Archive for the ‘Activism’ Category

Dr. Martz on Fox31 Denver

http://kdvr.com/2017/06/02/lyme-and-tick-borne-diseases/ Go here for interview.

You may remember Dr. Martz from the documentary, Under Our Skin.  He was initially diagnosed with a death sentence of Lou Gehrig’s Disease but was found to have Lyme Disease.  Once he started treatment for Lyme, he improved and is alive to talk about it.

Come hear from several tick-borne disease experts from across the country speak at this free, half-day forum on June 3rd, 8:00 am – 12:30 pm at the American Mountaineering Center at 710 10th Street in Golden, CO. The 2nd Rocky Mountain Forum provides an opportunity to learn about the rapidly changing status of Lyme and other tick-borne diseases, risk of exposure here and throughout the US, challenges of diagnosis, and prevention practices. Join us to increase your awareness of the multiple diseases that ticks may transmit that can affect the health and well-being of your family, patients, students and pets.

Experts in the field of ticks and tick-borne diseases from Colorado and beyond will be presenting. For details on speakers and agenda, please visit us at www.coloradoticks.org

Category:

Activism, Lyme, Ticks

IPM Institute Submits Tick-borne Disease Testimony Letter to Congress

FY2018 LHHS IPM Institute Testimony Tick-borne Disease IPM FINAL 060217

Integrated Pet Management (IPM) Institute https://ipminstitute.org submitted Tick-borne disease testimony to Congress today.  Wording is in link above.

ITM (Integrated Tick Management) seeks to manage tick habitats, incorporate pesticide sprays, and provide host-targeted strategies for deer and mice.

Excerpt below:

In 2015 alone, the estimated annual US direct and indirect medical costs, lost income and tax revenue from 380,690 new cases of Lyme disease at $10,817 per case, totaled more than $4.1 billion. Lyme disease can cause lifelong, debilitating effects in humans and animals, and in some cases, death from direct and indirect health impacts.
If additional tick-borne diseases including babesia, anaplasmosis, tularemia and Rocky Mountain spotted fever are considered, the number of cases and costs increases by 30 percent to an estimated $5.4 billion annually. Tick-borne diseases in humans are increasing in number of diseases, cases and geographic distribution in the US. Without a serious investment in cost-effective, long-term solutions to reduce tick populations, tick-borne diseases will continue to spread and costs on the population’s health and wallets will only increase.
Given these tremendous costs and impacts on human lives, resources for tick-borne disease prevention and research must be elevated to a level commensurate with other diseases. For example, in 2012 the NIH invested $112 million in hepatitis C with 1300 new cases annually, or $86,154 per new case. Similarly, there was an investment of $29 million compared to 5700 new cases of West Nile virus, or $5087 per new case. In comparison, only $25 million was invested vs. 312,000 new cases of Lyme disease, which is only $80 per new case. As Lyme disease cases rose in 2013, the NIH reduced funding to $20 million. The investments to reduce Hepatitis C and West Nile virus have been effective and provide evidence that commensurate funding would mitigate tick-borne disease.
Although tick-borne diseases have been identified as a top priority in the CDC strategic plan, investment in reducing tick populations has remained minimal. The total 2016 CDC funding line for Lyme disease was approximately $10.6 million dollars.
In particular, more resources for prevention are critically needed. All federal agency funding allocation from 2006-2010 for tick-borne disease studies totaled $368,103,780. Only 2% ($7,362,075) of that funding supported tick surveillance and environmental factors, and only 3% ($11,043,113) of that funding for tick-borne disease studies supported research on ticks.

Category:

Activism, Lyme, Ticks

WI Representative Mark Pocan Joins Lyme Caucus

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Wisconsin Representative Mark Pocan joined the Lyme Caucus yesterday.

The caucus is a bi-partisan group working together in Congress to take action on Lyme and other tick-borne diseases.  Under the leadership of Chris Smith (NJ) and Colin Peterson (MN), it has initiated letters and actions to benefit Lyme patients, such as the inclusion of the monies for Lyme and tick-borne diseases into the Congressionally Directed Medical Research Program (CDMRP) and language and Lyme monies into Appropriations over the years and has initiated favorable legislation.  Additionally, it has queried government agencies over policies not favorable to patients.  This has reminded the agencies that someone is looking over their shoulder.  Many meetings have been held and educational sessions in DC for Congress.

With nearly 400,000 new cases of Lyme Disease per year, and Wisconsin ranking 6th in the nation, this is an important issue to Wisconinites.  There are nearly 20 tick-borne diseases (and counting) being spread by at least 8 different ticks (and counting) with 30% of reported cases occurring in children between the ages of 0-19.  

In 2015, the caucus secured for the first time ever, $5 million in funding in the House Appropriations Committee annual military spending legislation, which was adopted in the Fiscal Year 2016 funding bill which was signed into law, and will provide resources for Lyme disease research through DOD’s innovative, high-risk, high reward program.

In December of 2016, the United States House of Representatives passed, and former President Obama signed, the 21st Century Cures Act.  The Cures Act included language, similar to a bill that Rep. Smith introduced previously, which created the Interagency Lyme and Tick-Borne Disease Working Group.  Specifically, the Working Group is comprised of federal and non-federal members tasked with reporting to Congress on scientific advances, research questions, surveillance activities and emerging strains in species of pathogenic organisms.

For more see:  https://madisonarealymesupportgroup.com/2016/12/14/21st-cca-signed-into-law/  Bill language is included at the bottom of the article.

Please contact your WI representative and ask them to join the Caucus.  Let’s represent Wisconsin well:  https://www.govtrack.us/congress/members/WI

Category:

Activism, Lyme, Uncategorized

The 21st Century “Do-It-Yourself” Plague

Carl Tuttle’s eloquent rebuttal to The Clinical Relevance of Studies on Borrelia burgdorferi Persisters http://www.amjmed.com/article/S0002-9343(17)30480-1/fulltext, by Wormser and Baker:

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/20332415?utm_medium=email&utm_source=74537&utm_campaign=petition_update&sfmc_tk=Ht7E61Sjt1EPcm3kmzT7WSG5mJqKDZftuP842mg7fW8kotY%2fQ4SeUbkNjG5%2bLF89

MAY 21, 2017 — Once again we see the American Journal of Medicine giving carte blanche to Wormser/Baker who continues to deny persistent Borrilia infection despite all the evidence of chronic Lyme disease. This denial has left hundreds of thousands if not millions worldwide with no treatment options for an infection capable of ruining lives. It is the 21st Century do-it-yourself plague with faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control.

This is certainly a crime against humanity on a scale not seen since the Holocaust.

Letter to the American Journal of Medicine:

The Clinical Relevance of Studies on Borrelia burgdorferi Persisters
Phillip J. Baker Ph.D., Gary P. Wormser, M.D. April 2017
http://www.amjmed.com/article/S0002-9343(17)30480-1/fulltext

May 21, 2017

The American Journal of Medicine
3615 N. Prince Village Place, Suite 181
Tucson, Arizona 85719
Attn: Editorial Board
Attn: Joseph Alpert, MD, Editor in Chief

Dear Dr. Alpert,

A worldwide community of physicians has been influenced by the ongoing disinformation campaign aimed at promoting the idea that Lyme is little more than a nuisance disease as health agencies across the globe are blindly following what has been deviously established here in the U.S. We are dealing with a life-altering/life-threatening infection with faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control.

In 2001 Gerold Stanek, Medical University of Vienna clearly reported persistent Borrelia infection in a 64 year-old patient despite treatment with four courses of ceftriaxone. Stanek published in the British Journal of Dermatology in 2001 reporting that:

“Borrelia [the Lyme disease bacteria] may possibly be able to remain dormant in certain tissue compartments”

When publishing a paper in 2012 with co-author Dr. Gary Wormser of New York Medical College, Stanek claims “Most manifestations of Lyme borreliosis will resolve spontaneously without treatment.”

Dr. Gary Wormser of New York Medical College has had a global influence on the scientific community promoting his groupthink mentality concerning persistent Borrelia infection. (Wormser’s thirty year bias; “Chronic Lyme disease does not exist”)

In 2014 Stanek published the following paper endorsing antibiotic treatment in a male patient requiring a pacemaker from his Lyme disease infection; a pacemaker for a nuisance disease?

Lyme Borreliosis (Book Chapter)
https://www.scopus.com/record/display.uri?eid=2-s2.0-84942739356&origin=inward&txGid=D355DFF083BF00E79EB6ABEAFE4BBD9F.wsnAw8kcdt7IPYLO0V48gA%3a13

There are hundreds of published articles referencing persistent infection but a handful of academics that control the narrative through editorial censorship continue to deny chronic Borrelia infection and have colluded to deny a life-altering/life-threatening disease as we see in the 2012 Stanek/Wormser collaboration.

Wormser’s focus over the past thirty years has always been on the acute stage of disease with treatment following the bulls-eye rash. The vast majority of patients disabled from Lyme never saw a bulls-eye rash and don’t recall a tick bite. (The state of Maine reported an average of 48.25% incidence of rash-related Lyme 2009-2012) These patients are ping-ponged through our misinformed medical community for months, years or decades as their infection progresses to a stage that is completely unaffected by the standard two to three weeks of antibiotics. It is this class of patient that Wormser refuses to acknowledge.

Post treatment symptoms after early detection and treatment are entirely different from untreated infection of months years or decades.

I ask two questions Dr. Alpert:

1. Is this scientific misconduct or criminal offense?
2. What role has journal editors played in this misinformation campaign?

A response to this inquiry is requested.

Sincerely,
Carl Tuttle
Hudson, NH

P.S. You or a loved one is a single tick bite away from experiencing this travesty.

Cc: Iratxe Puebla, COPE Complaints Administrator
Thomas Reller, Vice President, Global Corporate Relations, Elsevier Inc.
Dr. Mihail Grecea, Ethics Expert, Elsevier

References:

1. Br J Dermatol. 2001 Feb;144(2):387-92.
Isolation and polymerase chain reaction typing of Borrelia afzelii from a skin lesion in a seronegative patient with generalized ulcerating bullous lichen sclerosus et atrophicus.
Breier F1, Khanakah G, Stanek G, Kunz G, Aberer E, Schmidt B, Tappeiner G.
http://www.ncbi.nlm.nih.gov/pubmed/11251580

2. Lyme borreliosis.
Stanek G1, Wormser GP, Gray J, Strle F.
http://www.ncbi.nlm.nih.gov/pubmed/21903253

3. Peer Reviewed Evidence of Persistence of Lyme Disease Spirochete Borrelia burgdorferi and Tick-Borne Diseases
http://www.ilads.org/ilads_news/wp-content/uploads/2015/09/EvidenceofPersistence-V2.pdf

The following is a list of over 700 peer reviewed articles that support the evidence of persistence of Lyme and other tick-borne diseases. It is organized into different categories—general, psychiatric, dementia, autism and congenital transmission.

4. The state of Maine has an average of a 48.25% incidence of rash-related Lyme over the four year period 2009-2012 (they’ve only been making this report for 4 years). See page 3 of each document below:

http://www.maine.gov/dhhs/reports/lymereport.pdf — 2009, 59%
http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/lyme-legislature-2010.pdf — 2010, 43%
http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/2011-lyme-legislature.pdf — 2011, 42%
http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/2012-lyme-legislature.pdf — 2012, 49%

5. Scientific misconduct or criminal offense?
https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/14006106

Dr. Gary Wormser has been fixated on the acute stage of disease after erythema migrans (Bulls-eye rash) and early treatment. His study design is then expected to apply to the entire Lyme patient population. Patients who had a prolonged exposure to the infection before diagnosis and initial treatment are almost always incapacitated. It is this class of patient that Wormser continuously avoids and ignores. His focus has been to discredit the disabled as opposed to finding a cure for late stage persistent disease.

For those of you who have not signed the petition, join the nearly 40,000 people calling for a Congressional investigation of the CDC, IDSA, and ALDF:  https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf?source_location=minibar

Category:

Activism, Lyme

First Peer-reviewed Study of Vaccinated vs. Unvaccinated Children

  Published on May 17, 2017  

World Mercury Project

The first peer-reviewed study comparing health outcomes of vaccinated versus unvaccinated children implicates vaccines in a host of chronic illnesses.  http://oatext.com/pdf/JTS-3-186.pdf  Scientists found no significant differences in rates of vaccine-preventable illnesses like hepatitis A or B, measles, mumps, rubella, influenza, meningitis or rotavirus.  As would be expected, vaccinated children did have lower likelihood of two vaccine-preventable illnesses compared to unvaccinated children: chicken pox (7.9% vs. 25.3%), and pertussis (2.5% vs. 8.4%).

The study suggests that fully vaccinated children may be trading the prevention of certain acute illnesses (chicken pox, pertussis) for more chronic illnesses and neurodevelopmental disorders like ADHD and Autism. The scientists also found that children born prematurely, who were vaccinated, were 6.6 times more likely to have a neurodevelopmental disorder.

In this video, Robert F. Kennedy Jr. explains how Bill Gates claimed the DTP vaccine was saving 30 million lives, and asked the Danish government to support giving it to 161 million African children. When the Danish government asked for the data supporting this, Gates couldn’t provide it. So the Danish government looked at 30 years of data and found that the DTP vaccine ruined the immune systems of African girls, and they were dying at 10 times the rate of unvaccinated girls. DTP is no longer given in Europe and the U.S. due brain damage.

http://www.thevaccinereaction.org/2017/08/first-of-its-kind-survey-shows-vaccinated-children-get-sicker/ While the design of the study means that the results cannot be used to prove causality, the author notes that “the strength and consistency of the findings, the apparent ‘dose-response’ relationship between vaccination status and several forms of chronic illness, and the significant association between vaccination and NDDs all support the conclusion that some aspect of the current vaccination program may be contributing to risks of childhood morbidity.”

**My Comment**

This is important for Lyme/MSIDS patients as our immune systems are already fighting a war of epic proportions.  Dr. Garth Nicolson has found that vaccines are implicated with mycoplasma, Gulf War Syndrome, and Lyme/MSIDS, as well as the fact they contain immune suppressing things such as aluminum, thimerosal (50% mercury by molecular weight), squalene, human and animal DNA, and other damaging ingredients.  https://madisonarealymesupportgroup.com/2015/08/12/connecting-dots-mycoplasma/

For information on how vaccines are made as well as information on Lymerix, the Lyme Vaccine which was pulled off the market:  https://madisonarealymesupportgroup.com/2017/04/06/video-how-vaccines-are-made/

For an executive summary of Dr. Gentempo’s recent 9-part vaccine video series:  https://madisonarealymesupportgroup.com/2017/03/30/ty-bollinger-the-truth-about-vaccines-series/ (Click on each separate link for each summary from everything from the horrific anthrax vaccine given to our service men and women to the blatant fraud, coverup and collusion of the CDC in regards to vaccines, information on Garasil & flu vaccines, mercury poisoning, and the relationship to Autism.) 

A relationship between Gardasil and Bartonella:  https://madisonarealymesupportgroup.com/2016/04/24/gardasil-and-bartonella/

https://madisonarealymesupportgroup.com/2017/02/16/gardasil-vasculitis-msids/

https://madisonarealymesupportgroup.com/2017/04/14/gardasil-and-female-reproduction/

And lastly, it’s important to note that the survey focused on homeschoolers.  Having homeschooled our children, I understand clearly that homeschoolers have much less pressure to conform to the vaccination program than those in public and private schools and daycares.  I believe this is another aspect of why some would like to see homeschooling become illegal.  This is why it’s important to learn about the importance of the Parental Rights Amendment:  https://madisonarealymesupportgroup.com/2017/04/20/why-we-need-the-parental-rights-amendment/

https://madisonarealymesupportgroup.com/2017/02/21/parental-rights-in-medical-settings/

For families struggling with Lyme Disease, they are already fighting a system that doesn’t know how to cope with very ill children who often can’t keep up.  Their little bodies are in a raging war of epic proportions.  They are often bullied and mocked even by teachers and standard medical professionals who believe they are just being lazy.  Infected, exhausted parents often don’t have the energy to fight the “mandatory vaccine” regimens being pushed upon them.  The entire system is stacked against them – forcing many to homeschool just to avoid the unbelievable pressure to conform.

Much has to change in Lyme land.

Category:

Activism, research, vaccines