Archive for the ‘Lyme’ Category

Another Lyme Patient With COVID-19 Speaks

https://globallymealliance.org/videos/qa-webinar-dr-cameron-and-lyme-patient-on-covid-19-and-lyme-disease/ Video here  Approx. 1 Hour

April 21, 2020

This video is about a free webinar that was recorded on April 16, 2020. With Dr. Daniel Cameron, one of the foremost authorities on Lyme and tick-borne illness, and Jennifer Crystal, noted Lyme patient and writer, on COVID-19 and Lyme disease.

The webinar is moderated by GLA’s Director of Education & Outreach, Sara Tyghter. People had a chance to submit questions in advance to be answered by the panel. Brought to you by Global Lyme Alliance.


Additional COVID-19 and Lyme Disease Resources:

GLA POV: Parallel Pandemics: COVID-19 and Lyme Disease
Blog: Q&A on COVID-19 and Lyme Disease with LLMD
Blog: Personal Patient Experience with COVID-19 and Lyme Disease
Letter: GLA CEO Addresses COVID-19 and GLA

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**Comment**

Please note Jennifer tested negative for COVID-19.

She states that her primary care doctor stated there’s a lot of false negatives and Jennifer states there’s a 30% false negative rate.  I posted on that here:  https://madisonarealymesupportgroup.com/2020/03/21/study-shows-covid-19-testing-as-bad-as-lyme-msids-testing/ as well as the fact that it was recently discovered that the CDC’s test is contaminated WITH COVID-19, rendering it useless:  https://madisonarealymesupportgroup.com/2020/04/23/cdc-covid-19-testing-contaminated-with-covid-19/

She also states she was on hydroxychloroquine at the time of testing which could have skewed the results, but clinically she had all the COVID-19 symptoms.

She initially had vomiting, fever, cough, and shortness of breath.  Six days after being fever-free, the fever came back as well as the shortness of breath. At about week 3 she lost her sense of taste and smell. Her fever came and left 5 times. She is tracking an improvement of symptoms over time. Overall, she’s been fighting it about a month.

At about 9:00 Dr. Cameron speaks about testing. He states that it’s important where they take the swab as the virus can harbor in different locations. He also discusses until a good antibody test is available, COVID-19 patients, similarly to Lyme patients, need to be clinically diagnosed.

Dr. Cameron has not had any Lyme/MSIDS patient with COVID-19 be hospitalized.  He states typically Lyme patients are ill with COVID-19 for 10-15 days.  He has seen a range in severity within patients.

He is not convinced Lyme/MSIDS patients are more likely to get COVID-19.

Cameron also states that Lyme patients are ahead of the curve as they have already learned so much about health, isolation, the lack of answers by doctors, etc. while in the journey of Lyme/MSIDS.

At around 24:00 he expresses concerns about the potential of chronic issues with those who recover from COVID-19.  He says to “stay tuned.”

For Jennifer’s article in the Boston Globe:  https://www.bostonglobe.com/2020/03/17/opinion/why-did-it-so-long-me-get-tested-covid-19/

Another article written by Jennifer Crystal:  https://madisonarealymesupportgroup.com/2020/03/29/corona-with-a-twist-of-lyme/

For more Lyme patients with COVID-19:  https://madisonarealymesupportgroup.com/2020/04/19/lyme-patients-speak-out-on-having-covid-19/

 

 

Predict High Season for Ticks

https://www.easthamptonstar.com/villages-health/2020416/predict-high-season-ticks

Predict High Season for Ticks

A lone star tick, which can be a carrier of human ehrlichiosis and other infections, can be found in the eastern and southern U.S.  National Institute of Allergy and Infectious Diseases

With consistently warmer weather on the way, and already here on some days, and people out and about enjoying that weather, one particular pest has the potential to cause havoc: ticks.     

Health professionals said this week that symptoms of some tick-borne diseases can mimic those of Covid-19, and an already stressed health care system may not be able to handle an influx of new patients who have been bitten by ticks and get sick.

“It confuses the picture of trying to assess and see if someone is positive for Lyme disease,” said Rebecca Young, a nurse who is the patient navigator for the Stony Brook Southampton Hospital Regional Tick-Borne Disease Research Center. “That’s what a lot of the conversations are about. Because we had a warm winter, I’m sure it will be a high season for ticks, especially since there are so many more people out here for this time of year.”

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**Comment**

Important quote:

Fever, chills, weakness, headaches and body aches, and even respiratory symptoms can occur with the bite of an infected tick. (Not all ticks carry an infection.) Illnesses like Lyme disease, babesiosis, Rocky Mountain spotted fever, anaplasmosis, Powassan, and others — though not all are present in this region — have symptoms that can overlap with those of Covid-19.     

The doctor interviewed for the piece states that due to current restrictions, treatment for tick-borne illness may be hard to get.  He also states that those who suspect TBI may end up in the E.R. because of the similar symptoms, and get exposed to COVID-19 while there.

For more: https://madisonarealymesupportgroup.com/category/lyme-disease-treatment/

 

Help! I Got Bit By a Tick! What Do I Do?

The following article is a great resource. Please file this away somewhere handy so you can retrieve it if you need it.

https://www.lymedisease.org/tick-bite/

LYME SCI: Help! I’ve gotten a tick bite. Now what?

By Lonnie Marcum

Nov. 2019

We keep being told that early treatment is imperative yet most doctors take the “wait and see” approach which isn’t working. In order to treat each and every tick bite as seriously as a heart attack to avoid perhaps life-long symptoms, I encourage prophylactic treatment.
As you read above, ILADS recommends at least 20 days of doxycycline for an acute tick-bite. It’s important to remember that this mono therapy will not cover many of the confections so it’s important to track symptoms and keep in close contact with your doctor – preferably an ILADS-trained doctor who understand the nuances of treatment.

Doctors See Early Increase in Tick Bites, Lyme Disease Concerns

https://www.boston25news.com/news/doctors-see-an-early-increase-tick-bites-lyme-disease-concerns/  News video in Link

Doctors see an early increase in tick bites, Lyme Disease concerns

The early spike in tick bites could be attributed to the mild winter, but also because people are taking breaks from quarantining at home, to go on walks and hikes outside.

 

WELLESLEY, Mass. — For 2-year-old Piper Rosen, it started with an itchy head on Thursday night. It wasn’t until that next morning that her mother, Lori Rosen, said she found the culprit.

“This morning when I was putting her hair up in a ponytail, I found a tick on the back of her head.”

Rosen said over a video interview on Friday that she believes the tick must have latched onto her daughter’s head after she went outside for fresh air and played in the driveway. (See link for article)

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**Comment**

Great reminder that despite the frenzy over COVID-19, ticks are out.

The doctor in the article states she’s receiving several calls per day – months earlier than in the past.

There’s  a few points in the article I’d like to address:

Rashes-larger-blog-3

More on tick prevention: https://madisonarealymesupportgroup.com/2019/04/12/tick-prevention-2019/

 

The Tension Between Public Health & Patents In The Era Of COVID-19

https://www.statnews.com/2020/04/14/patents-public-health-tension-covid-19/

The Covid-19 pandemic, devastating as it is, is producing some triumphs of collaborative research and innovation, as everyone from the World Health Organization to national laboratories, pharmaceutical companies, and Facebook groups of engineers race to fight the virus. But lurking behind this remarkable work is a threat: Some individuals or companies may exploit patents to profiteer off the crisis and could slow these innovative efforts to a crawl.

In this time of crisis, lawmakers must be wary of patents and be flexible and proactive in using the many legal tools available to check their harmful use. (See link for article)

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**Comment**

Great reminder of an all important topic Lyme/MSIDS patients are all too aware of: conflicts of interests slowing or even stopping true scientific progress.

Recently, regarding COVID-19, I posted that the Chinese are trying to patent the anti-viral, Remdesivir:  https://madisonarealymesupportgroup.com/2020/04/17/live-video-chat-remdesivir-data-chicago-hospital-seeing-rapid-recoveries-patients-discharged-in-less-than-a-week/There is currently a clinical trial for Remdesivir in which they are finding:

rapid recoveries in fever and respiratory symptoms, with nearly all patients discharged in less than a week.

A similar effect was found in rhesus monkeys:  https://www.nih.gov/news-events/news-releases/antiviral-remdesivir-prevents-disease-progression-monkeys-covid-19

Regarding Lyme/MSIDS, microbiologist Tom Greer recently wrote an excellent letter outlining this problem of conflicts of interests and patents: https://madisonarealymesupportgroup.com/2020/04/19/letter-to-chronic-lyme-denialists-from-a-microbiologist/

A while back, I too wrote an article highlighting the problems with the faulty research that continues to be done – ignoring an entire LARGE subset of people who have remaining symptoms:  https://madisonarealymesupportgroup.com/2019/02/22/why-mainstream-lyme-msids-research-remains-in-the-dark-ages/  The authorities continue to fixate on the acute stage of the disease as well as insist upon having positive blood serology when research has proven Lyme tests relying upon antibodies to be worthless. They also insist that patients have the EM rash to enter studies, when research also shows many never get a rash.

For more on Lyme testing: https://madisonarealymesupportgroup.com/2018/10/12/direct-diagnostic-tests-for-lyme-the-closest-thing-to-an-apology-you-are-ever-going-to-get/

Excerpt:

The 1994 serodiagnostic testing guidelines predated a full understanding of key B. burgdorferi antigens and have a number of shortcomings. These serologic tests cannot distinguish active infection, past infection, or reinfection.