https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/29099359?

Lyme Disease Updates and New Educational Tools for Clinicians

MAY 23, 2021 — 

Please see the letter below sent to CDC Epidemiologist Dr. Grace Marx prior to her scheduled presentation on May 21st. After reviewing her presentation/slides, it appears that nothing has changed and I will post a  critique of her PowerPoint presentation tomorrow which will clearly show that our public health officials are lying to us.

Dr. Marx contact info: (photo is from this link)

https://www.eventscribe.com/2019/IDWeek/ajaxcalls/AccountInfo.asp?efp=Q0NRVktHSkw2ODg2&userShareID=36678593&rnd=0.8305856

———- Original Message ———-

From: CARL TUTTLE <runagain@comcast.net>
To: “lwx1@cdc.gov” <lwx1@cdc.gov>, “coca@cdc.gov” <coca@cdc.gov>
Cc: All members of the NH Lyme Disease Study Commission, governorsununu@nh.gov” <governorsununu@nh.gov>
Date: 05/19/2021 1:20 PM
Subject: Lyme Disease Updates and New Educational Tools for Clinicians

Lyme Disease Updates and New Educational Tools for Clinicians
https://emergency.cdc.gov/coca/calls/2021/callinfo_052021.asp

During this COCA Call, presenters will review updates in Lyme disease epidemiology, diagnosis, treatment, and prevention and share new educational tools for both healthcare providers and their patients.

“Planners have reviewed content to ensure there is no bias.”

May 19, 2021

Grace Marx, MD, MPH
LCDR, U.S. Public Health Service
Medical Epidemiologist, Bacterial Diseases Branch
Division of Vector-Borne Diseases
Centers for Disease Control and Prevention

Dear Dr. Marx,

As a member of the New Hampshire Lyme Disease Study Commission appointed by Governor Chris Sununu, I have some concerns/questions regarding your upcoming presentation.

If there is to be no “bias” in your presentation does that mean that the CDC will finally recognize persistent infection after extensive antibiotic treatment? Please take a moment to read my letter to the editor published in the BMJ as I have identified seven documented cases of treatment failure; there are actually hundreds.

Letter to the editor of the BMJ
 
Lyme borreliosis: diagnosis and management
https://www.bmj.com/content/369/bmj.m1041/rr-1

Dr. Marx… will you be sharing the following facts/references with the intended audience?

1. It takes 4-6 weeks for humans to fully develop both IgM and IgG antibodies to Lyme disease in order to produce a positive Western blot test result. [1]

2. Treatment delay of over thirty days often leads to Chronic Lyme Disease. [2]

3. Bulls-eye rash has been recorded in less than 50% as reported by the State of Maine Department of Health. [3]

4. Seronegative disease has been identified [4] (no antibody production to infection producing a false negative lab result)

5. You can become horribly disabled or die [5] from Lyme disease and routinely denied Social Security Disability Compensation.

6. 35% of acute Lyme disease patients (21out of 63) who were treated with the IDSA’s short course of antibiotics were found to meet the case definition of “Post Lyme Disease Syndrome” at six months. (Johns Hopkins) [6]

7. Single dose Doxycycline after tick bite as prophylaxis against Lyme disease failed 80% of the time in the mouse model so why would this be recommended in humans? [7]

8. There are hundreds of references to failed treatment of the one-size-fits-all IDSA Lyme treatment guideline. [8]

9. Congenital transmission of Lyme disease has been identified dating back to 1985 [9]

I want to make this perfectly clear Dr. Marx; The current dogma propagated for the last thirty years has misguided an entire medical community and misclassified Lyme as a simple nuisance disease; “hard to catch and easily treated.” [10]  Take a moment and read the public comments from the Tick-Borne Disease Working Group website and you’ll see that we have a public health crisis on our hands with hundreds of thousands (if not millions worldwide) left in a debilitated state. The deliberate bias against persistent infection after extensive antibiotic treatment is 100% responsible for this unimaginable pain and suffering.

Will your presentation continue on this path of deception and omit the facts/references I have provided?

A response to this inquiry is requested. Please hit reply-all.

Respectfully Submitted,
Carl Tuttle
Hudson, NH

Cc: All members of the NH Lyme Study Commission

Governor Chris Sununu

When “evidence-based medicine” has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science? -Carl Tuttle

References: Please read them!

1. Notice to Readers Recommendations for Test Performance and Interpretation from the Second National Conference on Serologic Diagnosis of Lyme Disease

https://www.cdc.gov/mmwr/preview/mmwrhtml/00038469.htm

2. Treatment Delays Increase Risk of Persistent Illness in Lyme Disease
https://www.hopkinslyme.org/news/treatment-delays-increase-risk-of-persistent-illness-in-lyme-disease/

3. State of Maine Department of Health has been tracking incidence of rash and found an average of under 50% for the four years listed below:

2011 42%

http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/2011-lyme-legislature.pdf

2012 49%

http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/2012-lyme-legislature.pdf

2013 51%

http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/2013-lyme-legislature.pdf

2014 57%

http://www.maine.gov/dhhs/mecdc/infectious-disease/epi/vector-borne/lyme/documents/2014-lyme-legislature.pdf

4. Seronegativity in Lyme borreliosis and Other Spirochetal Infections 16 September 2003
 
https://www.dropbox.com/s/3d6m45jzlhhwalu/Seronegativity.pdf?dl=0

5. Deaths From Lyme Disease Compiled by: John D. Scott, Research Scientist 17 April 2018

https://www.dropbox.com/s/eo794dx7zspc1ln/Ld%20deaths.doc?dl=0
 
6. Post-treatment Lyme disease syndrome symptomatology and the impact on life functioning: is there something here?

http://www.lymemd.org/pdf/aucott_et_al_qol_research.pdf

7. A sustained-release formulation of doxycycline hyclate (Atridox) prevents simultaneous infection of Anaplasma phagocytophilum and Borrelia burgdorferi transmitted by tick bite

https://www.dropbox.com/s/jc0h9g9arjhc8l1/Zeidner%202008.pdf?dl=0

8. 700 articles LYME Evidence of Persistence-V2

https://www.dropbox.com/s/n09sk90eo6xz7ua/700%20articles%20LYME%20EvidenceofPersistence-V2.pdf?dl=0

9. Congenital Transmission of Lyme

https://www.dropbox.com/s/xlju8w25phkypy0/Congenital%20Transmission%20of%20Lyme.pdf?dl=0

10. Lyme Disease Is Hard to Catch And Easy to Halt, Study Finds

New York Times By GINA KOLATA Published: June 13, 2001

http://www.nytimes.com/2001/06/13/us/lyme-disease-is-hard-to-catch-and-easy-to-halt-study-finds.html