Archive for the ‘Lyme’ Category

National Committee Creates New Acronym for Lyme: IACI

Lyme IACI, pronounced “Lyme eye-ACK-ee” is the latest fantasy dreamt up by the National Academies of Sciences, Engineering, and Medicine – the congressionally chartered organization that serves as the ‘collective’ scientific national academy of the U.S., which proudly deploys the climate, health, and equity propaganda pushed by globalists.  The sponsors of the organization are none other than:

AstraZeneca
Burroughs Wellcome Fund
Grantham Foundation
JPB Foundation​
McCall MacBain Foundation
Rockefeller Foundation

Are you getting this yet?

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/

Inquiry to the Deputy Director of the Vector-Borne Diseases Division at the CDC

Carl Tuttle
Hudson, NH, United States
Jul 31, 2024

Notice to everyone who has signed this petition:

The following so-called “National Committee” has been established turning persistent Lyme symptoms into a new acronym: Lyme Infection-Associated Chronic Illness (Lyme IACI)

Medscape

‘Doesn’t Fit Anything I Trained for’: National Committee Examines Treatment for Chronic Illness Following Lyme Disease

https://www.medscape.com/viewarticle/doesnt-fit-anything-i-trained-national-committee-examines-2024a1000dru

So now, Chronic Lyme will be swept under the rug for more decades to come despite the mountain of evidence that we have been dealing with an antibiotic resistant/tolerant superbug!

I don’t think this committee is looking to solve (expose) the chronic Lyme epidemic …. it seems more likely this is an opportunity to exploit the chronically infected with money making pharmaceuticals to treat the symptoms of an antibiotic resistant/tolerant superbug.

“Lyme IACI” conveniently sweeps chronic Lyme under the rug.

Please see the email below addressed to Dr. Ben Beard of the CDC with carbon copy to all members of this committee. I ask that everyone demand a response from Beard. You can copy all email addresses below and send a private email or post a comment to the NASEM Committee’s website: https://www8.nationalacademies.org/pa/feedback.aspx?type=project&key=HMD-HSP-23-07

Inquiry to Ben Beard:

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “cbb0@cdc.gov” <cbb0@cdc.gov>
Cc: “jjohnson@genevausa.org” <jjohnson@genevausa.org>, “theerhisamariee@gmail.com” <theerhisamariee@gmail.com>, “jaucott@jhmi.edu” <jaucott@jhmi.edu>, “cbb0@cdc.gov” <cbb0@cdc.gov>, “jraitt1@stanford.edu” <jraitt1@stanford.edu>, “dclauw@med.umich.edu” <dclauw@med.umich.edu>, “john.leong@tufts.edu” <john.leong@tufts.edu>, “avindra.nath@nih.gov” <avindra.nath@nih.gov>, “charles.chiu@ucsf.edu” <charles.chiu@ucsf.edu>, “elliot.cowan@partnersindiagnostics.com” <elliot.cowan@partnersindiagnostics.com>, “beth.jaworski@nih.hhs.gov” <beth.jaworski@nih.hhs.gov>, “roger@lundquist.org” <roger@lundquist.org>, “rachele.hendricks.sturrup@duke.edu” <rachele.hendricks.sturrup@duke.edu>, “info@lymebiobank.org” <info@lymebiobank.org>, “lorrainejohnson@outlook.com” <lorrainejohnson@outlook.com>, “wendyadams1@gmail.com” <wendyadams1@gmail.com>, “Leith.States@hhs.gov” <Leith.States@hhs.gov>, “tindall.matt@gmail.com” <tindall.matt@gmail.com>, “stacie.hudgens@clinoutsolutions.com” <stacie.hudgens@clinoutsolutions.com>, “raymond_dattwyler@nymc.edu” <raymond_dattwyler@nymc.edu>, “timothy.sellati@globallymealliance.org” <timothy.sellati@globallymealliance.org>, “nklimas@nova.edu” <nklimas@nova.edu>, “kester@genevausa.org” <kester@genevausa.org>, “nicole@nicolemalachowski.com” <nicole@nicolemalachowski.com>, “marcom@genevausa.org” <marcom@genevausa.org>, “stephen.gluckman@pennmedicine.upenn.edu” <stephen.gluckman@pennmedicine.upenn.edu>, “epocratesMedia@athenahealth.com” <epocratesMedia@athenahealth.com>, “epocrates@athenahealth.com” <epocrates@athenahealth.com>
Date: 07/31/2024 7:40 AM EDT
Subject: Inquiry to the Deputy Director of the Vector-Borne Diseases Division at the CDC

Charles B Beard
Deputy Division Director, Division of Vector-Borne Diseases
Centers for Disease Control and Prevention

Dear Dr. Beard,

In 1991 the Lyme disease organism, Borrelia burgdorferi, was grown from the cerebrospinal fluid of patient Vicki Logan at the Centers for Disease Control in Fort Collins, Colorado despite prior treatment with intravenous antibiotics. The patient died when the insurer refused additional IV antibiotics. I have attached a copy of Logan’s positive culture report for your review:

Logan CDC Fort Collins Positive CSF Culture Report (Personal Dropbox storage area)
https://www.dropbox.com/scl/fi/agca4ynn9ok2ykgw6484q/Logan-CDC-Fort-Collins-Positive-CSF-Culture-Report.JPG?rlkey=krhiecm1xdmqs6ubhvjxuzzeo&dl=0

In 1995 the following publication identified treatment-resistant neuroborreliosis:
 
European Neurology 1995
Seronegative Chronic Relapsing Neuroborreliosis
https://www.karger.com/Article/Abstract/117104

In 2018 all patients were culture positive even after multiple years on antibiotics so there was no relief from current antimicrobials. Some of these patients had taken as many as eleven different types of antibiotics. Barbour-Stoener-Kelly (BSK) medium was used and is the same complex medium used in the NIH funded Klempner antibiotic trials.

Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease
https://www.mdpi.com/2227-9032/6/2/33

A recently published autopsy study for a young Lyme patient who committed suicide identifies chronic Lyme disease in the patient’s brain which was responsible for his neurological symptoms.

Concurrent Infection of the Human Brain with Multiple Borrelia Species
Published in MDPI Nov. 29, 2023
https://www.mdpi.com/1422-0067/24/23/16906

Excerpt:

The diverse strategies used by spirochetes to avoid the host immune system and persist in the host include active immune suppression, induction of immune tolerance, phase and antigenic variation, intracellular seclusion, changing of morphological and physiological state in varying environments, formation of biofilms and persistent forms, and, importantly, incursion into immune-privileged sites such as the brain. Invasion of immune-privileged sites allows the spirochetes to not only escape from the host immune system but can also reduce the efficacy of antibiotic therapy. 

In addition, there are 700 peer reviewed publications identifying persistent infection and more evidence of seronegative disease.

Question:

As Deputy Director of the Vector-Borne Diseases Division at the CDC, why has all the evidence indicating Borrelia as an antibiotic resistant/tolerant superbug been ignored for decades?

A response to this inquiry is requested.

Please hit reply all when responding.

Carl Tuttle
Hudson, NH

_______________

**Comment**

When reading the Medscape article, please notice the following:

The committee will not make recommendations on specific approaches to diagnosis and treatment when it issues a report in early 2025 but will instead present “consensus findings” on treatment for chronic illness associated with Lyme disease, including recommendations for advancing treatment.

There have been only a few randomized controlled trials (RCTs) conducted on what the committee is calling Lyme Infection-Associated Chronic Illness (Lyme IACI) for now, and no National Institutes of Health (NIH)-funded RCTs in the past 20 years or so. It’s an area void of the US Food and Drug Administration-approved therapies, void of any consensus on the off-label use of medications, and without any current standard of care or proven mechanisms and pathophysiology, said John Aucott, MD, director of the Johns Hopkins Medicine Lyme Disease Clinical Research Center, Baltimore, one of the invited speakers at a public meeting held by the NASEM in Washington, DC, in July.”

The best way to look at this illness is not from the silos of infectious disease or the silos of rheumatology; you have to look across disciplines,” Aucott, also associate professor of medicine in the Division of Rheumatology, told the committee. “The story doesn’t fit anything I trained for in my infectious disease fellowship. Even today, I’d posit that PTLD is like an island — it’s still not connected to a lot of the mainstream of medicine.”

COVID showed the world the devastating impact of ‘consensus-based medicine,’ which a report has deemed ‘shocking and immortal.’ In this Communist-type paradigm doctors are told by bureaucrats how to treat, what they can use to treat, and what they can’t use to treat.  Anything outside the lines of this monolith simply aren’t allowed.  Doctors who dare to think for themselves are persecuted and ostracized – with the full weight of the government pressing down upon them –  often times losing their medical license.

This is the world Lyme literate doctors (LLMDs) have lived in for forty years.

The article also regurgitates that only 10-20% go on to suffer with persistent symptoms after treatment, when the actual percentages are approximately 60% as many are not diagnosed or treated until much later – often years later.

Lyme/MSIDS will never fit into RCTs because there are too many variables to fit into a nice four-cornered research box.  Many never test positive on the CDC-2-tiered testing, many never get an EM rash, numerous coinfections are involved, not to mention the fact there are multiple strains of borrelia that testing will not pick up, and symptoms are wildly variable.  No two patients look alike.

Category:

Activism, Lyme, research, Testing, Treatment

Dr. Elena Frid: Lyme, MSIDS, PANS, & PANDAS

http://  Approx. 50 Min

Dr. Elena Frid on Lyme/MSIDS/PANS/PANDAS

Ticktective Podcast

May, 2024

Dana Parish – TICKTECTIVE at the Bay Area Lyme Foundation interviews Dr. Elena Frid how Lyme disease, PANS, and PANDAS affect children’s ability to function at school and home. Dr. Frid shares her expertise in treating complex cases involving autoimmune conditions, Lyme disease with co-infections, and PANS/PANDAS, which often lead to neurological issues. In the podcast, she explains how she uses advanced diagnostic tools and her clinical expertise to distinguish between idiopathic and organic causes of various neurological disorders. Tune in to gain valuable insights from Dr. Frid’s experience and learn more about these challenging conditions.

For more:

Category:

Lyme, PANS, Viruses

Mold, Parasites, EMFs, & Cancer

https://www.activistpost.com/2024/06/the-connection-between-toxic-mold-parasites-emfs.html

The Connection Between Toxic Mold, Parasites & EMFs

JUNE 7, 2024

By Rosanne Lindsay, Naturopath

Updated from February 2022

Living in the material world means an attachment to wireless technology. When does an attachment become an addiction?

Can you do without a cellphone? Watching TV? Scrolling social media? How much time in a day does wireless occupy? What do you consider excessive use? Do you experience withdrawal symptoms (moodiness, irritability, depression) by going without? Would you consent to the imposition of technology at the risk of harming your health and potentially all biological life?

Image by <a href="https://pixabay.com/users/mohamed_hassan-5229782/?utm_source=link-attribution&utm_medium=referral&utm_campaign=image&utm_content=3840285">Mohamed Hassan</a> from <a href="https://pixabay.com//?utm_source=link-attribution&utm_medium=referral&utm_campaign=image&utm_content=3840285">Pixabay</a>Unfortunately, the emotional and physical effects of invisible electromagnetic frequencies (EMFs) are not listed on the package. If you have two or more of the following devices; cell phones, computers, GPS, Smart appliances, electric cars, wearables, and Smart™ TVs, or electric cars, then there are symptoms you may never hear about.

The manufacturer does not disclose that EMFs activate the hidden world of yeast, fungus, mold, mycoplasma, Lyme spirochetes, and protozoan parasites to unhealthy levels in the human body.

The consequence of WiFi is a rise in chronic infections that can be misdiagnosed.

The industries responsible for creating this silent connection between EMFs and infection fail to take responsibility. The line between what will protect you, and what will not, has never been less clearly defined.

As 5G towers become compatible with 6G, 7G and beyond, who is responsible for the consequences?

Symptoms from exposure to mold toxins include:

  • Fatigue
  • Weakness
  • Muscle cramps
  • Headache and pain
  • Light sensitivity
  • Sinus problems
  • Abdominal pain
  • Diarrhea
  • Joint pain and stiffness
  • Cognitive issues
  • Mood dysregulation
  • Temperature regulation or dysregulation problems
  • Excessive thirst
  • Increased urination
  • Nervous system issues

(See link for article & videos)

The parasitic origin of cancer is not a new concept.  J. Collins Warren, M.D. wrote about it all the way back in 1891 in the Boston Medical and Surgical Journal.  A bacterial origin has also been considered and at one time cancer was considered infectious.  Per usual, many of these theories are trumped and then forgotten due to powerful lobbyists for Big Pharma.

http://

In Vitro Experiment

Dr. Klinghardt shows that unprotected mold multiplies and releases 600 times more potent biotoxins than mold that is protected from electromagnetic fields (EMF).  Klinghardt postulates that mold, mycotoxin, parasites including worms, and Lyme reacts more defensively when exposed to EMF and that in 2011, the amount of cell phone radiation in a cubic inch of air is several million times higher than it had been a decade before that, and it’s only creased even more now.

Helminths or worms can live in the intestinal tract urinary tract, bladder, or bloodstream and cause a variety of illness from malnutrition to organ failure and flukes (flat, leaf-shaped worms with suckers or hooks) are responsible for a majority of all bladder and liver cancer in endemic regions. 

Go here for a FREE Ebook as well as common signs and symptoms of parasites.

Scientists have known for decades that helminths can turn healthy cells into diseased cells.T

Tumors analyzed for pathology often come back showing worms and parasites.

For more:

Category:

Activism, Cancer, Lyme, Mold, Mycoplasma, Parasites

Chronic Lyme Patient Treated Successfully With Low Dose Flagyl

https://danielcameronmd.com/chronic-lyme-treated-low-dose-flagyl/

CHRONIC LYME PATIENT TREATED SUCCESSFULLY WITH LOW DOSE FLAGYL

chronic-lyme-treatment

In their article “Patient with Chronic Lyme Disease and Recurrent Relapses, Maintained in Complete Remission by Low Doses of Metronidazole,” Lacout and colleagues describe a unique case of a Lyme disease patient, residing in France, whose chronic symptoms and relapses resolved with long-term, low dose Flagyl. [1]

By 

A 55-year-old man developed numbness and burning in his legs, numbness in his hands, tinnitus, extreme weakness, intense pain, cramps at night and at rest, palpitations, paresthesias (pins and needles sensation), headaches, shortness of breath and orthostatic hypotension.

In addition, “Fatigue was intense and incapacitating, accompanied by anxiety, difficulty concentrating, mental fogginess and sleep disturbances,” the authors state.

He reported having been bitten by a tick years earlier but did not recall having a rash.

The man had been prescribed antibiotics for biliary pancreatitis but realized that his Lyme symptoms improved dramatically with the antibiotics.

Various tests including MRI, CT scan, x-rays and blood work were all normal.

A neurologist finally diagnosed the patient with diabetic neuropathy and prescribed analgesics and duloxetine. However, after several months of treatment, the pain intensified. Increased doses of duloxetine did not alleviate his symptoms.

An ENT doctor concluded that there was a link between tinnitus and the neuropathy.

He then developed urinary and erectile dysfunction, for which a urologist concluded that neurological damage was the cause of the symptoms, the authors state.

The man was eventually diagnosed by clinicians in France with polymorphic persistent syndrome after a possible tick bite (SPPT), a condition similar to post-treatment Lyme disease.

He was subsequently treated with multiple medications including: pyrantel, doxycycline, hydroxychloroquine (Plaquenil), ceftriaxone and metronidazole.

“At the end of this treatment, all signs had disappeared except for some residual intermittent leg pain.”

Unfortunately, the patient developed lung cancer and was treated with chemotherapy.

After he completed his cancer treatments, the man’s Lyme-related symptoms re-emerged and he developed relapses every 2 to 3 months.

Each relapse was treated successfully with antibiotics, typically doxycycline or azithromycin, sometimes combined with low doses of hydroxychloroquine.

“In view of these recurrent and seemingly inescapable recurrences, long-term treatment was initiated in the hope of maintaining a prolonged remission with the minimum antibiotic as possible: metronidazole 500 mg once a week,” the authors state.

In the present case, prolonged clinical remission was achieved with very low doses of Flagyl (metronidazole) 500 mg once a week.

For the past year, the patient has been in complete remission with no symptoms.

Authors Highlights:

  • “In our case, long-term, inexpensive treatment with minimal doses of antibiotics (500 mg metronidazole per week) was successfully introduced: the patient has not relapsed since then, leads a normal life and has even returned to work.”
  • “This case perfectly illustrates the existence of a chronic form of Lyme disease, as the patient relapsed numerous times (every two to three months for several years), and always went into remission after reintroducing antibiotics.”
Related Articles:

Autopsy reveals multiple Borrelia species in man with chronic Lyme disease

Dismissing chronic Lyme disease for somatic symptom disorder diagnosis

What is chronic Lyme disease?

References:
  1. Alexis Lacout, Pierre Yves Marcy, Christian Perronne. Patient with Chronic Lyme Disease and Recurrent Relapses, Maintained in Complete Remission by Low Doses of Metronidazole. Archives of Microbiology and Immunology. 8 (2024): 261-264.

_________________

**Comment**

Please note that one of the study authors, Christian Perronne, has been a long-standing advocate for chronic Lyme.  He’s one of the good guys, and it’s not shocking at all that he would be behind using treatment that saves a life rather than toe the party line, be lazy, and tell the patient they are crazy.

I had good results with metronidazole too but my LLMD switched me to tinidazole due to it typically causing less side effects.  It is one of the few antibiotics to address the cystic form of borrelia.  I always felt like a truck ran over me after pulsing it a few times a week throughout treatment (5 years).

Please see Dr. Eva Sapi’s work: https://www.dovepress.com/evaluation-of-in-vitro-antibiotic-susceptibility-of-different-morpholo-peer-reviewed-article-IDR  Metronidazole led to reduction of spirochetal structures by ~90% and round body forms by ~80%. Tigecycline and tinidazole treatment reduced both spirochetal and round body forms by ~80%–90%.

In terms of qualitative effects, only tinidazole reduced viable organisms by ~90%. Following treatment with the other antibiotics, viable organisms were detected in 70%–85% of the biofilm-like colonies.

I must also add that for those with significant neuro issues, antibiotics that cross the blood/brain barrier are imperative.  One that worked for me was minocycline:  https://madisonarealymesupportgroup.com/2017/06/04/minocycline-for-ms-and-much-more/

Go here for more:  https://madisonarealymesupportgroup.com/2016/02/13/lyme-disease-treatment/

Category:

Activism, Lyme, research, Treatment

Guide to Kill & Prevent Yeast

https://www.treatlyme.net/guide/kills-yeast-a-brief-guideKills & Prevents Yeast: A Brief Guide

Updated: 7/15/24

By Dr. Marty Ross

The Problem with Intestinal Yeast and Lyme, Bartonella or Babesia Treatment

Too many yeast in the intestines (yeast overgrowth) is a common problem that occurs in those with chronic Lyme disease, Bartonella, and Babesia. This problem occurs during treatment, or prior to beginning treatment. Prescription antibiotics, and to a much lesser degree herbal antibiotics, lead to intestinal yeast excess. Immune suppression prior to starting antibiotics can also cause yeast overgrowth.

The Problem. Yeast overgrowth can result in an ongoing systemic allergic reaction to the yeast that can suppress the immune system. Yeast overgrowth also leads to inflammatory cytokine excess that causes many of the Lyme, Bartonella, and Babesia symptoms and pain. Food allergies and sensitivities are the result of yeast overgrowth, too. Learn more about cytokines in Control Cytokines: A Guide to Fix Lyme Symptoms & The Immune System.

In this article, I lay out several natural and prescription medicine options to treat yeast and to prevent future problems with yeast overgrowth. These options have three basic steps using a feed, seed and weed approach. For best results take the feed, seed and weed steps simultaneously and throughout treatment.

  • Feed your intestinal microbiome to promote gut health;
  • Seed your intestinal microbiome with the right probiotic based on your intestinal health; and
  • Weed your intestinal microbiome to decrease your intestinal yeast germ load.

How to Diagnose Yeast Overgrowth in Lyme Disease

For information about diagnosing too many yeast, read A Silent Problem—Is It Yeast?

Step 1. Feed your intestinal microbiome with polyphenols and prebiotic fibers *

It is important to do the actions in Step 1. throughout your herbal or prescription antibiotic treatment with or without intestinal yeast overgrowth.

Option 1. Use Supplements

  • Polyphenol 2 capsules one time a day. I prefer Polyphenol Booster by Pendulum.*
  • Prebiotic non-digestible sugars 1 to 2 pills 3 times a day. I prefer MegaPre by Multibiome Labs.*

Option 2. Eat a Plant-forward Whole Food Diet

  • Include polyphenols and prebiotic plant fibers in your diet by eating a whole food diet rich in colorful berries and fruits, vegetables, beans, legumes, nuts and seeds. Aim for at least 30 grams of plant-based fiber a day which you can track using an app like MyFitnessPal or by having at least 5 servings a day of the various foods types listed above. In choosing a whole-foods plant-forward diet, it is ok to use animal proteins or plant-based proteins for your protein source.

Here are some resources to help you eat a plant-forward whole food diet.

An elimination diet is another diet to consider starting if you are very reactive to several foods. For detailed information, see Elimination Diet to Find Food Problems.  (See link for article)

______________

**Comment**

Excellent information.  I caution on an entirely vegan diet.  I have found food choice to be extremely important to healing, but every patient is different in what they can tolerate.  If you are unequipped on this topic, consider going to a nutritionist and/or a naturopath who is at least Lyme-friendly, and very experienced.  This topic alone can make THE difference in your journey.  Don’t underestimate it.

Category:

Candida, diet and nutrition, Gut Health, Herbs, Inflammation, Lyme, Prevention, Supplements, Testing, Treatment