Archive for the ‘Activism’ Category

COVID-19 Drug Remdesivir Could Cost Up To $3,120 Per Patient, Maker Says

https://www.drugs.com/news/covid-19-remdesivir-could-cost-up-3-120-per-patient-maker-says-

COVID-19 Drug Remdesivir Could Cost Up to $3,120 Per Patient, Maker Says

MONDAY, June 29, 2020 — The maker of remdesivir, the first drug that showed promise in treating coronavirus infections, will charge U.S. hospitals $3,120 for a patient with private insurance, the drug company announced Monday.

Because of how the U.S. health care system is designed and the discounts that government health care programs like the VA and Medicaid will expect, the price for private insurance companies will be $520 per vial, Gilead Sciences explained in a letter. Most COVID-19 patients would need six vials of the drug over five days, the company said.

A lower price — $390 per vial — will be offered to other governments in developed countries around the world, Gilead added.

“As the world continues to reel from the human, social and economic impact of this pandemic, we believe that pricing remdesivir well below value is the right and responsible thing to do,” Gilead Chairman and CEO Daniel O’Day said in the company’s letter. (See link for article)

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**Comment**

Our “authorities” have a financial conflict of interest in this expensive treatment:  https://principia-scientific.org/a-tale-of-2-drugs-deep-state-chose-money-power-over-lives/  Half of the COVID treatment panel has financial ties to Gilead Sciences:  https://covid19treatmentguidelines.nih.gov/panel-financial-disclosure/

Excerpt:

Approximately $70 million in U.S. taxpayer funding began Gilead’s partnership with the U.S. Army, Centers for Disease Control and Prevention (CDC) and National Institutes of Health (NIH) to develop remdesivir. Initially for treating Ebola, it failed to show benefit and was shelved. If remdesivir is used to treat COVID-19, Gilead shareholders, not the taxpayers, will profit.

Going back to 1997, Donald Rumsfeld chaired the Board of Directors at Gilead and after 2001 he held share packages valued at $5-25 Million. Gilead originally developed Tamiflu. George P Shultz, US Secretary of State also was on the board. He sold stocks at a value of more than $7 million. CA governor’s Pete Wilson’s wife also sat on the board.

“‘I don’t know of any biotech company that’s’ so politically well-connected [as Gilead],‘ Andrew McDonald, of the analyst firm Think Equity Partners, told Fortune.” (Source: “Virus Mania, How the Medical Industry Continually Invents Epidemics Making Billion Dollar Profits At Our Expense”)

This article also points out an ugly conflict of interest web between Gilead, the manufacturer of Remdesivir and UNITAID which Soros, Gates, and the Clinton Health Access Initiative, are large investors – with Drs. Fauci and Birx associated with the Clinton Health Access initiative.  https://www.thegatewaypundit.com/2020/06/stunning-faucis-remdesivir-costs-9-per-dose-will-sold-3000-per-dose-china-company-linked-soros-will-also-mass-produce-drug/  And of course, Dr. Fauci has worked with Gilead for a long, long time.

Government employees should not be allowed to have financial ties to manufacturing companies and then turn around and make public health policy.

Remdesivir isn’t cheap.  It costs between $520-$390 per vial and will be sold for $3,120 per 6 vial treatment:  That’s a lot of money for a drug that hasn’t even been shown to lower viral load.

Hydroxychloroquine in the other hand costs $1 per treatment, while chloroquine costs a measly 30 cents!  https://madisonarealymesupportgroup.com/2020/05/11/podcast-evidence-supporting-hcq-azithromycin-for-covid-19/

Early results of the first clinical trial of remdesivir against placebo in coronavirus showed modest benefits, according to The New York Times. Surviving patients given remdesivir were discharged four days sooner than patients given placebo, though no criteria were given for determining improvement. Death rates were not significantly different. About 25% of patients receiving remdesivir had potentially severe side effects, including multiple organ dysfunction, septic shock, acute kidney injury and low blood pressure. Another 23% showed evidence on lab tests of liver damage.

Gilead’s own press release revealed the side effect of acute respiratory failure in 6% of patients in the remdesivir five-day treatment group, and 10.7% of patients in the 10-day treatment group, clearly ominous findings with a drug designed to treat respiratory failure caused by COVID-19.

https://madisonarealymesupportgroup.com/2020/07/02/remdesivir-for-covid-19-not-backed-by-results/

FOX 35 INVESTIGATES: Florida Department of Health says some labs have not reported negative COVID-19 results

https://www-fox35orlando-com.cdn.ampproject.org/c/s/www.fox35orlando.com/news/fox-35-investigates-hospitals-confirms-mistakes-in-floridas-covid-19-report.amp  News Video Here

July, 2020

After FOX 35 News noticed errors in the state’s report on positivity rates, the Florida Department of Health said that some laboratories have not been reporting negative test result data to the state.

Countless labs have reported a 100 percent positivity rate, which means every single person tested was positive. Other labs had very high positivity rates. FOX 35 News found that testing sites like one local Centra Care reported that 83 people were tested and all tested positive. Then, NCF Diagnostics in Alachua reported 88 percent of tests were positive.

How could that be? FOX 35 News investigated these astronomical numbers, contacting every local location mentioned in the report.

The report showed that Orlando Health had a 98 percent positivity rate. However, when FOX 35 News contacted the hospital, they confirmed errors in the report. Orlando Health’s positivity rate is only 9.4 percent, not 98 percent as in the report.

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**Comment**

You can’t make this stuff up.  COVID has become a comedy of errors.

For more:  

https://madisonarealymesupportgroup.com/2020/06/11/nursing-homes-shocked-at-insanely-wrong-cms-data-on-covid-19-and-more-cdc-misinformation/

https://madisonarealymesupportgroup.com/2020/04/11/hospitals-paid-extra-to-list-patients-as-covid19-3x-as-much-if-the-patient-is-on-a-ventilator/

https://madisonarealymesupportgroup.com/2020/06/06/lockdown-lunacy-the-thinking-persons-guide/

https://madisonarealymesupportgroup.com/2020/07/08/lockdown-lunacy-2-0-second-wave-not-even-close/

https://madisonarealymesupportgroup.com/2020/07/10/coronavirus-why-everyone-was-wrong/

https://madisonarealymesupportgroup.com/2020/03/21/study-shows-covid-19-testing-as-bad-as-lyme-msids-testing/

https://madisonarealymesupportgroup.com/2020/07/10/higher-covid-case-numbers-thats-easy-theres-more-testing-being-done-most-have-no-symptoms-at-all/

The Discriminatory Statewide Shutdowns Lack Precision and Consistency, Disregard Individual Immunity, and Threaten Personal Liberty

https://www.naturalnews.com/2020-07-13-discriminatory-statewide-shutdowns-lack-precision-consistency.html

The discriminatory statewide shutdowns lack precision and consistency, disregard individual immunity, and threaten personal liberty

Image: The discriminatory statewide shutdowns lack precision and consistency, disregard individual immunity, and threaten personal liberty

(Natural News) A traditional quarantine is intended to isolate a person who has been veritably exposed to an infectious disease and has symptoms of the infection. A properly-conducted quarantine can reduce the spread of a new virus that has multiplied in the cells of a host body and is likely to spread into the immediate environment via the cough and sneeze of the host body’s aerosols. With COVID-19, loose inconsistent “quarantines” are being forced on most of the population, with no verification that COVID-19 is present. Even worse, discriminatory lock down and restrictions to personal liberty remain, even as 90 percent or more sick individuals test negative for COVID-19, and most who do test positive, ultimately recover with newfound immunity. Moreover, the study claiming new coronavirus can be transmitted by people without symptoms turns out to be flawed.

COVID-19 is a real threat but the American response lacks precision and has betrayed the terrain theory of disease, weakening the population long term

When scientists sequenced a new strain of coronavirus, and after preliminary studies from Wuhan, China estimated it had an R naught value between 5 and 6 (very contagious), most government and public health officials came to the consensus that statewide lock downs, the shuttering of select businesses, and stay-at-home orders were the best way to slow the spread of the new virus. In the process, individual liberty was sacrificed and a chain reaction of new problems were realized.

Because one person with COVID-19 symptoms can potentially transmit the coronavirus to 5 or 6 people in close proximity, health officials assumed that everyone would rapidly become infected and require hospitalization, causing overcrowded health systems and a lack of medical treatments. Based on data from Wuhan China, states went into lock down mode.

Not only were rights suspended during this time, but the authoritarian approach also lacked precision and consistency. Governors determined some activities to be essential – like getting alcohol, eating fast food, and crowding Wal-Mart, while other activities were deemed non-essential – such as spreading out at state parks, buying seeds, playing on park playgrounds, or getting sun at the beach (even though vitamin D deficiency is linked to worse outcomes).

The discriminatory shutdown approach lacked precision and did not accurately determine infection or exposure to infection to conduct evidence-based quarantines of people with COVID-19. Now, many people are beginning to wonder whether this inconsistent and controlling lock down approach was worth it, especially as businesses, employment, mental health, individual rights, and personal livelihoods hang in the balance. Why do we allow a hypothetical chain of infection to occur at “essential” places, but  small businesses, gyms, playgrounds, beaches, and state parks remain shuttered and controlled?

As a society, have we taken the wrong approach to facing and overcoming infectious disease and will we succumb to government tyranny, which is far more dangerous?

Even though nothing was said or done to help the population mount a healthy immune response to the new virus, everyone was assumed to be infected and assumed to require hospitalization. This assumption was shortsighted, as many people who test positive might be false positive, do not exhibit symptoms at all, and may only experience mild illness. As a matter of fact, in most every state, over 90 percent of people who take the PCR test, test negative for COVID-19 and positive for other respiratory illnesses.

Still, there are some people with underlying chronic conditions, immune-deficiencies, etc. who are at greater risk of complications and death from COVID-19, or any respiratory viral infection. Most complications in NYC came from obese patients. Erroneously, restricting the movement, assembly, economic activity, and leisure of all people became the “cure” for sick individuals with underlying conditions and immune-deficiencies.

During the panic, severe cases of illness were not differentiated from mild ones, and the range of symptoms to determine COVID-19 became so broad and undefined, that healthcare professionals started listing “assumed” or “suspected” cases of COVID-19 as the provisional cause of death for many patients who had co-infections, comorbidity, or underlying health conditions that were the cause of hospitalization in the first place. The World Health Organization and National Vital Statistics officially advised health care professionals to “assume” COVID-19 cases, without confirmation. New York City’s COVID-19 death tally soared by more than 3,700 when it included the  deaths of people who were suspected of having COVID-19 but were never tested. Although there is financial incentive for placing patients on ventilators, many NYC doctors report that patients are suffering from further lung damage on the machines, and they observe an 80 percent fatality rate once these devices are used. This is compounded by the fact that ventilator-associated pneumonia affects upwards of 300,000 Americans each year and could be a determining factor in mortality.

In the end, fearing asymptomatic spread from all healthy human beings may prove to be a futile approach that forces everyone to live in perpetual and irrational paranoia. The longer we fear our environment and ignore what we can do to help our individual immune systems recover, the longer it takes for the population to develop herd immunity. We will never completely control the life cycle of pathogens in a population, no matter how much we shutter people’s lives, oppress them, depress them, and plunge them into economic calamity. We must focus on strengthening the immune response of all, especially the most vulnerable, or we will be consumed by fear and perish as a nation.

Furthermore, when lock downs are lifted, people who have been stagnant in their homes, lost their jobs, stuck drinking alcohol and eating essential fast food, will become even more susceptible to infections in the coming year. Left ignorant of what they can do to overcome infections, trapped on a nutrient-void diet, and slowly dying from immune-suppressant drugs, the modern American’s cellular terrain will present a conducive environment for viruses to take hold and multiply. The terrain theory was completely ignored during this pandemic and as a result, herd immunity will be realized slowly and painfully, as people with weak immune systems continue to suffer, leading to further outbreaks, more complications, and a higher death rate to COVID-19 and a host of other respiratory infections that claim millions of lives each year.

Sources include:

ScienceMag.org

Patch.com

BusinessInsider.com

ResearchSquare.com

Forbes.com

ARSTechnica.com

Politico.com

NaturalNews.com

CDC.gov

NCBI.NLM.NIH.gov

WHO.int [Page 8]

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**Comment**

BINGO!

One other very important point – this so called virus has never been purified.  The article, Electron microscopy of SARS-CoV-2: A Challenging Task,” states:

“these observed particles in patients with COVID-19 should be best designated as virus-like particles because definitive assignment of these structures as SARSCoV-2 virions requires immuno-EM.”  Electron_microscopy_of_SARS-CoV-2_a_challenging_ta

These particles have yet to be singularly purified from all else.

The article, Identification of Coronavirus Isolated from a Patient in Korea with COVID-19 also takes impure material, calls it ‘virus’, adds it to a cell culture, and observes cell death.  Unfortunately, without purifying a singular pathogenic virus there is no way of knowing what exactly caused the cell death.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7045880/

This is what David Crowe talks about here:  https://madisonarealymesupportgroup.com/2020/03/16/does-the-coronavirus-exist/

 

 

 

 

 

“Shapiro and Walker Operated As a Tag Team Throughout the Meeting”

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/

“Shapiro and Walker operated as a tag team throughout the meeting”

JUL 12, 2020 — 

Today’s letter to the Tick-Borne Disease Working Group. Why not send your own email requesting the removal of Shapiro?

———- Original Message ———-

From: CARL TUTTLE <runagain@comcast.net>
To: tickbornedisease@hhs.gov
Cc: (99 Undisclosed recipients)
Date: 07/12/2020 9:45 AM
Subject: “Shapiro and Walker operated as a tag team throughout the meeting”

TOUCHED BY LYME: TBD Working Group and FACA’s open meeting rules
https://www.lymedisease.org/tbdwg-faca-open-meeting-rules/

Donta to Walker:

“I’m dumbfounded why you would not want to try to understand the mechanisms of persistent Lyme. We know this happens with other infections”

To the Tick-Borne Disease Working Group,

One of the strategies of the racketeering scheme (Lisa Torrey vs IDSA) was to suppress evidence of persistent infection after extensive antibiotic treatment and then claim there is no evidence. The deliberate and well-orchestrated denial has left hundreds of thousands if not millions worldwide in a debilitated state.

Let me remind everyone on this panel that the maximum penalty authorized for a RICO violation is 20 years in jail but being investigated for a serious crime did not disqualify Eugene Shapiro from appointment to the group.

-Would we have appointed film producer Harvey Weinstein to the TBDWG while he was under investigation?

-How about Jeffrey Epstein or Bill Cosby while they were being investigated for a serious crime?

Whoever appointed Shapiro (to control the narrative) should be investigated for aiding and abetting.

Let’s all review what is known about Dr. Eugene Shapiro……………


Memorable and Not So Memorable Quotes by Lyme Disease Denialists

https://lyme.kaiserpapers.org/memorable-and-not-so-memorable-quotes-by-lyme-disease-denialists/#Shapiro

Quotes from Shapiro:

“Lyme disease prevention requires only minimal precautions; even for people living in areas with the highest  concentration of positively identified cases”:

-Eugene D. Shapiro, MD, Yale Children’s Health Letter, April 1995

“Over time, the [Lyme] disease tends to burn itself out, even without treatment, in many people”:

-Eugene Shapiro, MD, quoted by Karen Freeman in The New York Times, October 24, 1996

“Children with only non-specific symptoms, such as headache, fatigue, or arthralgia, are very unlikely to have Lyme disease. Serologic tests for Lyme disease should not be ordered for such patients because a positive test result is very likely to be a false-positive”:

-Eugene D. Shapiro, MD, in ACP’s Lyme Disease, page 131

“Nearly 90% of children who develop Lyme disease have either single or multiple sites of erythema migrans”:

-Eugene D. Shapiro, MD, ibid., page 132

“As many as 40% of the patients with well-documented late stage Lyme disease will not have had a preceding lesion of erythema migrans . . . as the only clinical manifestation of early Lyme disease. . . . The existence of a flu-like illness without erythema migrans of early Lyme disease has been clearly established”:

-Eugene D. Shapiro, MD, et al., “Early Lyme Disease: A Flu- like Illness Without Erythema Migrans,” Pediatrics 91, (1993): 456-59

“There is no evidence that congenital Lyme disease is a problem”:

-Eugene D. Shapiro, MD, in ACP’s Lyme Disease, page 132

“The prognosis of children with Lyme disease, both early and late, is excellent, with no evidence of chronic symptoms or long- term sequelae”:

-Eugene D. Shapiro, MD, ibid., page 132

“Because of the low risk of Lyme disease and the excellent prognosis of children who do develop Lyme disease,  prophylactic antimicrobial treatment is not recommended for children who are bitten by a deer tick”:

-Eugene D.Shapiro, MD, ibid., page

“In patients presenting with nonspecific symptoms, the positive predictive value of serologic testing for Lyme disease is low”:

-Eugene D. Shapiro, MD, ACP’s Lyme Disease, page 224

“There are a ton of people with non-specific symptoms and most of their positives are false positives [for the ELISA and Western Blot], so they think they have this diagnosis of Lyme”:

-Eugene Shapiro, MD, quoted by Stefanie Ramp in the Fairfield County Weekly, May 20, 1999

“If all you know is that you found a deer tick on your child, the risk is 1 to 2 percent at most of having Lyme disease.  And then greater than 90 percent of those will show a rash at the site of the bite.”:

-Eugene Shapiro, MD, in the April 1995 issue of Yale Children’s Health Letter

“Most ticks are not infected and even if a child has been bitten by an infected tick, 36 to 48 hours are needed before transmission of the bacteria takes place.”:

-Eugene Shapiro, MD, ibid.

“There are probably better ways to spend health-care dollars” than on a vaccine for Lyme disease:

-Eugene Shapiro, MD in the April 1995 issue of Yale Children’s Health Letter

“It [LYMErix vaccine] is fairly expensive, and I think that the biggest problem is not Lyme disease but anxiety about Lyme disease, and I’m not sure how effective the vaccine is against anxiety about Lyme disease….I don’t think most people are at really high risk for Lyme disease, so the benefits don’t necessarily qualify the costs.”:

-Eugene Shapiro, MD, a professor of pediatrics at Yale, quoted by Stefanie Ramp in the Fairfield Co. Weekly on May 20, 1999

“It’s usually not Lyme disease unless it looks, smells, and tastes like Lyme disease”:

-Eugene Shapiro, MD, in the April 1995 issue of Yale Children’s Health Letter

“If you only go to a Lyme literate doctor, you are likely to be diagnosed with Lyme disease, because that’s what they do. If you go to Midas, you’re going to get a muffler.” (Chronic Lyme sufferers believe that the medical world would benefit immensely from Shapiro having a Midas muffler installed on his person).

“So, you know, in an anecdotal sense, taking antibiotics and feeling better doesn’t mean that the antibiotics are the reason that you felt better. It may have something to do with the belief that this doctor cares for me, I’m doing something to help myself, it’s very complicated and we don’t know all the answers…”(Shapiro’s rambling and inane commentary was rightfully terminated by the host of the program).

-Maryland Public Television – Direct Connection – Lyme Disease – Under Our Skin Review – June 27, 2011

WHY IS SHAPIRO ON THE TBDWG????

Please call for his immediate removal.

Respectfully Submitted,

Carl Tuttle

Hudson, NH USA

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**Comment**

Perhaps Shapiro is somehow related to Bill Gates?  They both seem to have extraordinary power over thousands if not millions of people’s health.

BTW: Shapiro urges the medical community to develop ways to prevent “healthcare-seeking behaviors” by parents who believed their children may have Lyme disease:

https://madisonarealymesupportgroup.com/2019/06/11/dr-eugene-shapiro-medically-unexplained-symptoms/

“…it’s very clear that simply telling parents that Lyme disease is not the cause of these nonspecific symptoms such as fatigue, various pain syndromes that is not sufficient and that we need a new paradigm to how to best manage such patients. Often it’s not the pediatric infectious disease specialists who doesn’t have an ongoing relationship with his patients who is likely the best but someone who can develop a trusting relationship with them. Very frequently these parents are seeking affirmation that these symptoms are real and in fact they are real it’s just that they’re not caused by Lyme disease…..” Eugene Shapiro

 

 

Lyme Warrior Q & A

https://globallymealliance.org/dear-lyme-warriorhelp-13/

lyme warrior

by Jennifer Crystal

Every few months, Jennifer Crystal devotes a column to answering your questions. Do you have a question for Jennifer? If so, email her at lymewarriorjennifercrystal@gmail.com.

I have tried several different medications for Lyme and am not getting any better. Do you think I just need to own up to the possibility that this is simply my reality and I should resign myself to it?

No! Treating tick-borne illness is complicated. It often takes a lot of trial and error to find the right treatment protocol, especially since what works for one patient might not work for another. When you’re not feeling well, it’s especially hard to be patient with the process. You just want to get better, and you don’t have the energy to keep waiting and trying things. I understand that. But difficult as it is, if you give up now, you will make your current situation your longterm reality. There were so many moments in my journey with Lyme disease and two other tick-borne illnesses—babesia and Ehrlichia—that I wanted to just throw in the towel. Thank goodness I didn’t, though. After many different medications over many years, I have been in remission for over a decade, and my life is better than I ever thought it could be.

I suggest keeping a daily log of your symptoms so that you can chart any small change, good or bad, and so you can also give a detailed report to your Lyme Literate Medical Doctor (LLMD), who may be able to tweak to your protocol to address any new issues. So many times my LLMD would say something like, “Oh, now that I’m hearing how brain fog is bothering you, I think we actually need to switch to an antibiotic that is better for neurological symptoms.” Or, “The symptoms you’re telling me about indicate inflammation, so I think we need to add an anti-inflammatory medication.” If this fine-tuning isn’t working, it may be time to seek a second opinionfrom a different LLMD. Sometimes it helps to have someone evaluate your case with fresh eyes. Be sure that you have been checked for all tick-borne diseases and are being adequately treated for any co-infections since a single tick bite can give you multiple infections.

Finally, it’s important to remember that medication is only part of the equation when treating tick-borne illnesses. Other factors like diet, sleep hygiene, and stress play a role in your body’s ability to heal. You may want to try complementary therapies such as integrative manual therapy or neurofeedback to help your medication work more effectively. There is always something new to try; never, ever settle!

What does the future look like for you?

This is a great follow-up to the last question. The answer is, I don’t really know, and that’s a good thing. When I was completely bedridden over a decade ago, the future looked bleak. I never thought I’d regain my independence. I wasn’t even sure if I’d ever be able to walk around the block again. But now I am living on my own, working, socializing, and exercising, and enjoying a full life.

My path to health wasn’t linear. After regaining some independence, I relapsed all the way back to the starting line. If the future looked bleak before, relapsemade me feel downright desperate. But I made it through, and have been in remission for over a decade, now that I know how to really manage my life in the context of these chronic illnesses.

Each year of this decade has been better than the last. There have been dips, of course: flare-ups of Lyme or babesia, acute illnesses like COVID-19 (link: https://globallymealliance.org/corona-with-a-twist-of-lyme/). But overall, I’ve made incredible strides since moving to Boston and starting graduate school in 2011. I can teach more classes now than I could after earning my M.F.A. in 2014. I can read for longer periods of time without getting neurologically overwhelmed. I bounce back faster when I push my body too far. I can ski more runs, swim more laps, paddle for more hours than I could a few years ago.

So, who knows how much more progress I will make in the next few years. Maybe I’ll be able to juggle even more work projects. Maybe I’ll be on a book tour. Maybe I’ll reduce some of my medications. Maybe I won’t need an afternoon nap. I can’t say for sure what the future holds, but I’m confident that more will be possible than I can currently imagine.

You mentioned that you can’t work a traditional full-time job, so you work a few part-time jobs that fit your schedule. How did you find those?

One of the hardest parts of living with chronic illnesses was accepting that I wasn’t going to be able to go back to the rigorous schedule I kept before I became ill. In order to maintain my health, I have to pace myself physically and neurologically. I also need to do adjunct therapies every week, which eat up time in my schedule, and I need to nap every afternoon. These needs—which I had to learn to see as just that, needs and not restrictions make it impossible for me to work a 9 to 5 job.

So I had to think outside of the box. What did I love to do, and how could I do that work on a flexible schedule? Instead of my old full-time high school teaching position, I now teach as an adjunct, at a creative writing center, and at colleges. My classes are scheduled in the mornings or the evenings, and class prep time is on my own. I was able to combine my passions for Lyme awareness/advocacy and writing into these weekly blog posts. I do one-on-one consulting work with writers, reviewing their work at home and then setting convenient meeting times (that’s even easier now, with meetings happening virtually).

The current climate is difficult because the economy was closed for so long, but it’s also a good time for patients like myself with unique scheduling needs because so many jobs have shifted to work-from-home. Therefore, you may now be able to find part-time work that offers a more flexible schedule than it previously did.

Moreover, I recently learned about Chronically Capable, an employment platform that aims to connect chronically ill patients with remote work-from-home jobs. I have no personal connection to or experience with this platform, but you might want to check it out. It’s important to think about what you can do and what skills you have to offer, instead of worrying about what you can’t do.

That said, working while chronically ill is not easy. You may not be able to cover all of your expenses. To address that Global Lyme Alliance has put together afinancial resource pagewhere you can find information on federal and state assistance programs and other resources.


jennifer crystal_2

Opinions expressed by contributors are their own.

Jennifer Crystal is a writer and educator in Boston. Her memoir about her medical journey is forthcoming. Contact her at lymewarriorjennifercrystal@gmail.com.

 

 

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**Comment**

Fantastically practical post.

From experience I can also attest to the importance of persistence with treatment.  NEVER, EVER QUIT!  You need to be as, if not more persistent than the organisms who have invaded your body.

While it’s true that there can be blow-back that causes issues that you may not be able to change, by and large, treatment ameliorates most if not all symptoms.  Sometimes it’s as simple as finding the right drug.  Other times it’s as simple as finding the right adjunctive therapies and supplements that take away the remaining symptoms after treatment.

For me personally those things include:

Many of these supplements were determined after blood tests showed I was deficient; however, some were just found through trial and error.  One word of warning: be careful you don’t try too many things simultaneously as you won’t be able to determine if a singular thing is helping you or not.  Supplements cost money and you want to make sure it’s something you need because it’s an investment.