‘I Know, Without a Doubt, That I Have Lyme’

May 5, 2023

https://www.thesudburystar.com/news/local-news/i-know-without-a-doubt-that-i-have-lyme

‘I know, without a doubt, that I have Lyme’

However, doctors in Ontario have not diagnosed her with the disease, so Sudbury woman can’t get treatment
Jim Moodie
Published Aug 21, 2020
Sharon Rines, of Sudbury, Ont., said she has been diagnosed with Lyme Disease.
Sharon Rines, of Sudbury, Ont., said she has been diagnosed with Lyme Disease. John Lappa/Sudbury Star
“Whoever thought taking a shower could be so hard?” she said. “I even have trouble brushing my teeth.”The 60-year-old Flour Mill resident has lost most of her muscle mass and dropped nearly half her weight. 

“I’m scared because I’m 97 pounds, if that, where I used to be 170,” she said. “I look like a skeleton and I’m in bed a lot. I can’t go out of my house now because I can’t even lift my legs off the couch.”

Rines is certain she has Lyme disease, even if doctors in this province haven’t so far agreed.

“I got tested three times in Ontario, but it was negative each time,” she said. “And they won’t recognize Lyme here unless you are diagnosed with it.”

That means Rines has not been prescribed any treatment — antibiotics are the usual way to combat Lyme if the disease is caught early, although their effectiveness later is questionable — and will not be covered by public health insurance for any care she seeks out on her own.
“I’m fighting for my life, and can’t get help to get me on the right path,” she said. “I live on a pension so financially it’s hard.”
(See link for article)

______________

**Comment**

Current testing for Lyme is abysmal and many are seronegative.  This is fact, plain and simple.

Since testing is atrocious you would think that by now there would be more emphasis on symptomology and the need for doctor education, but this isn’t happening because it’s a politicalized disease like COVID.  Patients are the ones who suffer the most.

Your best bet for proper diagnosis and successful treatment is STILL getting to a Lyme literate doctor.

Category:

Activism, Lyme

Comments Off on ‘I Know, Without a Doubt, That I Have Lyme’

%d bloggers like this: