Why patients are caught in the battle over treating chronic Lyme disease

Medical experts and guidelines divided over chronic or post-treatment Lyme disease syndrome

September 20, 2019

CBC Radio ·

jane-baileyJane Bailey, a Nova Scotia woman who had to leave Canada to get treatment in the U.S., is part of a vocal patient movement that’s demanding more recognition of chronic Lyme disease. (Submitted by Jane Bailey)

For much of her life, Jane Bailey was in peak physical condition. But that all changed in the summer of 2013, when a tick made a temporary home inside her ear canal.

“It was in there for three-and-a-half days,” she recalled. By the time she got it removed, “it was the size of a kidney bean.”

The 48-year-old Nova Scotian biology teacher with a military background is convinced she’s been suffering from persistent symptoms of Lyme disease ever since.

A month after her vacation, she began to experience fatigue, joint pains and heart palpitations. She couldn’t sleep and had trouble remembering names.

 I was skeletal … and all my muscles were atrophying.– Jane Bailey

For more:  https://www-cbc-ca.cdn.ampproject.org/c/s/www.cbc.ca  This is a lengthy article explaining the Lyme Wars and also has numerous audio interviews.  Very good, in-depth coverage.