Archive for the ‘Psychological Aspects’ Category

Why Lyme Disease Is Causing a Mental Health Crisis

https://globallymealliance.org/lyme-disease-causing-mental-health-crisis-heres/?

By Kerry Heckman

Note: This post discusses self-harm and suicide. If you feel suicidal or a danger to yourself or others, PLEASE call the National Suicide Prevention Lifeline: 1-800-273 TALK (8255),or text “HOME” to 741741 to reach the Crisis Text Line. You can also call 911, or go to your nearest hospital emergency room. YOU ARE NOT IN THIS FIGHT ALONE.

May is Lyme Disease Awareness Month and Mental Health Awareness month. These matters are inextricably linked because there is now a mental health crisis among those with tick-borne diseases. As Dr. Robert C. Bransfield writes,

“Lyme and other tick-borne diseases contributes to causing a significant number of previously unexplained suicides and is associated with immune-mediated and metabolic changes resulting in psychiatric and other symptoms.”[i]

If you’ve been in this circle for even a short while, you most likely have heard about a fellow Lyme warrior who died by suicide. You may have even known the person or have once called them your friend. Sadly, it happens far too often.

Statistically, those with any chronic illness are more likely to die by their own hand than those the general population, but for those with Lyme and other tick-borne diseases the risk is even greater. The reason for this is complex, but here are three  important factors to consider:

1. Living with Lyme disease is hard.

The fatigue, the aching joints and muscles, the headaches, the brain fog and other symptoms of Lyme disease are constant and debilitating. Moreover, most Lyme patients have insomnia and rarely get a break from the barrage of symptoms. This means the patient also has to cope with a great deal of uncertainty (anxiety) over his or her health— a very heavy burden.

2. Lyme disease treatment is notoriously challenging for a variety of reasons, all of which it helps the Lyme patient to be aware of.

First, because Lyme and other tick-borne diseases are not accepted by the mainstream medical community, the psychiatric ramifications of such illnesses generally go unconsidered by most doctors. Second, because treatment is often long term, painful, and the patient may get worse before he or she getsbetter. Third, Lyme disease treatment is expensive and rarely covered by health insurance, even though patients are often unable to work while undergoing the process.

3. Lyme disease bacteria can infect the brain.

Neurological Lyme disease affects thinking and behavior. Thoughts can become distorted and hopeless and often rise to traumatic levels. It’s said that “depression lies,” because people’s nervous systems send them messages that they are worthless or a burden to others in their life. Lyme disease lies, too, since it fosters depression and its woes.

What’s important to remember is that you are not alone in this fight. There are millions of people living with Lyme and also people in remission who stay connected to the Lyme community in the hope of helping others.

Naturally, as a therapist, I encourage everyone with Lyme disease to consider therapy. Ideally, you should make sureyour therapist understands chronic illnesses and medical trauma. However, simply having an empathetic ear to listen to your story can be  transformative. Often our friends and family don’t understand how difficult it is to live with this disease, so a therapist can be a necessary support in this fight.

But what if regular therapy isn’t enough. What if you are in crisis right now and need help?

How To Tell if You Are in a Mental Health Crisis:

1. Self-harming behaviors.

Self-harming behaviors have many manifestations. They may look like self-injury, such as cutting or burning or they may manifest as the patient purposely not taking important medis, or taking too much of something that can be harmful.

2. Suicidal thoughts.

Thoughts about suicide are a sign of something very serious taking place and require immediate attention. Take note if your thoughts are increasing in frequency and intensity—If the trend is on the rise this can determine the level of intervention you  need. Feelings of suicide should never be ignored.

3. Suicidal plans or behaviors.

Having a plan to complete suicide or engaging in behaviors, such as saying goodbye to loved ones or giving away possessions is a medical EMERGENCY. Call 911 or go straight to your nearest emergency room and tell them what is happening.

4. Your intuition.

Do you feel like you need immediate mental health care? Therapists, outpatient, and inpatient programs are all more accessible than ever before. With tele-health becoming more popular, you may even be able to see a psychiatrist or therapist through a secure video chat platform.

What To Do in a Mental Health Crisis?

1. Call 911 or go directly to the nearest emergency room.

People who survived suicide attempts report that the time between considering suicide and making an attempt is only about an hour. That’s a very small window. Seek help at once.

Many of us who have Lyme also have negative perceptions of emergency rooms, but during a mental health crisis the focus is not on treating the Lyme disease. Doctors need to observe you and assess your suicidality. Most importantly is that you are in safe and contained place where you can get help.

2. Call or text a suicide hotline.

Suicide hotlines, such as the National Suicide Prevention Lifeline are free, anonymous, and available 24/7. These hotlines can also help you find information about local suicide crisis resources, such as voluntary inpatient and outpatient programs.

National Suicide Prevention Lifeline: 1-800-273-TALK(8255)

Crisis Text Line: Text HOMEto 741741

3. Reach out to a trusted loved one.

Opening up about mental health can make one feel ill at ease and vulnerable, but talking to such a loved one can help you immediately. Ask this this person to help you get the care you need.

How To  Prepare Yourself for a Mental Health Emergency

  1. Remove firearms from your home and lock up lethal medications
  2. Make a contact list of crisis phone numbers, local resources, and trusted friends or family members. It’s a good idea to let these people know in advance that they are on this list, so they can be prepared to rise to the occasion if necessary.
  3. Print this article out, fold it up and keep it with you always. You never know when you may need to consult it.

Always keep in mind, you don’t have to go through Lyme disease all alone. If no one sympathetic is near, search the internet in your area for Lyme or chronic illness support groups. If you can’t find such a community where you live, please dig deeper. There are thousands of people creating safe spaces and raising Lyme-suicide awareness online.

You deserve to heal. You deserve a life free of Lyme and its many debilitating symptoms. You deserve to be seen and heard. You deserve to be treated with dignity and respect in your illness. The world needs you and you need the world.


[i]Bransfield RC. Suicide and Lyme and associated diseases.Neuropsychiatric Disease and Treatment,2017; 13:1575-1587.


kerry heckmanOpinions expressed by contributors are their own.

Kerry J. Heckman is a licensed therapist and author of the healing and wellness blog Words Heal. She was diagnosed with chronic Lyme disease in 2016

For a great article for on-line therapy:

 

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For more:  https://madisonarealymesupportgroup.com/2019/05/27/have-you-been-told-its-all-in-your-head-the-new-biology-of-mental-illness/

https://madisonarealymesupportgroup.com/2019/05/27/uk-woman-isolated-pumped-full-of-anti-psychotics-told-its-all-in-her-head-until-finally-diagnosed-with-lyme/

https://madisonarealymesupportgroup.com/2018/07/05/suicide-poses-a-complicated-risk-in-those-with-infectious-diseases/

https://madisonarealymesupportgroup.com/2018/06/14/depression-the-radical-theory-linking-it-to-inflammation/  Accepting that some cases of depression result from infections and other inflammation-causing disorders of the body could lead to much-needed new treatments, he argues.

https://madisonarealymesupportgroup.com/2018/01/18/depression-not-caused-by-chemical-imbalance/

https://madisonarealymesupportgroup.com/2018/03/09/aggressiveness-violence-homicidality-homicide-lyme-disease/

https://madisonarealymesupportgroup.com/2018/04/12/psychiatric-drugs-create-violence-suicide-school-shootings-other-acts-of-senseless-violence/

https://madisonarealymesupportgroup.com/2019/02/16/lyme-is-all-in-your-head-a-wake-up-call-to-mental-health-professionals/

https://madisonarealymesupportgroup.com/2017/08/07/understanding-and-treating-depersonalization-and-derealization/

For a great article for on-line therapy:  https://www.ruschellekhanna.com/onlinetherapy

https://madisonarealymesupportgroup.com/2015/10/18/psychiatric-lymemsids/

https://madisonarealymesupportgroup.com/2017/01/17/lymemsids-and-psychiatric-illness/

https://madisonarealymesupportgroup.com/2017/07/26/can-lyme-steal-your-mind/

https://madisonarealymesupportgroup.com/2015/09/16/bizarre-symptoms-msids/

https://madisonarealymesupportgroup.com/2017/01/11/sick-shaming-of-lymemsids-patients/

https://madisonarealymesupportgroup.com/2017/01/11/bug-that-hijacked-my-mind-part-1/

 

 

 

UK Woman Isolated, Pumped Full of Anti-psychotics, & Told It’s ‘All in Her Head’ Until Finally Diagnosed With Lyme

https://inews.co.uk/news/real-life/woman-eventually-diagnosed-with-lyme-disease-was-sectioned-for-months-and-told-her-symptoms-were-all-in-her-head/

Woman eventually diagnosed with Lyme disease was sectioned for months and told her symptoms were ‘all in her head’

Angela Bean, 53, said she was ‘pumped with anti-psychotics’, kept in a room on her own and had her hands held down while she was force-fed

Angela Bean, pictured with her husband Nigel, says doctors wouldn’t believe she was not mentally ill (Photo: Angela Bean)

In brief

  • At her worst, Angela’s weight plummeted to five-and-a-half stone
  • She attempted suicide in hospital because she was so sick of being ill
  • Doctors said her reactions to the pain was a mental illness

A woman says she was detained under the Mental Health Act for months after the NHS failed to spot she has Lyme disease.

Angela Bean says she’s spent 20 years of her life suffering so severely with the tick-borne illness it forced her to lose her home, husband and job.

The 53-year-old says NHS doctors told her her symptoms were imagined. She says feeling so ill and not being believed for so long caused her to attempt suicide while in hospital.

She was then sectioned and diagnosed with somatic symptom disorder (SSD), a mental illness when people show excessive distress about their health.

Angela’s weight had plummeted to five-and-a-half stone – and hospital staff held her hands down and force-fed her milk, which she’s allergic too, she claims.

It took decades before Angela – who has spent £200,000 seeking answers – tested positive for Lyme through a clinic abroad.

Campaigners say that many times the bacterial infection – which can mimic many illnesses – isn’t diagnosed until it is in its late stages. At this point, left untreated it can spread and lead to inflammatory arthritis, meningitis and even heart failure.

“I was told from the beginning that my symptoms were all in my head,” she told i. “I feel like there’s just no understanding about Lyme in the UK and I was just left to die.”

 

The 53-year-old has suffered for two decades with mysterious, debilitating symptoms (Photo: Angela Bean)

The 53-year-old has suffered for two decades with mysterious, debilitating symptoms (Photo: Angela Bean)

In agony and bed-bound

Symptoms of Lyme can take weeks, months or even years to develop. Angela, who lives in Lutterworth in Leicestershire, doesn’t recall ever being bitten by a tick, neither did she develop a circular red skin rash, which is a hallmark of the disease but not always present.

She first became ill in her early twenties when she began experiencing extreme bone pain in her jaw and in her back from what she presumed was an injury from exercising. She went on to get intense headaches, joint and nerve pain all over, numbness in her limbs, exhaustion and “violent” muscle twitches.

“The pain was so horrific I couldn’t walk,” she said. “I had no energy at all and my body shakes violently for hours.

“I get a burning tingling sensation like I’m severely sun-burnt all over.”

A decade after her symptoms began, at aged 33 she was forced to give up work as a human resources manager. “I tried to go back part-time but eventually all my symptoms became unbearable and I became bed-bound.”

Doctors initially suspected she had multiple sclerosis but ruled that out, leaving her with no answers.

Climate change and increased risk of Lyme in the UK

Officials say Lyme disease is not common in the UK, with an estimated 2,000 to 3,000 new cases each year in England and Wales, according to Public Health England.

But the charity Caudwell Lyme say the figure is drastically higher, and there are as many as 45,000 diagnosed cases.

The National Institute for Health and Care Excellence (Nice) has admitted that prevalence data is incomplete and has called for a large study to understand how widespread the disease is.

Experts warn that global warning brings the threat of an increasing number of ticks carrying Lyme disease coming to the UK.

Caudwell Lyme say lives are being put at risk because the majority of GPs have not completed any recent training on the potentially deadly disease.

In February this year, Nice issued guidelines to tell doctors they should diagnose and treat for Lyme without waiting for blood test results if patients have the characteristic “bull’s eye” rash.

This could improve the chances of a full recovery, the NHS treatment watchdog said.

In her forties, she began suffering digestion problems, including bowel impactions. She was diagnosed with gastroparesis, sometimes called stomach paralysis.

When her weight dropped dangerously low in 2007, Angela then aged 42 and living in Rugby at the time, was admitted to University Hospital Coventry & Warwickshire.

Doctors said she had neutropenia, a condition associated with low white blood cells, a recognised complication of Lyme. It can cause abdominal pains, diarrhoea and vomiting, as well as changes in mental state.

Read more:

A mother left bedridden by Lyme disease, missed by the NHS, was denied benefits for seven months

“My weight dropped to five-and-a-half stone because I couldn’t eat as it was too painful on my stomach,” she said. “My bowels stopped working and I hadn’t been to the toilet in nine weeks. I was in agony and wasting away.

“Yet the doctors weren’t investigating the cause of my low white blood cells and stomach problems.

“I had a breakdown. I told my husband to leave me because I wanted to set him free, and we remained friends.”

Angela attempted to hang herself in the shower, and told a nurse about it the next day.

“I didn’t want to die. I’d suffered for over a decade by then. I had no hope and I’d given up.”

Angela, who told her first husband to leave her, has since remarried (Photo: Angela Bean)

Angela, who told her first husband to leave her, has since remarried (Photo: Angela Bean)

‘They force-fed me’

I had all my possessions taken away from me and was kept in a room on my own for five months. It was like being in a prison

Angela Bean

Angela explained that at the start of her hospital stay, she was assessed as being of sane mind, but staff kept sending psychiatrists to her.

“They had a u-turn and told me there was no medical cause for my symptoms,” she said. “I wasn’t mentally ill, I was depressed because my physical illness wasn’t being investigated and there was no end in sight of my suffering.”

Doctors called Angela’s parents to say she had two days to live, who then paid thousands to solicitors to try to work with the hospital to get her better help.

“But all they told my parents they would section me and feed me, and they wouldn’t run any other tests.”

Angela was then transferred to mental health unit the Linden Unit in Rugby, which later closed. She says she was held here against her will for five months.

It was here she was diagnosed with somatisation disorder, or SSD. This causes one or more bodily symptoms, including pain, which may or may not be traceable to a physical cause. But regardless, the person’s abnormal response causes excessive and disproportionate levels of distress.

“I was pumped with anti-psychotics,” she said. “They held my wrists and force-fed me milk, even though I told them I was allergic to casein. My skin peeled all over as a result which they said was malnutrition.

“I had all my possessions taken away from me and was kept in a room on my own for five months. It was like being in a prison.”

She was allowed to go home when her weight improved, but she said the NHS continued to fail to investigate the underlying physical cause of her symptoms.

“I moved back in with my parents,” she said. “I’d had a beautiful farmhouse, that was mortgage-free, and a lovely life with my husband and a job but I lost it all.

“I spent all my share of the house equity on trying to find answers privately.”

Detained again

Two years later, Angela’s weight dropped and she was hospitalised. She was detained for another five months at a mental health facility, the Caludon Centre in Coventry.

“Again, the mental health team where there telling me I was overreacting and it was a mental issue.

“They said they didn’t want to section me but wanted me to take anti-psychotics. I agreed to avoid being sectioned. But the medication made my legs balloon up.

“I told a nurse and she told me I could stop taking them and when someone else came back on duty they’d look into alternatives.

“But then I was told I’d refused my medication and I was getting sectioned. I was bawling my eyes out. No-one believed I was really ill.”

‘I’m scared they’ll section me again’

A few years ago, Angela’s mother was diagnosed with Lyme, and because they shared similar symptoms, it prompted her to research it.

If I’d been treated for Lyme sooner, I may not be in this state

Angela Bean

Angela tested for Lyme on the NHS but it was inconclusive, and she received a positive result from a German lab in 2016.

“I felt relieved that finally I had answers. But I showed the result to my GP and she said ‘you can put that away, I didn’t do the test so I don’t recognise that.’”

Campaigners claim that the condition can go undiagnosed by NHS tests. Some private laboratories in Europe and the US argue their testing is superior, but authorities here say they haven’t been independently validated so they cannot be accepted.

A private doctor has since confirmed the diagnosis and given her treatment. But she says she is still suffering and has days where she’s bedridden and in pain, and she now has flashing lights and pain in her eyes.

“If I’d been treated for Lyme sooner, I may not be in this state. Now I am terrified of going into an NHS hospital in case they section me again.”

University Hospitals Coventry and Warwickshire and Coventry and Warwickshire Partnership NHS Trust, which runs the Caludon Centre, have been approached for comment.

What Role Do Co-infections Play in Lyme Disease Diagnosis?

https://www.bca-clinic.de/en/what-role-do-co-infections-play-in-lyme-disease-diagnosis/

What Role Do Co-infections Play In Lyme Disease Diagnosis?

Chronic Lyme disease is an intimidating enough prospect by itself. Unfortunately, a large number of cases are compounded by Lyme co-infections – additional diseases that are transferred simultaneously with the Lyme-causative Borrelia burgdorferi bacteria. Ticks are responsible for all these transmitted infections; they carry the strains that are passed on to their human hosts. Unfortunately, many patients don’t realise that co-infections even exist, and more crucially, many doctors don’t either. It’s extremely important to test for co-infections at the same time as Lyme disease diagnosis, as they can compound or revitalise the primary debilitating symptoms of the umbrella infection. This makes simultaneous diagnosis an important area of study for Lyme-literate doctors.

The majority of co-infections will exacerbate the symptoms of chronic Lyme itself. They modulate and stymy the immune system, as well as providing resistance to therapy. Chronic Lyme disease diagnosis in itself is a controversial topic, whose waters do not need muddying further. Acute Lyme is relatively straightforward to diagnose, if the distinctive bullseye rash is present. This rash – a red circle surrounded by a larger red circle, forming the shape of a bullseye – will be noticeable in the majority of cases, although it can be easily missed. Once the infection develops to chronic Lyme, however, the process of diagnosis becomes much more difficult, as Lyme is not usually considered among potential diseases.

Lyme is sometimes nicknamed ‘the Great Imitator’, due to its symptoms mimicking the symptoms of other significant diseases. The symptoms themselves bear very little resemblance to the initial ones presented by acute Lyme, instead differing in severity from patient to patient. Broadly, they encompass everything from fatigue, joint pain and muscle pain to depression, neurological issues, headaches and sleep disturbances. These symptoms are so broad that it’s easy to see why under-educated doctors will often reach for something more common, like multiple sclerosis or fibromyalgia. When it comes to Lyme, misdiagnosis rates are estimated to be extremely high, with the full extent unknown. Co-infections can cloud diagnosis by adding more symptoms, presenting new ones, or making others more pronounced. To fully benefit Lyme disease treatment, the full spectrum of issues must be investigated and laid out before the process begins.

The full range of symptoms must be examined during Lyme disease diagnosis.

BCA-lab, who are Lyme specialists based in Augsburg, Germany, understand co-infections very well. They will run a full gamut of tests early on in the treatment process in an effort to understand exactly what the patient is suffering from, and how precisely they’re suffering from it. Some of the main diseases they test for can severely change the way Lyme develops within the body, and how it should be treated. Some co-infections can even revitalise the Lyme disease symptoms after the primary Borrelia infection has been dealt with, leading patients to believe that either they are not fully cured, or that they were never suffering from Lyme in the first place.

One of the most common Lyme co-infections is Bartonellosis. If this co-infection is present in the initial tick bite, and is allowed to run amok within the system, it can be expected to have substantial significance to the overarching Lyme infection. The clinical manifestations of both diseases contain numerous overlaps, and the symptoms presented by both are undeniably broad. Bartonellosis is still not well understood by the medical community at large; it was initially thought to be relatively benign. However, the long-term effects and symptoms of the disease are intimidating, especially if paired with Lyme. They include fever, fatigue, joint pain, muscle ache and brain fog. More alarmingly, the disease can have a range of neurological effects, resulting in symptoms such as panic attacks, seizures, depression, epilepsy and psychosis. Many of these symptoms are extremely similar to the ones presented by chronic Lyme, which makes differentiating them at the diagnostic stage a critical first step.

Another common co-infection is Chlamydophila pneumoniae, the primary manifestation of which is the well-known and well-understood pneumoniae. However, left over a long period of time, Chlamydophila pneumonia can severely compromise the body’s immune system by placing it under extreme stress. Upper respiratory infections can be a huge drain on the immune response, especially if they are recurring. Given the fact that chronic Lyme already sends the immune system haywire, Chlamydophila pneumoniae is a very dangerous co-infection, if left to its own devices. To compound this, the infection is quite hard to both detect and treat, as chlamydia are much smaller than other pathogens. Mixed in with Lyme disease and possible other co-infections, it can often go undetected.

Chlamydophila pneumoniae can be one of the more dangerous Lyme co-infections.

 

Bartonellosis and Chlamydophila pneumoniae are just two examples of co-infections that can cause severe problems for Lyme patients if they are not dealt with adequately. Currently, the answer to the question posed by this article, ‘what role do co-infections play in Lyme disease diagnosis’, is simply ‘not enough’. There needs to be a combined and concerted effort on the part of medical health professionals everywhere to engage with co-infections and recognise the danger they pose to Lyme patients. Diagnosis is often the hardest part of the Lyme battle; it’s the stage where we should strive to get everything right the first time. Correct diagnosis across the Lyme disease spectrum lays a strong foundation for successful patient treatment and subsequent recovery.

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**Comment**

Great article overall, just remember this is written by a lab that does testing for profit, so their first priority is selling tests.

Testing throughout the history of Lyme/MSIDS has been extremely poor.  Most testing is serological testing – utilizing blood, where frankly these pathogens do not hang out.  They are stealth pathogens and burrow deep within the body to avoid the immune system, treatment, AND testing.

LLMD’S (Lyme literate doctors) are educated in the symptomology of these diseases and can diagnose you clinically.  Treatment is often a bit of “Let’s try this and see,” approach as everyone is so different with numerous variables.  This is why mainstream medicine is woefully unprepared and uneducated for all of this.  They simply are ignorant.

To date, nobody has a true bead on what the implications of multiple pathogens fighting synergistically to the body are, but this work is screaming to be done as recent research has borne polymicrobialism out to be true:  https://madisonarealymesupportgroup.com/2018/10/30/study-shows-lyme-msids-patients-infected-with-many-pathogens-and-explains-why-we-are-so-sick/

Mainstream medicine STILL hasn’t acknowledged or dealt with this FACT.

It makes the CDC/IDSA mono-therapy of doxycycline a true joke. As well as their FDA-approved 2-tiered testing which misses half of all cases.

Bartonella, as mentioned in this article, is a HUGE player that up until recently has been considered a benign disease with required of cat exposure, yet any Lyme literate doctor OR patient will tell you Bart is far from benign, and a plethora of case studies have proven you don’t have to be around cats to contract it.  In fact, personally, it is my Achilles heel.  It’s what I deal with – perhaps forever.

Great read on the types of chlamydia:  https://articles.mercola.com/chlamydia/types.aspx The first two are mentioned in the abstract:

  • Chlamydia trachomatis can be passed from one person to another via unprotected sexual intercourse. Pain English: this is a STD.
  • Chlamydia pneumoniae (C. pneumoniae), a nonsexually transmitted disease that infects the lungs and causes bacterial pneumonia.
  • Chlamydia psittaci is another chlamydia strain that can lead to a rare condition called psittacosis, aka “parrot fever.”

https://madisonarealymesupportgroup.com/2016/10/07/chlamydia-like-organisms-found-in-ticks/

https://madisonarealymesupportgroup.com/2019/04/19/first-study-showing-borrelia-chlamydia-mixed-biofilms-in-infected-human-skin-tissues/  Excerpt:  

IN SUMMARY, OUR STUDY IS THE FIRST TO SHOW BORRELIACHLAMYDIA MIXED BIOFILMS IN INFECTED HUMAN SKIN TISSUES, WHICH RAISES THE QUESTIONS OF WHETHER THESE HUMAN PATHOGENS HAVE DEVELOPED A SYMBIOTIC RELATIONSHIP FOR THEIR MUTUAL SURVIVAL.

https://madisonarealymesupportgroup.com/2019/03/09/researchers-identify-herpes-1-chlamydia-pneumoniae-several-types-of-spirochaete-as-major-causes-of-alzheimers/

https://madisonarealymesupportgroup.com/2018/04/04/correlation-of-natural-autoantibodies-heart-disease-related-antibacterial-antibodies-in-pericardial-fluid-mycoplasma-bb-chlamydia/  Excerpt:

Mycoplasma pneumoniae antibody positive patients had significantly higher anti-CS IgM levels. In CABG patients we found a correlation between anti-CS IgG levels and Mycoplasma pneumoniae, Chlamydia pneumoniae and Borrelia burgdorferi antibody titers. Our results provide the first evidence that natural autoantibodies are present in the PF and they show significant correlation with certain antibacterial antibody titers in a disease specific manner.

 

 

 

 

 

 

How My Daughters Taught Me To Open Up About My Mental Health

https://folks.pillpack.com/how-my-daughters-taught-me-to-open-up-about-my-mental-health/

How My Daughters Taught Me To Open Up About My Mental Health

It took my daughter’s own battle with depression to recognize that for years, I’d been ashamed of my own mental health.

This post is part of a collaboration with Inspire, a healthcare social network with more than one million patients and caregivers.


While walking out from a recent screening of a documentary about teenagers living with anxiety, I realized something.

I turned to my youngest daughter.

“I have lived with anxiety as long as I can remember,” I told her.

“I know,” she replied, and smiled kindly at me.

I never told anyone before about the paralyzing anxiety I experienced starting in 7th grade. I would blush till I felt my head would explode my pulse would pump in my throat like a hammer. I feared to be called on. One bully would taunt me, “Why does this happen to you?” My only exit then was going to the bathroom and hide.

“I have lived with anxiety as long as I can remember,” I told her.

Despite my intermittent anxiety, though, I built a great life. I married an amazing man, and together, we had two of the most caring, wonderful girls I’ve ever known.

But then seven years ago, when she was nine, my oldest was admitted to an inpatient psychiatric hospital and diagnosed with severe depression. My world stopped. Standing in an elevator with other parents leaving that hospital unit, I realized I was just inducted into the club of parents with children who live with a mental illness.

Yet even as we helped our oldest through her own treatment journey, it wasn’t until I had that post-movie exchange about anxiety that I realized that my daughter’s mental health issues were closely linked to my own.

I realized then that the stigma I felt about my own anxiety issues had prevented me from talking to my own children about them. I was a nurse, a mother, and a person living with anxiety, but I had never told them that mental health issues were was normal to struggle with. In fact, my husband and I both come from families with long lineages of mental illness, but it was never discussed… and so, in turn, we had not talked about it with our daughters.

I was a nurse, a mother, and a person living with anxiety, but I had never told them that mental health issues were was normal to struggle with.

When my daughter was diagnosed with depression seven years ago, my instinct when family members had told me to hide the truth was to fight as a family in the open. I wasn’t going to make my daughter think I was ashamed of her.

But now, as I considered the rhetorical mirror my youngest daughter had had held up to me, I realized I needed to do more than just advocate for their mental health. I needed to live openly with my own anxiety issues as well. We pass so many things on in our genes to our children. I did not want to pass shame on to them by example.

So now, I’m trying to live life the way I want my daughters to live it: by accepting my own mental health challenges, and listening to them when they arise. So I try to sleep more, eat healthier, and unplug when I feel overwhelmed. And when I feel the old me, the anxious me, rising up? I take her to the yoga room at my gym, and give her a hug. Because she is me, and I need to accept and love myself if my daughters are going to do so as well.

We pass so many things on in our genes to our children. I did not want to pass shame on to them by example.

Anxiety is part of who I am: not knowing and not understanding what was happening to me was like walking with a small rock in my shoe and not able to take it out .Its extremely uncomfortable but you keep walking.

My daughters are now thriving teenagers. Both have mental health issues, but they are under control, because we helped them find the right tools early on. If only I had done the same for myself, but it’s never too late to stop ignoring your issues and practice some self-compassion.

It’s easy to say, “Remember to do some self-care.” It’s harder to implement. The notion to always care for your children before yourself is something that I have always done. It’s hard to reprioritize, but by relearning to care for my own mental health, I now think I’m in a better place to be the mother my two strong, brave daughters truly deserve. A mother who embraces not just their mental health, but her own.

_____________________

**Comment**

Lyme/MSIDS can cause all manner of mental issues.  Please share this information with others because you can feel so completely isolated.  There were many, many days throughout treatment where I seriously wondered if I was losing my mind.  Normal.  Very normal when treating this beast.  Forgive yourself and treat the sickie kindly.

I highly recommend becoming a part of a support group so you can quickly learn you aren’t alone.  There are many out here in Lyme-land who also feel isolated and question their sanity.  When you have doctor after doctor telling you that “it’s all in your head,” you begin to believe them.  They are, after all, “experts,” right?

Wrong.
They are human beings afraid of losing their livelihoods, who are often uneducated about this beast.

At this point, my best advice is skip mainstream medicine.  It WILL NOT help you.  It will only take your money, abuse you, and cause you infinite grief.

Get to a trained ILADS doctor.  If you don’t know where to find these folks, contact your local Lyme support group.  They are boots on the ground folks who are up on this information.

For more:  https://madisonarealymesupportgroup.com/2015/10/18/psychiatric-lymemsids/

https://madisonarealymesupportgroup.com/2019/03/24/cat-scratch-disease-caused-teens-schizophrenia-like-symptoms-report-says/

https://madisonarealymesupportgroup.com/2019/04/07/missing-links-connect-the-dots-between-lyme-mental-health/

https://madisonarealymesupportgroup.com/2019/04/11/lyme-disease-neurological-changes-in-children/

https://madisonarealymesupportgroup.com/2019/03/26/lyme-its-known-involvement-in-mental-health/

https://madisonarealymesupportgroup.com/2019/02/16/lyme-is-all-in-your-head-a-wake-up-call-to-mental-health-professionals/

https://madisonarealymesupportgroup.com/2017/06/20/suicide-lyme-and-associated-diseases/

 

 

 

One Family’s Story of Strep, Lyme Disease, and PANS/PANDAS

One family’s story of strep, Lyme disease, and PANS/PANDAS