Archive for the ‘Lyme’ Category

TBD Working Group Meets Online April 27; Comments Were Due April 19

https://www.lymedisease.org/tbdwg-april-27/

TBD Working Group to meet online on April 27; comments due April 19

Hudson Valley Fears Lyme Disease Explosion

https://wpdh.com/hudson-valley-fears-lyme-disease-explosion-thanks-to-covid-19/?

Hudson Valley Fears Lyme Disease Explosion Thanks to COVID-19

April 21, 2020

By Boris

Officials are warning residents to be on the lookout for the signs of Lyme Disease.

With the coronavirus pandemic forcing everyone into isolation, government leaders are reminding everyone that ticks do not practice social distancing. Dutchess County Behavioral and Community Health Commissioner Dr. Anil Vaidian warned that COVID-19 may be taking focus away from another, very real threat.  (See link for article)

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**Comment**

I truly despise the title of this article.  COVID-19 has nothing at all to do with a potential Lyme disease explosion.  Media appears hell-bent upon stirring up fear. COVID-19 is not to blame for everything under the sun.  It reminds me of this:

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Another Lyme Patient With COVID-19 Speaks

https://globallymealliance.org/videos/qa-webinar-dr-cameron-and-lyme-patient-on-covid-19-and-lyme-disease/ Video here  Approx. 1 Hour

April 21, 2020

This video is about a free webinar that was recorded on April 16, 2020. With Dr. Daniel Cameron, one of the foremost authorities on Lyme and tick-borne illness, and Jennifer Crystal, noted Lyme patient and writer, on COVID-19 and Lyme disease.

The webinar is moderated by GLA’s Director of Education & Outreach, Sara Tyghter. People had a chance to submit questions in advance to be answered by the panel. Brought to you by Global Lyme Alliance.


Additional COVID-19 and Lyme Disease Resources:

GLA POV: Parallel Pandemics: COVID-19 and Lyme Disease
Blog: Q&A on COVID-19 and Lyme Disease with LLMD
Blog: Personal Patient Experience with COVID-19 and Lyme Disease
Letter: GLA CEO Addresses COVID-19 and GLA

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**Comment**

Please note Jennifer tested negative for COVID-19.

She states that her primary care doctor stated there’s a lot of false negatives and Jennifer states there’s a 30% false negative rate.  I posted on that here:  https://madisonarealymesupportgroup.com/2020/03/21/study-shows-covid-19-testing-as-bad-as-lyme-msids-testing/ as well as the fact that it was recently discovered that the CDC’s test is contaminated WITH COVID-19, rendering it useless:  https://madisonarealymesupportgroup.com/2020/04/23/cdc-covid-19-testing-contaminated-with-covid-19/

She also states she was on hydroxychloroquine at the time of testing which could have skewed the results, but clinically she had all the COVID-19 symptoms.

She initially had vomiting, fever, cough, and shortness of breath.  Six days after being fever-free, the fever came back as well as the shortness of breath. At about week 3 she lost her sense of taste and smell. Her fever came and left 5 times. She is tracking an improvement of symptoms over time. Overall, she’s been fighting it about a month.

At about 9:00 Dr. Cameron speaks about testing. He states that it’s important where they take the swab as the virus can harbor in different locations. He also discusses until a good antibody test is available, COVID-19 patients, similarly to Lyme patients, need to be clinically diagnosed.

Dr. Cameron has not had any Lyme/MSIDS patient with COVID-19 be hospitalized.  He states typically Lyme patients are ill with COVID-19 for 10-15 days.  He has seen a range in severity within patients.

He is not convinced Lyme/MSIDS patients are more likely to get COVID-19.

Cameron also states that Lyme patients are ahead of the curve as they have already learned so much about health, isolation, the lack of answers by doctors, etc. while in the journey of Lyme/MSIDS.

At around 24:00 he expresses concerns about the potential of chronic issues with those who recover from COVID-19.  He says to “stay tuned.”

For Jennifer’s article in the Boston Globe:  https://www.bostonglobe.com/2020/03/17/opinion/why-did-it-so-long-me-get-tested-covid-19/

Another article written by Jennifer Crystal:  https://madisonarealymesupportgroup.com/2020/03/29/corona-with-a-twist-of-lyme/

For more Lyme patients with COVID-19:  https://madisonarealymesupportgroup.com/2020/04/19/lyme-patients-speak-out-on-having-covid-19/

 

 

Predict High Season for Ticks

https://www.easthamptonstar.com/villages-health/2020416/predict-high-season-ticks

Predict High Season for Ticks

A lone star tick, which can be a carrier of human ehrlichiosis and other infections, can be found in the eastern and southern U.S.  National Institute of Allergy and Infectious Diseases

With consistently warmer weather on the way, and already here on some days, and people out and about enjoying that weather, one particular pest has the potential to cause havoc: ticks.     

Health professionals said this week that symptoms of some tick-borne diseases can mimic those of Covid-19, and an already stressed health care system may not be able to handle an influx of new patients who have been bitten by ticks and get sick.

“It confuses the picture of trying to assess and see if someone is positive for Lyme disease,” said Rebecca Young, a nurse who is the patient navigator for the Stony Brook Southampton Hospital Regional Tick-Borne Disease Research Center. “That’s what a lot of the conversations are about. Because we had a warm winter, I’m sure it will be a high season for ticks, especially since there are so many more people out here for this time of year.”

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**Comment**

Important quote:

Fever, chills, weakness, headaches and body aches, and even respiratory symptoms can occur with the bite of an infected tick. (Not all ticks carry an infection.) Illnesses like Lyme disease, babesiosis, Rocky Mountain spotted fever, anaplasmosis, Powassan, and others — though not all are present in this region — have symptoms that can overlap with those of Covid-19.     

The doctor interviewed for the piece states that due to current restrictions, treatment for tick-borne illness may be hard to get.  He also states that those who suspect TBI may end up in the E.R. because of the similar symptoms, and get exposed to COVID-19 while there.

For more: https://madisonarealymesupportgroup.com/category/lyme-disease-treatment/

 

Help! I Got Bit By a Tick! What Do I Do?

The following article is a great resource. Please file this away somewhere handy so you can retrieve it if you need it.

https://www.lymedisease.org/tick-bite/

LYME SCI: Help! I’ve gotten a tick bite. Now what?

By Lonnie Marcum

Nov. 2019

We keep being told that early treatment is imperative yet most doctors take the “wait and see” approach which isn’t working. In order to treat each and every tick bite as seriously as a heart attack to avoid perhaps life-long symptoms, I encourage prophylactic treatment.
As you read above, ILADS recommends at least 20 days of doxycycline for an acute tick-bite. It’s important to remember that this mono therapy will not cover many of the confections so it’s important to track symptoms and keep in close contact with your doctor – preferably an ILADS-trained doctor who understand the nuances of treatment.