Archive for the ‘research’ Category

Lyme Disease & POTS

https://www.globallymealliance.org/blog/lyme-disease-and-pots?

Learn about the connection between Lyme disease, POTS, and Lyme carditis, and discover the importance of early diagnosis and specialized medical care.

Have you heard of POTS?

Between my freshman and sophomore years of college, I was bitten by a tick while working at a summer camp in the woods of Maine. As I’ve described in many of my blog posts, it took eight years for me to be accurately diagnosed, and during that time I suffered from a range of physical and neurological symptoms. During the fall semester of my sophomore year, I had flu-like symptoms as well as symptoms of what the college nurses thought were panic attacks.

Looking back now, I wonder if my heart palpitations, lightheadedness, and dizziness were in fact signs POTS, or Postural orthostatic tachycardia syndrome. At the time, POTS was little if at all understood, but now researchers and physicians are seeing POTS not just in Lyme disease patients but also in conditions like long COVID and ME/CFS.

POTS occurs when moving from lying to standing causes an increase in heart rate by at least 30 beats per minute for adults and 40 beats per minute for children. In addition to this abnormal increase in heart rate, the Heart Rhythm Society defines POTS as a clinical syndrome characterized by symptoms of lightheadedness, blurring of vision, palpitations, intolerance to exercise, and fatigue, as well as the absence of orthostatic hypotension[i] (meaning the blood pressure does not drop when the heart rate rises). I experienced all of these symptoms that fall in college. Had POTS been more well-known, its symptoms could have pointed puzzled medical practitioners in the direction of tick-borne disease. That was 1997; a recent study shows that the incidence of POTS has increased four-fold since 2000.[ii]

Another Lyme-related condition, Lyme carditis

Heart-related symptoms such as racing heartbeat can also be a sign of another condition known as Lyme carditis, when the Lyme bacteria goes to the heart. This can cause atrioventricular block, often referred to as “heart block,” which is an electrical disconnect between the upper and lower chambers of the heart, causing them to beat at different rhythms. Lyme carditis can also manifest as costochondritis (inflammation of the cartilage that connects the ribs to the breastbone), tachycardia (racing heart rate) and bradycardia (slow heart rate). It can also cause myopericarditis (inflammation of the heart muscle and lining), which patients may feel as chest pain or shortness of breath.

Though Lyme carditis is rare, according to a 2008 study, 4% to 10% of all patients with Lyme borreliosis. Whenever the clinical suspicion of Lyme carditis arises, an ECG is mandatory to detect or exclude an atrioventricular conduction block.

If you have already been diagnosed with Lyme disease, it’s important that your doctor check specifically for Lyme carditis, and also evaluate you for POTS. If you are experiencing symptoms of either Lyme carditis or POTS, see a Lyme Literate Medical Doctor (LLMD) to find out if tick-borne disease may be the cause. I only wish I had seen a LLMD sooner; I might have avoided years of suffering.

Click here to read more blogs.

[i] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7255540/

[ii]  Epidemiology of postural tachycardia syndrome. [Apr;2020 ];AbdelRazek M, Low P, Rocca W, Singer W. https://n.neurology.org/content/92/15_Supplement/S18.005 Neurology. 2019 92:0.

The above material is provided for information purposes only. The material (a) is not nor should be considered, or used as a substitute for, medical advice, diagnosis, or treatment, nor (b) does it necessarily represent endorsement by or an official position of Global Lyme Alliance, Inc. or any of its directors, officers, advisors or volunteers. Advice on the testing, treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient’s medical history.
Writer

Jennifer Crystal

Opinions expressed by contributors are their own. Jennifer Crystal is a writer and educator in Boston. Her work has appeared in local and national publications including Harvard Health Publishing and The Boston Globe. As a GLA columnist for over six years, her work on GLA.org has received mention in publications such as The New Yorker, weatherchannel.com, CQ Researcher, and ProHealth.com. Jennifer is a patient advocate who has dealt with chronic illness, including Lyme and other tick-borne infections. Her memoir, One Tick Stopped the Clock, was published by Legacy Book Press in 2024. Ten percent of proceeds from the book will go to Global Lyme Alliance. Contact her via email below.

Email: lymewarriorjennifercrystal@gmail.com

GLA: New Research Grants to Address Critical Gaps in Lyme Disease Research

https://www.globallymealliance.org/press-releases/global-lyme-alliance-announces-new-research-grants-to-address-critical-gaps-in-lyme-disease-research?

Pictured above: GLA Grantee, Brit Adler, MD, Assistant Professor of Medicine at Johns Hopkins University
GLA announces new research grants to tackle critical gaps in Lyme disease research, including biobanking, pediatric Lyme disease, and chronic conditions.

Global Lyme Alliance (GLA), the leading 501 (c)(3) dedicated to conquering Lyme and other tick-borne diseases through innovative research, awareness, and empowering the patient voice proudly announces new funding to support critical research initiatives. 

In 2025, GLA continues to drive scientific breakthroughs, empowering researchers to tackle complex challenges in Lyme disease and develop actionable solutions. The latest funding highlights GLA’s commitment to addressing gaps in biobanking, advancing pediatric Lyme disease research, and investigating chronic conditions in Lyme disease. 

GLA Chief Scientific Officer Armin Alaedini, PhD, remarked: “Biobanking is a critical yet often overlooked resource in Lyme disease research. By funding the creation of comprehensive biorepositories, we aim to provide researchers with the tools they need to make meaningful strides in diagnosing and treating Lyme disease. 

Newly funded projects include:

1. The European Lyme Biorepository: Co-led by Volker Fingerle, MD, (pictured right) Head of German NationalVolkner Reference Center for Borrelia and Andreas Weiser, MD, (pictured left) at the Ludwig Maximilian University of Munich. They will establish a comprehensive biobank to collect blood samples from patients from over 10 European countries. The biobank LMU photowill be the first unified European resource for Lyme disease research, providing a much-needed, standardized collection to improve current and new tests and support research aimed at advancing how Lyme disease is diagnosed.  

2. POTS and Lyme Disease: Led by Brit Adler, MD, Assistant Professor of Medicine at Johns Hopkins University. Brit Adler headshotThis project investigates the link between Lyme disease and postural orthostatic tachycardia syndrome (POTS). The study aims to uncover prevalence, risk factors, and physiological changes in patients, potentially leading to improved treatment strategies and insights into the pathophysiology of the chronic manifestations of Lyme disease.  

GLA’s ongoing funding includes:  

1. Pedi Lyme Net: under the leadership of Lise Nigrovic, MD, MPH, Senior Pediatric Emergency Physician at Boston Children’s Hospital and Professor of Pediatrics at Harvard Medical School, Pedi Lyme Net is a pediatric emergency department Lyme disease network composed of 8 different emergency departments. It includes the world’s only pediatric Lyme Disease Biobank with over 6,000 biosamples collected since 2015. These samples have so far supported 21 impactful studies and fostered 11 research collaborations, advancing the understanding of pediatric Lyme disease diagnosis and management.

2. Patient Genetics: Klemen Strle, PhD, an Assistant Professor at Tufts University, is studying immune responses and patient genetics to uncover why some patients have lingering Lyme disease symptoms.  

3. Epigenetics: Tanja Petnicki-Ocwieja, PhD an Assistant Professor at Tufts University is examining how Lyme bacteria may cause epigenetic changes in bone marrow cells of mice. Inhibiting some of these changes may offer novel potential modes of treatment. 

4. Persistence: Jenny Hyde, PhD an Associate Professor at Texas A&M University and Melissa Caimano, PhD, an Associate Professor at the University of Connecticut, are investigating whether Lyme bacteria or their remnants in mice could contribute to chronic symptoms and evaluating which antibiotics are most effective in eliminating them. 

5. Bartonellosis: Monica Embers, PhD, an Associate Professor at Tulane University and Annette Moter, MD, PhD a Principal Director at Charité-Berlin University Medicine are studying drug combinations to treat Bartonella when it lives inside and outside cells. While evidence for bartonellosis as a tick-borne disease in the U.S. is limited, it remains a concern as a potential co-infection in Lyme patients. 

GLA’s research grants are rigorously evaluated by its Scientific Advisory Board, ensuring that only the most promising and innovative proposals with the highest anticipated impact are funded. As the global incidence of Lyme disease continues to rise, GLA remains at the forefront of advancing research, empowering patients, and fostering international collaborations to address this growing public health crisis. 

***

If you are interesting in supporting GLA’s groundbreaking research, please contact GLA’s Director of Development, Steve Pekock at Steve.Pekock@GLA.org

To make a donation online, donate here.

Swiss Scientists File Criminal Complaint Against Authorities For Ignoring The Acute Danger of Poisonous Nanotechnology Deployed Via Chemtrails

https://anamihalceamdphd.substack.com/p/swiss-scientists-file-criminal-complaint?

Swiss Scientists File Criminal Complaint Against Authorities For Ignoring The Acute Danger Of Poisonous Nanotechnology Deployed Via Chemtrails

Criminal complaint against Federal Councillor Rösti for failure to act in an acute danger situation

The Swiss Scientific group WIR, whose research and interview with Reinette Senum I wrote about has filed a criminal complaint against the authorities in Switzerland for ignoring the imminent danger to the population.

Nanotechnological Poisons From Above – Swiss Research Team Reveals Geoengineering “Spider Filaments” Are Polyamide Nanofibers Delivering Highly Toxic Chemicals – We Are Inhaling Them

Bravo! On February 19th I will be joining the team with Reinette for an international live stream. I hope others will take note of this great work by our Swiss colleagues and start filing criminal complaints against their governments for poisoning the people and ignoring the issue.

We have to demand to end this depopulation effort from the skies!

___________________________________________________________________________

A-POST REGISTERED MAIL / 98.00.992205.01114544

Federal Prosecutor’s Office
Guisanplatz 1
CH-3003 Bern Eriz, February 4, 2025

CRIMINAL COMPLAINT

Criminal charges filed against Federal Councillor Albert Rösti and Yves Bichsel for negligent or intentional omission in an acute danger situation (imminent danger). Despite scientific evidence of the release of toxic threads, no protective measures were taken.

Ladies and Gentlemen

I hereby file a CRIMINAL COMPLAINT against:

  1. Mr Albert Rösti , in his capacity as Federal Councillor and Head of the Federal Department of Environment , Transport , Energy and Communications ( DETEC ), and
  2. Mr. Yves Bichsel , UVEK Secretary General

In the name of protecting public health, the environment and the safety of the population, I hereby file a criminal complaint against Federal Councillor Albert Rösti on suspicion of negligent or intentional omission in connection with an acute dangerous situation (“imminent danger”).

Despite clear, scientifically proven evidence of a serious threat from the release of toxic threads throughout Switzerland – with proven effects on humans, animals and the environment – the responsible federal authority under the leadership of Federal Councillor Rösti has neither taken appropriate protective measures nor shown adequate responses to urgent warnings and analyses.

The facts are clear:

  • Concrete evidence was provided by independent, highly professional laboratory analyses.
  • Repeated requests to the responsible federal authorities remained unanswered or were dismissed with evasive, inadequate answers.
  • Imminent danger : Continued inaction not only represents a failure of administration but actively endangers the life and health of the population and the integrity of the environment.

In accordance with the provisions of the Swiss Criminal Code (StGB), in particular the articles on abuse of office (Art. 312 StGB) , breach of the duty of care (Art. 128 StGB) and endangering life and public health (Art. 129 StGB) , I demand the immediate initiation of criminal investigations.

I request:

  1. The immediate opening of an investigation against Federal Councillor Albert Rösti.
  2. Ensuring all relevant documents, communication protocols and decision-making processes.
  3. The criminal prosecution of all other persons involved in the inaction or deliberate delay.

This criminal complaint will attract both national and international attention, as the dimension of the problem extends far beyond national borders.

In the interest of justice and the protection of the population, I expect your immediate confirmation of receipt and prompt processing of this application.

Detailed facts

1. Physical and chemical properties of the threads

  • These threads are hollow and consist of nanoscale polyamide structures with a diameter of about 4 to 6 micrometers. Their structure and properties differ clearly from natural spider webs or similar biological materials.
  • Chemical analyses have identified more than 30 different substances, including highly flammable, toxic and harmful compounds such as:
    • Benzene derivatives: These substances are considered carcinogenic and highly toxic.
      • Epoxides and ketones: chemicals with high hazard potential.
      • Histamine derivatives: substances with possible biological effects.
  • In addition, an increased aluminum content was detected, which could indicate possible geoengineering activities or experimental technologies. Other metals such as iron, copper and chromium were detected in trace amounts.

2. Relevance of scientific research

  • Scientific analyses carried out by independent laboratories show that the chemical composition of these threads poses a significant risk to humans, animals and the environment .
  • The use of modern analytical methods such as FTIR and Py-GCMS has shown that the threads are not of natural origin and suggest experimental, industrial processes, or even hostile and military operations. They may also have been released intentionally. (See the Scientific Investigations section for details).
  • International reporting and scientific analyses on similar phenomena:

USA:

Italy:

3. Responsibility and official duties of the accused

As a sworn Federal Councillor and head of the Federal Department of Environmental Protection, Mr Albert Rösti is obliged to ensure the protection of the environment and the health of the population in accordance with the relevant legal requirements of the Federal Constitution and environmental laws. These official duties include in particular the control and prevention of environmental hazards caused by chemical or other harmful substances.

The repeated and documented spread of these poisonous threads on private initiative represents a risk to the environment and health that falls under the supervisory duties of the Federal Department of the Environment, Transport and Communications (DETEC). Failure to investigate and contain these risks therefore constitutes a breach of official duties under Articles 11 and 312 of the Criminal Code (abuse of office).

There is a reasonable suspicion that, despite repeated warnings about the problem, Mr Rösti did not take appropriate measures to prevent a threat to public health and the environment.

4. Legal assessment

The available findings indicate violations of the following legal bases:

  1. Federal Constitution:
    • Art. 2 Purpose (protection of the rights of the people and security of the country)
    • Art. 3 Cantonal sovereignty (intervention by the federal government and internal omission)
    • Article 5, paragraphs 1-4, principles of constitutional action!
    • Art. 7 – 10 Human dignity to the right to life and personal freedom
    • Art. 35 Guarantee of Fundamental Rights (Obligation for Authorities)
    • Art. 57 Security – Protection of the population (including against hybrid attacks)
    • Art. 74 Environmental protection – Liability – Jurisdiction
    • Art. 76 / 77 Water Protection – Forest Protection
    • Art. 79 / 80 Fishing and hunting – animal protection
    • Art. 102 / 104 National Supply – Agriculture (Protection from Chemicals)
    • Art. 118 – 120 Protection of health – Protection from poison and genetic engineering
    • Art. 185 External and internal security (also against hybrid attacks)
  1. Swiss Criminal Code (StGB):
    • Art. 11 Committing an offense by omission in conjunction with StPO Art. 302 Duty to report
    • Art. 128 Violation of the duty of care
    • Art. 129 Endangerment of life (through publicly distributed poisonous substances)
    • Art. 186 Trespassing (spreading poisonous substances in the yard or garden)

crimes and offenses against public health

  1. Art. 230 – 232 (Release / hazard with toxic substances and organisms)
  2. Art. 234 / 235 Contamination of drinking water and feed (grass, herbs, etc.)

crimes against humanity

  1. Art. 264 Use of biological or chemical substances (hybrid attack)

Crimes and offenses against the state / administration of justice

  1. Art. 275 Endangerment and disruption of the constitutional order
  2. Art. 312 Abuse of office
  1. Environmental Protection Act:
    • obligation to prevent environmental hazards
    • International Agreements: Violations of the Precautionary Principle
  2. UN: Convention on the Prohibition of Military or Other Hostile Use of Environmental Modification Techniques (AS 1988 1888; BBl 1987 III 797)
    • National and possibly international perpetrators are currently violating the declaration of the United Nations Conference on Climate Change adopted in Stockholm on 16 June 1972.
    • The violation lies in the intentional or negligent use of environmentally altering technologies that cause significant harm to our country, other states, the global environment, and people and animals.

risk assessment and urgency

The proven toxic properties of the threads represent an acute danger that requires immediate action. In particular, the potential use of these threads as a transport medium for chemical or biological substances poses considerable risks. The lack of official response by Mr Albert Rösti exacerbates these risks and raises the question of whether this was done negligently or intentionally. A further failure to investigate is irresponsible.

demands

  1. Initiation of an investigation to clarify whether Mr Albert Rösti has fulfilled his official duties in his capacity as Federal Councillor.
  2. Investigation of the origin, mode of distribution and intention of these poisonous threads.
  3. Identification of the responsible persons, companies or institutions.
  4. Examination of possible links to experimental or military activities.
  5. Immediate measures to prevent further dangers.
  6. Transparent information to the public.
  7. Criminal assessment and sanctions

evidence

________________

For more:

Geoengineering, part and parcel of the ‘climate change’ narrative needs to end:

The COVID Dossier

THE COVID DOSSIER

‘COVID was not a public health event’

A record of military and intelligence coordination of the global Covid event.

Please watch the interview with Debbie Lerman and Sasha Latypova.  (Approx. 30 Min)

Also, read the COVID Dossier pdf file in the top link which is a set of facts and references compiled by Lerman and Latypova.

All measures deployed were not public health measures They are ineffective, dangerous, and were simply intended to spread fear and panic so the public would embrace whatever countermeasure was introduced, which in this case was the experimental mRNA gene therapy never used in humans before.

Latypova gives an executive summary here going back five years.

Bulletpoints:

  1. Two declarations for CBRN (weapons of mass destruction) emergencies – EUA and PREP Act – made by the U.S. Secretary of Health and Human Services, were registered on this date. [ref][ref]
  2. A pharmaceutical executive was caught on tape saying that the U.S. Department of Defense called to inform him “that the newly discovered Sars-2 virus posed a national security threat.” [ref]
    1. On February 4, 2020, there were fewer than 12 confirmed cases in the US and zero deaths. Worldwide, the death count was less than 500, proving Covid was rooted in national security, not public health. No public health parameters justifying that a novel virus posed a “threat to national security” existed at the time of the EUA and PREP Act declarations. Within 6 weeks of this date, in order to ensure a market for the countermeasures, the lockdown-until-vaccine response – which is a military/counterterrorism plan and has nothing to do with public health [ref] – went into effect all over the world.
  3. Covid was a globally coordinated response, based on legal frameworks intended for biodefense/biowarfare situations. Nothing about the response – masking, distancing, lockdowns, ‘vaccines’ – was part of a public health plan.
Who ordered and directed these operations?
Who benefited from them?

Who was and still is covering them up?

The researchers have been investigating these questions for the last several years, and they hope many who read this will join them moving forward.

CALL TO ACTION

Most journalists in both corporate and alternative spaces are either unaware or unwilling to cover the military/intelligence/biodefense/global coordination aspects of Covid. We need to change that.

Please help us shift the conversation to focus on the true nature of the Covid response and the existential questions raised by it.

The top link also includes dossiers on Australia, Canada, Netherlands, Germany, and Italy as well.

For more:

Military/IC-affiliated groups involved in messaging/propaganda/censorship:

  • Ministry of Defense team [ref]
  • iSAGE [ref]
  • 77th Brigade [ref]
  • Nudge Unit [ref from March 11 2020] / Behavioral Insights Team – now “fully owned by Nesta” (National Endowment for Science, Technology and the Arts) [ref]
  • RAF analysts [ref]
  • Cyber Threat Intelligence League (CTIL) (crossover US/UK)[ref]

Key figures in Covid response linked to military, IC, UN/WHO

  • Roy Anderson [ref]
  • Dominic Cummings [ref][ref]
  • Jeremy Farrar [ref] [ref][ref]
  • Clare Gardiner [ref]
  • Richard Hatchett (crossover US/UK) [ref][ref][ref][ref]
  • Tom Hurd [ref] [ref]
  • Thomas Waite [ref]
  • Simon Manley (UK Director-General Covid-19) [ref]

N-of-1 Trials: The Only Hope for Lyme Patients & the Vaccine Injured

https://johncatanzaro.substack.com/p/n-of-1-trials-the-only-hope-for-long?

N-of-1 Trials: The Only Hope for Long COVID, Spike Protein Complications, and Vaccine-Injured Patients

Signal-Based Medicine | N-of-1 Trials

Feb 03, 2025

The Current Dilemma

The current medical system is failing those suffering from Long COVID and vaccine injuries—patients are gaslit, dismissed, and left to deteriorate without real solutions. The reason? Our healthcare model is built around randomized controlled trials (RCTs), which were never designed for individualized treatment.

What Is an N-of-1 Trial?

An N-of-1 trial is a personalized, single-patient clinical study that aligns treatment based on the individual’s unique biomolecular response. Instead of relying on population-based statistics, this method uses real-time molecular surveillance, patient-specific peptide therapeutics, and adaptive treatment adjustments to achieve true precision medicine.

Unlike traditional one-size-fits-all drug development, N-of-1 trials are built around the patient—tracking their unique exome, transcriptome, and proteome to correct faulty molecular signaling at the source.

We do not have time to wait for mass-scale trials designed for bureaucratic approval pipelines rather than real-world recovery. Lives are deteriorating daily, careers are lost, and families are crumbling. The answer is clear: we need a personalized, adaptive medical model that responds to the patient in real-time—not a slow-moving, industry-driven system.

A Stark Illustration:

Recent breakthroughs in gene-based therapies have demonstrated impressive success in conditions like spinal muscular atrophy, sparking renewed hope for addressing complex neurogenetic diseases. However, many of these interventions are designed to target specific genetic variations, and the rigid structure of traditional clinical trials has created a severe bottleneck in innovation.

Economic and bureaucratic barriers ensure that commercial development is prioritized only for high-prevalence druggable genetic variants— those deemed profitable and feasible for large-scale trials. As a result, countless patients with rare or individualized molecular disruptions are left without viable treatment options, reinforcing the urgent need for N-of-1 trials that bypass these restrictive models and deliver precision-driven solutions in real-time.

Unfortunately, this progress has not extended to Long COVID and vaccine-related injuries, where patients are suffering from Spike-protein-induced immune dysregulation, severe cardiac damage, neuroinflammation, and persistent spike-related organ damage with no viable path to treatment.

The reason is clear: traditional clinical trial models prioritize druggable conditions with large, commercially profitable patient populations while existing N-of-1 trials are still shackled by the same flawed system, failing to deliver the personalized, compassionate care that patients with complex, individualized needs urgently require. The solution is simple: individualized N-of-1 trials must operate independently, untainted by the dysfunction of the current medical research model.

The Catastrophic Failure of RCTs in Chronic Disease

RCTs were designed for standardized drug testing, not complex, multi-systemic conditions like Long COVID and vaccine injuries. These illnesses vary drastically between individuals, yet the medical system continues to force them into rigid study parameters that discard individualized responses.

Why the System Is Broken:

• Deliberate Exclusion of the Suffering – Long COVID and vaccine-injured patients don’t fit neatly into RCT parameters, so they are ignored.

• Slow, Bureaucratic Approval Processes – Years-long trials mean patients deteriorate while waiting for an answer.

• Generalized Data Over Personalized Care – RCTs focus on “majority response,” discarding those who don’t fit the mold.

This isn’t science—it’s systemic neglect.

A System Rigged Against Individualized Care

We don’t see this approach in mainstream medicine because it threatens the financial strength of the pharmaceutical industry.

• Precision-targeted treatments mean fewer mass-produced drugs—which cuts into Big Pharma’s profit margins.

• A truly individualized medical system means fewer hospitalizations, fewer unnecessary interventions, and fewer chronic patients dependent on expensive lifelong medications.

• RCT-based gatekeeping ensures only patented, billion-dollar drugs get approval—while peptide and precision small molecule therapeutics remain buried under regulatory red tape.

This system is not designed to heal people—it is designed to sustain an industry. We Can’t Afford to Wait—Patients Are Deteriorating Now  (See link for article)

Further reading:

  1. https://www.nature.com/articles/s41591-021-01519-y
  2. https://jamanetwork.com/journals/jamaneurology/fullarticle/2829260?guestAccessKey=37236d8c-7c7d-4581-b9a3-a0bc7166de92&utm_source=silverchair&utm_medium=email&utm_campaign=article_alert-jamaneurology&utm_content=olf&utm_term=012725&adv=004812881201
  3. https://ascpt.onlinelibrary.wiley.com/doi/10.1002/cpt.2425

__________________

**Comment**

I was struck with how this article directly pertains to many of the problems in Lymeland.  RCTs have been the bane of research for Lyme/MSIDS.  Because mainstream medicine denies this complex illness can be chronic with persistent pathogen infection, and the inclusion of numerous coinfections, RCTs only include those who test positive on a test that misses nearly 90% of cases, and have a rash that is highly variable.  Maternal-fetal transmission was identified in 1985, but it took 27 years to recognize and investigate. While ‘the powers that be’ acknowledge it can be transmitted congenitally, they still claim it’s rare.  Due to this stance, doctors continue to fail to acknowledge and treat it.

Everything’s rare, until it isn’t.

The sickest patients are not represented in the research.