The best way to look at this illness is not from the silos of infectious disease or the silos of rheumatology; you have to look across disciplines,” Aucott, also associate professor of medicine in the Division of Rheumatology, told the committee. “The story doesn’t fit anything I trained for in my infectious disease fellowship. Even today, I’d posit that PTLD is like an island — it’s still not connected to a lot of the mainstream of medicine.”

COVID showed the world the devastating impact of ‘consensus-based medicine,’ which a report has deemed ‘shocking and immortal.’ In this Communist-type paradigm doctors are told by bureaucrats how to treat, what they can use to treat, and what they can’t use to treat.  Anything outside the lines of this monolith simply aren’t allowed.  Doctors who dare to think for themselves are persecuted and ostracized – with the full weight of the government pressing down upon them –  often times losing their medical license.

This is the world Lyme literate doctors (LLMDs) have lived in for forty years.

The article also regurgitates that only 10-20% go on to suffer with persistent symptoms after treatment, when the actual percentages are approximately 60% as many are not diagnosed or treated until much later – often years later.

Lyme/MSIDS will never fit into RCTs because there are too many variables to fit into a nice four-cornered research box.  Many never test positive on the CDC-2-tiered testing, many never get an EM rash, numerous coinfections are involved, not to mention the fact there are multiple strains of borrelia that testing will not pick up, and symptoms are wildly variable.  No two patients look alike.

Category:

Activism, Lyme, research, Testing, Treatment

The Important Connection Between COVID Infection, Injection, and Bacteria

http://  Approx. 24 Min

Connection Between COVID & Bacteria

July 21, 2024

By Dr. McMillan

Discover the mind-blowing connection between COVID-19 and bacteria in this shocking video.

Learn about the surprising ways in which the virus can infect bacteria and gain valuable insights into this fascinating phenomenon. Petrillo, Mauro, et al. “Increase of SARS-CoV-2 RNA load in faecal samples prompts for rethinking of SARS-CoV-2 biology and COVID-19 epidemiology.” F1000Research 10 (2021). https://www.ncbi.nlm.nih.gov/pmc/arti…  From study:

Discussion

Our observations are compatible with a ‘bacteriophage-like’ behaviour of SARS-CoV-2, which, to our knowledge has not been observed or described before. These results are unexpected and hint towards a novel hypothesis on the biology of SARS-CoV-2 and on the COVID-19 epidemiology. The discovery of possible new modes of action of SARS-CoV-2 has far-reaching implications for the prevention and the treatment of the disease.

This 2021 study shows how COVID was being found in stool and that the microbiome could be involved.

Researchers then designed a test to cultivate the microbiome from infected people and looked at the viral load.  Since it is known that the virus first infects the mucosa in the upper airways, the first priority should be protecting the airways from infection.  Once it infects and breaks through the mucosal barrier and either gets into the bloodstream or the lymphatic system, it will then circulate through the whole body causing sickness.  It then heads to the intestines because there’s a lot of Ace2 receptors it can bind to and then infect cells in the small and large intestines to then replicate.

This paper highlights how COVID is being driven from the gut.

Previously, the researchers were finding abnormal bacterial toxins in the stool, blood, and urine from both infection and the gene therapy injection.

Research has shown that gut symptoms are associated with severe COVID.  Scientists and physicians have even formed a consensus for a list of non-prescription agents for COVID prophylaxis and symptom de-escalation of which the top four consist of vitamins C & D, zinc, and quercetin.

Dr. Sabine Hazan has shown that some of the good bacteria (bifido) get completely wiped out after infection and injection.  This bacteria is imperative to break down vegetable matter in the gut.  This decimation could then allow the overgrowth of the toxins that cause C. Diff and strep infections. She has since developed and patented treatment protocols combining vitamins and drugs that increase bifidobacteria including vitamin C, vitamin D, HCQ, and ivermectin.

 

Category:

Activism, Gut Health, research, Supplements, Treatment, vaccines, Viruses

Chronic Lyme Patient Treated Successfully With Low Dose Flagyl

https://danielcameronmd.com/chronic-lyme-treated-low-dose-flagyl/

CHRONIC LYME PATIENT TREATED SUCCESSFULLY WITH LOW DOSE FLAGYL

chronic-lyme-treatment

In their article “Patient with Chronic Lyme Disease and Recurrent Relapses, Maintained in Complete Remission by Low Doses of Metronidazole,” Lacout and colleagues describe a unique case of a Lyme disease patient, residing in France, whose chronic symptoms and relapses resolved with long-term, low dose Flagyl. [1]

By 

A 55-year-old man developed numbness and burning in his legs, numbness in his hands, tinnitus, extreme weakness, intense pain, cramps at night and at rest, palpitations, paresthesias (pins and needles sensation), headaches, shortness of breath and orthostatic hypotension.

In addition, “Fatigue was intense and incapacitating, accompanied by anxiety, difficulty concentrating, mental fogginess and sleep disturbances,” the authors state.

He reported having been bitten by a tick years earlier but did not recall having a rash.

The man had been prescribed antibiotics for biliary pancreatitis but realized that his Lyme symptoms improved dramatically with the antibiotics.

Various tests including MRI, CT scan, x-rays and blood work were all normal.

A neurologist finally diagnosed the patient with diabetic neuropathy and prescribed analgesics and duloxetine. However, after several months of treatment, the pain intensified. Increased doses of duloxetine did not alleviate his symptoms.

An ENT doctor concluded that there was a link between tinnitus and the neuropathy.

He then developed urinary and erectile dysfunction, for which a urologist concluded that neurological damage was the cause of the symptoms, the authors state.

The man was eventually diagnosed by clinicians in France with polymorphic persistent syndrome after a possible tick bite (SPPT), a condition similar to post-treatment Lyme disease.

He was subsequently treated with multiple medications including: pyrantel, doxycycline, hydroxychloroquine (Plaquenil), ceftriaxone and metronidazole.

“At the end of this treatment, all signs had disappeared except for some residual intermittent leg pain.”

Unfortunately, the patient developed lung cancer and was treated with chemotherapy.

After he completed his cancer treatments, the man’s Lyme-related symptoms re-emerged and he developed relapses every 2 to 3 months.

Each relapse was treated successfully with antibiotics, typically doxycycline or azithromycin, sometimes combined with low doses of hydroxychloroquine.

“In view of these recurrent and seemingly inescapable recurrences, long-term treatment was initiated in the hope of maintaining a prolonged remission with the minimum antibiotic as possible: metronidazole 500 mg once a week,” the authors state.

In the present case, prolonged clinical remission was achieved with very low doses of Flagyl (metronidazole) 500 mg once a week.

For the past year, the patient has been in complete remission with no symptoms.

Authors Highlights:

  • “In our case, long-term, inexpensive treatment with minimal doses of antibiotics (500 mg metronidazole per week) was successfully introduced: the patient has not relapsed since then, leads a normal life and has even returned to work.”
  • “This case perfectly illustrates the existence of a chronic form of Lyme disease, as the patient relapsed numerous times (every two to three months for several years), and always went into remission after reintroducing antibiotics.”
Related Articles:

Autopsy reveals multiple Borrelia species in man with chronic Lyme disease

Dismissing chronic Lyme disease for somatic symptom disorder diagnosis

What is chronic Lyme disease?

References:
  1. Alexis Lacout, Pierre Yves Marcy, Christian Perronne. Patient with Chronic Lyme Disease and Recurrent Relapses, Maintained in Complete Remission by Low Doses of Metronidazole. Archives of Microbiology and Immunology. 8 (2024): 261-264.

_________________

**Comment**

Please note that one of the study authors, Christian Perronne, has been a long-standing advocate for chronic Lyme.  He’s one of the good guys, and it’s not shocking at all that he would be behind using treatment that saves a life rather than toe the party line, be lazy, and tell the patient they are crazy.

I had good results with metronidazole too but my LLMD switched me to tinidazole due to it typically causing less side effects.  It is one of the few antibiotics to address the cystic form of borrelia.  I always felt like a truck ran over me after pulsing it a few times a week throughout treatment (5 years).

Please see Dr. Eva Sapi’s work: https://www.dovepress.com/evaluation-of-in-vitro-antibiotic-susceptibility-of-different-morpholo-peer-reviewed-article-IDR  Metronidazole led to reduction of spirochetal structures by ~90% and round body forms by ~80%. Tigecycline and tinidazole treatment reduced both spirochetal and round body forms by ~80%–90%.

In terms of qualitative effects, only tinidazole reduced viable organisms by ~90%. Following treatment with the other antibiotics, viable organisms were detected in 70%–85% of the biofilm-like colonies.

I must also add that for those with significant neuro issues, antibiotics that cross the blood/brain barrier are imperative.  One that worked for me was minocycline:  https://madisonarealymesupportgroup.com/2017/06/04/minocycline-for-ms-and-much-more/

Go here for more:  https://madisonarealymesupportgroup.com/2016/02/13/lyme-disease-treatment/

Category:

Activism, Lyme, research, Treatment

Guide to Kill & Prevent Yeast

https://www.treatlyme.net/guide/kills-yeast-a-brief-guideKills & Prevents Yeast: A Brief Guide

Updated: 7/15/24

By Dr. Marty Ross

The Problem with Intestinal Yeast and Lyme, Bartonella or Babesia Treatment

Too many yeast in the intestines (yeast overgrowth) is a common problem that occurs in those with chronic Lyme disease, Bartonella, and Babesia. This problem occurs during treatment, or prior to beginning treatment. Prescription antibiotics, and to a much lesser degree herbal antibiotics, lead to intestinal yeast excess. Immune suppression prior to starting antibiotics can also cause yeast overgrowth.

The Problem. Yeast overgrowth can result in an ongoing systemic allergic reaction to the yeast that can suppress the immune system. Yeast overgrowth also leads to inflammatory cytokine excess that causes many of the Lyme, Bartonella, and Babesia symptoms and pain. Food allergies and sensitivities are the result of yeast overgrowth, too. Learn more about cytokines in Control Cytokines: A Guide to Fix Lyme Symptoms & The Immune System.

In this article, I lay out several natural and prescription medicine options to treat yeast and to prevent future problems with yeast overgrowth. These options have three basic steps using a feed, seed and weed approach. For best results take the feed, seed and weed steps simultaneously and throughout treatment.

  • Feed your intestinal microbiome to promote gut health;
  • Seed your intestinal microbiome with the right probiotic based on your intestinal health; and
  • Weed your intestinal microbiome to decrease your intestinal yeast germ load.

How to Diagnose Yeast Overgrowth in Lyme Disease

For information about diagnosing too many yeast, read A Silent Problem—Is It Yeast?

Step 1. Feed your intestinal microbiome with polyphenols and prebiotic fibers *

It is important to do the actions in Step 1. throughout your herbal or prescription antibiotic treatment with or without intestinal yeast overgrowth.

Option 1. Use Supplements

  • Polyphenol 2 capsules one time a day. I prefer Polyphenol Booster by Pendulum.*
  • Prebiotic non-digestible sugars 1 to 2 pills 3 times a day. I prefer MegaPre by Multibiome Labs.*

Option 2. Eat a Plant-forward Whole Food Diet

  • Include polyphenols and prebiotic plant fibers in your diet by eating a whole food diet rich in colorful berries and fruits, vegetables, beans, legumes, nuts and seeds. Aim for at least 30 grams of plant-based fiber a day which you can track using an app like MyFitnessPal or by having at least 5 servings a day of the various foods types listed above. In choosing a whole-foods plant-forward diet, it is ok to use animal proteins or plant-based proteins for your protein source.

Here are some resources to help you eat a plant-forward whole food diet.

An elimination diet is another diet to consider starting if you are very reactive to several foods. For detailed information, see Elimination Diet to Find Food Problems.  (See link for article)

______________

**Comment**

Excellent information.  I caution on an entirely vegan diet.  I have found food choice to be extremely important to healing, but every patient is different in what they can tolerate.  If you are unequipped on this topic, consider going to a nutritionist and/or a naturopath who is at least Lyme-friendly, and very experienced.  This topic alone can make THE difference in your journey.  Don’t underestimate it.

Category:

Candida, diet and nutrition, Gut Health, Herbs, Inflammation, Lyme, Prevention, Supplements, Testing, Treatment

Ross Lyme & Tick-borne Diseases Protocol Version 4

https://www.treatlyme.net/lyme-disease-treatment-guidelines

About The Ross Lyme & Tick-borne Diseases Protocol—Version 4

New in Version 4

The Ross Lyme & Tick-borne Diseases Protocol–Version 4 update, released 6/17/24, has a number of significant changes.

Name change. In Version 4, I have updated our name to include “tick-borne”. This recognizes that people can have Bartonella, Babesia, or other tick-borne diseases, separate from having Lyme (Borrelia) infection.

But there are more significant updates than our name change. Version 4

  • Emphasizes plant-based foods recommendations in Part 2. Diet;
  • Promotes healthy intestinal microbiome—even on antibiotics with a new Part 3. Healthy Intestinal Microbiome; and
  • Includes an herbal antibiotic only option to treat the three Bs (Borrelia, Bartonella, and Babesia) simultaneously in Part 12. Lyme Infection and Part 13. Bartonella & Babesia Infections.
  • Moves lifestyle, and related areas, of sleep, diet, healthy intestinal microbiome, and exercise to the front of the protocol to emphasize the key role these areas have in recovery.

Introduction

These are support and treatment guidelines to treat chronic Lyme or tick-borne infections. This protocol addresses most problems that keep a person from getting well. It is more comprehensive than the antibiotic focused Infectious Disease Society of America (IDSA), International Lyme and Associated Disease Society (ILADS), and United States Centers for Disease Control and Prevention guidelines. While herbal and prescription antibiotics may decrease the germ load in chronic Lyme and tick-borne infections, they often do not correct the underlying problems that cause ongoing symptoms.

The Ross Lyme Support Protocol includes essential steps for the beginning and throughout a chronic Lyme disease or tick-borne infection treatment. It is designed to:

  • boost the immune system,
  • improve detoxification,
  • speed recovery,
  • kill the infections, and
  • protect and repair from the harmful effects of the infections and the herbal or prescription antibiotics.

While the following Lyme disease and tick-borne infection treatment approach focuses on a limited number of areas, it may correct most of the problems like:

  • low energy,
  • pain,
  • insomnia,
  • brain, neurologic, and thinking problems (brain fog), and
  • immune compromise and suppression.

Herxheimer Reactions. When a person starts a Lyme disease or tick-borne infection treatment or changes herbal and prescription antibiotics, it is common to experience some worsening in symptoms. See Herxheimer Die-off Reaction: Inflammation Run Amok for more information about this and the steps you can take to treat it.

Treatment Length and Persistence. Generally, it takes a minimum of six months to see if these supports and treatments will help. Supplements can speed recovery, but treating Lyme still takes time. Once you have marked improvement, then you can likely stop many of these nutritional supports except for probiotics, curcumin, ashwagandha, and a good multivitamin. See Getting Healthy: Will I? When? How Do I? for more information about Lyme disease and tick-borne infection treatment length and persistence.

About Supplements. Throughout this protocol I include supplements as nutritional supports based on their known functions. Basic research and my clinical experience show they may help the various symptoms and problems in Lyme disease and tick-borne infections.  (See link for article)

_______________

**Comment**

Lots of great info here.

For more:

Category:

Babesia, Bartonella, Detoxing, diet and nutrition, Lyme, Pain Management, Sleep, Supplements, Treatment