The following article by demonstrates what parents of children with Lyme/MSIDS have known for a long time: authorities harass parental efforts to get their children diagnosed and treated.  Due to the polarity in the medical community about this complex illness, medical authorities have been abusing Lyme/MSIDS patients for decades.

Parents are often told by the mainstream medical community that they have Munchausen by proxy, a psychological disorder marked by attention-seeking behavior by a caregiver through those who are in their care.  Children having a difficult time in school are told they are “lazy,” or “bored”and they just need to buckle down and work harder.

In other words – parents and children with TBI’s are frequently told they are just making up symptoms to get attention.  

Here’s a great example:

And here we see how Dutch parents with infected children are being accused of child abuse:

Misdiagnosis is common:

Children are being denied diagnosis and treatment: Excerpt:  

Local Arkansas woman, Alarie Bowerman, recently pulled more than 20 ticks off her three children after a girl scout trip.

“They had the classic symptoms, they had the bulls eye rash, they had the joint pain, they had fevers and had flu like symptoms, yet we were denied treatment for at least two of them and I don’t understand how this is legal,” said Bowerman.

Two of the girls have a positive test result for Lyme Disease taken at Northwest Arkansas Pediatric Clinic, but the clinic told Bowerman it was likely a false positive and referred her to the Arkansas Department of Health.

According to Dr. Naveen Patil, Director of the Infectious Disease Program, ADH,  “We don’t have Lyme Disease in Arkansas, we have the ticks that transmit Lyme Disease but we don’t have any recorded cases of Lyme Disease.” 


Shining the Light on Child Services

The Pardo family in Texas was finally reunited after several months, all accusations against the parents dropped. (They had been accused of seeking medical care their 4-year-old didn’t need, though the court would later find that every treatment he ever received had been prescribed by his attending physicians.)

A group in Minnesota is currently working out a settlement in a class action lawsuit against Hennepin County to correct unjust practices in the county’s Child Protection System.

And in Illinois another group of parents are advancing a lawsuit of their own against a hospital where babies were taken away and given the vitamin K shot without the parents’ approval, even though state law guarantees to parents the right to make that decision.

Such is the trend in America today: more and more eyes are being opened to the improper handling of children through the violation of parental rights. More and more people are taking a stand to demand the changes that need to be made.

The system has been broken for decades, but its dysfunction has been hidden in shadows. Things begin to change when more and more light reaches those recesses.

This year was’s twelfth year in being a huge part of shining that light.

In the first half of the year we coordinated with a bipartisan coalition and proposed real changes to Congress that could be employed through the reauthorization of the Child Abuse Prevention and Treatment Act, or CAPTA.

Congress has so far failed to pass any meaningful change, but in the process we fine-tuned what it is we’re looking for, and discovered additional ways to go after it.

So over the summer we started drafting model state statutes that could have the same effect, a state at a time.

In the last quarter, we finalized that language in preparation for the 2020 legislative sessions.

In the last month, we spoke with lawmakers interested in prefiling these parental rights bills.

In the last two weeks, our president attended the policy summit of the American Legislative Exchange Council (ALEC) to present our concerns and encourage state lawmakers to take a stance protecting families. His presentation has resulted in new contacts—new state lawmakers looking to take up our ideas.

Now, even as things wind down for the holidays, we are gearing up for the legislative session coming in January. States like Colorado, South Dakota, Kentucky, and Florida will be taking up bills to protect parental rights and save children from unnecessary intrusion and trauma.

Thank you for standing with us throughout 2019, and for continuing the journey together in 2020.

Together we are shining a light and making a difference!


Michael Ramey

Executive Director


For more on the abuse of parental rights:


Right here in the U.S., the family of Justina Pelletier found that out the hard way in 2014 when the state of Massachusetts took Justina from them and placed her in the custody of Boston Children’s Hospital. Doctors there were free to enroll her in clinical trials (without parental consent) for the somatoform disorder diagnosis they had given her, rather than continuing the treatment for Mitochondrial disease that her parents and doctors at Tufts Medical Center had been following. After public outrage following her parents going public, Justina was finally returned to her parents 16 months later, in much worse condition than when she was taken away. Her story reemerged in 2016 as the family filed suit in federal court against the state and the hospital who so severely injured their daughter.

Isaiah Rider of Missouri was also taken by the state over a disagreement regarding his treatment. He was finally released by the state of Illinois who had been granted custody (though he was never a resident of the state until he went into foster care) when Lurie Children’s Hospital (Chicago) doctors decided they knew better than his mom. While in foster care, Rider suffered sexual assault. He was finally returned to the custody of his grandparents in his home state, but wasn’t fully released from Illinois care until June of 2016, months after his 18th birthday!

As sad as it sounds, though, the Riders and the Pelletiers are the lucky ones.

A family in New York found themselves facing allegations of child abuse after their infant died at the hands of New York doctors, according to a lawsuit filed last year. The suit alleges that the Long Island infant was pumped full of a “cornucopia of drugs,” including Propofol, “the powerful sedative linked to Michael Jackson’s death” according to a NY Post article. As the baby lay dying, Suffolk County social workers and a “pediatric child abuse specialist” were accusing the parents of shaking her to death, a charge the parents contend was fabricated to cover up the hospital’s own serious errors in the child’s treatment. The couple’s two older children were taken from their care, but returned after two autopsies of the baby showed no signs of criminality. The child protection agency kept its case open for 11 long months, and is now a codefendant in the suit.

In the medical sub-category of psychotropic drugs, parental rights have seen a slight improvement. Though most psychotropic drugs are not approved by the FDA for use by adolescents, many localities have nevertheless required their prescription to students who misbehave in school. Maryanne Godboldo of Detroit made national headlines 3 years ago when she barricaded herself and her daughter in her apartment and refused to let the city force her 13-year-old to receive Risperdol. The ensuing standoff brought out the SWAT team, a tank, and the national news.  Maryanne’s own case was finally resolved this year when charges – which had been filed or appealed 5 separate times – were finally dropped. Sadly, they were dropped only because Godboldo suffered a massive aneurysm and is not expected to recover from her current comatose state.

If you think these are isolated accounts – think again.  This is happening in every state in the U.S. as well as abroad. proposed Parental Rights Amendment to the U.S. Constitution (PRA) would provide that “the liberty of parents to direct the upbringing, education, and care of their children is a fundamental right.” By setting a firm constitutional standard to protect these rights, the amendment would provide clear direction for courts, doctors, child welfare workers, and other government officials. Racial bias would diminish as fewer cases are left to the discretion of a judge or other state agent.  Another provision of the proposed Amendment would protect the rights of persons with disabilities.  The proposal states, “The parental rights guaranteed by this article shall not be denied or abridged on account of disability.”







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