Why Does the CDC Refuse to Recognize the Disabling Stage of Lyme?

June 22, 2022

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/30673922?

Question for Dr. Dennis M. Dixon: Why does the CDC refuse to recognize the disabling stage of Lyme

Carl Tuttle

Hudson, NH, United States

Jun 19, 2022 — 

Latest email to the Federal Tick-Borne Disease Working Group. Why not ask Dr. Dennis Dixon to answer the question: “Why does the CDC refuse to recognize the disabling stage of Lyme disease?” 

Dennis.Dixon1@nih.hhs.gov

———- Original Message ———-

From: CARL TUTTLE <runagain@comcast.net>
To: “Dennis.Dixon1@nih.hhs.gov” <Dennis.Dixon1@nih.hhs.gov>
Cc: All Members of the TBDWG
Date: 06/18/2022 9:03 AM
Subject: Question for Dr. Dennis M. Dixon: Why does the CDC refuse to recognize the disabling stage of Lyme disease?

June 18, 2022

Dennis M. Dixon, Ph.D.
Chief, Bacteriology and Mycology Branch
National Institute of Allergy and Infectious Diseases (NIAID)
National Institutes of Health (NIH)
U.S. Department of Health and Human Services

Dear Dr. Dixon,

In 2020 I was appointed to a Lyme Disease Study Commission here in New Hampshire with a focus on serology. During that 12mo study, we heard testimony from numerous Lyme patients including Ashley Lynch who testified from her wheelchair. [1]

–Fifth-grade teacher and Lyme patient Kelly Downing from Nashua NH was paralyzed from the neck down and interviewed by Katie Couric. [2]

-Dr. Neil Spector from Duke University required a heart transplant after his Lyme disease went undiagnosed for many years. [3]

-Julia Bruzzese who has been confined to a wheelchair since being diagnosed with Lyme disease said meeting Pope Francis as he arrived in New York was “the most precious moment of my life.” [4]

–Nicole Bell lost her husband to undiagnosed Lyme disease as reported to Today.com on June 1st. [5]

This is just a short list of the horror patients experience all across America!

Question: Why does the CDC refuse to recognize the disabling stage of Lyme disease? [6]

Since you seem to believe that the Lyme science is settled, referring to the Klempner antibiotic trials, perhaps at the next meeting you could explain to the Working Group how Lyme disease disables its victim?

A response to this inquiry is requested.

Respectfully submitted,

Carl Tuttle
Hudson, NH

PS. The NH Lyme Study Commission concluded that serology to detect Lyme disease is unreliable in all stages of disease. 
http://www.gencourt.state.nh.us/statstudcomm/committees/1515/reports/RSA%20141-C%20Lyme%20Commission%20Study.pdf

References:

1. Ashley Lynch who testified from her wheelchair
https://rumble.com/vmyzi9-nh-commission-to-study-testing-for-lyme-and-other-tick-borne-diseases-08.23.html

2. Nashua Mom in the ‘Lyme Light’ on Katie Couric Show
http://patch.com/new-hampshire/nashua/nashua-mom-talks-chronic-lyme-on-katie-couric-show

3. Professor Neil Spector: Duke physician uses near-death experience to encourage patient self-advocacy
https://www.dukechronicle.com/article/2015/05/duke-physician-uses-near-death-experience-encourage-patient-self-advocacy

4. Wheelchair-Bound Girl Calls Blessing By Pope Francis ‘Most Precious Moment Of My Life’ 
http://newyork.cbslocal.com/2015/09/24/pope-francis-blesses-girl-in-wheelchair/

5. It started with a tick bite. How I lost my husband to undiagnosed Lyme disease
https://www.yahoo.com/now/started-tick-bite-lost-husband-140124817.html

6. 10 tips for Lyme disability insurance claims
https://www.lymedisease.org/lyme-disability-insurance-claims

__________________

For more on the corrupt CDC:

Category:

Activism, Lyme, Uncategorized

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