Archive for the ‘Psychological Aspects’ Category

LymeMIND Replay

https://www.lymedisease.org/lymemind-fb-replay/  See video here

Watch Facebook replay of Oct. 10 LymeMIND conference

Could Lyme Disease in Children Lead to Parental Flooding?

https://danielcameronmd.com/lyme-disease-in-children/

COULD LYME DISEASE IN CHILDREN LEAD TO PARENTAL FLOODING?

lyme disease in children

I have found that in my practice, Lyme disease in children can cause emotional, educational, and social issues, oftentimes with debilitating consequences. Some of the parents have felt overwhelmed by their child’s illness. Could there be parental flooding during conflicts with a child who has Lyme disease?

Parents experiencing flooding “are overwhelmed by the intensity and aversive nature of child negative affect,” writes Del Vecchio and colleagues in the Journal of Abnormal Child Psychology.1

When this occurs, parents “may be less likely to react effectively and instead may focus on escaping the aversive situation, disciplining either overly permissively or punitively to escape quickly from child negative affect.”

Lyme disease in children can trigger behavioral changes, including extreme mood swings, explosive anger, and aggressiveness.2 Managing these symptoms can be exhausting for parents and overwhelming. In such cases, parental flooding may likely occur.

The authors created the Parent Flooding Scale (PFS) to assess “the extent to which parents believe their children’s negative affect during parent-child conflicts is unexpected, overwhelming, and distressing.” Such a scale may be helpful to therapists working with parents and children who have Lyme disease.

READ MORE: When Lyme disease in children causes oppositional behavior

Flooding does not refer to a particular emotional experience (i.e., sadness or anger), but rather the degree to which another person’s emotion is experienced as overpowering and interfering, explains Del Vecchio.

When flooded, the sympathetic nervous system is heightened and the parental reaction is “thought to overwhelm rational deliberation, making it difficult to attend to the situation and engage in calm, organized behaviors.

Parents may employ an “escape-conditioning model,” the authors explain. “To the extent that some parents are overwhelmed by the intensity and aversive nature of these emotional experiences, they may consequently employ a discipline response, often either overly permissive or punitive, that offers the quickest escape from child negative affect.”

Editor’s note:

For the purposes of transparency, I am not a trained psychiatrist or psychologist. I am using this paper on flooding to better understand my patients. I would find research in this area helpful.

References:
  1. Del Vecchio T, Lorber MF, Slep AM, Malik J, Heyman RE, Foran HM. Parental Flooding During Conflict: A Psychometric Evaluation of a New Scale. J Abnorm Child Psychol. 2016;44(8):1587-1597.
  2. Bransfield RC. Aggressiveness, violence, homicidality, homicide, and Lyme disease. Neuropsychiatr Dis Treat. 2018;14:693-713.
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**Comment**
We definitely struggled with this and our kids weren’t even infected, but we sure were.  We seemed much less capable of remaining calm and logical in stressful situations – particularly with children who were just acting like children.  It didn’t help to be our sickest when they were all in puberty!
It was better when one of us was “with it,” but absolutely horrible when we were both affected.  The worse we felt, the worse we acted.
I agree with Dr. Cameron – we need more information on these important topics.
Lyme is over 40 years old and we have so little to show for it. Doctors are still uneducated and patients are still commonly being misdiagnosed. Patients are still misunderstood and being told, “It’s all in your head.”

Mental Health Resources

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For more:  https://madisonarealymesupportgroup.com/2020/08/03/cdc-director-threat-of-suicide-drugs-flu-to-youth-far-greater-than-covid/

https://madisonarealymesupportgroup.com/2020/07/17/lyme-disease-made-man-consider-suicide/

https://madisonarealymesupportgroup.com/2018/07/05/suicide-poses-a-complicated-risk-in-those-with-infectious-diseases/

https://madisonarealymesupportgroup.com/2017/07/12/suicide-and-chronic-lyme-disease/

The Social Consequences of Chronic Pain

https://www.painnewsnetwork.org/stories/2020/9/12/the-social-consequences-of-chronic-pain

The Social Consequences of Chronic Pain

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By Ann Marie Gaudon, PNN Columnist

When someone suffers acute pain from an accident or injury, a positive consequence is that it evokes care and compassion from others. However, when that pain becomes chronic, you don’t often receive flowers, cooked meals and offers of help. Your social connections may suffer, too.

That’s not a small issue for pain patients. A 2008 study found that maintaining social activities are just as important for people in pain as many of the physical and psychological consequences of chronic pain.

Let’s take a look at a short list of five ways that chronic pain challenges the maintenance of social relationships.  (See link for article)

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**Comment**

An unfortunate truth not only experienced by pain patients but any chronically ill person.

For more:  https://madisonarealymesupportgroup.com/2020/06/26/why-social-distancing-should-not-be-the-new-normal/

https://madisonarealymesupportgroup.com/2020/09/02/10-years-of-headaches-vertigo-and-other-pains-dismissed-as-depression/

https://madisonarealymesupportgroup.com/2020/03/12/no-rash-no-fever-so-much-pain-the-case-of-illy-jaffers-painful-year/

https://madisonarealymesupportgroup.com/2020/08/13/ldn-for-pain-autoimmune-disorders-cancer-and-lyme-msids/

https://madisonarealymesupportgroup.com/2020/02/23/testosterone-replacement-in-chronic-pain-patients/

Author Susanna Clarke: “I’d Been Seeing Myself as an Invalid, and They Treated Me Like an Author.”

https://www.smh.com.au/culture/books/a-huge-moment-the-novel-susanna-clarke-thought-would-never-happen-

A huge moment’: the novel Susanna Clarke thought would never happen

By Jane Sullivan

On the face of it, Susanna Clarke’s debut novel was an unlikely hit. More than 1000 pages, a rambling alternative history yarn for adults about rival magicians and fairies, all written in an elegant pastiche of 19th-century prose with copious footnotes. Who would buy that?

More than 4 million readers, it turned out. Bloomsbury released Jonathan Strange and Mr Norrellwith a big publicity fanfare in 2004 and it quickly climbed up the New York Times bestseller list.  (See link for article)

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**Comment**

Key quotes:

We are talking via Zoom, and it’s early morning at Clarke’s home in rural Derbyshire, the best time of day for her. Later on she has to conserve her energy in case she gets exhausted. Lyme disease has left her with chronic fatigue.

But six months after the book was first published, she went to a dinner party and collapsed, and woke up the next morning “feeling weird”.

It was the start of her battle with the illness eventually diagnosed as Lyme disease. For a long time she was bed bound: “I had brain fog, I couldn’t think straight. This disease really does ravage every part of your life.”

She states that what gave her confidence to write again was visiting the set where they were filming her story of Strange and Norrell.  While she saw herself as an invalid, they say her as an author.

How to you see yourself?