Archive for the ‘Psychological Aspects’ Category

Dr. Frid – Lyme, Parkinson’s & Autoimmunity

 Approx. 8 Min

Dr. Elena Frid is a guest medical contributor for AM 970 The Answer with Joe Piscopo. Today they discuss a possible link between Autoimmunity and Parkinson’s.  She mentions Lyme Disease being an infection of the brain and it’s relationship to other diseases.

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For More:

https://madisonarealymesupportgroup.com/2017/10/01/panspandas-steroids-autoimmune-disease-lymemsids-the-need-for-medical-collaboration/   Boy’s Lyme Disease Morphs into Autoimmune encephalopathy. It took 10 years and 20 doctors to find out 12-year-old Patrik had Lyme disease. Just 4 months later the doctors discovered he also has a condition where his immune system attacks his brain.

https://madisonarealymesupportgroup.com/2016/04/10/bugs-causing-alzheimers/

https://madisonarealymesupportgroup.com/2017/09/21/aluminum-flawed-assumptions-fueling-autoimmune-disease-and-lyme/

https://madisonarealymesupportgroup.com/2017/09/26/silent-epidemic-of-early-onset-alzheimers/

https://madisonarealymesupportgroup.com/2016/06/03/borrelia-hiding-in-worms-causing-chronic-brain-diseases/

Lyme & Mental Illness – Dr. Jane Marke

 Approx. 50 Min

Lyme and Psychiatric Illness: Jane Marke, MD at Central Mass Lyme Foundation Conference

Dr. Marke explains how Lyme Disease and associated infections cause psychiatric symptoms in her lecture to the Central Massachusetts Lyme Disease Foundation. Paths to treatment are suggested.

For more on psychiatric Lyme:  https://madisonarealymesupportgroup.com/2015/10/18/psychiatric-lymemsids/

https://madisonarealymesupportgroup.com/2017/10/03/treat-the-infection-psychiatric-symptoms-get-better/

https://madisonarealymesupportgroup.com/2017/07/26/can-lyme-steal-your-mind/

Another speech by Dr. Marke that I highlight:  https://madisonarealymesupportgroup.com/2017/01/17/lymemsids-and-psychiatric-illness/

One more on PANS/PANDAS, Steroids, Autoimmune Disease, and Lyme/MSIDS:  https://madisonarealymesupportgroup.com/2017/10/01/panspandas-steroids-autoimmune-disease-lymemsids-the-need-for-medical-collaboration/  A lot covered here, but please know pathogens such as tick borne infections can trigger or exacerbate other autoimmune issues.  Excerpt:  Boy’s Lyme Disease Morphs into Autoimmune encephalopathy. It took 10 years and 20 doctors to find out 12-year-old Patrik had Lyme disease. Just 4 months later the doctors discovered he also has a condition where his immune system attacks his brain.

 

Amy Hilfiger & Lyme

Published on Oct 31, 2017

Ally Hilfiger shares her experiences at Focus on Lyme 2017
LymeDisease.org

ally-at-FOL-head-shot-222x300
Ally Hilfiger, daughter of famous fashion designer Tommy Hilfiger, has struggled with Lyme disease since childhood. We included an excerpt of her book “Bite Me: How Lyme Disease Stole My Childhood, Made Me Crazy, and Almost Killed Me” in our Fall 2016 Lyme Times issue. To take a look, click here: https://www.lymedisease.org/members/l…

 

Post Traumatic Growth: Reframing the Trauma of Chronic Illness

 

After reading one of the most intense chapters of my upcoming memoir—about the downward spiral that led to my April 2007 relapse—a fellow writer said to me,

“I see a lot of post traumatic growth emerging here.”

I looked at her quizzically. Post traumatic growth? Didn’t she mean post traumatic stress? That period was one of the most traumatic of my life, and even ten years out, I still get some traditional PTSD symptoms every April: flashbacks, nightmares, anxiety, increased concern that the relapse could happen again. Surely, reading about the initial trauma itself, this writer was talking about the post-traumatic stress that would emerge in the years following the relapse.

But I had heard her correctly. She meant post traumatic growth as she saw it reflected in my writing, especially the parts where I used an older, wiser voice to look back on the difficult event and draw lessons from it. My friend, an Air Force veteran who writes about her deployment to Afghanistan, is familiar with both trauma and reflection.

She’s also familiar with post traumatic growth, a concept that is being used to help veterans not just bounce back after experiencing trauma, but grow from it and change their lives for the better. Developed in 1996 by psychologists Richard Tedeschi and Lawrence Calhoun, the theory holds that “people who endure psychological struggle following adversity can often see positive growth afterward.” As Tedeschi explained in an interview for the American Psychological Association, “people develop new understandings of themselves, the world they live in, how to relate to other people, the kind of future they might have and a better understanding of how to live life.”[1]

These were exactly the kind of changes I  experienced after surviving my relapse. Until that point, I’d always talked about “getting back to life” after Lyme disease. It wasn’t until I went back to ground zero that I realized it wasn’t about going back; it was about moving forward in spite of Lyme. Tick-borne illnesses were coming with me, and I had to figure out a way to neutralize them as best I could their impact on my future.

I’ve always considered myself a resilient person, but post traumatic growth is about more than just resilience. As explained in a March 2016 article in The New Yorker article titled  “Can Trauma Help You Grow?”, “Psychologists have long studied resilience—the ability to bounce back and move on. But post traumatic growth, which has been documented in hundreds of studies, is different; it’s (more about) what happens when trauma changes and deepens life’s meaning.”[2]

Of course, this growth takes time. For me, it took many conversations with my doctor, my therapist, my family and my friends. It’s taken 10 years for me to fully recognize and appreciate the ways Lyme has changed me for the better, such that I can reflect upon those changes in writing.

To chart post traumatic growth, Tedeschi and Calhoun look for positive responses in five areas: appreciation of life; relationships with others; new possibilities in life; personal strength; and spiritual change. I can now attest to positive changes in all of those areas, but I certainly could not have done so in the past when I was stuck in bed, unable to think about anything beyond migraines and joint pains, suffering hallucinogenic dreams only to wake into a living nightmare.

But the beauty of post-traumatic growth is, it’s not supposed to happen right away. In fact, it can’t happen unless you first come to some understanding of your trauma. And here’s the best part: Tedeschi asserts that post traumatic growth is far more common than post traumatic stress disorder.[3]

That’s an assertion I can also attest to. While I’ll likely always have some distress in April, and while I still get nervous about a relapse when my symptoms flare up, those periods are mere drops in the bucket of growth that I’ve amassed in the last decade. Lyme disease has changed me for the better, and I wouldn’t change that for anything.  How’s that for irony?

Next week Jennifer will be answering your questions about Lyme disease. Have a question for Jennifer? Email her at jennifercrystalwriter@gmail.com

[1] http://www.apa.org/monitor/2016/11/growth-trauma.aspx

[2] http://www.newyorker.com/tech/elements/can-trauma-help-you-grow

[3] http://www.nytimes.com/2012/03/25/magazine/post-traumatic-stresss-surprisingly-positive-flip-side.html?_r=1

Jennifer Crystal is a writer and educator in Boston. She is working on a memoir about her journey with chronic tick-borne illness. Contact her at jennifercrystalwriter@gmail.com

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**Comment**

Great read.  Seriously.  Great read.

We can’t change the fact we’ve been infected but we can, over time, change how we react to it.

Lyme Wars – Part 2 Kyra Overcomes Chronic Lyme Diagnosis

http://www.nbcnewyork.com/on-air/as-seen-on/Part-II-Child-Makes-Recovery-After-Chronic-Lyme_New-York-452896893.html(News video here)  Published on Oct 24, 2017

Kyra Lerner tells her story of struggle and recovery after contracting chronic Lyme, a controversial diagnosis linked to Lyme disease-carrying ticks. Kyra’s story is the second in our five-part investigative series. Natalie Pasquarella reports.

For more:  https://madisonarealymesupportgroup.com/2017/10/24/lyme-wars-part-1-julias-story/

https://madisonarealymesupportgroup.com/2017/10/24/the-lyme-wars-faces-of-the-health-crisis-a-digital-documentary/

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**Comment**

Lots of great info presented in this story – particularly the polarization of medicine and the fact that if Kyra’s parents would have followed the paradigm of the Infectious Diseases Society of America (IDSA), where they espouse essentially 21 days of doxycycline to be curative in all cases, she would be sicker than a dog with no hope.  Thankfully, she and thousands of others have followed the paradigm of the International Lyme and Associated Diseases Society (ILADS) who believe Lyme is pleomorphic and persistent, requiring much more than 21 days of doxycycline as well as the fact there is often coinfection involvement, requiring different drugs for far longer than a month.  This group also believes that IV treatments can be quite helpful for a subset of patients despite the government’s recent attempt to stop IV therapy for Lyme/MSIDS:  https://madisonarealymesupportgroup.com/2017/06/21/ilads-rebuttal-to-mmwr-article/

https://madisonarealymesupportgroup.com/2017/06/23/no-bias-in-mmwr-for-any-other-infectious-disease-requiring-iv-antibiotics-except-for-lyme/

For a great article explaining the tug of war:  TheCaseforthePersistenceofLymeDiseaseAfterAntibioticTherapy  The truth is that over 50% of the IDSA’s guidelines are based on “expert opinion” rather than “evidence-based medicine” as their publication suggests. A further 31% of the IDSA guidelines are based on observational studies. Only a meagre 29% of the IDSA Guidelines fit into “evidence-based medicine”.(22,23,24,25,27) Importantly, the IDSA’s own research supports these very findings.(22

Please understand for those of you just tuning in – THIS IS A WAR of epic proportions.

The reason we find ourselves here even 40 years after Lyme was “officially” discovered is due to money, power, and collusion at the highest level of government.  The government holds the patents on Borrelia burgdorferi (Bb), Lyme testing, the Lyme vaccine, and has been controlling the narrative for decades, even taking specific bands out of Lyme testing that show infection due to their patent on the Lyme vaccine.  

https://www.google.com/patents/US8680236 Gov. patent on OspA (outer surface protein) of Borrelia Burgdorferi (Bb).

https://www.google.com/patents/US6087097  Gov. patent on Lyme test based on OspA (outer surface protein) which causes the same disease it was meant to prevent which is the real reason it was yanked from the market.

https://www.google.com/patents/US4721617 Gov. patent on Lyme Vaccine

https://crymedisease.wordpress.com/2016/02/28/the-conspirators-they-own-the-patents-and-changed-the-testing/  A lengthy expose on all shenanigans for the stout of heart.

Please, don’t allow yourself to be fooled.  The powers that be have been controlling research and the narrative on Tick borne illness from the start.  Nothing about this is new. It’s as old as the hills.  In fact, one researcher has filed an anti-trust law-suit due to government suppression of a more accurate and cheaper Lyme test:  https://madisonarealymesupportgroup.com/2017/09/25/speaking-of-fake-science-fifty-seven-million-anti-trust-lawsuit-against-cdc-lyme-tests/

This same researcher and others have also complained of how the CDC is controlling the research being done:  https://madisonarealymesupportgroup.com/2017/01/13/lyme-science-owned-by-good-ol-boys/.  This article explains how they do it on a practical level: https://madisonarealymesupportgroup.com/2017/01/02/fake-science/

So while I’m extremely happy for these news stories, this abusive treatment of Lyme/MSIDS patients and the doctors who dare to treat them has been going on since it was formally given a name in the 80’s.